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Miscarriage/pregnancy loss

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Ectopic pregnancy support thread

913 replies

tasmaniandevilchaser · 18/03/2012 18:15

Hi everyone, this is a place for anyone who's had an ectopic pregnancy - whether you want to moan, cry, fret or just have a chat with other people who understand. I know there's lots of other good websites on ectopic pregnancies but after hijackingchatting with sunshine on another thread, I thought I'd start one here.

Well I'll get the ball rolling with my story - after a MMC in November (found out at the 12 wk scan that the baby had died at 10 wks) I was just getting myself sorted, having counselling, when I had the ectopic. I know I am lucky in that I have a lovely DD. Having had a normal pregnancy, I knew from the beginning this one was not good and as soon as I got a BFP I was down at the hospital.

After 10 days of mental torture, waiting around, scans, rescans, blood tests, it got too late for the methotrexate (they finally saw the ectopic in a scan on a Friday early evening and the methotrexate wasn't in stock Hmm)

I finally had the surgery to remove one tube on the Tuesday. This was the end of February, at first I wasn't sure how I would cope, but I am just plodding on. I know I am lucky that it didn't rupture, but honestly I can't think of having an ectopic as being lucky. Especially after a MMC Sad.

Anyway, come join me if you want to share your story, I have Wine, Brew and Thanks

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Hi there - this thread is a little old. If you'd like to know more about ectopic pregnancies, we've got more information here. MNHQ

OP posts:
Caitmous · 27/10/2014 04:47

EmmaLouise, I'm sorry you are in so much pain. Can you self-refer to your EPU?

I'm in London and I go to St Thomas' EPU. They're not my local hospital but you can self-refer with pain or bleeding rather than go via GP or A&E. (I'd also say, they are wonderful - so kind and treat you with such care and dignity. Unlike my local hospital who were rude and dismissive when I went to them with a mmc a few months before. Anyone London-based I'd strongly recommend self-referring there).

With my reassurance scan I actually self-referred as I had had a heavy period-like feeling, but no bleeding, and they suggested I come in earlier than the appointment. I also have a sharp stabbing feeling in the side I had the laparoscopy when I cough.

Tranquility, when I arrived I filled in the usual paperwork. Made me sad to write that this was my fourth pregnancy when I only have one ds (one mmc, then one ep almost immediately after).

They took me to a side room and did blood pressure, weight, height, urine sample, A bit of a wait, then a chat with a new nurse about my symptoms. Because I had self-referred and wasn't bleeding I wasn't prioritised and then had quite a wait as others saw the sonographer first (not complaining, this is correct, just so you know to take a book etc).

When it was my turn, I was called into a side room by a doctor and sonographer. Asked if I'd emptied my bladder, said I had. Stripped to waist, with sheet over tummy, bottom right to edge of the bed with feet up in stirrups. The bed them was raised up to the doctor's seated height. To my right was the doctor with the sonograph(?) machine, to my left the other woman at a desk with a computer also showing what the probe was showing. Asked if I was allergic to latex (as I think they cover the probe with a condom). The probe looks HUGE but it is only inserted very slightly into the vagina. No discomfort. Nothing like a smear. The doctor then moves the probe with her hand and looks at the screen in front of her. It's no more invasive than that.

There was a lot of umming and noises between the two of them and I thought the worst. Really thought they were about to break terrible news. But it turned out I did need to empty my bladder as they couldn't see. Embarrassing. Clothes back on and off to the loo and then started it all over again!

They confirmed pretty quickly the pregnancy sac was in the right place. I burst into tears of relief. She showed me the sac on the screen. But then lots more probing. She asked me if she could press down, externally with her other hand, on each of my sides. This was the only uncomfortable bit but only mildly and over quickly.

I asked her if they could tell which side I'd ovulated from, as I thought it would be kind of brilliant if it had been the same side as my previous ectopic. And that my remaining Fallopian tube had 'floated over' and caught the egg like I'd read it could. But it had been the side with the tube.

That's when they said that although there was a pregnancy sac they couldn't find a heartbeat or foetus. But she made a big point of reassuring me that it's early days. They booked me an appt for exactly two weeks later.

