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Miscarriage/pregnancy loss

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Pregnancy unknown location

71 replies

Son2020 · 07/09/2020 20:57

Hi

I recently found out I was pregnant which we were really happy about, I then went for an early scan and nothing was there but I was showing positive on a pregnancy test.
Slowly after I started bleeding so panicked and went straight to a&e.

They sent me home and then I ended up back there the next day and admitted into hospital to spend the night. They repeated scans which again showed nothing.

Now for the past week and a half I’ve had bloods every 2 days which has shown a slight increase in hcg each time however they still can’t find where the pregnancy is.

I just feel so on edge and anxious as have no idea what’s going on or how long I need to wait to get a final decision from the Dr’s re next steps.

Has anyone been through this before and was it a long process?

Any advice would be much appreciated

OP posts:
Littlemrsslc · 26/09/2020 15:25

Update on my journey
September
15th - find out pregnancy of unknown location (possible ectopic)
17th- HCG 329
18th- 359
20th- in for surgery that they later decided against because I had a scan showing less fluid and put me on expected management
26th- HCG 149 however I was told my level the other day was actually 500

Today 26th - we sent this to our family

Hey everyone I’m sending out a message for everyone.
So today I got to the RVI(hospital)to have my bloods again a lot less anxious and hoping for better news. I had some cramping and back pain the two days prior however I was just holding on for today. I’ve found out my levels have dropped from 500 to 149 which is honestly a miracle with ectopic pregnancy. They now have evidence to suggest I’m miss carrying on my own naturally which is honestly the best outcome for all this. Will be able to try again pretty much soonish and don’t need to go back. They said in 2-3 weeks take a test and it should be negative but I said I would like to keep my open access till then so that if I want to call about anything or come in then I can. So happy to be moving on from this experience as it’s been awful for Chris and I, and the people that love us. Thanks for being there for us we appreciate it!

So there is hope ... I’ve had no injection or surgery and I’m possibly
One of the lucky ones that’s naturally been able to resolve this.

I have hope
For all your girls x

smallpotatoes7 · 26/09/2020 16:08

@Littlemrsslc wow that's amazing the levels are going down naturally. Mine jumped from 5,100 to 9000 in 48 hours so I had to have treatment and decided the tube removal would be best as I was worried about rupture. Hope all keeps going well for you!

adviceneededplease224 · 29/09/2020 20:45

Update from me. Levels dropped to 134 so hopefully not ectopic but took more blood today it make sure, waiting on results tomorrow, do you think it would be ok to have a glass of wine tonight. It's clearly not a viable pregnancy and I've started bleeding so I'm hoping it's a m/c

I want to try again when things get back to normal but I'm not sure how much longer I can go through this. I'm 43 and really wanted a second child but I feel like I might have to give up now. The risks and upset seems to be too much. I read that my progesterone was low because of my age and I'm not sure how I can improve this. Someone said you can get prescribed suppositories if you get pregnant again but I'm not sure how I would get this. Maybe a private clinic?

Hope everyone is ok and recovering
X

Littlemrsslc · 29/09/2020 21:45

@adviceneededplease224 when I found out 2 weeks ago it was unknown pregnancy location and no sac and not viable I had a drink so honestly don’t deprive yourself ... after the stuff we are going through we need the release. Ps I’m the same as you my levels dropped then the next say I started bleeding and miscarried naturally instead of injection or surgery thankfully. I’m on day three now of bleeding x

Kate105 · 30/09/2020 09:10

@adviceneededplease224 I started drinking as soon as I’d been off the methotrexate for 2 weeks... Probably not the best idea but it was definitely needed! My liver will just have to suck it up 😂

Hope everyone is ok! Finally starting to feel a lot less sore and the stitches are FINALLY starting to dissolve. Going back to work on Monday and I think I’ll be ready to go back then xxx

smallpotatoes7 · 30/09/2020 13:10

@Kate105 how long has it taken The stitches to dissolve? I'm just over a week and they don't seem to be going yet.

Kate105 · 30/09/2020 13:34

I’ll be two weeks tomorrow and they’re mostly gone now. Still a bit remaining and I’m a bit lumpy (!) but it’s only in the last day or so that I’ve seen a real improvement. The hospital told me they’d dissolve in 7-10 days but I didn’t really see any change until 10 days!

Littlemrsslc · 30/09/2020 13:44

Misscarried Sunday ... just started to stop bleeding today so I took a test and I got my first negative today! So within 5 days I’ve gone from positive to negative x

adviceneededplease224 · 30/09/2020 20:17

Bad news from me. Hospital rang and said hcg levels have increased slightly after dropping initially so suspect another ectopic..

Want me to go in for another scan tomorrow.. I'm terrified

Hoping beyond hope that if it's another ectopic it can be monitored or treated with injection rather than surgery. Can't believe this is happening to me again.. it's so unfair!

Also really didn't want the injection as you the have to wait 3 months at least and I haven't got time due to my age ☹️☹️☹️

Kate105 · 01/10/2020 08:56

Good luck today @adviceneededplease224 let us know how you get on. It’s really shitty and the uncertainty is the worst of it. At least if you get back to EPU today you might hopefully have a better idea about what’s going on and what the options are xxx

smallpotatoes7 · 01/10/2020 10:46

@adviceneededplease224 hope your ok, it's all so uncertain and stressful. X

adviceneededplease224 · 01/10/2020 16:29

Thanks for your thoughts @Kate105 and @smallpotatoes7

I've just got back from the hospital and it's another ectopic in the stump of the right tube that goes into the womb. It could have gone anywhere and it went there! Fortunately the levels are so low that the dr thinks it might resolve itself and is going to give it a week to see if levels drop before suggesting methotrexate

Im hoping if I do all the things that you are not supposed to do in Pregnancy like drinking coffee and alcohol that it will resolve itself without the need for an injection as I want to try and keep my options open for trying again.

