Recurrent Miscarriage Testing, trials and tribulations...Part 7!

[squizita]

Hi all, carrying on from part 6. All kinicker-checkers, blood-testers, clinic-attenders and finger-crossers welcome. Nothing but love and crossed fingers...

That all sounds very positive, baking.
Hope you're enjoying your week off, donttry.
Waves to all - sorry for telegraphic style, having a hard week tbh.

Picardyhope your week improves - its tough when "it" hits you - hugs.

Baking laugh away - I'm willing to try anything! Last period 18th May, MC 22nd June but only a teeny weeny bit of bleeding, scan showed no sac but a shed load of womb lining to come away and quoting the nurse 'you'll need to be near a bathroom for a few days' and nothing since, not even a squeak.........

I'd ask to be rechecked then Polka. I don't suppose there is much that can be done to hurry it along, but it can't be right to have a pregnancy lining just sitting in there, more than a month along.

Picardy hope you are ok.

Squiz - we were going to go to the Broads but I fancied a bit of mountain action instead. Norfolk is definitely on my list though.

Baking - I'm sure when I read the prednisilone (sic) thread some of the women the said they felt great on the steroids, although yes I think bloated. Ya never know....
I'd only blame myself if there was something I knew or could have known. This doesn't sound like one of those scenarios. It's cutting edge stuff.

Polka - I had my ERPC on 3 June, and AF came 30 June. I had bled a few times before then , although nothing AF like. A month doesn't sound too long, although frustrating of course. Mind you maybe it is different if the lining is just sitting there rather than it just hasn't built up again

Polka, have you tried raspberry leaf tea? Also it doesn't speed things up, but if you track your temp you might see it drop off and then get your AF a day or so later. Might take some of the uncertainty out of it? Hope you get normality soon.

Thanks ladies!

I drink Raspberry and Echinachea tea Just does that count?!

I probably am being impatient donttry but its just that nurse doing scan back in June said its going to happen soon, I'm mega bloated and Raj Rai was concerned that I hadn't had a period yet and I hardly bled at all when I did MC, which on the 2 other mc's I had a full on (double period like) bleed.

Its got to be the leaf, not the berry. Health food stores should sell it. Why not go in to an Epu if you have one locally? If you are near London, UCH have a walk in service. May put your mind at ease? Good luck!

Raspberry leaf might be worth a try, Polka (good idea justone ) It tastes vile but you can get capsules. Lots of people take it at the end of pregnancy because it is supposed to tone the uterine muscles and help contractions.

Polka, I don't know if the epu will do this but mine advised me that even after hcg falls, progesterone can be all over the place causing delayed bleeding and they did a test? Of course that would involve yet another blood test, but it might give you an answer. And maybe they could give you something if it is high?

A slightly raised temperature first thing in the morning is a sign of elevated progesterone, for me that's 36.8 ish, and I look for a drop to 36.4 ish and AF comes within a day. This may be a guide if you can't get a blood test.

Awaiting lettwe with 'product results' any day. Keep telling myself that more information is a step forward...!

Polka after my first erpc I didn't get a proper period for months, just intermittent brown spotting. Anyway, I have pcos so I know my hormones have a tendancy to be mental, but my consultant gave me progesterone tablets for a week or so (can't remember off the top of my head dosage etc but can check) and then once I stopped I bled. Its an induced bleed, like a pill-break period, but it seemed to clear me out and I actually got pregnant with DD on the next cycle which was normal length. Maybe worth a try. Its a bit like taking the pill for a week then stopping and bleeding. Its the drop in progesterone that makes you bleed. Other than that I found Accupuncture helped being on AF in Jan when I had a 50+ day cycle and felt like I was losing my mind (build up of hormones made me cry a lot!). Hope you get it sorted, I am very experienced at missing AFs!!

Bring on AF...

Hi everyone, sorry for the radio silence over the past month. Hoping everyone is well and hello to the new folks. DH's surgery went well and we're preparing now for radiation and chemo. I have an appt with the RMC tomorrow and we're trying to get an appt to bank his sperm before chemo. Anyone have any experience with the Royal London's RMC?

I sure am tired of hospitals

LB good to see you back. Hope tomorrow goes well.

LateBloomer - let us know how it goes tomorrow. So glad DH's surgery went well - one less thing to worry about.

Polka - castor oil? It brought on labour for me, although I seriously would NOT recommend it for that. But to bring on AF I probably would...

Latebloomer - glad the op went well. Best of luck at the clinic!

Don't try this - castor oil? Wow! Will bear it in mind if my wtf cycle is long (though often short). What is it in the oil that makes it make you bleed do you know?

tea I too have PCOS but with the help of relexology and acupuncuture have managed to have regular cycles for the last 3yrs even after 2 x previous MC's so this is doing my head in - the only thing I can think that is particularly different is that I took progesterone in this pg so maybe thats caused everything to go haywire. I know EXACTLY what you mean about feeling like you're going mad - one min I feel normal (!!!) the next ready to kill/divorce DH

Late I hope the op went well and you're in our thoughts for the rest of your DH's treatment, cancer is a BIATCH (my Dad is fighting it at the mo). I have no experience of RMC but hope the appointment goes well for you - I can only imagine the levels of stress and worry you're going through -

I nearly did a cartwheel in the loo last night as when I wiped (tmi) I had a teeny tiny speck of coloured (I wouldn't be so bold as to say red/brown) discharge - hopefully this is the start of things to come!!

Polka, sorry to hear about your dad. I hope his fight is successful. Did AF make a bona fide appearance?

