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Recurrent MC--Testing and beyond--Part 5 continues here

999 replies

LAF77 · 02/05/2011 09:23

Here is the list of us on the thread and where we are in our journey through RMC. Nearly 4,000 posts in a year, so mark your place for the next thread.

Part one Part one

Part two Part two

Part three Part three

Part four Part four

STARTING TESTING
LOLA78: mc1 Dec 07 (6wks), DD Oct 08 (problem free pregnancy and natural birth), mmc2 Nov 10 6wks ERPC at 10wks, mc3 Feb 11 at 7wks - suspected ectopic but mc naturally, mc4 mar 11 at 5wks (started 75mg aspirin from a week before bfp) - hospitalised for excessive bleeding and clots. Now referred for testing at local fertility clinic, we have started having blood tests and am on 5mg folic acid.
SCOOTERCHASTER: DS Oct 08 (managed for SVT heart from 35wks), mc1 Sept 10 (7wks), mc2 Dec 10 (9 wks - hb @ 8wks), mc3 April 11 (7.5 wks, hb day b4 mc).
HAIRYLIGHTS, age 42, MC1 (Jun 10, very low HCG, suspected ectopic, methotrexate), MC 2 (Nov 22 2010, MMC,ERPC, no heart beat at ten weeks, fetus 8 week size), MC3 (MMC - Medical Management, Feb 13 2011, MMC at 7 week scan). Waiting to TTC
PANDA 3MMC, no.1 (embryonic loss - empty sac) 7weeks, no.2 at 12 weeks, no.3 at 8 weeks. Awaiting raft of tests for recurrent MC
CLAIREDELOON Age 38 1st mmc, development stopped approx 5 weeks (2007), 2nd mmc development stopped at approx 6 weeks (2009), 3rd mc development stopped at 9 weeks after seeing hb at 8+3 (2010). Bicornate uterus, starting testing Feb 2011.
NOTSOBARRENBROOK Age 35. 1st mmc @ 6 weeks (Jan 2009), 2nd mmc @ 6 weeks (Jan 2010), 3rd mmc @ 11 weeks, development stopped at 6 weeks 3 days (March 2010), 4th mmc @ 5 weeks (August 2010). Possible adenomyosis, awaiting hsg and results of testing from St Mary's.
MILKYWAY2007 Age 28 - DD age 3. 1st MC Oct 2009, 6 weeks. 2nd MMC March 2010, 11 weeks (baby passed away at 7 weeks). 3rd MC July 2010, 6 weeks. 4th MMC 24 Jan 2011, 9 weeks - no amniotic sac, baby measured 7weeks 4 days, no HB, had seen a healthy HB at 7 weeks. Blood clotting, hormone, genetic karyotype and shape and health of uterus checked and all clear. High dose folic acid prescribed.
LUCKYFOR2 Age 32 - DD age 5. DD age 3. 1st MC May 2010 found at 12 week scan passed away at 9 weeks. 2nd MC September 2010 natural at 8 weeks. 3nd MC January 2011 at 16 weeks, saw hb at 13 but no hb at 15.5. All tests have come back clear. Going to take Aspirin and Progesterone in next pregnancy (will be on Promise trial) currently ttc.
IGGI999 - Age 40, 3 year old DS. 3 MC last year, at 6, 8 and 8 weeks. Last two had hb detected. NHS blood tests came back clear, except for presence of antinuclear antibodies. To take aspirin for this. Going to see Shehata in May as think steroids are needed.
CONFU3ED - Age 35 1st MC 1998 14 weeks. DD age 11. 2nd MC July 2009 5.5 weeks. ERPC Twice. No tests. 6 months Clomid 3rd MC January 2010. The foetus sent for testing - came back fine. Been referred to recurrent MC clinic at the hospital for tests, waiting for appointment. Was told I have PCOS through a scan but never diagnosed.

