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Support thread for women who suspect or know they have ASD traits or are on the spectrum

999 replies

OxfordBags · 03/02/2014 20:49

Hello, all! As the title says, I hope this can be a support thread for those of us who suspect or know we have some (or many) Aspergic traits; where we can share experiences, stories, problems, worries, knowledge and info, and hopefully benefit and help each other too.

I found a great link a while ago that is very comprehensive in its description of how Asperger's presents in women and how women experience it. Some of it is strikingly different from the male model and how most people perceive Asperger's. Here: ASD in women

I truly believe two things: 1) that ASD in females is woefully misunderstood and under-diagnosed and 2) that our current understanding and the definition of the AS Spectrum is, in itself, rather ASD in its rigidity, and that there is an actual spectrum of traits much broader and more nuanced than the current model, and that there are a hell of a lot of people struggling with some very typical ASD traits, who nevertheless do not have all the traits required to fulfil a formal diagnosis of having Asperger's or High-Functioning Autism.

So, with that rather typically ASD-style long-winded and unnecessarily detailed intro out of the way, let's chat!

OP posts:
Mollyweasley · 19/05/2014 10:01

tweedle, I would really think that CBT can not hurt, so I would grab these sessions while I have them!! I read this www.amazon.co.uk/Aspergers-Syndrome-Mindfulness-Taking-Refuge/dp/1843106868 and this www.amazon.co.uk/How-Happiness-Practical-Guide-Getting/dp/0749952466/ref=sr_1_1?s=books&ie=UTF8&qid=1400489862&sr=1-1&keywords=the+how+of+happiness. They were both recommended by Gary Mesibov (one of the founder of the TEACCH program). I found them really useful, the first one helps moving on from ill-feelings from the past and the second is all about focusing on what makes you happy.

ShutUpShouty · 19/05/2014 23:43

I'm probably coming into this very late but I have an appointment with my GP next week to see about getting a referral for an assessment. Hopefully I'll be taken seriously and won't be turned away.

I've had suspicions that I might be on the spectrum for years to be honest however it was only within the last couple of years when I found out how females often present differently to males on the spectrum that I became 99.9% sure that I have AS. All the articles, interviews, etc about females on the spectrum just seem to describe me pretty much down to the last detail.

I posted this on another thread but I'll re-post this here, pretty much why I think I'm on the spectrum, it's mostly the main points I've expanded on and I've added a couple more points but here it goes:

*Social situations - I've always struggled big time with social situations. It may seem odd but I don't 'get' social niceties that other people seem to have no problem with. I don't always know when it's my turn to speak or what is appropriate to say and I will often just blurt out the first thing that comes into my head and go on about it for ages without actually realising that other people are getting fed up of me.

*I've been told that I'm emotionally cold before. I find it hard to express emotions, for instance when talking about a serious issue such as death I can never express how I feel and I've been told I come across as emotionally cold and uncaring because of this. I find it very hard to express a lot of emotions actually, not just empathy but also happiness. People have told me that they have a hard time 'reading' me because I'm so emotionally closed off and I've been told that nobody can actually tell whether I'm happy or not, even when I am, because I just honestly don't know how to show it.

*I'm quite daydreamy and away with the fairies a lot of the time - I'll often randomly drift off into a daydream and get a spaced out look on my face without realising it.

*I like routine and I have a basic routine which I stick to all the time and if it gets interrupted or has to change for some reason I get upset and teary. I've even had panic attacks before when my routine has been disturbed.

*Obsessions - I've always went through phases where I will become fixated on a particular topic for a long period of time. These can be anything from 'normal' and socially acceptable things such as TV shows and celebrities to 'weird' things such as lists and numbers. When I become fixated on that topic it is literally all I think about and I will want to research whatever the topic is and gather every piece of information I can about it. I will also want to talk about it constantly and want to read/watch whatever it is I'm fixated on at the time over and over again. Right now I'm obsessed with the X Files and am constantly thinking about it, scouring the web for information, interviews, fan fiction, etc on it and am also watching episodes non stop on repeat. Again if I can't do this then I get upset.

*Sensory issues - I hate being touched, hate hugs and yes I hate sex and other intimate things like that such as kissing. I just can't stand having someone that physically close to me, it makes me cringe. Of course I do these things because I feel I have to but I hate every second of it. I'm also very sensitive to noise, loud noises especially seem to grate right through me. As a kid I hated things like parties and the like because all the noise would be too much for me and I'm still like that today - I hate nightclubs because of the noise and the lights, it's just too much for me.

*I'm also very sensitive to food and have a very limited diet because of this. You could say I'm a very fussy eater but it's because certain foods feel horrible in my mouth and I can't stand them being there. I know some people find adults who are fussy eaters a pain but I honestly can't help it. The texture of so many foods is just horrible to me and makes me gag. I'm even very sensitive to the smell of lots of food - someone could be eating a banana in another room without me realising it but I'll be gagging from the smell of it.

*Tics - this is embarrassing but I've always had the annoying habit of having to clap or flap my hands repeatably Blush. I do this when stressed or very happy but I always go somewhere private to do it. Again I always feel like I 'need' to do this to get it out of my system. Another tic I have is bouncing - again embarrassing to do that as an adult but I do this again when happy and I 'need' to do this.

