Recurrent MC--Testing and beyond--Part 5 continues here

[LAF77]

Here is the list of us on the thread and where we are in our journey through RMC. Nearly 4,000 posts in a year, so mark your place for the next thread.

Part one Part one

Part two Part two

Part three Part three

Part four Part four

STARTING TESTING
LOLA78: mc1 Dec 07 (6wks), DD Oct 08 (problem free pregnancy and natural birth), mmc2 Nov 10 6wks ERPC at 10wks, mc3 Feb 11 at 7wks - suspected ectopic but mc naturally, mc4 mar 11 at 5wks (started 75mg aspirin from a week before bfp) - hospitalised for excessive bleeding and clots. Now referred for testing at local fertility clinic, we have started having blood tests and am on 5mg folic acid.
SCOOTERCHASTER: DS Oct 08 (managed for SVT heart from 35wks), mc1 Sept 10 (7wks), mc2 Dec 10 (9 wks - hb @ 8wks), mc3 April 11 (7.5 wks, hb day b4 mc).
HAIRYLIGHTS, age 42, MC1 (Jun 10, very low HCG, suspected ectopic, methotrexate), MC 2 (Nov 22 2010, MMC,ERPC, no heart beat at ten weeks, fetus 8 week size), MC3 (MMC - Medical Management, Feb 13 2011, MMC at 7 week scan). Waiting to TTC
PANDA 3MMC, no.1 (embryonic loss - empty sac) 7weeks, no.2 at 12 weeks, no.3 at 8 weeks. Awaiting raft of tests for recurrent MC
CLAIREDELOON Age 38 1st mmc, development stopped approx 5 weeks (2007), 2nd mmc development stopped at approx 6 weeks (2009), 3rd mc development stopped at 9 weeks after seeing hb at 8+3 (2010). Bicornate uterus, starting testing Feb 2011.
NOTSOBARRENBROOK Age 35. 1st mmc @ 6 weeks (Jan 2009), 2nd mmc @ 6 weeks (Jan 2010), 3rd mmc @ 11 weeks, development stopped at 6 weeks 3 days (March 2010), 4th mmc @ 5 weeks (August 2010). Possible adenomyosis, awaiting hsg and results of testing from St Mary's.
MILKYWAY2007 Age 28 - DD age 3. 1st MC Oct 2009, 6 weeks. 2nd MMC March 2010, 11 weeks (baby passed away at 7 weeks). 3rd MC July 2010, 6 weeks. 4th MMC 24 Jan 2011, 9 weeks - no amniotic sac, baby measured 7weeks 4 days, no HB, had seen a healthy HB at 7 weeks. Blood clotting, hormone, genetic karyotype and shape and health of uterus checked and all clear. High dose folic acid prescribed.
LUCKYFOR2 Age 32 - DD age 5. DD age 3. 1st MC May 2010 found at 12 week scan passed away at 9 weeks. 2nd MC September 2010 natural at 8 weeks. 3nd MC January 2011 at 16 weeks, saw hb at 13 but no hb at 15.5. All tests have come back clear. Going to take Aspirin and Progesterone in next pregnancy (will be on Promise trial) currently ttc.
IGGI999 - Age 40, 3 year old DS. 3 MC last year, at 6, 8 and 8 weeks. Last two had hb detected. NHS blood tests came back clear, except for presence of antinuclear antibodies. To take aspirin for this. Going to see Shehata in May as think steroids are needed.
CONFU3ED - Age 35 1st MC 1998 14 weeks. DD age 11. 2nd MC July 2009 5.5 weeks. ERPC Twice. No tests. 6 months Clomid 3rd MC January 2010. The foetus sent for testing - came back fine. Been referred to recurrent MC clinic at the hospital for tests, waiting for appointment. Was told I have PCOS through a scan but never diagnosed.

