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See all MNHQ comments on this thread

MNHQ here: should Mumsnet sign up as a member of a new campaign on children with disabilities?

343 replies

RowanMumsnet · 09/08/2016 09:32

Hello

Mumsnet's been asked whether we want to sign up long-term as a supporter of the newly launched Disabled Children's Partnership. So, as ever with these things, we said we'd ask what our users thought.

Here's what the DCP has to say about itself:

"The Disabled Children’s Partnership (DCP) is an exciting new collaboration between 25 disability and children’s charities (listed below). As charities we have come together in the shared belief that health and social care services can and must be better if disabled children, young people and families are to get the support they need to enhance their life chances. The partnership was founded in 2015 to build on the excellent work of the Every Disabled Child Matters campaign."

"The partnership will work with disabled young people and their families to launch a major new campaign in England in 2017. The campaign will set out to challenge the political status quo and proactively raise the profile of the challenges that so many disabled children, young people and families face."

"The concerns, experiences and stories of disabled children, young people and their families will be at the forefront of the campaign, and therefore need to shape its development."

"Members Steering Group
· Action for Children
· Contact a Family (Chair)
· Mencap (Secretariat)
· National Autistic Society
· National Children’s Bureau
· Sense (Treasurer)
· Scope
· The Children’s Trust
· The Family Fund
· Together for Short Lives
· Well Child
Supporters
· Carers UK
· Carers Trust
· NDCS
· Ambitious About Autism
· Disability Challengers
· Working Families
· Whizz Kids
· Family and Childcare Trust
· Blind Children UK
· Rainbow Trust
· I CAN
· The Communications Trust
· The Seashell Trust"

We here at MNHQ think this looks like a good way to maximise campaigning impact on health and social care issues - but of course as ever we want to know what you think, so please do tell us whether you think we should sign up.

Thanks

OP posts:
Jasonandyawegunorts · 17/08/2016 08:16

Sad sadly i think so.

hazeyjane · 17/08/2016 08:42

As well as the who king labelling thread, the thread about the child abuse case (with the comments about parents using ASD/adhd as an excuse for their crap parenting, and people using the term 'undiagnosed xxxxx' being wrong) and this now rather laughable thread about MNHQ getting involved with a major disabilty campaign, I just feel a bit worn out by the general all pervading attitude of parenting perfection, as though if we can't meet this parenting standard we are just dregs, and if you dare to bring up your child with disabilities on a thread about older children in nappies, noisy children, children unable to queue etc, then you are the sn brigade.

Just tired of it all really, but would miss the handful of funny, wise, daft and lovely posters I have met here. Anyone fancy starting a forum?!

hazeyjane · 17/08/2016 08:44

I have no idea what the 'who king' labelling thread is. My kindle hates me.

BeyondLovesSweetDee · 17/08/2016 08:45

Fucking? Grin

Jasonandyawegunorts · 17/08/2016 08:47

I have no idea what the 'who king' labelling thread is

Could it be Roger Daltrey sticking price tags on clothes?

hazeyjane · 17/08/2016 08:53

But Keith Moon was the king of The Who surely!! (and there was a man who defied all labels!)

I might try out substituting fucking hell with 'whoking hell' today and see if the DC pick up on it.

Jasonandyawegunorts · 17/08/2016 08:54

Forking Hell and Barstool
Are good ones to switch.

Bloopbleep · 17/08/2016 09:52

I think there's a huge amount of hypocrisy if MN sign up to a campaign for disabled children while allowing disablist posts to stand and expecting disabled people to be responsible for defending their existence and diagnoses while educating people too ignorant to listen to lived experiences about why we should be allowed to direct the conversations about us ourselves. So No. Bad idea.

PolterGoose · 17/08/2016 09:55

This reply has been deleted

Message withdrawn at poster's request.

BeyondLovesSweetDee · 17/08/2016 10:04

The labelling thread has, just this second, been deleted

BeyondLovesSweetDee · 17/08/2016 10:04

"At the OPs request"

BeyondLovesSweetDee · 17/08/2016 10:05

No further comment from hq before it went.

veryproudvolleyballmum · 17/08/2016 10:08

This reply has been deleted

Message withdrawn at poster's request.

PolterGoose · 17/08/2016 10:08

This reply has been deleted

Message withdrawn at poster's request.

hazeyjane · 17/08/2016 10:11

Very disappointing.

I expect there will be a 'whoops' message from MNHQ, or not. I am starting not to care tbh.

OneInEight · 17/08/2016 10:11

I think this is a typical making you feel you have taken action when actually you haven't done anything kind of thing. . I guess it won't do any harm to sign up but am not expecting it to bring any benefit either.

BeyondLovesSweetDee · 17/08/2016 10:15

Slacktivism, oneineight

Is that how you want to be known, hq? For being all talk, no action?

2boysnamedR · 17/08/2016 10:30

Jason totally agree with you. I used to post on MNSN weekly ad give back for the support I had on my sons tribunal.

But for now I feel safer posting on FB groups where people have a face and can't just post anything that pops into their head.

SEN is quite emotive when your life in entrenched in it. People post without any respect sometimes.

RL is hard enough. I can't swicth that off. Coming here is a choice though

Jasonandyawegunorts · 17/08/2016 10:36

Is anyone suprised at the deletion message, i'm not?

now this little incident will be nicely white washed from history.

but to paraphrase mumsnets stance on the last thread: Hate speech is fine as long as it's aimed at neurological / invisible disabilities rather than real one that are diagnosed from birth.

fanjoforthemammaries7850 · 17/08/2016 10:40

Yes..threads are only usually deleted at OPs request to protect privacy.

Seems an easy way to avoid answering the many questions on that thread.

I think we deserve better than that.

Jasonandyawegunorts · 17/08/2016 10:43

Most children with a diagnoses (ASD / ADHD ODD) are just horrible children, only minority will actually have a disability.

This hate speech was allowed to stand, even though hate speech is against the law!

The same law that makes posting similar things about race illegal!

It's your job MNHQ to deal with these posters. Leaving things like this up and expecting the very people this abuse is aimed at to educate is disgusting!

WE ARE TIRED OF THIS!

EverySongbirdSays · 17/08/2016 12:35

They normally make a point of saying they WON'T delete a thread upon request just because the OP feels they made a bit of a cunt of themselves - in a you asked and now you've been told way

EverySongbirdSays · 17/08/2016 12:46

Prior to that thread and the sauna one my Mumsnet Shitlist Of Posters To Be Avoided had one name - now it's got about 10

veryproudvolleyballmum · 17/08/2016 12:48

This reply has been deleted

Message withdrawn at poster's request.

BeyondLovesSweetDee · 17/08/2016 12:53

"Aibu to not want to be stared at by an autistic boy while I am relaxing and his feckless mother has just buggered off and left him here"

Swipe left for the next trending thread