Recurrent Miscarriage Support - tests, treatment, trying again - thread 9

[bakingtins]

Welcome everyone - pull up a chair! A thread for anyone who has suffered multiple miscarriages and is in need of information, moral support, tea or sympathy. Newbies very welcome.

Can we start the thread with a recap of where we are all up to again, please?

Trying, hope you are able to get away without the op, and your recovery completes quickly.
Tanny, I feel your frustration, but hopefully prof Q will be able to give you answers.
So, day 28 and a bfn for me, so stopped the cyclogest and awaiting AF. Another 2 cycles before going back to prof Q to ask to review the plan. It's now been 5 months since we TTC this time and I'm 38 so if I was 'normal' I'd be off to the gp to ask about infertility in a couple of months. Feeling like its never going to happen, and rapidly becoming a mad cat lady...

tanny good to hear you are taking positive steps. I think acupuncture is fascinating, but I think I'd very firmly out it in the complementary category unless there was nothing at all that western medicine had to offer. In your shoes I'd pursue both angles at least until you see what Prof Q has to say.

trying hope your next scan gives you the all clear and you avoid ERPC. When is it?

just how many cycles is that on Cyclogest now? We were told to try it for 3 before getting back in touch. Prof Q did say some people seem to have problems conceiving on it. FX for next month.

Thanks Baking, that's interesting. Technically this will be my 3rd month but I was going to tale it 3 from diagnosis rather than procedure. I will drop an email to Kerri just updating Prof Q and see what she says. Feeling very premenstrual today, which is irritating! Time for a sanity check. Just had a long swim, but feel just as afterwards. Stoopid hormone!

*take

Thabks baking, after doing some research I feel the same way. The only clinical study I could find about acupuncture and RM suggested that acupuncture can enhance success rates of western treatments. It is an impressive meta analysis of over 4000 women. Studies of Chinese medicine and acupuncture alone seem to focus on individual case studies, which sound great when you read them, but are not comparable.

DH and I had a really long talk about it all. We both feel that the acupuncture is really helpful but want to have a consultation with Prof Q and cross everything off the list. I'm due to get af at the weekend, so only a couple of weeks until I can book that in.

It feels like I'm back to being proactive. I hate feeling out of control...

Just I found that the progesterone made me feel more premenstrual than normal, unsurprisingly... Fx for you.

Grr fat fingers. *thanks, obvs.

Morning people.
Tanny - I'm pursuing a similar frame of mind to u...I figured that acupunture will at least help with keeping me relaxed and strong for whatever happens to me next. Women I have spoken to and read about online all say it gives them
Some energy to deal with crap....fingers crossed it does that and maybe some more
I've decided to see mr s-not got an appt till July though so will just take a break from ttc and try enjoy the summer....

Those that have been on cyclogest, I've been on it coming up to a week now, since just after ovulation. Due to test on Monday. My boobs are really sore, which has always been a sure fire way of knowing I was pregnant, but as cyclogest IS progesterone, is this just a normal side effect? I don't want to get my hopes up...!

SeaSalt From what I know and have experienced myself, it may well be the Cyclogest that is causing the sore boobs - unfortunately, it has a reputation for producing/enhancing pregnancy symptoms... Sorry to be the voice of caution, but it's better to be aware of this. But you can always hope... fingers crossed!

Hi all,
newbie here, so quick (depressing) intro.
1DS (11y) (this was a twin pregnancy, lost twin at 13wks), 7MC (1 2nd trimester), 5MMC, 1EP, 1 foetal death at 22 weeks requiring induction to remove baby.
I though that I was 8 wks pregnant, and have been for a scan today, which measures 5.5 - 6, no baby or heartbeat seen. My dates could be out, as very irregular, but my last 4 losses have been MMCs, which all started in the way - a small, non-viable pregnancy which didn't fully miscarry for several week.
The waiting list in this area for the RMC clinic seems to be v long; I have been on it for 14 months, so I have no recent tests, although this down a few years ago after DS 1 was born when I had had only 4-5 MCs showed endometriosis only.
Today the consultant who performed my scan prescribed 400mg progesterone pessaries twice daily, 'in case it might help'
I stumbled on this thread trying to look up symptoms, success etc, so just having a quick read and saying Hi :)

