Recurrent Miscarriage Testing, trials and tribulations...Part 7!

[squizita]

Hi all, carrying on from part 6. All kinicker-checkers, blood-testers, clinic-attenders and finger-crossers welcome. Nothing but love and crossed fingers...

Just I'm on heparin so same principle really, I'm clinging onto bad pooing etiquette bleed but being scanned tomorrow. I already drink over 12 pints of water a day and try to eat lots of fibre but sadly it's always been this way

Getting in the mindset for the St Mary's appointment on Tuesday... Not sure if I'm mentally ready to get back on the TTC rollercoaster! Need to, though, we have been through so much to get to this point. Thing is, a year ago, I was more than ready to take time out of my career, but now in a new job which I am REALLY enjoying. Eyes on the prize... I hope it leads to joy and not even more heartache. Thanks, lovely ladies, for being there. I hope you are all OK, at whatever stage you are at. (Hugs) to all.

Just, very good luck at your appt, they're really friendly and so informative at st Mary's.

Just they're ever so nice at St Mary's. And world renowned. Best of luck!

Gah. Can't shake this feeling of doom/it won't work I had since my blood test Weds. Weird. Irrational and weird. Also terrified of my partial mole returning even though they said my case was so mild it would be virtually impossible. Blaming my AF for the grumpiness.

nearly that is really annoying, esp as the karyotyping are the tests that take ages. I hope you kicked off about it!
That's pretty much the situation we ended up in at our local unit - everything is fine, you've lost another perfect embryo, we have no idea why, we can't do anything to treat you, go away and lose another one.... I don't know why it's difficult for them to appreciate that doesn't feel like a great option when you've already had multiple losses.
If you want to know anything about the immune side of things happy to pass on info.

Polka hope you are ok, it's just the worst feeling when that happens. I hope the scan tomorrow is reassuring, crossing everything for a positive update.

Hi everyone. So sorry that so many of you are having a rough time of it

Baking a tentative congratulations! As I kept talking myself (to the point of pottiness!) you have to be in it to win it and you're one step closer every day. Keeping everything crossed for you.

Polka I just wanted to pop on to say that my friend had exactly the same as you describe. Twice she had bleeding after a strenuous poo and went to EPU to get scanned and both times was all fine despite there being quite a bit of blood. Anyway she's now 1 day ahead of me so 23 weeks. Hang on in there, stay strong. I know how hideous it it though!

Big hugs to everyone else.

Thinking of you today Polka.

Hi ladies - I thought I'd done an update post but obviously not, the EPU kindly fitted me in yesterday and they could see a strong heartbeat/sac and no evidence of any bleeding in the uterus/placenta so they think it must be a burst blood vessel (due to heparin) on the cervix -phew phew phew phhhhhhhhhhhhhhhheeeeeeeeeeewwwwwwwwwwwwww but it hits home again how incredibly precious everything is. I was sat waiting for a scan with a few other ladies who all had bad news - mc, its a common rollercoaster that never seems to get the research/treatment and recognition of how harrowing it all is.

Meant to say 'thankyou' for all your support ladies - Friday was the worst of days and I was ready to completely give up and just needed to be heard by people that know how it all feels.

great news polka
baking I'm not sure what to do next. I had hoped for some sort of precautionary treatment. DH wants to wait for karyotyping results but its the one I'm really hoping is normal as there is no real 'fix' for it. Doctor thinks its unlikely. He did trot out the maternal age reason at which point the rage started to build lol. I am 33. Maternal age is not something that we have any control over, I think its used by doctors when they don't have anything else helpful to say

Hello everyone.

Polka and Baking - wonderful news! :) :) Keeping everything crossed for you.

nearlyready - yyyyy to age being trotted out - geneticist on Friday did exactly the same thing. I'm 36 and 3 of my mcs happened before I was 30. [cross]

Our karyotypes are clear, as was indicated to me on the phone last week. Feel pretty lost tbh. Due my period at the end of this week (have no hope of a pregnancy, although of course it's possible) and am going to see about testing of progesterone levels in new cycle. RMC appt on the 22nd. But I feel despondent and downhearted above all really.