Thanks,all, for the warm welcome back. I've been trying to keep up with where everyone is but forgive me for not acknowledging the latest individually. I'm not keeping up with much these days!

RMC was fine, not sure if it was what I expected or not. I don't know what I expected to be honest. I met with Mr (Dr?) Rehan-Uddin Khan. He had a very gentle demeanor - acknowledging that talking through my history may be painful and that he was sorry. And so of course I burst into tears- why is it this way when people are especially nice? Anyway, he ran through the statistics of it all and said they'd run some tests for the sticky blood thing and the thyroid antibodies issue. Had bloods drawn and that was it - next appt in Oct. My homework is to call the hospital where I had the ERPC in early June to see if they tested the tissue and 'products' that were removed. I am pretty sure they did not but will follow up with them anyway. I should expect a call in a few weeks if I do test positive for the thyroid antibodies.

So here's the dilemma: since ERPC I've had 2 periods so things seem back to normal. We've been told in no uncertain terms not to conceive during chemo. We will have really only one window of opportunity before chemo where I'll be ovulating. Logically and rationally we should wait until the test results before TTC. But this whole process is neither logical nor rational. DH and I chatted about it and we're going to give it a shot if he's feeling up for it. Chances are it won't work anyway so I don't know that we have much to lose. Dr said it was up to us and he understood the pressures given our situation. We are freezing DH's sperm before chemo.

Would you think about it differently?

polka. Take care of yourself.

LB, I would think exactly the same as you, FWIW. There is little of the rational in any of this, I absolutely agree. God, I'm so sorry life is raining such shit down on you. It isn't fair. None of this is fair for any of us.

Sorry if I've missed people out. Still having a hard time and trying to convince myself we are at the end of this particular road. Geneticist on Mon and I don't think she'll tell me anything I hadn't already guessed. So sorry, this sort of negativity has no place on here really, particularly as I have what a lot of you would give your right arm for - 2 happy healthy children. Sorry.

Polka Hope you're spotting progressed to something and you are feeling a bit better?

LB, I can't imagine what you are going though - it sounds awful. Glad DH's surgery went well. If I were you, I'd call the clinic where Mr (Dr?) Rehan-Uddin Khan saw you in a week or so (if your 'window' isn't sooner than that?) and ask whether there are any results from your bloodwork yet. Some take longer and I would imagine that he's want to go though the results with you in person, but there may be some early indications that can give you a clue as to whether you are 'normal' ;) I know some test results genuinely take longer, but maybe there are some that will come back sooner? It's a difficult one. I'd be tempted to try, under the circumstances; they do say that we all have something link 60% success rate even with all our histories. Maybe you'll get lucky...

Picardy sorry you're feeling down. It must be so hard to be coming to terms with whether to stop trying or not. I hope you find some peace.

I've agreed to go out on a day trip with my 8 month pg sister and my niece next week. She knows I'm struggling with the situation but I can't avoid her forever, nor would I want to. Hopefully there won't be any 'moments' in public. Just need to front it out :(

LB - glad the clinic was sympathetic and kind (and yes, always the nice docs/nurses make me cry too!). Tough call with the TTC dilemma, as you say everything's so illogical and full of chance it's like were balls on a roulette wheel. I agree with what justonemoretime suggests re calling them. My thyroid tests for TABLET for example are taking under a week so they might have those in for you before the others?

Justonemoretime Good luck and bravery vibes for the day trip. Hope it goes well. :)

Picardy sorry to hear you feel down. Hope the results give you enough info to make an informed choice. Such a very tough choice either way, and with mc all the "no one knows" and variable info out there just make everything tougher. Whatever you choose, you're so wise and strong and always have your family at heart, I am sure it will be the right thing to do.

Mega quickie but AF has arrived !! Yeyy!

Will check in properly later but hey ladies, its Friday!

Hi everyone! Just dropping back in to update as its been a while although I have been keeping up with all your updates. On phone so can't name check everyone..

Tea - so happy for you and exhaling bit more with you with each update.

Baking and squiz- been keeping up with your news. X

So I am now 37+2 and baby School is naughty and Breech so booked in for cesarian at 39 wks! All being well he will be here in less than 2 weeks time! Still can't quite believe it.. Oh and just 5 more days of heparin injections and I can stop those as well (looking forward to bruises fading).

So I will come back and update . Still wont completely breath easy until Pregnancy number 6 results in baby number 2 in my arms.

Xxx

Great news schooldilemmas. And Polka!

Squiz - the castor oil stimulates the bowels so the theory is it stmulates the uterus so can bring on labour. I think to help with AF toy give yourself a castor oil pack. But it could all be rubbish and is probably bad advice! Anyway you wouldn't take it when pregnant I don't think.

Latebloomer - I think your decision is rational! So many mcs are unexplained, and it is your one shot before chemo. Good suggestion to give doc a ring to see if he has the results.

Picardy - so sorry you are down. Completely natural. Please don't apologise - this is the thread where there are no apologies for any emotions expressed!

I'm really fed up about seeing pregnant women and people with 3 year olds and babies everywhere grrrr. On my 2WW at the moment but negative HPTs so far. Think if I had been successful this month I would have had a positive test by now.

Donttry Knowing my luck I would still get no AF and give myself the squits instead! Lol!

Sorry to hear no positive hpt. Its so tough at the moment, tinies everywhere.

School thanks for swinging by. How exciting, just 2 weeks to go! Thanks for popping back and updating, it's very reassuring to hear a story from the other side of testing.