UNDERGOING TREATMENT
HAVINGKITTENS Age 41 - MMC1 Nov 07 8wks (discovered due to bleeding at 10.5wks) ERPC, TOP1 for TS21 Aug 08, TOP2 for TS21 Feb 09, TOP incomplete, ERPC performed, Genetic Counselling & tests confirmed no chromosome problems with us, "just bad luck ", MMC2 Feb 10 5.5wks (seen at 8wk scan, no bleeding), MMC3 May 10 (as MMC2), RMC testing at UCH, no cause found - empirical 75mg asprin & vit D + early & regular scans for next pregnancy, MMC4 No fetal pole seen at 6.5 wks, follow up scan 10 days later, told of MMC, then "Something" spotted so instructed to wait another week before they would allow ERPC, ERPC a week later, waiting for NK Cell test results from Mr S on NHS, taking 75mg Asprin, Vit D, Pregnacare Plus (w/Omega 3), 5mg Folic Acid (been taking since 1st TOP to try & prevent TS21 or similar issues), NK Cells levels almost double what they should be. 25mg Prednisone from ovulation - CD1 or if BFP then 'til 12 wks and then weaned off 'til 14wks plus Progesterone pessaries from BFP - 16wks, Folic Acid, Omega3, Vit D - 12wks, Asprin - 20wks.
CRYSTAL5 Age 38 - DS age 4. 6 m/c 1 at 11 weeks, 5 at 5/6 weeks. Ok blood tests, under Endocrinologist for Hypothyroid
LADYBEE 37, MC1 (5wks), DS (2), MC2 blighted ovum discovered @ 8 wk scan, MC3 natural @ 9 wks following hb seen at 7 1/2 wk. PCOS previously diagnosed, Factor V Leiden heterozygote discovered in recent testing. Treatment with aspirin (from BFP) + clexane started at 6 weeks. MC4 MMC @ 8.1 wks (discovered @ 11 wk scan) following hb seen at 6+6 wks. Consultant suggests aspirin + clexane to start at 4 weeks, plus progesterone pessaries. Management of MC tbc.
DIGITALGIRL Age 32 - DS 2.8 - 4MCs since ttc#2. MC1 Nov2009 @5wks. MC2 Apr2010 @6-7wks. MC3 Oct2010 @7-8wks. MC4 Mar2011 @8wks. All natural, except MC4 managed with ERPC for karyotyping. Clotting tests normal. DH & I genetically normal. On Metformin for mild PCOS, plus 75mg aspirin, Pregnacare Plus & 25mcg VitD3. Diagnosed with high NK Cells (1.25) after MC4. Starting TTC in May with prednisolone from ovulation and will add cyclogest once pg. Under care of Mr S.
PUREEQUEEN Age 34, MC1 (7 weeks Jan 08) MC2 (6 weeks March 08), DS born (prem) 2009, MC3 (9 weeks Oct 10). MC4 Jan 2011. First 2 natural mcs latter 2 mmc/ERPCs. Chromosome test MC4 showed she had a genetic abnormality (cri du chat). Karotyping for me and DH fine but with "increase in length on satellite of short arm 13 and 15" (??) . Also have endo &septate uterus. Now TTC and will take aspirin and progesterone.
LAF77 , Age 33, MC1 (7 weeks Apr 10) MC2 (5 weeks Sept 10) MC3 (9 weeks Dec 10). All have been natural mcs and number 1 and 3 were embryonic . No children, First appointment with St. Mary's in April, second round of bloods in May, with results in June.

PREGNANT
MATTSMAMA Aged 41. 1st MMC November 2004. My DS (who I love with all my heart) born 2006. 2nd MMC July 2010. 2 chemical pregnancies September and October 2010. Under Dr Shehata and got BFP on first round of treatment for high thyroid antibodies and high killer cells.
BANANA87 Age 30- 1mmc@7 weeks, DD (2), 1 mmc 6 weeks, 1 mc 7 weeks, Going to try aspirin and progesterone as per consultant. Clotting bloods normal.
MUMMYABROAD Age 36, 1DS (2.9), 1MMC Mar 2010 (@14weeks) Ashermans diagnosis and treatment Nov 2010, Started TTC Jan 2011 BFP on Cycle 2 EDD 4/11/11. Heartbeat seen at 10 weeks.
GLITTERYBITS 1 anembryonic MC (12 weeks), unexplained infertility, 1 round of clomid, currently pg and terrified!
JUSTMEE Age 21, MC1 (7 weeks), MC2 (6weeks), MC3 (5weeks) currently pregnant with 4th pregnancy using clexane injecting 20mg a day
LOVELYBUNCHOFCOCONUTS Age 23, 1 MC (13 weeks), 1 MMC (10 weeks - growth stopped at 7), 1DD born 2008, PCOS diagnosis, bi-cornuate uterus. EDD 03/10/11
LOVEMYSLEEP Age 39, 1 mmc, dd born(now 5), 2nd mc (9wks, 2days), 3rd mc (9wks, 3days) and 4th mc at 5 wks. All tests on NHS came back clear. Currently undergoing treatment with Dr.Shehata for very high natural killer cells - aspirin, progesterone, steroids, omezaprole and one intralipid infusion completed.

