Recurrent Miscarriage Testing, trials and tribulations...Part 7!

[squizita]

Hi all, carrying on from part 6. All kinicker-checkers, blood-testers, clinic-attenders and finger-crossers welcome. Nothing but love and crossed fingers...

Welcome odb sorry you find yourself here.

picardy what a wait, can you chase up the call back again?

Just had scan sat in waiting room waiting to spk to nurse but there WAS a strong heartbeat!!!!!!!!wooooohoooo

Great news polka

Good news Polka

Picardy bit of a curve ball - difficult when the news is not what you've been led to expect for so long. That must be better news for future prospects though? I'm sorry I can't remember if you had any other reason for earlier losses found. Does that leave you with anything to go on for a future (or current ) pregnancy?

Hospital just called me complete molar pregnancy :(

Purple Sorry to hear that. :(
Polka Yay!
ODB welcome - sorry you find yourself here.
xx

Great news Polka :)

So sorry, purple

Baking - I have Factor V and MTFHR - it might be those but the jury is out research-wise IIRC. Tbh this has knocked me right off my feet. I spent the morning crying. Monosomy 21 is rare, it is even rarer with no translocation involved. Why me - did someone think I hadn't had quite enough shit yet? It feels so random and - iykwim, because I don't think someone is personally doing this to me - gratuitously cruel.

I have made an appt with a RMC clinic in what used to be my home city. We are going back for a few days in Oct half term and I managed to get an appt for then. I hope and presume they will do any remaining tests (thinking immunological stuff, though I think the load of blood work I had done tested for NK cells and was negative - or isn't that a blood test?)

I suppose our odds are what they were before, which is not great, obviously. My head is all over the place. We DTD last night despite these imminent results hanging over us and I lay there worrying my head off and seriously considering the MAP Now I'm plunged back into raw grief. Feck, I hate this.

Welcome to the club nobody wants to join, ODB. We are a lovely lot though :)

Picardy. On dear. I am so sorry someone has hooked up a shower of shit in your house too. My thoughts are with you and hope good news comes to you soon.

Americas cup is on again again hour house ...

I'm sorry Picardy it is absolutely crap to be on the wrong side of the stats all. the. time. It does feel personal, whatever your beliefs about how the universe works.
DH and I were having the conversation last night that every time we pick ourselves back up we get another load of shit dumped on us. There is only so much stuffing you can knock out of a person before they get a bit floppy and pathetic.
Funnily enough for him it's losing our dog and cat on the same day three weeks ago that has been the final straw - it's brought up all sorts of feelings of injustice about what has happened to us and emotions about the babies that he buried at the time.
The NK cells wouldn't be in any standard work up - the NHS don't test for it and it seems to be limited to a few people working in that area (prof Quenby + Prof Brosens in the midlands and Drs Shehata, Gorgy, Nduke in London) Some people are using a blood test, but then others argue that levels in the blood do not correlate with what is happening in the uterus and you need a biopsy.

LB you need a second telly!

Picardy and purple I'm so sorry that the shower of shite seems to be fully operational in your house.

Baking, it's funny what things tip you over the edge but losing two lots of four legged friends is horrid for you and your DH.

Hugs to all.

I'm feeling like complete poo witb all day sickness but taking strength that that must be a good thing?!

Can I propose that the phrase 'the shower of shit' has to feature in the next thread title?

Sorry to both picardy & purple as if mc alone isn't bad enough luck :(

Just tested and it was bfn I think af might make an appearance today, just aswell I didn't put a bet on! I wonder why my boobs are so sore I can't stand this for 2 weeks or more out of every month it's unbearable even to go over speed humps in the car!
Suppose 1st month of ttc was a bit optomistic...

Picardy - how dreadful and frustrating, no answers afterall you have gone through. It seems those rare/random things just seem happy to fall on those of us who are already covered in shit. :/ Just hoping that the random bad luck stops right there for you and future PGs just need the factor V treatment to be OK.

Purple - Sorry to hear that. Are you going to Charing X or Sheffield? They are superb both places ... Small comfort I know but you are in good hands.

Polka - woo! Heartbeat! What a relief.

Baking - yeah, shower of shite is about right. It is so unfair - so sorry about your pets too. Hope your DH is feeling better. Mine is similar, very upbeat then something else sad triggers it all.

LB - good to hear Dh is in good spirits. Annoying re the TV though! I think our marriage owes a lot of peace to an old telly and computer we keep in the spare room!

Butterfly - yuk. Bloody AF. M&S do some great non wired bras I use pre-period. I live on a street with many speed bumps!