It's been a horrible long wait. I'm both dreading the scan and looking forward to it. I've developed the most horrendous nausea since the first scan. I want to be reassured that this means everything is well. But I had morning sickness throughout the twelve weeks running up to my mmc, when the baby had died at eight.

I'm really sad that this pregnancy won't ever be like my first, uncomplicated pg which led to the birth of my beautiful ds, now 3. I'm never going to have that blissful ignorance again. Even if Wednesday goes well, there's so many more milestones to get over . I'm not sure how many weeks I'll be before I'll be able to excitedly announce this pregnancy.

Hope it all goes well for you - Tranquillity, Love & EmmaLouise. Will have my fingers crossed for you.

Tranquilitybaby · 27/10/2014 13:02

Thank you for taking the time to write all that cait I really appreciate it. I've got a time booked for my scan, so hopefully I won't be waiting too long or I don't think my nerves will take it. I hope your next scan shows all is completely ok.

Totally get what you mean about feeling so anxious and not being able to be carefree. I thought I'd be so excited and happy, but I'm inbetween being terrified and emotionless about it all. X

Tranquilitybaby · 27/10/2014 13:03

And like you, I also feel totally daunted about what's ahead, scans, blood tests, harmony test etc. Urgh

Lovemylittlebear · 28/10/2014 09:48

What's a harmony test? I'm just off to doctors now to try and get a scan booked in as I can't self refer x

Lovemylittlebear · 28/10/2014 09:50

Glad to hear that other people are feeling the same. Sorry that's not nice...but it's comforting knowing that feeling like this is normal. I feel terrified then numb then I catch a glimpse of excitement then I feel like I'm grieving all over again...it's weird xx

Tranquilitybaby · 28/10/2014 10:03

It's a DNA test that tests for chromosome problems. Very accurate results.

X

Lovemylittlebear · 28/10/2014 20:22

thank you :) I hope that it goes well for you x

Tranquilitybaby · 29/10/2014 20:35

Thank you. How are you? X

Lovemylittlebear · 31/10/2014 16:36

I have been having a lot of aching on my right side for the last two days :( this was the ectopic side and I think I ovulated on this side. Just been to epu for a blood test. Feeling really nervous and pessimistic about it all...I just think I'm going to be unlucky again. X

Lovemylittlebear · 31/10/2014 18:06

My hcg came back at 135 which is a bit on the low side. Back in on Sunday. I guess someone has to get the 1 in 10 :(

TerrysNo2 · 31/10/2014 21:43

love keeping my fingers crossed for you. xxx

Tranquilitybaby · 31/10/2014 23:52

Fingers crossed it's more than doubled love thinking of you x

Lovemylittlebear · 01/11/2014 06:51

Starting bleeding this morning so it's not good news :( I've literally had enough x

Lovemylittlebear · 01/11/2014 07:38

My mother was trying to help and said it's probably because I'm so stressed all the time :( great - so I've caused this then. Wow feeling negative lol. Thanks for all the nice comments x

Tranquilitybaby · 01/11/2014 20:09

Oh no :0( very much? I hope despite that, things might still be ok x

Stress can't cause that so don't worry x

Lovemylittlebear · 01/11/2014 22:34

The same amount as when I had the ectopic last time and the blood looks similar too. Had nightmares about it and it's come true again! Does anyone know what happens next and whether we would get any further assessment with the nhs to see if my tubes are faulty or if I have problems with my hormone levels or anything? Xx

Lovemylittlebear · 02/11/2014 15:23

Sorry guys I know I'm hogging this thread. I had it confirmed I am miscarrying. They are unsure if it's tubal or not but pregnancy on it's way out. Does anyone have any advice on what I should do in terms of assessment? Thanks xx

Tranquilitybaby · 02/11/2014 18:01

Although neither is nice I hope for your sake that it's a mc rather than ectopic. I'm so sorry. You can ask for a hsg test to check if your tubes are clear. X

Lovemylittlebear · 03/11/2014 08:31

Thank you - I shall ask for an hsg test. I hope its a MC too. Either way it looks to be sorting itself out, but I would have liked to have known if the fertilised egg made its way down to may uterus or not or if it got stuck in my tube again. It was right sided pain and cramping I was having (same feeling as last time) but my HCG dropped quickly by over double in 48 hours, so I don't know if that is more indicative of a MC or not? either way the Dr said there was no way to know if it was a misscarriage because it was tubal or a normal MC. They said I need to have three failed pregnancies before they will assess me.