GRADUATES WITH BABIES!!
LUNATIC dd1(4) 2 mmc (8 wks) dd2 stillborn (32+5). Seen at St Mary's. clotting problem, pg #5 aspirin 150g daily. Ds1 born 9/2/11 c/s @ 35 wks
STILLFRAZZLED Age 35, DS1 (3.6yo), 1 mc @ 5 weeks Jan 09, 2nd mc @ 9 weeks March 09, DS2 born @ 35+3 on 04/01/11 with Intra Uterine Growth Restriction but currently home and doing well.
MUMATRON Age 28 2 dc then 4mc, 3 @9weeks 1@5weeks, tests showed possible free protein s ishoo. dd2 born 06/01/2011, aspirin, claxane and high dose folic acid through pg.
JULEZBOO Age 29 1 mc @ 14 wks, DS1 (8yo) 4 mc @ 5/6 wks, DS2 (3) 2 mc @7 wks... DS3 (14/01/11 @35 wks) Dx with Factor V Leiden and Septate Uterus. Clexane and Aspirin throughout pregnancy and progesterone with DS3.

OP posts:
milkyway07 · 23/05/2011 10:43

Hi all, we got back from EPAU an hour ago. For now, it is good news - baby is measuring right on target and there was a strong little heartbeat - don't know bpm, as they don't measure it at this stage. I was relieved but long off happy, as last time our little baby girl passed away a few days after the 7 week scan. I tried not to look at the screen for too long so as to not attach myself deeply, but the sonographer ended up giving us a picture, and she seemed happier than me about the scan. It's crap that I won't ever be able to be happy about things like this ever again, as I know my happiness is usually short-lived.

They took bloods for things like iron levels and uric acid and also saw that they will be measuring my progesterone level aswell.

I've got my next scan at 9 weeks. Still not having any major symptoms or nausea, so am prepared for whatever happens in the next few weeks.

luckyfor2 · 23/05/2011 11:40

Conconuts fantastic news that everything is going well and you're having a little boy - one of each Grin.

milky good news on your scan and totally understand how you're feeling. I have a scan picture from each week and its hard not to get attached. Great that they're monitoring your progesterone and checking for everything. Just try and be a little bit positive because at the moment you've got a baby growing inside you and there is nothing to be negative about. That is what I try and tell myself whenever I start to feel negative but understand it is just so hard and so unfair!

Welcome Steph sorry you've gone through a horrible time and find yourself on this thread but you will get lots of support here. I have no experience of St Marys but had everything come back clear from my rmc. Hope everything works out for you and St Marys help you get your baby. x

Laf It would be great to know what the consultants at St Marys think of the unfussy uterus. It's normal to be expecting all sorts of things been wrong but whatever happens you'll be in the best hands and most importantly you'll be able to move on and ttc. I know its been such a long wait for you and I bet you can't wait to get moving on. x

Hope you girls on the steroids are doing okay and they're not making you feel too ill.

Nothing new here. Had to fishout my maternity bras cause my boobs seem to have grown alot in the past couple of weeks, cant help feeling I'm jinxing. Its hard to feel comfy at the moment as everything is tight but I just daren't get out the mat clothes as I've had to pack them away twice in the past year!

milkyway07 · 23/05/2011 17:44

Thanks lucky. I know I am being quite selfish and thinking about myself, afterall this baby deserves some positivity and happiness from me too, but like you say, it is so hard especially from all the knock backs I've had since October 2009.
I've been at home all day, and haven't had the heart to take the picture out of my bag to have another look.

