6 losses

[92rainbows]

Hello everyone,

I had my 6th early miscarriage two weeks ago...
We're already trying but just want to hear from people who have had more than 3.

What has your experience been?
Do you have answers?
How have you coped with your grief?
What has your work life been since ttc?

If anyone is wondering, I've been seen by the reoccurring clinic and am on thyroid medication. Lowest dose for now with blood tests every 8 weeks to check levels. I started the medication a week before my last period was due, not sure if it would have saved the pregnancy had I taken it before ovulation.

I know getting your feelings out can help a lot. So please feel free to say what you're holding onto.

@92rainbows frstly can i say how sorry i am for your losses. its a horrible thing to go through. I lost four babies and the grief was horrble. Are you being seen by the hospital? sending hugsx

Thank you💕
And I'm sorry for your losses too...the experience is always shocking.

I'm not being seen this time. I didn't tell my GP either as they only send me for a scan when it's too late. I've been losing them at 5-7 weeks and they don't count the earlier ones. This was a 5 week loss...

I am very sorry for your losses. I’ve been through the miscarriage clinic twice (moved to a new area and new GP referred me recently after I mentioned I would like to TTC) I have taken a long break as it got too much for me and DH but recently tried again including prep by upping thyroxine and am currently at 6 weeks. Got pregnant very quickly so fingers crossed for thyroid. The clinics were otherwise inconclusive which I found helpful, so I just keep trying. I’m making a concerted effort not to think about current situation too much, just roll with it but this week tends to not go so well. We don’t know any more how many I’ve had, I just sort of started letting go, so I could have another go if you see what I mean. I’m happy to be pregnant again after a few years but it’s also hard for women with multiple early losses as becoming pregnant is a signifier of coming loss, with all that entails physically and emotionally. I know how difficult it is to process so many losses and I wanted to salute you for your fortitude and wish you the the very best xx

@92rainbows i think they should investigate if you have had 3 or more miscarriage?? I know its heartbreaking x sending hugs 🫂 💐 🙏 ❤️

I'm so sorry for your losses 😓

I've had 3, but we don't get pregnant easily. My pregnancies have taken 2.5 years, 6 months and 9 months. We're now headed in to cycle 6 of trying again since the most recent loss.

All my miscarriages have been missed miscarriages - first 2 pregnancies this was discovered at a private scan and in the third pregnancy I had EPU support and early scans which, just like the second, showed a slow heartbeat at 7 weeks which was a bad sign. First pregnancy I found at at a scan at 11 weeks (baby died at 9.5 weeks). Second pregnancy was at a scan at 10 weeks. Third was a scan at 8 weeks. I had surgical management all 3 times.

We had genetic testing after our third which showed trisomy 15 and the EPU suspects all my losses have been genetic as they've been so similar. Me and my partner are waiting for the results of our blood tests to see if we are carriers of any issues, which will kind of define what we do next.

I am so sorry that you have had so many losses.

I think you should let your GP know for two reasons. Firstly, if they have a record of all of them then this can trigger investigations and support.
Secondly, you can now request a baby loss certificate for a pregnancy that didn't last until 24 weeks (at that point you would get a stillbirth certificate). It's optional, and it's a way of recognising that you were pregnant and carried a wanted baby. You have the option to name the child(ren) if you want and you can apply here: www.gov.uk/request-baby-loss-certificate.

I would also recommend contacting Tommy's, who have some support for baby loss due to miscarriage (horrible term). https://www.tommys.org/baby-loss-support/miscarriage-information-and-support

You have been through a terrible loss. Take care of yourself and take time to grieve. Also make sure your partner gets support as well as dads are often expected to support the mums and don't get grief support.

I'm really sorry. Have you looked into reproductive immunology with the likes of Dr Shehata? It's a controversial area, but I know quite a few women personally who finally had babies after many losses thanks to reproductive immunology treatment.

I'm so sorry. I've lost five and the fifth broke me, I just couldn't cope. I had specialist counselling which really helped. I was also tested and found to have a blood clotting disorder which is treated with blood thinners in pregnancy. It took me a while to get pregnant again but when I did I took the thinners and had a healthy baby at term.

I’m so sorry for your losses. To those on thyroxine you MUST go to the GP the minute you find you are pregnant as doses are often then doubled!

nobody told me that! Thank goodness for Google!

Is anyone else in the situation where they've had all the tests and not got anything "wrong" to fix so are just down as unexplained recurrent loss?

Thank you for your reply.
I am thinking of you and hoping you make it full term. I can almost relate to the hope you're holding onto being on the medication and I hope you saw another post below mention upping the dose once pregnant.

I am currently on the lowest dose of Levothyroxine and hoping it makes a difference.

We had a period of 2 years where we couldn't get pregnant only to go through our first miscarriage. Took a long break between that and after a year we had another loss. And another. I also don't know how many I had in those break periods either as now I'm keeping track and know before I take a test. We both feel like we need to try every chance we get as we might not be lucky.....

