Recurrent miscarriage testing and beyond.. Part 6.. Over here!

[orangebowl]

We have filled up the last thread so here is the next.. Deep breath and grit your teeth for the roller coaster of emotions that continues... Hope tea and butterfly and all find it!

Thanks all, I'm going to phone them myself this morning. I'm glad in some ways that I've been here before because I know the drill. If I were the sweet young couple excitedly awaiting their scan after ours, to go in, be given bad news and then just be kicked out the door being told to see the GP, not even a mw available to chat, I'd be completely lost and heartbroken.

I really am going to make a stand this time re tests for me, and also want an erpc so that can be tested as well.

Squizita - holding your hand tight

What a debacle! Earliest appt in EPU is Monday luckily hospital are sympathetic to me being referred though gynae so hopefully I'll get seen quicker...

Hi ladies how is everyone doing? Sorry to all the new ladies on here daisy and squiz :( and sorry to everyone that the witch caught this month!
On a more positive note great news for school and lands! :)

Not much going on here really had an app at the hospital today just for follow up, didn't get anywhere really but I'm being put forward for the promise trial so we will see how that goes when the time comes. I've been having a bit of mid cycle spotting which they said is probably ovulation but I have an app in 3 months time to see if I'm still concerned about it before we start ttc again and if we need to do any checks they can do it then. So not a lot happening but feel quite positive about the trial just hoping I get the progesterone and not the placebo!

Hi all. Back from surgery. Hospital have been lovely, there is a mention on there of testing for molar but they say 'exclusion of alternate pathology' and they said it was more likely to be ruled out than confirmed. They said the tissues looked normal. Also they are testing for cytogenics and pushing for recurrent miscarriage testing. They will be seeing me in about a month for review too, whatever happens.

Hi Squiz - glad you are being treated well and hope you are reassured. It sounds like they will get things moving for you on testing so hope it yields some answers for you.

Hi squiz good to hear you were looked after it certainly makes it that bit easier. It's also good that they are pushing for tests and the fact that they have something to test is helpful my first 2 mc I had erpc but they wouldn't test because I hadn't had 3 and they other 2 were natural so nothing to test. I hope you can get some answers. Take it easy these next few days x

Hi ladies. Mind if I ask some advice?

Just suffered my third miscarriage (1st @ 8 weeks, 2nd@11weeks and this last one @ 9 weeks although they say it had stopped growing at 6 weeks).

I've been referred to gynaecology department and have an appointment on 14th May. Just wondered what to expect? Is it likely to be just blood tests?

Hi dreams sorry you find yourself on this thread :( I think it's likely you will discuss what happens next and probably do bloods normally they test for clotting disorders thyroid function etc. Make sure you have a list of questions you want answering and don't be scared to push for investigations if you have to. I found it was easy for them to agree to do bloods but they are reluctant to do much else most consultants think it's extremely bad luck unless of course antthing comes up in your bloods. I found it's good to have a bit of knowledge before you go so you know the right questions to ask you will get good advice here and also lesley regans book is very informative try and stay away from dr google it will only scare you! Hope you are coping ok with this mc and you have plenty of support in rl. How are you managing your mc are you having to go for surgery or has it already happened naturally? X

Hi Dreams. I'm sorry you find yourself here. What is recommended will to some extent depend on your own situation. Are you able to get any testing done on the baby or did you miscarry naturally? I missed this opportunity because I MC at home without much warning 3rd time. Other than that it's loads of blood tests, some of which have to be a while (6 weeks) after miscarriage and some of which (karyotyping) take a long time to come back. I had a mid-cycle scan to give some idea about ovarian reserve and to check for any abnormalities, the consultant said I didn't need any other tests for anatomical abnormalities because I've had successful pregnancies in the past, but otherwise a HSG would normally be done too. I'm also having anti-Mullerian hormone tests, which tells them about ovarian reserve and is a test for PCOS. That one is not available on the NHS so I'm paying for it.

I miscarried naturally at home the day after having a scan that dated it six weeks following some spotting but I knew I should have been almost nine. The pregnancy sack came away complete so I put it in a sample bottle and took it to A&E who after some not so gentle persuasion managed to locate the necessary form to send it off to pathology.

As for coping I am trying to. My mom is not at all sympathetic and can't understand me being so upset as I wasn't 'far along'. Hubby is just angry that they haven't done tests last time and that he has had to watch me go through it all again. University has arranged for me to have some counselling but I just feel ridiculous talking to a complete stranger.

Dreams, I'm so sorry for your losses and that you find yourself here. Baking has described my understanding of a first referral appt too. I'd make sure your dh is there too, to ask questions on your behalf and find out if they're going to do any tests on him.

I realise it's intensely personal but don't write off counselling all together. The trick is finding the right person - mine is a former neonatal nurse who does cbt, so it's very practical, but she's also experienced in bereavement counselling too. And I'm so sorry your mum isn't being more supportive, just because it's early doesn't make it any less heartbreaking.

Squizita - how are you feeling? I had my erpc this afternoon and feel like I've been run over by a bus. They're keeping me in. I don't know if it was a different anaesthetic or if it's just the emotional impact this time. Hope you're being taken care of.

Sorry quick rant... FUMING with gp receptionist. Knowing I suffer from anxiety attacks AND have ERPC materials currently at the lab for testing, she rang to book me in for a chat about being referred to st Marys ... And made it TOTALLY sound like test results had come back super quick for the molar and news was very bad hence urgent and related to 'a hospital visit'. So I have a full on crying panic attack in tesco. Thankfully gp then rings herself to explain its not test RESULTS at all but to BOOK me in for the tests I had asked for and give me the sick note for work. Nothing to worry about. Now utterly messed up post panic attack, with hormones, adrenalin etc' coursing through me.