I hope your next scan goes really well :) Thanks for the advices

MBDBBB · 05/11/2014 06:36

Hello ladies. I just came across this thread and I felt I wanted to share my story with you, hopefully to give you some hope, and offer my support to those of you who are going through this.

I had my son with no issues in 2010. In 2011 we decided to start trying again. I quickly fell pregnant but very early on experienced some light pinkish bleeding. I had no pain but just this strange bleeding. I went into the EPU at the hospital and tests showed that my HCG levels were pretty high but there was no baby in the uterus. Initially they couldn't see anything in my tube either but an internal scan showed up the ectopic. Because my HCG levels were so high they said surgery was the safest option and they removed my right tube. Fortunately my left looked healthy.

I recovered well and we decided to try again late in 2011. I expected it to take ages with one tube down but again I fell pregnant quickly. I had a lot of pain from the start this time but no bleeding and although I was pretty sure something was going on the pg test was negative. The pain I had was on the right side where my tube was removed and the doctors were pretty dismissive. I had a lot of deferred pain under my ribs which I now know was due to bleeding.

I was at work when I suddenly had a huge pain in my right side. Somehow (very stupidly) I drove myself to a&e where I was left sitting for an hour until I begged to be sent straight to gynaecology. They were pretty dubious and dismissive. While they were spending a lot of time sorting out a scan I keeled over and passed out on their floor. Needless to say they then took me seriously and rushed me into surgery. Apparently I had had another ectopic in the same side as before and it had managed to implant itself into the little stump of what was left of my tube, which is pretty rare. I had also lost about 3 litres of blood internally and had I not got myself to hospital it could have been a whole different outcome.

I found the second ectopic much harder to recover from physically and emotionally. Thankfully my left tube remained unscathed though and I was assured I could still conceive. I felt doubtful, but thankful for my beautiful boy I already had.

In 2012 I conceived again and I was petrified. I had a lot of pain on my right side but this time the doctors were much more vigilant and I had an early scan at 7 weeks which confirmed the pregnancy was in the right place and I could even see a heartbeat. My pregnancy went smoothly and I now have a 21 month old beautiful girl.

I still experience pain when I ovulate on my right side and it is a reminder to me of what has gone before and also how lucky I am.

I know not every story ends as well as mine but I thought at one stage that there was no light at the end of the tunnel but it turned out there was.

To all those going through a hard time, I send lots of love and prayers. Know you are not alone in your experiences and there is always hope xxx

TerrysNo3 · 05/11/2014 08:24

mdb thanks for sharing your story, it sounds like you went through a horrid experience but it's great to know that even after all that you gave an amazing happy ending Smile

Tranquilitybaby · 05/11/2014 09:52

How are you love?

Lovemylittlebear · 05/11/2014 14:01

Thanks mbd for your lovely post.

Tranquility - feeling pretty negative about it all atm. I don't know what I'm doing wrong :( hope you are ok xxx

Caitmous · 06/11/2014 20:34

Just caught up with the posts. I'm so sorry love. Really upset for you. How are you today? I hope you've got lots of real life love and care xx

Thanks for post mbd. I love hearing these positive outcomes, gives me hope.

Lovemylittlebear · 08/11/2014 10:32

I'm ok thanks :) coming to terms with it again. My best friend got pregnant at the same time so that's a bit hard as I'm happy for her but I am a bit jealous. My partner is reasonable lol...not overly conscientious but he is helping me through it with his optimism and sense of humour. I'm going to give homeopathy a go - I don't know if that's a bit wacky for me but I'm willing to try anything ATM. Does anyone else have any experience of homeopathy or accupuncture helping? Thanks xx