I have had investigations and they found my thyroid to be overactive but not high. I'm on medication now but started the week before I was last due.
Waiting on genetic tests but trying in the mean time as we struggled to conceive our first year...

If we don't conceive now I've been referred for IVF and I have an appointment in March.

I'm so sorry @Lemonbell
I know the stress and anxiety of week 5-11....sometimes you just wish the loss comes soon and fast.

I think we're all so brave for continuing on this journey and we forget to tell ourselves in the thick of it. Don't forget you're not alone and we're all with you.
And thank you for replying to my post. I hope it's comforted you in some way. But also hope you make it to full term and you come back to this post with happy news. Whatever your outcome is, please come back to this post.

I have been referred for IVF next march, but I have a feeling it wouldn't make a difference. I should have our genetic test results in January and that will help determine if I will do IVF.

Wishing you all the luck x

I'm so sorry for all the trauma your losses might have caused you.

I've had one that needed medical management and somehow was worse. I miscarried at 11 weeks but baby had stopped growing at 8w. After we had seen it at a scan💔

I'm thankful the rest were early and less traumatic, but those few weeks of knowing and having hope are just as bad.

I think the best outcome will be getting genetic answers. I will be getting our results in the new year and will help determine if I should go forward with IVF.
I'm keeping my fingers crossed for you and hope you have healing with your results.

Hi @MyrtleStrumpet
Thank you for your words and reply💕

Fortunately, I am getting "help" and I have applied for the death certificates. They came in the post today.
I've had many blood tests, hysteroscopy and I'm now on thyroid medication. Unfortunately I started these a week before I found out I was pregnant and miscarrying.

I've reported 5/6 of my losses and found they don't count if there wasn't a positive pregnancy test (I had a scan and saw the start of the embryo but the test wasn't positive) and they won't do anything except book me in for a 6-7 week scan.

It's been a lot easier for me to move on once I'm done bleeding and try again. Luckily I've managed to get pregnant often this last year. We've been trying since 2020 and had no luck for the first year.

Hi @Wibblywobblybobbly

Thank you💕
I have not heard of this or her! I think I will look into this as I'm not keen on doing IVF next year if I keep miscarrying.
Thank you!

Hi @Dawevi
I'm so so sorry you went through so many💔 it fills me with hope to know that it can still happen! Congratulations on your baby as well💕 how old are they now??

My 4th is the one that broke me. I went into that cycle with so much hope and strength. I made it to 7 weeks before I started to lose it. I was off work for 3 months and then work threatened me with losing my position so I went back. I ended up giving up the position to please them and cut my hours down. I feel much better for it but it feels horrible to be ruled by this situation.

I'm hoping the thyroid medication will be the solution. Not sure what until do if it's not, but I'm waiting for genetic testing results to come back.

@Temporaryname158 thank you!

And thank you for letting us know this detail! I'm not on it but I hope others see it and it works for them.

@moosey89 what tests have you had??

I had multiple for the first 3 years and just in March they found my thyroid was elevated but not high. It wasn't being treated until I was referred to the miscarriage clinic!!

Just so people know, 2.5 is ideal for fertility in thyroid function. Anything above 5 needs medication but anything between doesn't necessarily.
My last read was at 4.6 and they finally gave me a prescription for levothyroxine.

He's 10 now. I also have an older child who is 15, the specialists said they had no idea how I'd managed to have her! The doctor said it was a miracle I had carried her to term with no issues. She was my second pregnancy.

I've been seen through the recurrent miscarriage clinic so have had literally all the bloods the NHS does as well as internal scans and a HSG test....last appointment had 9 vials of blood taken 🙈 (my TSH was 1.53) - the only thing we haven't had done are reproductive immunology tests, I've asked for a referral to Dr Shehata (as there's only a couple of doctors that do these tests in the UK) but on the NHS the wait list is well over a year for him.

The recurrent miscarriage clinic has discharged me as "idiopathic recurring miscarriage" and transferred our care to the fertility clinic as we also have issues with "sub fertility" (as they described it!).

My DD was my fifth pregnancy. Tests never showed any issues, it was thought to be just bad luck. I took low dose aspirin through my successful pregnancy on recommendation of the consultant. Who knows if it made any difference or if we were just lucky that time.

I am very sorry for your losses, it’s really tough.

Hello,

I’m so sorry to hear about your loss and hope you will recover soon, I am new to this platform and have just lost my fourth baby as well, I am really struggling with the grief and have been signed off of work, I work in child care with 3 months to 5 years and if anyone has any advise I would be so grateful.

@moosey89
At what point did the miscarriage clinic discharge you?? I'm scared this will be us if the thyroid medication doesn't help...although I'm on the lowest dose so my next step would be a higher one.

And where are you up to the wait with this new Dr?? Thank you for mentioning this as it's something my husband and I will be looking into!

Sending you all the positive vibes💕