cuppa I replied to you on the pregnancy thread too. Was going to suggest you might want to come over here but didn't want to sound too negative when you are still in limbo, obviously we hope that your current pregnancy works out.
I'm totally outraged on your behalf that you haven't been able to access RMC testing after so many losses. I've never heard of anyone having to wait more than a few months to get an initial appointment, and TBH I think that's often to allow hormones and emotions to settle a bit before embarking on testing, as much as waiting for an available slot. Most of the testing is in fact pretty basic blood tests, my GP did a lot of it for me on the consultant's advice. You probably need a scan, but that's the only bit that even needs to be done by a specialist. In your shoes if your next scan is not positive I would insist on testing of the embryo and that your referral is fast-tracked. I'd probably also want to put something in place to pursue the immune angle concurrently as your history of slowly progressing pregnancies eventually miscarrying some time later sounds very similar to mine and to a lot of the ladies who have subsequently been diagnosed with NK issues. I appreciate I'm biased on that one because for me it turned out to be the case, but I'm so grateful to someone on Mumsnet for suggesting I investigate it that I suggest it to everyone who is not getting answers from the NHS.

Really, really hope you are wrong and that next scan shows a happy bean in there, but if it is bad news you need to not take any more crap and get some proper help.

Cuppa-also shocked u say waiting list is 14 months?! And noone has done any tests? U could get ur gp to so some
Of basic one and demand you get seen ASAP....did u say ir
Periods Are Irregular? could u have pcos? gp
Can teat for this easily....I hope ur ok and the scan results are what you hope for...

How is everyone else doing?

I really wanted to say hello, but after Cuppa's post, I sort of feel like a fraud

Have been peeking at this thread for a couple of weeks now, mainly looking for some sort of reassurance and feel good success stories.
It breaks my heart to see others suffering even more than I did/do.

I'm 32, had my first mmc last September, currently contemplating medical management for tomorrow for the 2nd mmc (but have known about it for more than 2 weeks now), no dc. Dh and I had a successful pregnancy 13 yrs ago, which I have terminated due to our complicated circumstances at the time.
I am full of guilt now and obsess about nature and any other forces punishing me for my decision.

It's shit atm

Hi wanttohope. I'm so sorry. It's really shit. Come on over here we all know the horrible feelings associated with miscarriages and try help Eachother as much as possible.
I've found in the real world noone really gets it and it makes
It a very lonely experience...
I can totally understand you "blaming" yourself. But sadly this just happens to some of us...I've blamed myself for the cup of coffee I had the week I ovulated, or for feeling stressed at work...truth is none of this matters. But we want to find a reason and we search for why this horrible thing is happening to us....
I also don't have any kids and the fear of never having any is overwhelming...but I suppose will keep me going until I have one...I wish I had a crystal Ball to know it would all be ok in the end and this heartache would be worth it eventually....luckily the odds r on our side....and for you after 2 miscarriages ur chances for next preg are no diff to those after none....(not that that makes it any easier to deal with)

wanto you are v welcome here. we all look for something to blame, usually ourselves, the truth of it is we have just been dealt a shitty hand. Hope the MM is ok this weekend [ flowers]

Hello there. Back again been off a thread like this for a couple of years as had ds. Now miscarying again 4th time now it's almost not a shock now but still feeling pretty pants about it all. 6 weeks again 3rd one like this.
OK so Mc 14 weeks DD 2000 MMC 6 WEEKS 2 years and clomid then MMC 6 weeks another 6 months treatment and finally DS born 2012. Not trying this time thought period was just late ignored symptoms then clots etc test positive so now waiting 4 days to get a scan to tell me what I already know. :-(

Hello everyone.
very quick intro (i'm already crying and if I cry anymore I won't be able to see me phone)
5 MC varying between 6& 15 Weeks. Going though 5th now scan showed twins, both no hb.
All tests (nhs and private) textbook perfect.
I'm sorry for for everyone else who is going through this

trying no evidence of pros in previous scans a few years ago, only endometriosis and myometriosis. Also, no other symptoms; I'm thin, struggle to keep weight on, train for triathlon every day and get hyper and twitchy if I gave a day off, don't really fit the profile. Had regular periods before birth of ds, and the uterine infection that I was left with after that lasted over 2 years, so is the likely cause.
I think I'm waiting longer than I should as they lost my referral.
My gp won't get involved, but otherwise well.
Suspect mcs also due to botched c section and resulting peritonitis / abscesses, and that my poor little uterus is just a seething mass of scar tissue.
bakingtins thanks! will ask for them to chase up the nk angle when I finally get to clinic.

