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Recurrent Miscarriage Testing, trials and tribulations...Part 7!

987 replies

squizita · 07/06/2013 19:04

Hi all, carrying on from part 6. All kinicker-checkers, blood-testers, clinic-attenders and finger-crossers welcome. Nothing but love and crossed fingers...

OP posts:
Bakingtins · 07/10/2013 15:22

OBD other than, in a subset of women, she did say it seems to make it difficult for them to get pregnant (maybe if progesterone wasn't an issue at all? She didn't test progesterone, the recommendation was based on observation of how endometrial cells from my biopsy grew in the lab) so I was told to do it for 3 months and if not got pregnant to try without it and just use it from a BFP.

DownstairsMixUp · 07/10/2013 17:53

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squizita · 07/10/2013 20:32

Picardy hope it turns out bfp!

Got a slight back ache today. OVed over weekend ... Now paranoid as Dr Google has it as a short luteal phase symptom. Mind you ... It's also a symptom of sticky blood, constipation and just a plain old bad back! taking my fish oils and vit b and d complexes like a good girl!

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nearlyreadytopop · 07/10/2013 22:53

hope everyone is doing ok and for some bfp's??
I really really really want to try again. Dh wants to wait for karyotyping results to come back which means next year the way my clinic works. what to do? Am I made to consider it with no treatment plan? I have been taking the metformin for 3 months and hope to continue it to bfp and possibly beyond.

PicardyThird · 08/10/2013 06:20

Bleeding. Must have been dud test or very very early mc. My money's on the former.

Thanks for good wishes, all.

PicardyThird · 08/10/2013 06:20

Argh! I mean the latter.

Bakingtins · 08/10/2013 07:02

Picardy I'm sorry, that's rubbish. Sad

nearly I don't know - tough one. Do you know if any of the lost babies had a chromosome defect or were normal? I think it's a v low percentage of RMC that is due to a defect in parental karyotype, but how would you feel if you got pregnant then found that was you? If one of you did have a gene defect how would that affect your decision to try again? (obv you get some genetic counselling to help you decide) Didn't GP advise a break to improve womb lining? The frustrating thing must be if the lab weren't crap you would have all the info now and be making a more informed choice.

I haven't slept a wink. Have had terrible insomnia since I started the pred and have my first scan today. Don't know why I'm worked up about it, prob too early to see a HB, it's just to make sure sac is in the right place before I start clexane. One of the ladies on the TTC on pred thread has just gone for first scan and measuring weeks behind, weak heartbeat etc but nobody will commit themself and say it's no good. Brought back how awful it was to be in that limbo last time, and has knocked my faith in the little white pills a bit. Will report back...

Justonemoretime · 08/10/2013 07:40

Picardy, bummer! My money would be on the test, especially since you went back to it later. I have read that sometimes the line shows up as a 'ghost' line once the stick has dried, that's why they say the tests are not reliable after 10 mins (although, of course, we all check!). Enjoy a glass of wine and good luck for next month!

Baking very good luck for your scan. Thinking of you and sending you good vibes.

Nearly - nothing more frustrating than not being able to try - especially when you OV and everything makes you feel like you should be trying. Call the clinic? Maybe you can get your GP or their secretary to call on your behalf? Good luck. Our karyotypes took ages, and the chances are they will be clear for you - does anyone else in your family have a translocation? If no-one else has a problem, I should think it's less likely that you do?

LB Good luck with the next phase!

Waves to everyone! Hope you're doing OK?

Well, I've joined the 'spotting a few days before AF due' club. Waiting for the day I can just be NORMAL, dammit! 2 weeks to go for my hysteroscopy/re-do. Has anyone else done the coil/HRT after wards? Does the HRT make you tearful etc? Can you 'enjoy relations' without condoms etc.? during that month? (Sorry - DH will be pleased if there is a silver lining! ;))

nearlyreadytopop · 08/10/2013 08:17

baking, goodluck for your scan. I think when we have so much loss its hard to trust anything. A part of my counselling has been that I will get pregnant again and I will do everything I can to encourage a successful pregnancy but also accepting that its mostly out of my hands. For a control freak like me this is quite hard to deal withSmile
GP advised waiting for my period to sort my womb lining vou. I have lost a stone since last mc and my period has come back. I suppose that knowing that im ovulating soon is making me not want to miss it.
One baby was tested and genetics were normal and ds is genetically normal.

Polka2 · 08/10/2013 08:44

Baking very very good luck today.

DownstairsMixUp · 08/10/2013 09:26

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nearlyreadytopop · 08/10/2013 10:42

I meant to add sorry picardyWine

Bakingtins · 08/10/2013 11:01

nearly If you know that you've at least once lost a genetically normal baby, that you've carried a pregnancy to term before you started having problems, and that there is nothing on the standard tests then I'd really encourage you to look into the NK cells stuff. You sound to be in exactly the same situation I was earlier in the summer and apparently that history is classic for repro immunity issues.