Those are the main things that spring to mind, however the more I read about females on the spectrum (even though I've been told that's a bad idea) the more I notice little things as well that fit me. I struggle in work situations and struggle to hold down jobs often not even making it past the probationary period, I burn bridges, I will often cry and have a 'meltdown' because of emotional overload and will do this any place including in public...honestly like I said in another thread those are just small snapshots of why I'm convinced I'm on the spectrum. If I was to write down every last detail and expand on those details of why I think I'm on the spectrum it would be a bloody very long winded essay.

ShutUpShouty · 20/05/2014 00:08

Sorry that was very long Blush

IAmTheGodOfTitsAndWine · 20/05/2014 00:35

It wasn't that long, Shouty. It was readable - you did paragraphs. Smile i hope your request for an assessment goes well. I have a lot of the traits you've described too. Well... I suppose everyone in here does, heh.

lougle · 22/05/2014 10:27

I didn't like the RAADS (score 102) - the questions were too extreme so I had to answer 'no' because I couldn't commit to the exact wording of the question, so couldn't say 'yes', but then I felt that I was also lying by saying 'no' because the correct answer was 'a bit' or 'quite a lot of the time' or 'in some situations'. Or the wording was 'I can get very upset or confused' and actually I feel 'put out and frustrated.'

The AQ gave me a score of 33.
The SQ gave me a score of 106. Shock
The EQ gave me a score of 40.

HoleySocksBatman · 22/05/2014 12:27

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PolterGoose · 22/05/2014 12:53

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Mollyweasley · 22/05/2014 20:24

Poor you holey! I react stongly to the contraceptive pill, it makes me really depressed and moody!
I was wondering something. When I spend an afternoon chatting and drinking coffee/ tea with a friend (even close friend or family member), I start to feel ill after about 30 min and by the end of the afternoon, I feel sick, the whole atmosphere of the room has changed, it became heavy and oppressing and I also feel dizzy (the feeling is hard for me to describe and not sure what it is called!) Does anybody experiences this, if yes how do you manage it? Do you thing it is an asd thing?

PolterGoose · 22/05/2014 20:39

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lougle · 22/05/2014 20:55

I'm really sensitive to drugs too! In fact there was a migraine treatment I wanted to try and my doctor said 'I wouldn't really want you to try that because there is a practically miniscule chance of it causing drastic sodium imbalance and cardiac arrest, but knowing you you'd be that one in a million.'

I don't drink coffee, am teetotal (even a little makes me quite woozy).

Pseudo ephedrine (night nurse, etc) had such an effect that after one dose I couldn't walk properly 12 hours later so I had to have my mum drive me to the doctor.

CaisleanDraiochta · 23/05/2014 02:33

I've just read through all of this thread after hearing about it on another (Shouty's AIBU) and I've noticed quite a few familiar names.

I have a diagnosis of Autistic Spectrum Disorder- Asperger's Syndrome. I'm not sure I can help much with the diagnostic process as i was mainly unaware that I was on that pathway, until after it was complete, so can only view it with retrospect really.

Quite a few things on here sound similar to me though, including re DC. I have recently begun to realise that both my two are probably on the autistic spectrum also, but i have overlooked the signs as they are just 'normal' in our family.

HoleySocksBatman · 23/05/2014 08:27

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HoleySocksBatman · 23/05/2014 08:38

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PolterGoose · 23/05/2014 09:37

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HoleySocksBatman · 23/05/2014 09:49

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PolterGoose · 23/05/2014 09:55

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HoleySocksBatman · 23/05/2014 11:41

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Mollyweasley · 23/05/2014 12:18

thanks holey- I did wonder if they were panic attacks. I am terrible with feelings so not sure what is what! However apart from avoiding the situation or keeping it under 20 mins (which seems to be my threshold) , I don't think that there is much I can do about it- Do you think it is sensory, combined with exhaustion from over thinking while talking that leads to a panic attack? (sorry I am mixing my conversation with the med/seizure: BTW what does a seizure feels/looks like?)

Meglet · 23/05/2014 12:22

Just checking in.

HoleySocksBatman · 23/05/2014 12:22

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HoleySocksBatman · 23/05/2014 12:24

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HoleySocksBatman · 25/05/2014 20:09

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tacal · 25/05/2014 20:41

Hello, I haven't read through the whole thread yet, but just want to say hi before I do. I have my autism assessment in two weeks time so need to prepare for it. It will be two people asking me questions for 90 mins. Feeling a bit nervous about it.

I am away to read the thread. I hope you are all having a good weekend.

Meglet · 25/05/2014 20:48

We're having a 'meh' weekend. I'm trying to shake off a snotty virus that's been lingering for a couple of weeks. So a rare day at home for me today, it's done me the world of good though. The cough has gone at last. Mum took the dc's out because they were running riot playing up, so they got some sunshine.

I've got to work in the week. We might have a day out next saturday though, depends on the weather.

Mum has bribed DD to stay in bed with the promise of a Build a Bear. We're that desperate.

HoleySocksBatman · 25/05/2014 20:51

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