Soo sad to hear everyone bad news, hugs to all

Welcome cat sorry to hear you are MC again I guess you are also in the awkward position that your successful pregnancies reset the clock in terms of qualifying for investigation?

joker I'm glad you decided to join us, I hope you find it makes you feel less alone with it all. Are you already a patient at an RMC clinic? Are they offering you any further help at the moment? You don't say if you've had ny genetic testing done on embryos so far but if not it's worth pursuing that if you get the opportunity with your current loss. Finding out I was losing normal embryos (though it was horrible to realised it actually was my fault and not just bad luck as I kept being told) was what spurred me into NK cell testing.

cuppa that history is all the more reason why you need proper investigations. Several ladies on the thread have been treated at St Mary's in London for scar tissue or uterine septae affecting pregnancy. If you are not in their area you can get a tertiary NHS referral from a gynae consultant or RMC clinic if their initial tests are normal. The NK cells testing is mostly not available on the NHS, you can self refer to Prof Quenby in Coventry or Drs Shehata or Gorgy in London/home counties. Prof Q takes a uterine lining biopsy and looks at how the endometrium decidualises as well as assessing NK cells. If you feel it's a lining issue then she can probably help you. Seeing her is the best £350 I have ever spent.

trying how are you doing at the moment, lovely?

I've had genetic testing done it was a prefect little one. Problem is with me or some undiscovered problem that they haven't found exists yet (doctors words)

Jokers-sorry to hear that. Look into nk cell testing. It's controversial but lots of women have sucess with the treatment so there's something in it...only available privately....

At the moment we just can't afford anything private Im going to loose my job soon

jokers if the doctors are going to take the attitude that there's something wrong with you that they can't find won't look for I would ask about being put on Prof Q's protocol even without a diagnosis (steroids, clexane and progesterone in first trimester) as all those treatments are cheap and available on the NHS. You can't just keep losing perfect little beans whilst they throw up their hands and say they don't know what the matter is. At least discuss it with them. She's published lots of research they can read if they don't know much about it.

I've asked about that and they've said I don't fit the program. But loads of others in my area have been told that too.
Its horrible as well that dp works for the nhs and knows how un fair everything is. Everything is a lottery.
One woman I know was 22 Weeks PG and went to local hosp cos her waters broke. Nhs guidelines say where possible all must be done to say babies born after 21 Weeks. But this hosp said that they are exemp due to not having the right equipment and only save babies after 28 Weeks. But admit they'll make no effort in the future to get the equipment.
But they gave her a bed and said they'd arrange a transfer. After a week and a half (God knows how she kept that baby in that long) she self discharged and drove an hour to a hosp that saves after 21 Weeks, and they had accepted her straight away. she delivered the next day and now the baby is 2yrs old. If she hadn't moved herself her baby would be dead.
Me and dp are seriously thinking of moving once I've got a new job. We're near the catchment for a different hosp. Maybe we'll have doctors who actually care.

Bakingtins I have no idea what the docs will say as too soon nor even having scan till Tuesday but I know it's game over so just a formality. I have a docs appointment the following week.
Jokers I could not afford to go private either but after 2 miscarriages and years of fertility treatment I decided to copy what Dr S had put other women on who were on a recurrent buns thread on here a couple of years ago, and do a tonne of research on the web too.....it's the only thing I did and it worked. I was not actually trying this time or would have done the same and will do as soon as this is sorted. Basically I took lots of vitamins which ypu can get in holland and baratt. Selenuim 200ug magnesium 250mg vitimin b12 omega 3 oil and 5mg folic acid which was a handful of pills. I also took evening primrose oil till day 10 as well low dose aspirin following bfp. I took these throughout my pregnancy and for the 3 months of fertility treatment it took me to get pregnant. I have no clue if it was this that made the pregnancy stick or not but I really did nothing else. I did feel so much better and healthier on them. I am just gutted I didn't stay on them as I really did not want to go through this again. I guess I was not being careful because I believed all the rubbish about how a successful pregnancy resets your body. Clearly not true! X