Nearly - that is APPALLING: "I am 33. Maternal age is not something that we have any control over, I think its used by doctors when they don't have anything else helpful to say" ... St Mary's called me (quote) "a baby" at 34 and said no way would it cause 3 in a row until after 38-40 earliest. I would honestly complain. Even the most cautious official guideline has 35 as the age things can get harder and if he doesn't know that he has no business working in fertility. I agree with Picardy, they trot it out without reading cases properly.

Polka PHEW! Sooo relieved for you.

I keep feeling sick. Might be the high dose vitamins (have heard they can make you feel nauseous) but with my history I did a HPT even though just finished AF. Not for a BFP but out of fear of molar. Nothing there of course. It's either the vitamins or something I ate. Need to 'man up' (or 'woman up') FFS.

Great news polka :), good luck at your appointment Just, nearly I hope you get your results soon, I really hate it when they do the maternal age thing and at 33 it's not even relevant! I'm 36 but I was having that said to me at 31 Grrr, Picardy hope your app goes well on 22nd, I have had to postpone my return to work after my career break for a month initially, Really rubbish as we could really do with the money, I am still pouring with blood with no warning, gp trying her best to help but she knows as much as me about molar pregnancy! Not really getting any help/answers from anywhere, feel quite ill and sad at the moment, hope everyone else is doing ok xx

Glad to hear it, Polka

nearly I think that's really crap to bring your age into it. If you were 10 years older and having problems maybe they'd have a point but even then there wouldn't be anything you could do about it. I heard it so many times and then when it turned out there was no chromosome problem they were out of ideas....

Squiz glad you got a BFN (funny old world we inhabit, eh?)

Purple I'm sorry you are having such a hard time, it sounds miserable and isolated. Have you been to Dundee yet? Is there no sort of support group they can put you in touch with?

Purple you may have already discovered this site, but it is SUPERB. The forum is excellent support and advice www.molarpregnancy.co.uk/ There's also a thread on MN about it, which 'seems' quite dormant but isn't really, as if you post there someone will respond! It's just due to rarity it's rare...

thanks I only send samples to Dundee if I need to be seen it would be local hospital with consultant who has little knowledge of mp which I don't understand at all, I have now been bleeding for 6 weeks so heavy at times it's soaking through my clothes, I will have a look at that site, thanks Squiz

Polka and whoever else was on clexane ( sorry, memory like that thing with all the holes) can I ask at what stage you started it? Prof Q's protocol is as soon as it is shown pregnancy is in the uterus. EPU said straight away on the phone then back- tracked when I got there and said they won't do it till after a scan and won't see anything until 5+ weeks. I emailed Prof Q and she said she'll scam me this week but I can't go all the way up there again. I know others have started from BFP, not sure why she's saying wait (well I know it's to rule out ectopic, but no reason to suspect it in my case) GP is going to prescribe it this week, so I will have it in the next day or two. Would hate to lose this one and worry that a few days might have made all the difference...

Baking - last pregnancy I was told to start at 7 weeks (aspirin from pos test though), although I started a little earlier after the rollercoaster with scans and then finding a heartbeat. It didn't make any difference, obv, but with the baby's genetic make-up it couldn't have. The geneticist I saw on Fri says she would recommend starting straight from pos test. IIWY I would probably start as soon as I had it - not necessarily because it makes any difference but just so I felt I had done all I could, iyswim.

Baking Raj Rai said to start from BFP, he said not to panic if I had a BFP on a Saturday of a bank hol weekend but to start as early as possible was the best.

Like we've all said before, its so frustrating when these specialists don't all sing from the same hymn sheet but if you can get it sooner (before the scan) I would.

Having a rubbish day - came home from tesco and my idiot neighbour says to me 'Wow - you're pregnant, when you due?' I was so upset that I came in and burst into tears.

((hugs)) for ODB

Oh ODB, awfulness to the extreme. Massive hugs and

Hugs OBD