I think my chances of having another successful pregnancy are pretty low to be honest but the dr was really nice and said if I did want to try again that they would monitor and look after me. To be honest the care I have received from the EPU has been amazing

I asked the dr how many people he had seen with multiple ectopics and he said lots and he had seen one lady who had 4 ectopics before 😩

It's such shit luck. I've no risk factors that I'm aware of other than being old ☹️

smallpotatoes7 · 01/10/2020 16:36

Sorry to hear that, I've had two with both tubes removed and I feel it's pretty shit luck!! But it's good that it's getting smaller and the levels are low, keep trying and getting the early monitoring that's what saved me this time as I had no pain and I wasn't ill at all so it's defo needed. Good luck x

Kate105 · 01/10/2020 17:50

Glad you’re ok (ish) @adviceneededplease224! I’m so sorry this is another ectopic but I’m keeping everything crossed for you that it sorts itself out naturally. Definitely take advantage of doing everything you can’t when pregnant! Get on the Brie too! 😂

Stay strong, you can do this xxx

Che3087 · 11/04/2021 21:17

Hi,

I know I’m late to this thread but just need to be around women who have gone or going through UPL. My partner and I started to try for our first baby in March and I had a positive test this week (Wednesday 8th) took 3 tests over 2 days to be sure. And was SO EXCITED, that wow it happened so fast. How lucky are we. Then on Saturday I had slight cramps, lower back pain and spotting, Saturday night more blood and very small clot and then this morning (Sunday) what is like a full on period, very heavy and 5/10 cramping. We went to EPU and they couldn’t find a baby or anything in scan as I’m only around 4wks+ 2days. So they have taken bloods and I have to go back in 48 hours to check my levels. I feel like it’s 100% a miscarriage and I’m going back to have that confirmed. It’s just so awful! I’m 34 this year and I see all my friends with babies, yes we started later but wow do I want to be a mum. You can’t help worry this is going to be a long road. Any advice or experiences would be so appreciated

C x @Son2020 @Gemc81 @Chlo2701 @adviceneededplease224 @Littlemrsslc @Kate105 @FrankieChips

Gemc81 · 11/04/2021 22:11

@Che3087 I'm sorry you're going through this. I had a miscarriage at 6 weeks then we tried again and fell immediately and I had a PUL at the same gestation almost by the day which was devastating since I didn't think it would be happening again. The first miscarriage was March 2019 and then we waited till Dec that year to try again as we were moving etc. Treid again and fell immediately again. PUL in January 2020.

Tried again in July 2020 and fell immediately again. I'm currently being kicked like fk 36 weeks pregnant with a baby girl 🥰. The pregnancy has been a breeze till now. No morning sickness, we had private tests for Downs syndrome etc - all negative, 20 weeks scan everything perfect, growth has been bang on its only now I'm uncomfortable cos I'm heavy and due on 8th May. I also turn 40 on Tuesday so don't worry about your age. The idea that your fertility drops off a cliff at 35 is bullshit. I'll find you an article about it and post it.

There is absolutely no reason that your next pregnancy won't be successful - all the Dr's said to me I had been VERY unlucky to have 2 losses in a row. Up to 50% of ALL pregnancies end in miscarriage usually before someone is actually aware they're pregnant. It has no bearing on your chances of conceiving next time that's why the NHS won't investigate till you have had 3 in a row.

Please take some time to grieve your loss. It's so hard when it's a wanted pregnancy. But also try not to get stressed as stress is terrible for conception. As trite as it sounds it IS a good thing you fell quickly. Wait for your period to come back before you try again as its easier to date you and it also means your hormonal cycle has regulated post loss.

Good luck and any questions I'm happy to answer xx

Gemc81 · 11/04/2021 22:15

@Che3087 here's an interesting article on how science is changing their view on "geriatric mothers" (which is a term I fkn hate BTW)

amp.theguardian.com/commentisfree/2021/apr/10/fertility-cliff-age-35-week-in-patriarchy?__twitter_impression=true

Littlemrsslc · 11/04/2021 22:16

Hey girls I know exactly how you feel. 5 months on from that dreaded time I fell pregnant and I’m currently at 10 weeks very anxious but I hope this gives you faith it’s going to happen. As honestly I had lost all faith

Che3087 · 11/04/2021 22:22

Thanks @Gemc81 this has made me feel more hopeful. It really is tough and you see the bullsh*t all over social media and want to scream, people never talk about the hard stuff only the picture perfect side.

I’m so pleased to hear your amazing news - the biggest congratulations ❤️

Gemc81 · 11/04/2021 22:28

@Che3087 thank you! We're very excited. And it is very hard because people don't often share their losses on SM or with friends so you can feel quite alone but it really is so so common and I only realised this when I shared and people also said they had had losses too. I have been quite open. If it helps you to talk about it then do so. If it doesn't obv then you don't need to. Its nothing to keep hidden you didn't do anything to cause it, it couldn't have been prevented either.

Hopefully your levels will go down and this horrid part will be over and you can move on and focus on TTC ❤️

Che3087 · 11/04/2021 22:39

Yes it’s so true. After telling my best friends today who two are new mums I found out one had a miscarriage before her current little one who is 9 months. And she never shared. Another friend who is pregnant also shared she had loss. It’s sad it’s such a stigma as I know it was bard for both of them. I think once I get my results this week it will allow me to move on and try again once Hormones have normalised. It’s comforting to know I’m
Not alone or something wrong. It’s just nature x

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