Sorry if I've left anyone off! Got a blood test next week, no other news. In that 'don't get preggers ... You're 35 so time's not a problem, keep them legs crossed!' Window. Feels a bit odd - frustrating but at least the shower of shit is turned off temporarily. Went for a promotion at work, missed out (but OK as it was to someone good! So it didn't feel unfair or anything). Right, off to do gardening, marking and other things one does when not BDing and POAS.

Daisybell1 - I hate that too. I have 2 sons (4 miscarriages in between the 2) and 1 miscarriage since and everyone including the doctors says 'you have had 2 healthy pregnancies so you'll be fine.' I may have had 2 boys (and I know how lucky I am) but I have also had 5 miscarriages!!!
Anyway, I had acupuncture for the first time which was v interesting but he thinks I should take a break from trying until things balance out as on top of everything else I am now bleeding a week before every period. Do I wait or not? I want to keep trying but part of me thinks I should let my body settle down. AAARRRGGH!

So sorry picardy its awful not getting any answers, squizita im in scotland so my testing will be done at dundee and if any treatment is required it will be charing x, hi to everyone else ;)

Thanks all. Shower of shit is the perfect expression - can be handily abbreviated too, to SoS or ShoSh ('I've been ShoShed again').

Have asked for the report from the bloodwork so I can check what's been done and what hasn't. I'm in Germany so things a bit different here.

ODB - maybe get the bleeding checked out? Mid-cycle bleeding should always be looked at.

Hello squiz - I've been here a bit sporadically but it feels like I haven't 'seen' ylou here for a bit?

Oh baking :( sorry for the loss of your dog and cat, and I can well imagine that being a trigger for other grief.

Been posting sporadically myself! Hectic at the moment, never a moment to sit.

Grr bit of a 'storm in a teacup' SoS moment today. Before MCs I had a 28 day cycle. In the midst, a 22 day cycle (my OV day never changed so suspect implantation issues). After the last one FINALLY went back to normal ... 3 months at 28 days phew.

Today, with hardly any symptoms, AF arrived several days early at 24 days. Still within 'normal' length, but enough for me to email st Mary's just to let them know. Grr. Scared my cycle is shrinking and had I conceived last month I'd be better off. Missed my vitamin b and d complex last few days... Wonder if that's it? I did start it after my last mc. Hmm.

Storm in a ,mooncup not a teacup.

Oh Squiz not sure what that's all about, keep taking those vit B's and I found acupuncture sorted my cycle/ov out too. It's so hard to hold off ttc whilst waiting for st Mary's appt but it is worth it, if it saves you going thru' heartache again. Hugs - bloody body's!

Nice to see you back Squiz. Just about to hit the pillows so just a quick one to say hi to all, send condolences to Baking, and say I feel simultaneously smug and sad that 'shower of shit' has become the phrase to describe everyone's recent troubles. I sure hope the fire brigade turns off that hose soon, for all of us.

Oh, I forgot: got ante-natal blood test results back from GP. All is normal. Meeting with fertility doc this week to figure out this turkey baster business. IUI seems the only next step at the moment- DH is in the fetal position for most of the day now, radiation and chemo has really caught up with him. DTD is the last thing on either of our minds at the mo.

Re: the tv situation. I refuse to have a tv in the bedroom. DH disagrees but thus far there's still only the tv in the living room .

Ok, that wasn't so quick after all. Nighty night.

LB sorry to hear your DH is suffering [ sad] I hope he starts to feel stronger v soon. Does he still have further treatment to come?

Thanks Baking. We are in the final week of treatment. All indications are the he will walk away from this cancer-free which makes watching him suffer in this way ever so slightly easier to bear. The great irony is that he's probably cancer free now- it is the radiotherapy that's making him feel so so low. But he's been so very lucky throughout this ordeal so won't complain (too loudly).

At least you are on the home straight with it all then. I think you've both faced it very bravely. Hope he gets the all clear and you can put it behind you.

hi
this week is going soooo slowly, review appointment is on friday.
Have also started bleeding which is probably a period (11weeks post mc). Tiny fear that its some random bit of retained tissue but I'm just being silly aren't I?
I haven't had a period in 2 years (only mc bleeding). This feels quite novel. Am I in for a horrible few days?

How have you managed that nearly ? Hope it is your period, much more likely to be that than anything sinister. Think it's all part of being in this club that you start to think of the worst case scenario all the time!

LB great to hear you and DH are on the home straight.

Nearly it sounds like AF - fingers crossed.

Baking hope you're doing ok?

I just embarrassed myself at first midwife appt by asking if I should cancel my hair colouring appt on Saturday as it could cause me to mc, she calmly reassured me that it had no affect, not that I'm completely paranoid or anything!