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Miscarriage/pregnancy loss

Find support and share your experiences on our Miscarriage forum. See also legal rights and support after baby loss.

Original poster

Recurrent Miscarriage Testing, trials and tribulations...Part 7!

987 replies

squizita · 07/06/2013 19:04

Hi all, carrying on from part 6. All kinicker-checkers, blood-testers, clinic-attenders and finger-crossers welcome. Nothing but love and crossed fingers...

OP posts:
Bakingtins · 02/10/2013 22:01

Hi Pickle and welcome. Sorry you had such insensitive treatment. I guess it is routine for staff at EPUs, they must deal with it by not taking on board people's pain. Don't know why I'm making excuses for them, it doesn't take much to acknowledge how hard it is to be on the receiving end....
What blood tests have you had so far?

picklebum2011 · 02/10/2013 22:36

Hi I'm trying to join but keep losing my posts. I've read all the posts and think you are incredible, such great support for each other.

picklebum2011 · 02/10/2013 22:40

Ah confusing my posts are back. I was tested for thyroid and anti something.... That was all. I had hoped more tests but was told by specialist that I didn't need any more and not to worry I'd just had bad luck. Have just started cycle and am so tempted to try again in a few weeks but so scared.there was a thread like this when I had my dd after two mm I found it so comforting and helpful. Shall I just go for it or should I have more tests...

picklebum2011 · 02/10/2013 22:42

Does aspirin really help?

picklebum2011 · 02/10/2013 22:45

Does aspirin really help?

picklebum2011 · 02/10/2013 22:46

God sorry not sure why my posts keep repeating themselves. Hope everyone has had a good day,

Purplefrogshoe · 02/10/2013 22:58

Thanks, all I have had is a call from a consultant I've never heard of or seen from hospital I had erpc saying I had molar pregnancy(out of the blue until then epu had assured me I was newly pregnant) then letter with instructions to pee in a bottle and a letter last week saying it was a complete molar pregnancy, that's it one line from Dundee, i called my gp today and she got me down and took bloods, they should be back Friday but she is going to insist that I be seen, thanks for the support ladies

Hi Pickle, sorry you find yourself here

donttrythisathome · 03/10/2013 00:13

Hi, Thanks fr the kind comments. Mon/ Baking- I just got referred by my GP. I"m sleepwalking through this whole thing so I definitely didn't do anything clever to get free treatment! I didn't see Mr Shehata himself but other consultants in his clinic following his protocol. I was tested for everything again. The killer cells test is a blood test. I am in prednisone from ovulation until AF arrives, if BFP take even more prednisone and also cyclogest.
A walk/exercise would be good. I'm also getting therapy- quite funny really as it is Freudian therapy, and in line with the cliche, it's all my father's fault ha.

Purple, I am glad something is moving for you. it doesn't sound normal and you need proper care.

pickles, sorry to hear your story. My last mc was in June too, my third one, although I may have had a really early one last month too. the jury is out on aspirin I think.

Bakingtins · 03/10/2013 07:42

Pickle I think we've banned the phrase 'bad luck' on here. How many times have we all heard that?
The problem is that from an NHS point of view having your DD resets the clock, so whilst you have lost and are grieving for three babies they only count it as one. There is so much that's not understood about RMC and there are a group of women who have 3-in-a-row, they don't find anything and then are ok next time, because or in spite of some of the "can't hurt" treatments like baby aspirin. There's definitely a group of women with issues with APS/clotting for whom aspirin and heparin is treatment of choice. My consultant says other than that it's contraindicated because it interferes with implantation. It's all a bit of a minefield because they don't all agree with each other, and some of it is in the "more research needed we'll know in 10 years" category, which is no help to us.
Lesley Regan's book " Miscarriage - what every woman needs to know" is a good starting point if you want to read up a bit, also John Cohen "Coming to term".

nearlyreadytopop · 03/10/2013 10:02

hi pickles im in the 'bad luck' club as well. 1 ds, then 3 mc and all tests normal. I've been told next time I won't be offered anything apart from appointments at an epc. The doctor I seen referred me to a set of guidlines on the royal college of obs and gynae. sorry I can't link to it but if you look on that website under guidelines, then 'green top' then 'recurrent miscarriage, investigation and treatment of couples' you should find it.

Original poster
squizita · 03/10/2013 11:17

pickle that sonographer was both rude and inaccurate. 1 in 4 women lose a baby, sadly. 1 in 100 lose 3 in a row ... about 5 in 100 sadly have 2 in a row. I'm sorry she said this it must have caused you awful worry at such a difficult time.

OP posts:
Polka2 · 03/10/2013 12:38

Squiz is right picklebum (great name by the way!), your sonographer was wrong and heartless and I'm so sorry you had that experience when all you needed was support and facts.