I threw out all of my maternity clothes a couple of months ago, although I do have some maternity bras - but don't need them just yet (thankfully)!

hairylights · 23/05/2011 18:11

Milkyway so far so good.

I was talking to my counsellor (1st session of mc counselling today) and saying exactly what you've said in your post, "it's crap that I won't ever be able to be happy about things like this ever again, as I know my happiness is usually short-lived." it is very hard to see how things can be different, when they've been a particular way over and over again.

It is so, so very crap. I told my counsellor that I simply don't want a scan, I don't want to wait in that god awful room where you are all there because there has been some kind of problem, I don't want the sympathetic looks, and the 'I'm sorry', I don't want my partner to squeeze my hand and cry, I don't want to be put in the room that you wait in (which has no pictures on the wall) while you wait for them to give you tablets, I don't want to have to break it to my family and colleagues and deal with their sympathy.

If it goes well, I really, really don't want to tell anyone until the day I have to hand in my MATB1 (which I think is at about 6 months). Seriously, if it goes well, I might just not say anything at work until I really have to! And if anyone comments, I might just say 'mind your own business'. Is that mad?

luckyfor2 · 23/05/2011 19:47

Milky you are not being selfish please don't think that. The only reason why I'm trying v hard to be a little bit positive this time is because in my last pregnancy I tried to ignore it and did so until I was 15 weeks. I get very big very quickly and basically had to hide inside until I felt positive to tell people and when I did the worst happenned. The thing is I felt so bad for not thinking about that baby that it actually made me feel more guilty when we had to say goodbye to him, like I hadn't given him chance, but the pain wasn't less painful just because I had ignored my pregnancy. So I promised myself that I would try to at least acknowledge and be happy for this baby for as long as I can, and I pray that I might actually get to meet this one this time.

I think really that we just have to get through this the best that we can and I guess everybody has their way of dealing with it and I totally understand what Hairy has said about not going to the hospital and waiting in that room etc. I feel exactly the same and am hoping I can hide away from people for as long as possible. My 2DC are constantly asking me if we can have another baby and it breaks my heart that I've let them down. Just one day at a time for us hey and fingers crossed we might get to the other side this time.

milkyway07 · 23/05/2011 21:08

Thank You lucky and hairy for the lovely replies. It is so reassuring to know that there are other women out there thinking and feeling the same things, even though it is under crappy circumstances.

hairy, I completely understand what you say about not wanting to tell anyone about your pregnancy for as long as possible. I don't want to tell anyone either. You're not mad at all - telling people makes everything so much more complicated. I also know what you mean about "that" room they take you to for "alone time"...Praying hard that you or anyone else here doesn't have to go through that again.

lucky, you are absolutely right - the pain can't be less painful just because you ignore the pregnancy. I am so sorry for what you have been through. The miscarriages have just scarred me in such a way that right now I feel like this is the only way to deal with this pregnancy. My DD went through a phase about 3 months ago calling everyone her "brother" or "sister" and this broke my heart, and I felt like I had let her down too. But I always try to make myself feel better, by thinking that when she grows up I'll tell her all the problems I had, and that I tried really hard - hopefully she will understand.

I don't say it very often, but this thread has been a life saver for me. I was the loneliest person in the world last January. Then I found this thread, and realised there are other women out there going through my hell - and there some who have got through to the other side with babies. There had been 3 babies born just before I joined in January. This gave me so much hope. I wouldn't have chased the doctors to test me further or my baby had it not been for this thread.

I am just hoping and praying that my chasing will pay off this time, and I am praying the same for everyone else aswell. I think it is time we experienced a bit of happiness.

LAF77 · 23/05/2011 21:26

milky and hairy your words could have come from my mouth. I'm not TTC yet, but if all the stars align, then I will be able to again next month. It brings me to tears thinking about it. I don't know if I could cope with another loss. That's all pregnancy is to me, is loss. A small glimmer of hope that maybe we will be a family and then an enormous wave of pain. I'm nearly even keel now after 5 months after my third mc. I'll never have a baby without trying, but I'm so scared of putting myself and DH through the emotional black hole that miscarriage is.