ODB1515 · 08/10/2013 13:50

PicardyThird - honestly if it was me, i would do the expensive test.....fingers crossed xxx

Bakingtins · 08/10/2013 15:58

Scan was all ok - 5/6 week sac and pole in the right place, no heartbeat but that was as expected. 16 days to wait until the next scan, which is probably the one to dread - it's normally going wrong by 7-8 weeks and miscarry at 9-10. But let's be positive, first clexane tonight....

Polka2 · 08/10/2013 16:01

Oh Baking great news (so far so good) - today you are pregnant! Good luck with the clexane - ice it up girl!

Picardy sorry for the duff/false hope test, awful rollercoaster.

DownstairsMixUp · 08/10/2013 17:24

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nearlyreadytopop · 08/10/2013 18:25

good news baking hopefully the next 16 days will fly in.
thanks for the nk advice. I'm in NI, we don't even have a dedicated rc mc centre so I think very unlikely to have nk testing.

I had a good chat with super gp who used to work in gynae. She has seen positive outcomes in women with pcos and treated with metformin. She says that I may have to take it throughout my pregnancy. The fact that a lot of my pcos symtoms have reduced means that it works for me.

Still no further forward about when to ttc but she was very encouraging.

squizita · 08/10/2013 20:47

Picardy sorry to hear AF has arrived. :( Re tests, I have heard that if you leave them for 10 min they can develop false faint lines too.

Baking Thinking of you, such a nerve wracking time. Glad the scan was normal though. Tonight, you're pregnant and just had a good scan. :) Hope the injections don't burn too much!!!

Justone Bah to dodgy AFs!!! Hope you're back to normal soon!!

Nearly That's a tricky one isn't it. I didn't want to try until after tests ... but that was kind of covered with my 6 month enforced leg-cross from Charing X anyway. Karotyping problems are one of the rarest causes, but of course if there was a risk as yet undiagnosed, would you want that risk? No simple answer really.

Downstairs fingers crossed the BDing worked. If not, fingers crossed the AF isn't too hideous and WTF. :)

OP posts:
Bakingtins · 09/10/2013 07:55

Talk to me about clexane! First inj stung pretty bad at the time and has bruised 'orribly. Am I doing something wrong? The instructions say to put the needle in to the hub but I wondered if that's too deep and I'm hitting muscle? I am pinching up the skin and injecting into a fold but I don't have much s/c fat on my stomach (like me stealth boasting? Not really, it's just all on my bum & thighs!)

Polka2 · 09/10/2013 09:03

Baking this is what I do, learnt from lots of googling and stuff my Dad suggested (he's taking it following cancer ops!)..... lie down, ice a fatty are (obvs you're blessed with none, I have a fair spread but around tummy button is best), pinch iced area, put needle in at 45 degree angle (90 hurts) whilst still pinching, push needle in, push drug in (I go fast to get it over and done with) and then ice again. All done lying down. As I've said before the needles I got from Asda where much friendlier, this prescription from Tesco has fatter (more owwy) needles! Hope this helps!

DownstairsMixUp · 09/10/2013 09:56

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Purplefrogshoe · 09/10/2013 10:15

Good news baking :), sorry Picardy, hi downstairs, hi to everyone else, hope you are all doing ok, sorry can name check as on iPad ,I feel a lot better this week, seen consultant and my bleeding seems to have finally stopped, hcg down to 21 end they reckon all going well I can start TTC march

Bakingtins · 09/10/2013 10:15

Thanks polka it wasn't really the needle that hurt, it was the drug going in. Will try it your way tonight.
Does yours come in kind of sealed unit things where a sheath comes over the needle once you've injected? I've been given a tiny sharps bin for which I had to pay £7 prescription charge and it's only going to take about 10 syringes. I may have to enquire whether I can use one a big one from work and pay them to dispose. Seems a bit silly when the needles are completely safe once used anyway. Is it available with detachable needles or are they all the same system?

Downstairs thank you for the suggestion. I think it's the drug that stings in the deeper tissue rather than the skin hurting when the needle goes in so I don't think EMLA would help, but appreciate the suggestion.

Bakingtins · 09/10/2013 10:18

Just as an aside, is it not a bit crap to send someone off to inject themself with no instruction?? I'm quite happy handling needles and syringes (prefer it when I'm not the one getting the needle though) but I would never expect a client to inject their dog or cat without lessons and supervision the first few times. When someone starts with a diabetic pet they get at least a couple of weeks of daily help from a vet nurse.