Polka2 · 03/10/2013 13:47

Ladies I need some advice - due to my Mum putting the wind up me - does flying (under 1hr) increase the risk of mc? I'm going to Edinburgh this weekend and she's suddently panicked me that it might, I believed that the only increase to pg woman flying was of DVT but my Mum was going on about changes in air pressure affecting it blah.......HELP?

Bakingtins · 03/10/2013 19:29

BMJ says flying does not increase risk of miscarriage, but travelling may make managing a miscarriage more difficult (shouldn't think that applied to Auld Reekie) though flight attendants are at increased risk of miscarriage so there must be something in that environment that is significant.
Miscarriage association says it doesn't increase risk (scroll down to page 13)

Polka2 · 03/10/2013 19:45

Thanks baking that's really useful, spoken to midwife and docs again who both said again, that it doesn't affect/cause mc. God when will this metalling ever go away?Confused

Dreamstoreality · 03/10/2013 19:49

Can I join?? Not sure if this is the right place for my post.

Between 2011 and Easter this year I have had 3 early miscarriage (11.5 weeks the furthest). At Easter I was referred for testing and very quickly had a consultant appointment. Was told tests would be arranged but in thee an time keep trying.

I caught straight away and despite some very slight spotting early on made it to my 12 weeks at which point the consultant discharged me. Got to my 20 week scan and all was well with my little boy and I at last started to get excited.

Got excited too soon. Went into premature labour last Friday and my little boy was born sleeping (21 weeks plus 3 days) on Sunday evening. Holding his perfect tiny body and kissing him goodbye is the most difficult thing I have ever had to do.

The bereavement midwife called today and the hospital have written asking about funeral arrangements. I just can't think about it without breaking down but know I have to start to make decisions.

The earlier miscarriages were heartbreaking but this is a whole new level of despair. And whilst I long to be a mom Im not sure I could face this again.

Polka2 · 03/10/2013 20:51

Oh gosh dreams that is tragic, you poor girl and as you say a completely new level of awfulness.

Please do come and join us, it's a great group of support, hugs, screams and tears. I hope you're getting lots of on the ground support, remember to take things at your pace as and when you can sensibly cope with it. I'm so terribly sorry you're little boy was born sleeping. Hugs hugs hugs.

Justonemoretime · 03/10/2013 21:06

Dreams how horrible for you, of course you are welcome to join us. I am so sorry that you have had to go through this; I can't imagine how devastating it must be. There is nothing I can say except that this is a really supportive community and if there is anything we can do to support you, we will try our best. I hope you get some answers in time and that the funeral helps you with the grieving process. [hugs]

picklebum2011 · 03/10/2013 21:12

My heart goes out to you dreams I'm so very sorry.
Thanks for all replies yes term bad luck should be banned as well as insensitive people.
Polka I know what you mean we will always see a risk in everything we do even everyday things but I hope you can feel better now you have spoken to both doctor and midwife.
Thank squizita for the facts I knew at time she was wrong but I think we were both in shock at how she was.
Nearlyreadytopop thank you, how are you at the moment? Are you thinking of trying...
Bakingtins thank you too, the specialist mentioned about giving me aspirin after an early scan if heart beat found...would you take it?

donttrythisathome · 03/10/2013 21:35

Dreams, I burst into tears reading your post. How awful for you. What did you name your little boy? You are very welcome here. Ther are also bereavment threads on here with other people who have lost children at birth. My heart goes out to you.

Purplefrogshoe · 03/10/2013 22:24

I'm so very sorry Dreams

nearlyreadytopop · 03/10/2013 22:32

dreams I am so very sorry for your loss.

Bakingtins · 04/10/2013 07:14

Dreams I am so sorry you are going through this. Sometimes I despair at the unfairness of it all. Of course we will do anything we can to support you. I expect you've already been pointed towards SANDS by hospital staff but if not they are v helpful and can probably advise you on the decisions you need to make about the funeral etc. Thinking of you Flowers

Mon26 · 04/10/2013 08:16

I am just browsing quickly I will post later on, but wanted to say to polka I once read that flying in the first trimester isn't advised because of miscarriages when the embrió is forming, something about changing the pace of the embryo developing, some kind of interference, then I read of many women doing ivf in the usa taking short flights back home...

I would take train, overall, it is 5 hours or so?

I will post again later. Good morning and Friday.

Mon26 · 04/10/2013 08:24

Oh! dreams I also read you now!

It is very sad indeed and I can't imagine how difficult it must be to deal with that paperwork now. Cant anybody else deal with it for you? However, I must say, that the funeral et cetera would help you to process the mourning and to come to terms,...very sadly and difficult. Don't think of the future now, just one step after the other and take care of yourself. We are here for anything you need.

I am very sorry you have to go thru this now. My heart is with you! Many hugs.