MNHQ here: should Mumsnet sign up as a member of a new campaign on children with disabilities?

[RowanMumsnet]

Hello

Mumsnet's been asked whether we want to sign up long-term as a supporter of the newly launched Disabled Children's Partnership. So, as ever with these things, we said we'd ask what our users thought.

Here's what the DCP has to say about itself:

"The Disabled Children’s Partnership (DCP) is an exciting new collaboration between 25 disability and children’s charities (listed below). As charities we have come together in the shared belief that health and social care services can and must be better if disabled children, young people and families are to get the support they need to enhance their life chances. The partnership was founded in 2015 to build on the excellent work of the Every Disabled Child Matters campaign."

"The partnership will work with disabled young people and their families to launch a major new campaign in England in 2017. The campaign will set out to challenge the political status quo and proactively raise the profile of the challenges that so many disabled children, young people and families face."

"The concerns, experiences and stories of disabled children, young people and their families will be at the forefront of the campaign, and therefore need to shape its development."

"Members Steering Group
· Action for Children
· Contact a Family (Chair)
· Mencap (Secretariat)
· National Autistic Society
· National Children’s Bureau
· Sense (Treasurer)
· Scope
· The Children’s Trust
· The Family Fund
· Together for Short Lives
· Well Child
Supporters
· Carers UK
· Carers Trust
· NDCS
· Ambitious About Autism
· Disability Challengers
· Working Families
· Whizz Kids
· Family and Childcare Trust
· Blind Children UK
· Rainbow Trust
· I CAN
· The Communications Trust
· The Seashell Trust"

We here at MNHQ think this looks like a good way to maximise campaigning impact on health and social care issues - but of course as ever we want to know what you think, so please do tell us whether you think we should sign up.

Thanks

Yes

Yes :)

PolterGoose so agree we are looking adult residential care at the moment and its so hard as you just know that it isn't as safe as childrens care.

oh i will, i am lucky as have good support

Absolutely

Yes good idea, not sure what means pratically but all great charities and can only help join forces to raise awareness of issues.

The concerns, experiences and stories of disabled children, young people and their families will be at the forefront of the campaign, and therefore need to shape its development. If you are a parent, family member or disabled young person and would like to receive updates as the campaign develops or you are interested in helping to shape it, please look out for further updates. There will be an opportunity to sign up shortly

This is from ambitious about autism re the campaign

I would think that one of the major concerns that parents of children with disabilities have is what happens in the future - whether their child is able to live independently, whether their child will need full time care in the future, whether there will be opportunities for their child when they are an adult, how their other siblings will fare in supporting their disabled sibling.....

Maybe being involved in the campaign in it's formative stage means that we could make adults with disabilities and the challenges they and their families face, part of the larger campaign.

Its obviously a yes. Support for children in my area with disabilities is shocking

Another saying of course!

I agree about the adult care as stated above but would like to add my voice to say it would be great for focus to be placed on education as well.

A lot of the H and S care difficulties disabled children face come from lack of suitable education and poor or lack of EHCP.

Why wouldn't you? :)

Yes, but I think you need a panel of parents from Mumsnet who have children with disabilities to inform your voice. I have a 16 year old with Down syndrome, epilepsy and other needs and would be happy to help.

Yes, of course!

Yes, a really good idea.

No reason not to!

Yes

Yes.

Yes!

zzzzz well said. this reminds me of the TIMC campaign....where over 18's were excluded.

that was the reasoning behind the exclusion in the TIMC campaign.
so it was all about children(what happened with it? i left for a year and it seemed to die)
im sad that once again my child is excluded.