OP posts:
digitalgirl · 23/05/2011 21:48

coconuts so pleased to hear all is well!

milkyway great news on the scan. I completely understand your emotions, it really is the hardest thing to be pregnant after so many miscarriages. None of us will ever feel the same about pregnancy as we did the first time.

Welcome suffolksteph sorry for your losses. Have you had any tests done before your St Mary's referral? I'm supposed to be waiting for an appointment there but have gone ahead and seen an rmc specialist privately (Mr S) in the meantime who has diagnosed me with high nk cells.

Still no egg here and opk's are negative. Temp back down again so yesterday was clearly a fluke. Booooored. Also went back to work today and had a shitty day. Not conducive to baby-making.

Havingkittens · 24/05/2011 10:11

Oh joy. I love days like this....

I'm on a shoot with two women. The presenter has just had a baby and has mentioned it in pretty much every sentence in the last hour. The other one is pregnant. Brilliant! I've already been asked if I have children too. Ho hum.

suffolksteph · 24/05/2011 10:17

Morning Ladies... still brand new to this forum so please bear with me for any errors....

digitalgirl - i've had all the NHS "normal" tests done at my local RMC.. bit of a joke there... as was told one thing on the tests only to find out it was something else.... Choromosones on both me and DH all normal but the last two Fetal ones were "failed to grow". I have PCOS but only mildly.. well enough to mess up my cycles... I vary from 28 days to 45... not a very inviting place for baby! My first appointment as St Marys was back in March so I'm desprate for something to show up so we can start TTC again, I've been having Councelling weekly as after the last loss I went a little bit mental... I was off work for nearly three months after being sent home and having my BB taken off me... I'm back in work now but its all unsettling as people have been doing my job while not here and I'm not sure where I "fit" in any more... and to think of starting to TTC again is not doing anything for my stress levels... I'm kinda thinking that the tests will all be normal and we will be back to square one.. but at the moment I am trying not to think of it as I dont need anither reason to not sleep!

I know I'm really lucky to have been refered to St Marys as I am out of the London Area...

I will propably be stalking waching the board and post where I think I can contrubute.... also I'm sure I'll have a thousand questions after the 7th.....

Hope you all have great days no matter what stages you are all at...

luckyfor2 · 24/05/2011 12:53

Oh no having kittens what a nightmare of a situation for you to be in, hope it will be over soon. x

steph it must be awful going back to work and feeling unable to settle but try not to put too much pressure on yourself - you've been through enough. Take each day as it comes and hopefully the consultants at St Marys will be able to help you whether something comes back or not. x

Digital sorry your temps have gone back down and I hope you get a positive OPK soon.

Havingkittens · 24/05/2011 19:26

Ahh, it was ok once we got going on the job, she had to concentrate on her script. And I got to finish work at lunchtime Smile.

LAF77 · 24/05/2011 21:52

kittens what did you say to them when they asked you about children?

I ran into someone today that I hadn't seen for a year and they asked me what was going on and I bluntly told her I had 3 miscarriages in 2010. People tend to feel bad about asking, but I do want to put people in their place. It isn't any of their business to ask some times. I know that it may seem that they are caring for asking, but I'm not going to gloss over my pain for someone else to be at ease. Perhaps it isn't the right thing for me to do, but I try to do what feels right to me....

OP posts:
Havingkittens · 24/05/2011 22:48

I just said "No, just a cat so far..."

It depends who asks as to what I say, or whether I say anything at all. A lot of my work involves me working with people I've not met before and won't again, quite intimately, and am partly there to put them at ease so it's not always the best idea to put them in an awkward position.

I generally don't tend to keep my mouth shut to save others' social discomfort though. It just depends on how I feel and the type of person I am with as to how I handle it. I don't see why it has to be a secret. Also, it's ok to know that celebrities have had M/Cs but everyone else has to keep theirs to themselves.