UNDERGOING TREATMENT
HAVINGKITTENS Age 41 - MMC1 Nov 07 8wks (discovered due to bleeding at 10.5wks) ERPC, TOP1 for TS21 Aug 08, TOP2 for TS21 Feb 09, TOP incomplete, ERPC performed, Genetic Counselling & tests confirmed no chromosome problems with us, "just bad luck ", MMC2 Feb 10 5.5wks (seen at 8wk scan, no bleeding), MMC3 May 10 (as MMC2), RMC testing at UCH, no cause found - empirical 75mg asprin & vit D + early & regular scans for next pregnancy, MMC4 No fetal pole seen at 6.5 wks, follow up scan 10 days later, told of MMC, then "Something" spotted so instructed to wait another week before they would allow ERPC, ERPC a week later, waiting for NK Cell test results from Mr S on NHS, taking 75mg Asprin, Vit D, Pregnacare Plus (w/Omega 3), 5mg Folic Acid (been taking since 1st TOP to try & prevent TS21 or similar issues), NK Cells levels almost double what they should be. 25mg Prednisone from ovulation - CD1 or if BFP then 'til 12 wks and then weaned off 'til 14wks plus Progesterone pessaries from BFP - 16wks, Folic Acid, Omega3, Vit D - 12wks, Asprin - 20wks.
CRYSTAL5 Age 38 - DS age 4. 6 m/c 1 at 11 weeks, 5 at 5/6 weeks. Ok blood tests, under Endocrinologist for Hypothyroid
LADYBEE 37, MC1 (5wks), DS (2), MC2 blighted ovum discovered @ 8 wk scan, MC3 natural @ 9 wks following hb seen at 7 1/2 wk. PCOS previously diagnosed, Factor V Leiden heterozygote discovered in recent testing. Treatment with aspirin (from BFP) + clexane started at 6 weeks. MC4 MMC @ 8.1 wks (discovered @ 11 wk scan) following hb seen at 6+6 wks. Consultant suggests aspirin + clexane to start at 4 weeks, plus progesterone pessaries. Management of MC tbc.
DIGITALGIRL Age 32 - DS 2.8 - 4MCs since ttc#2. MC1 Nov2009 @5wks. MC2 Apr2010 @6-7wks. MC3 Oct2010 @7-8wks. MC4 Mar2011 @8wks. All natural, except MC4 managed with ERPC for karyotyping. Clotting tests normal. DH & I genetically normal. On Metformin for mild PCOS, plus 75mg aspirin, Pregnacare Plus & 25mcg VitD3. Diagnosed with high NK Cells (1.25) after MC4. Starting TTC in May with prednisolone from ovulation and will add cyclogest once pg. Under care of Mr S.
PUREEQUEEN Age 34, MC1 (7 weeks Jan 08) MC2 (6 weeks March 08), DS born (prem) 2009, MC3 (9 weeks Oct 10). MC4 Jan 2011. First 2 natural mcs latter 2 mmc/ERPCs. Chromosome test MC4 showed she had a genetic abnormality (cri du chat). Karotyping for me and DH fine but with "increase in length on satellite of short arm 13 and 15" (??) . Also have endo &septate uterus. Now TTC and will take aspirin and progesterone.
LAF77 , Age 33, MC1 (7 weeks Apr 10) MC2 (5 weeks Sept 10) MC3 (9 weeks Dec 10). All have been natural mcs and number 1 and 3 were embryonic . No children, First appointment with St. Mary's in April, second round of bloods in May, with results in June.

