Silent Miscarriage

[HomeHope]

Hi, I’m looking advice and some reassurance! I had scan at 8 weeks, our baby was lost at 6weeks, 5 days. I had no miscarriage symptoms at all. It was via IVF, adding to the heartache. I stopped my medication after scan and bled heavily a few days after scan, i then attended hospital early pregnancy unit, they done a scan and advised to wait a week if I miscarry naturally. A week later, another scan and no progress with very little bleeding, they described it as incomplete.I then opted for medical management, they gave me 3 doses over 3 weeks and no luck, still incomplete. I understand D&C is a safe and uneventful procedure but I’ve decided it’s not for me, Dr said it’s my choice and I will miscarry naturally. It is almost 6 weeks, anyone any experience of waiting naturally for weeks? My Dr warned me to look out for signs of infection but starting to worry as it’s taking a very long time :(

Hi there, HomeHope. We're so sorry to hear about your loss. We just wanted to pop in and bump this for you in hopes someone is about this morning who's been in this situation and might be able to offer advice.

Hi @HomeHope so sorry for your loss, I have been there too after IVF and its so hard
No experience here of waiting as I had the D&C as soon as I could after both of mine, I wanted it done asap.
I think you should keep talking to the doctor or EPU as much as possible, ask them maybe is there a point where you shouldn't keep waiting and they might need to look at more medications or surgery?

Thanks for the support @AdrianeMole I now have appointment next week with Consultant in EPU, I’ll be asking that question

Thanks for bump up @HebeMumsnet

Hey, sorry for your loss.
I had a missed miscarriage at 11 weeks in August (baby stopped growing at 8.5 weeks) no bleeding/pain naturally in that time whatsoever. I opted for medical management. I took mifprosterone at EPU then 1 day later I inserted 2 doses of misoprosterol in my vagina 2 hours apart, as instructed by epu (my local epu allows you to do medical management at home). Within 1 hour I went from no pain to extreme 10/10 cramps. It was so bad but very effective. This extreme pain lasted about 4 hours, then I passed all the products and the pain instantly stopped. Followed by 8 days light bleeding. F/u scan showed by uterus was empty. I am currently having another missed miscarriage and tomorrow will start the medical management. Maybe your doses were too spread out and 2 doses quickly (although agonising) seems to be very effective. Also I had the option to swallow the pills or put them I'm my vagina. I made sure to put them up high and stayed lying down as long as o could. That seemed to be very effective. Personally I couldn't do expectant management as I'm so sick and vomiting everyday so I need this done as quick as possible. In your position I would probably at this point opt for the surgery but if your not sick I can see why you wouldn't wait. The nurse at my epu told me she's had people take months for expectant management. Good luck xxxx

Hi @HomeHope, I am so sorry to hear what you’re going through. It is so painful. I thought I’d share my experience, not sure if it will help at all.

I went for an early scan at 5 weeks (I was nervous as I had already had a miscarriage previously). The heartbeat was there and it felt really positive. I had all the symptoms, no spotting or signs of any issues. I then went for another early scan on 23rd October at 9 weeks and was told there was no heartbeat and baby had stopped growing at 6 weeks. It was absolutely heartbreaking.

I wanted to get back to normal as quickly as possible. Still getting pregnancy symptoms whilst having a passed away baby inside me really felt like too much. I went down the medical management route, but nothing happened for me, no bleeding or changes. However, I did have the side effects with a bad tummy which wasn’t pleasant.

The hospital offered me more medicine, but I didn’t want to wait any longer so I had the procedure on 28 October. The hospital were amazing that day, they really looked after me and my partner (in between they had been awful with us) we were given memory boxes and asked what we wanted to do with baby bean, we decided we would like ashes (we still haven’t received them). I felt absolutely fine after the procedure, no side effects, not much bleeding and the hospital just said to test again in two weeks to see if the pregnancy test was negative.

I knew I was still feeling pregnant, not as intense as before the procedure (no sickness) but I knew I wasn’t right and the pregnancy test came up super positive.