Daisy - oh poor you! The anaesthetic they use can really knock you out, I always play up my sickness and anxiety and they give me loads of antidotes. Mind you the emotion can knock u down so hard - I slept 15 hours the night after!

Oh hell, I'm so sorry about the receptionist, they really are the most inconsiderate people on the planet at times! I hope you can breathe a little now. Do you mind me asking how long you've been signed off for?

I'm home now and feeling better, thank goodness. Hope you're feeling better too.

Squiz so sorry you had all that anxiety heaped on by someone's ineptness. The last thing you need at the moment.

Daisy hope you are recovering at home and being looked after well.

Daisy ... after a chat with the doc I decided to return to work with light duties so only had a week off. In my case inactivity can make me very anxious and nervous, and actually get me into a vicous cycle.

Good news: I am DOWN for testing at St Mary's - to expect an appointment letter within 1-2 weeks (of course the actual appointment will be July or so). Feel like a weight has been lifted ... I have something to wait for, even if the answer is '3 sporadics' I will feel people care and have investigated.
Also GP feels that based on my symptoms and hormones, the "raised chance" of molar is, like, from 1 in 1000 down to 1 in 200 i.e. actually still pretty small. She advised me not to worry if I don't hear otherwise, and to assume it was a blighted ovum. Dunno if it was to calm my anxiety but it's good to hear.

Hi just dropped in to say hi and see how everyone is doing? Hello to the new posters sorry to read your posts I know how hard it is but hope you all get the help you deserve!!
Everything is very quiet here at the moment, still have not told anyone about the baby even though I am bursting too I am going to wait till after my 16 week appointment so I know everything is still ok! Silly really!! Keep putting it off and at first it was once combined screening test came back ok now I have said 16 weeks just scared if I tell everyone it might still go wrong and I have got to explain to everyone so decided just better to wait! Anyway hope everyone is ok xxxx

LandsN, hope the time till week 16 flies by! Keeping it all crossed for you.

Well I have had some clotty bleeding this weekend, and feeling less hormones - think maybe its linked? Boobs less sore, but still a bit sore. HATE HATE HATE the sore boobs, they just mock me like 'look how good your symptoms were and it still went wrong' and signal the hormones aren't down to 0 yet. Know it can take 4 weeks with a blighted ovum ERPC but in contrast my other, sudden MCs although traumatic were 100% 'not pregnant' so soon after and I got AF back. Grr.

Hi everyone, just popping in to say sorry to squid and others who have joined but also welcome - hope you feel as supported as I have here.

Lands- I know exactly what you mean... I just kept putting it off and off but just got too obvious in the end. 16 weeks won't be long!

I can't believe I am now 23+4.. So just 4 weeks and I will be in the third trimester! Feeling the baby move a lot now. I am still injecting and taking aspirin and also been diagnosed as anaemic so taking spatone (did couple of weeks of iron tablets but not nice side effects) which is a natural iron supplement- they'll retest my iron at 28 weeks so hopefully will show improvement.

Hope you all don't mind me staying around.. X

School how long have you got to take aspirin for consultant said I should be able to stop at 20 weeks?
Same as school I would like to keep seeing how everyone is doing if u all don't mind xxx

Hey Lands, I've got to take aspirin and the daily heparin injections right up until I have the baby...

Hi everyone!

Sorry I've not posted for a while. I hope Squiz, Daisy & Dreams that you are doing ok and feeling stronger?

Lands and School really nice to hear from you. I so hope I will be a 'graduate' too soon! Definitely keep popping back and letting us know how you are getting on. I love positive stories..

I have been making the most of not being pregnant for the past couple of weeks and drinking and eating whatever I want!! Feeling a bit more detached from the mc as they happened so long ago now and desperately trying to arrange nice things to take my mind off the fact that 16 months ago I was pregnant but I'm still nowhere nearer to having another baby :( I am about to start ttc and mentally poas again so not looking forward to the emotional rollercoaster that will no doubt follow. I really want to stay positive but feel so frustrated that now getting pregnant seems to be as difficult as staying pregnant was last year!!

Twenty, Guppie & Butterfly - are you still around? How are you all? Need some more ttc nutters to obsess with!!

Hi everyone. I got a BFP this morning and the first thing I did was work out when I'm likely to miscarry again
Have been told to take high dose 4mg folic acid, is anyone else taking this and if so can you get high strength tablets or do I need a handful of the 400 microgram ones? Also 75mg aspirin and need to talk to consultant about progesterone.
Here we go again....

Best of luck Baking and congrats on the BFP! Everything crossed for you!! Try to stay positive although it is hard.

Can I ask people about something? Feeling a bit silly but - I have started bleeding a few days AFTER my ERPC. With it has come mild - very mild - tummy tenderness, and I also feel a bit run down (headache, tired). The bleeding is not heavy - it's like AF- nor smelly. Should I contact the EPU or not? If I were MCing naturally I would not but don't know what is normal post ERPC. Thanks!!

A tentative congratulations Baking! I know how stressful this is but you are one step closer to getting where you want to be and unfortunately its the only way to do it. The more bfp you get the more likely it is that one will turn into a baby!!

I'm afraid I don't know where you get high dose folic acid from. I got aspirin from the supermarket. For progesterone I ended up paying for a private prescription (have them all sitting in my cupboard still waiting to be used...).

Good luck!!