PREGNANT
MATTSMAMA Aged 41. 1st MMC November 2004. My DS (who I love with all my heart) born 2006. 2nd MMC July 2010. 2 chemical pregnancies September and October 2010. Under Dr Shehata and got BFP on first round of treatment for high thyroid antibodies and high killer cells.
BANANA87 Age 30- 1mmc@7 weeks, DD (2), 1 mmc 6 weeks, 1 mc 7 weeks, Going to try aspirin and progesterone as per consultant. Clotting bloods normal.
MUMMYABROAD Age 36, 1DS (2.9), 1MMC Mar 2010 (@14weeks) Ashermans diagnosis and treatment Nov 2010, Started TTC Jan 2011 BFP on Cycle 2 EDD 4/11/11. Heartbeat seen at 10 weeks.
GLITTERYBITS 1 anembryonic MC (12 weeks), unexplained infertility, 1 round of clomid, currently pg and terrified!
JUSTMEE Age 21, MC1 (7 weeks), MC2 (6weeks), MC3 (5weeks) currently pregnant with 4th pregnancy using clexane injecting 20mg a day
LOVELYBUNCHOFCOCONUTS Age 23, 1 MC (13 weeks), 1 MMC (10 weeks - growth stopped at 7), 1DD born 2008, PCOS diagnosis, bi-cornuate uterus. EDD 03/10/11
LOVEMYSLEEP Age 39, 1 mmc, dd born(now 5), 2nd mc (9wks, 2days), 3rd mc (9wks, 3days) and 4th mc at 5 wks. All tests on NHS came back clear. Currently undergoing treatment with Dr.Shehata for very high natural killer cells - aspirin, progesterone, steroids, omezaprole and one intralipid infusion completed.

GRADUATES WITH BABIES!!
LUNATIC dd1(4) 2 mmc (8 wks) dd2 stillborn (32+5). Seen at St Mary's. clotting problem, pg #5 aspirin 150g daily. Ds1 born 9/2/11 c/s @ 35 wks
STILLFRAZZLED Age 35, DS1 (3.6yo), 1 mc @ 5 weeks Jan 09, 2nd mc @ 9 weeks March 09, DS2 born @ 35+3 on 04/01/11 with Intra Uterine Growth Restriction but currently home and doing well.
MUMATRON Age 28 2 dc then 4mc, 3 @9weeks 1@5weeks, tests showed possible free protein s ishoo. dd2 born 06/01/2011, aspirin, claxane and high dose folic acid through pg.
JULEZBOO Age 29 1 mc @ 14 wks, DS1 (8yo) 4 mc @ 5/6 wks, DS2 (3) 2 mc @7 wks... DS3 (14/01/11 @35 wks) Dx with Factor V Leiden and Septate Uterus. Clexane and Aspirin throughout pregnancy and progesterone with DS3.

hi kittens I get you on the professional front. Very few people that I deal with in a professional capacity know anything about what I have been through, especially external suppliers I work with.

I had a long 2.5 hour taxi ride with a colleague who I have been friendly with a couple weeks ago. We talked about someone who was sacked who let her personal life (a messy divorce and custody battle) get in the way of her ability to work. He shared a personal story about his family and I shared with him what I had been through. He looked quite stunned at me and said, no one ever would have known, as you've been nothing but professional and haven't let any know that you have been upset.

Then he came out with a comment that "maybe it was nature's way of dealing with something that wasn't right" and I remembered all of the reasons why I rarely share with people what I go through unless I get asked a direct question. I explained that it could be true in some cases, but there also could be a problem with me that is preventing a successful pregnancy and it has nothing to do with the baby being "wrong". Fortunately, I was in a strong place and wouldn't have broken down in tears, but there are times when I would have if I was in the wrong frame of mind.

I am a bit worried about the fibroids. My impression is that they wouldn't tend to deal with it unless they were inside the uterus and mine aren't. I'm perfecting the ability to "wait and see".

Hmmm, yes "We'll see" seems to be my mantra of late too LAF

The problem is people try to do the right thing with their platitudes but I've had a gut full of platitudes. I do try not to get too wound up though as generally they don't realise that there is a whole can of worms to be opened up when it comes to these conversations.

I can appreciate his sentiment though, as someone who has had to make the heartbreaking/guilt inducing choice myself to end two pregnancies that 'weren't right' I am strangely grateful for mother nature to take that choice out of my hands, if that is the reason for a particular miscarriage. It's when other reasons come into play that cause it to happen repeatedly that it gets very f*ing tedious indeed!

kittens perhaps you and I can join the RSPB as we are good at waiting and watching....

I don't think my babies were abnormal. I think the problem is with me. I've never been able to have them tested because I miscarried naturally.