I went back for a scan which confirmed I had retained tissue, however they felt it was borderline and strongly advised me to have medical management again but put into my cervix this time which they felt would work to pass the retained tissue…. It didn’t work again.

I went back again and the scan showed the tissue was still there so the only option was another procedure. I asked for them to use a camera which was declined.

I then got Covid so they couldn’t do the procedure under general. They said they could do a hysteroscopic (use a camera) with me awake to go in and remove the tissue. I had that done on Monday 13 December, it was the most painful thing. I felt like I was going to faint twice. After an hour I had to stop it and they agreed they would do the procedure with a camera under general.

I am now booked in on 30 December for another procedure with a camera under general. It’s just been a horrific time and dragged on so long, I feel just so upset by it all.

So in terms of waiting for things to happen naturally, for me they haven’t. I am still testing positive and I don’t think I will have a period or get back to normality until the second procedure is done with a camera and the tissue is removed.

Not sure if this helps xx

I am going through a miscarriage at the moment too (in hospital as my bleeding was really bad) and just wanted to send love and hugs. I honestly had no idea it would be so horrible physically as well as emotionally, and I don’t feel that medical staff have been particularly sensitive. I just got taken in a wheelchair to have a scan to see if all my tissue is out, looking like an absolute wreck, and saw other glowing ladies sitting there with their bumps waiting for normal scans 😭

@Worriednottheword so sorry you are going through such an awful time. They really don’t separate pregnancy and miscarriage very well in the hospitals
Sending you love and hugs xx

so sorry for your loss @Deb11009 and thank u for taking the time to reply. You and I have had very similar experiences. I didn’t respond to the medication, it was given orally and vaginally to me also. At one appointment they attempted to remove it but couldn’t as the Dr said she was afraid she would nip me, they did remove some tissue, they gave us a memory box and coffin, they were very kind to us but it was an awful experience, it was sore alike yours. After that I opted for D&C. I was booked in for D&C but I got very stressed as it’s a blind procedure and didn’t go ahead with it. The consultant advised that she would scan me again next week, wait for a few weeks for blood flow to dry up and do a TruClear procedure, they use a camera to target and remove the pregnancy tissue. It seems to be the same procedure you are having on 30th? It’s really good that you’re booked in for this. I suspect I won’t be having mine until new year due to Christmas.

sending you lots of support at this time @Worriednottheword

Thanks @Needsomeadvice33 i agree I think the medication was too far apart, it was a week between doses. With the first oral dose I cramped straightaway, the second dose I had nothing, the third dose I was given vaginally, the nurse inserted them high up, I had lots of cramps but 7 hours later they popped out and I suspect they didn’t absorb as they came out whole, it was disappointing as I they seemed to be working! Thank you very much for sharing your experience, I need to clear my head and have a good think about it all, could be a very long wait! sorry for your loss too xo

@HomeHope it does sound very similar. The first time I had the procedure and was told it was blind, I thought it’s such a regular procedure they’d get it all done and would be ok. However, now after having retained tissue for such a long time afterwards I really think a camera is needed.

I am not sure if what I am having on 30 December is TruClear, it sounds like it will be though. Are you having general for the procedure?

Have you had any bleeding at all? I haven’t had any apart from a tiny bit after the procedures.

You might need to see what they say when you have your scan regarding when they will do the procedure. I chased mine today because I hadn’t heard anything since Monday and she said ‘oh I just have your form on my desk’… the timing felt a bit odd and I am not convinced I would have got it on that date if I hadn’t chased

Thanks for sharing @Needsomeadvice33 the wait is cruel!

Just an update, my body seems to be making progress, I passed some tissue this morning after 6 weeks, it just dropped out. It was quite a large clump but I suspect thers more to come but it’s progress. I took it in to hospital today as I’d like it tested, they also took my bloods as I noticed a stronger smell and thankfully they rang to say bloods are ok, no sign of infection. I have a scan on Tuesday and I’m really hoping my uterus is clean and clear!

So glad things are progressing for you, awful that it’s been such a drawn out process! Keep your chin up and be very very kind to yourself! xxxx