Good afternoon Ladies.....
Joining the tell or not to tell debate.... its a tough one.. I'm of the open and honest school too and after being at work yest day and being asked When am I having a baby (There seems to be a boom in my offices) I simply say that I've been working on it but Sadly it keeps not working out..... After you get the simpathtetic head tilt and the I'm so sorry... people chat about it and as I am comfortable talking about it they are too.... I tend to want to talk about it as I felt so alone with most of mine that when i did talk the mount of people that have been in the same boat or realted to some is very reasuring.... Sad but good to Know I'm not the only one!

I'm also here to make a confession..... I dtd last nigh as I got a smily face OPK..... I know I know..... I shouldnt have as I still have to get the test results... but In my head I've had all the tests done now and its just the answers I'm waiting for.....

We wont be doing it again this cycle and I'm kinda thinking ..... well if it happens it happens..... But I feel really naughy today... I also was thinking that it would be a waste of an eggy if I let it pass.....

So... thanks.. that feels better... I still feel v naughty though!

Having pains today (high up under my ribcage) and convinced this is me out already. Have just had enough.

Having pains today (high up under my ribcage) and convinced this is me out already. Have just had enough.

igggi have you had similar pains in previous mc's? I really really hope it's not what you think. Keeping my fingers crossed for you very tightly.

Hi ladies. Well am back from early scan - all looks good, baby measuring 8+4wks and has a heartbeat. Cannot tell you the relief I felt while I was there. The lady did mention there was a very small haematoma (area of bleeding) to the left of the sac but said it shouldn't be a problem. I spoke with the epu consultant after who also said it wasnt a concern at the moment. It did worry me a bit but anyway so far so good. Have to keep up with the aspirin and 5mg folic acid daily.

Thanks so much for your support ladies. Means so much xx

igggi would pain so high up be related to pg? I know you're going to be thinking the worst as its just natural and I do it myself but it could be related to anything. When is your first scan?

Lola fantastic news about your scan. I've had an area of bleeding before and it didn't cause any problems but I did have spotting for several weeks - did they say this might happen.

Steph can understand why you dtd - it's almost impossible to ignore a smiley face.

Had my scan yesterday and everything was fine, baby bouncing around everywhere and all limbs etc present. They put me at 11 weeks today which is a few days further than my date. Its getting harder the further I get as my last baby died at around 15 weeks and I'm dreading getting to that stage especially as they found nothing wrong with our baby or me so keep thinking the same is going to happen. This is a hard ride to be on!

Hope all the steroid and early pg girls are feeling okay.

Hi to everyone else
x

Thank you for replies. Well the pain has continued throughout the night, although I obviously hope I am wrong I think this is a sign. In which case I just want it to be quick.
Can't believe I'd just told DH last night and then this happens. So much for the steroids etc.

Thank you for replies. Well the pain has continued throughout the night, although I obviously hope I am wrong I think this is a sign. In which case I just want it to be quick.
Can't believe I'd just told DH last night and then this happens. So much for the steroids etc.

igggi I'm so sorry the pain has continued and I really really do hope that you're wrong and that it is something other than what you're thinking. Take care of yourself x

Thanks Lucky. I really must learn to just wait and see, nowt else for it!
Only hope I have is that abdominal pain might be a steroid side effect - it hurts more whenever I eat too.

Have you had this pain before in other mcs? It sounds strange that it is coming higher up and makes sense that it could be the steroids. Is there a list of side effects with the medication?

Abdominal pain (poss leading to pancreatitis!) can be a side effect. Realistically however I need to remember something going wrong with pg is most likely. I see dr s next week so can speak to him then if nothing further - or call the midwife. But waitandsee really is all anyone will suggest, at only 4 and a half weeks. I am surprisingly calm about it now. Lucky you should celebrate your lovely scan and give my depressing moans a wide berth!

Abdominal pain (poss leading to pancreatitis!) can be a side effect. Realistically however I need to remember something going wrong with pg is most likely. I see dr s next week so can speak to him then if nothing further - or call the midwife. But waitandsee really is all anyone will suggest, at only 4 and a half weeks. I am surprisingly calm about it now. Lucky you should celebrate your lovely scan and give my depressing moans a wide berth!

Hang in there Igggi. Steroids gave me really bad heartburn and stomach pain in the first week or two. Everything crossed for you. x

Oh igggi don't say that I and everyone here knows what you are going through and you need as much support as possible. It is surprising how calm you are. Though I think you should defo ring the midwife as soon as they're open to see what she have to say. I think you're right and they will say wait and see but like kittens has said she had pain in the first week too so it could definately be the steroids. Hang in there and post as much as you need to. x

igggi I hope the pain has subsided. Try taking Gaviscon every few hours and drinking either boiling water or ginger tea. If it's anything like the stomach pains I had it's likely to be really nasty indigestion which caused enormous pain under my ribcage. Check it's ok to take but Bicarbonate of Soda can also help a great deal if this is the cause too.

I had an early surprise from AF today, on day 10 of the steroids, which is a rather short cycle. Typically I had done a FR test this morning too. Wish I'd have saved my money . So, out of the game again this month. Maybe my days of conceiving easily are behind me.

Sorry this month hasn't worked out Havingkittens. No reason to think your cycle has changed for good though - I have had cycles of 26 to 30 days since erpc, when before that they were 28 every month.
Thanks for the advice - have been swigging the gaviscon! Though ate v little today and the pain has been much much less. I keep reading the diaries I kept from all the other times to see when the first "signs" were that it was all going wrong..

Argh, wish I hadn't used a clearblue this morning - still saying "1-2 weeks", the same as it did last Monday! Oh well.

Argh, wish I hadn't used a clearblue this morning - still saying "1-2 weeks", the same as it did last Monday! Oh well.

Oh iggi my heart goes out to you with your waiting. When do you have a scan booked? I am hoping that the pain you are feeling is just a side effect of the steroids.

Steph I know your position and I would be trying not to waste an egg whilst waiting for results, but DH is out of town, so I'm forced to wait! I don't know why St. Mary's says to wait until the consultant appt. I suppose because if you needed to take aspirin/heparin for the moment of BFP, you'd be prepared, but there is always the chance that they won't find anything wrong!

I'm heartened by your positive scans lola and lucky

Sorry that AF has come kittens

Thinking about the pg ladies who have been on the thread before and hoping that all is well.

Thinking of you igggi - cbd's are notoriously inaccurate. Hoping the pains are medication related.

Sorry to hear AF came kittens. Bit odd that it came early, shite that it came after a bfn - hate it when that happens it's like kicking you when you're already down.
In the time you've had a whole cycle I'm still waiting to ovulate at cd25. Got a positive opk on Thursday and my temp still hasn't properly gone up. In fact today it dropped massively. Thought maybe today might be the day but cervix still closed. The longer this goes on the less hopeful I get that it'll be a successful pg if I did manage to get a bfp. My only successful pg was when I ovulated at cd19. I know it's prob more to do with the nk cells but I've been popping 3 metformin tablets a day precisely to balance my hornones and shorten my cycles.

Oh well there's absolutely nothing I can do about bringing on ovulation. Dh is still obliging me so at least we didn't stop swi prematurely.

igggi I've never used the cb digitals but heard so many people so how inaccurate they are! I can imagine you're finding it difficult to stay positive and its agony waiting. I hope you have a scan booked soon so you don't have to wait too long.

kittens so sorry af came early how frustrating - did you do better on the steroids this time?

digi glad that your husband is obliging I cannot imagine how frustrating it is for you to keep getting positive opks and no temp rise or the other way round I really do hope that the metformin stats to work soon.

LAF I don't know why they make you wait for results because surely by the time someone might be pregnant they would have most of the results back already and would be able to advise re. aspirin etc we ttc before the results but I didn't ovulate until the results came back which was quite a relief because even though they found nothing I felt like I had the all clear. But it is a tricky one isn't it when you're desperate to try and move on.

Nothing to report here sickness and tiredness is reducing so obviously freaking me out but thats just normal freaking out!

Hope everyone is having a nice b holiday its miserable and raining up here, DH is working so been swimming and now watching wizard of oz all cozy on the sofa.

waves to everyone x