My OH is much more cagey than I am and there was one situation where I really wanted to say it how it was but it didn't feel right with him there. A guy that we vaguely know was talking to us at a party, moaning about being single in his early 40s and got onto how all his mates seemed to be doing "grown up things" like having kids etc. Then he asked, "So, did you not want kids then?" and when I told him that, yes, I did want kids, his answer was "Well, hadn't you better get on with it? From what I've heard there's a time limit on these things." I just wanted to tell him that by asking a 41 year old woman a question like that, at best he was going to make a woman who has made a conscious decision not to have kids have to begrudgingly justify her reasons and at worst be told some depressing grisly tale of lost pregnancies, heartbreak and repeated surgery. Instead I didn't say much and wandered off. Now he is probably just wondering why I never accepted his Facebook request!

I did once have to ask a bride's mum to change the subject when they were discussing her 12 week scan and the what ifs. I tried really hard to ignore it and carry on with my work but I got the shakes and couldn't concentrate on my work so had to say something. Not ideal when you have 3 people left to get made up for a wedding.

igggi · 25/05/2011 08:31

What a rude guy HK. Having said that, I know I was never fully aware of the problems people have before I started having them myself - especially if they had one child, I just assumed they would be able to have another if they chose to Blush
But partly that is because people don't talk about it, a couple of people at work told me they had mc when I had my first, but they would have never mentioned it otherwise.
In a low here. I really don't think I can get through the next days/weeks whatever it will be before I lose again. I keep analysing twinges and planning which method of mc I will go for this time. I think "if I can just get past 8 weeks" (when I normally lose) but of course they are loads of things that can go wrong right up to the end, and then people can still lose their babies after birth..
I wish having a stiff drink was compatible with pregnancy, I clearly need one!

Havingkittens · 25/05/2011 09:30

It does come across rude doesn't it igggi but actually I think it was more down to ignorance, and it is in a lot of people's cases so I try to bear that in mind. ie. perpetually single male is really unlikely to know much about the struggles of unsuccessful pregnancy and probably it's all just like they told him it would be at school. Same goes for a lot of much younger people who's peers either haven't started having kids yet or if they have they've not had problems due to being young and virile (female equivalent) etc. So I try not to get incensed by some of the remarks as I know a lot of people aren't being insensitive at all, just innocently assuming these things are just black and white.

I'm sorry you're feeling low and negative igggi. It's so hard not to feel like that. I can't really offer much advice apart from taking it one day at a time. For the last 4 pregnancies, when my grandmother has referred to me as "expecting a baby" I kept telling her that I wasn't really "expecting" one anymore, just hoping for one. When I get pregnant I feel like I am in a "holding zone", waiting to see if I qualify to go further and a BFP to me, until I get to some sort of safety point (if there is such a thing) is still only enough for me to say "I might be pregnant" or "sort of pregnant" so I know exactly what you mean.

I am now obsessing about all sorts of things too. I have all sorts of little twinges through my cycle. I am having them now at 7dpo. I'm wondering if they mean anything. Most worryingly I still panic that maybe it's due to scarring from having so many invasions to my poor womb. Now I've also heard about this "Unfussy Uterus" thing, I'm worrying about that too! Even though I've tested for High NK Cells and so feel I'm taking some positive steps to give the next pregnancy a better chance of success, I can't help wondering about the former. I have, in the past, got pregnant within 3 cycles each time. That's fairly good going for my age but maybe it's because I'm not rejecting the bad embryos before they implant. The only 2 "successful" pregnancies I've had, I terminated due to chromosome abnormalities. It's really uncommon to have that happen twice in a row and now I'm wondering if it's because my body should've rejected them before they even became a pregnancy and isn't doing that part of the process effectively.

See, we're all driving ourselves nuts with our paranoia and self diagnosis and whatnot!

To think that I've never been that broody before I started TTC as well. When I started I said "If it happens, it happens. If not, that's fine too." It's such a strange paradox of feelings. I still can't imagine myself as a mother, and not just because I am having such bad luck with procreating. But then, when I look at people with their kids I feel jealous and want what they have. And then of course there is the compulsion of trying to find out why my pregnancies aren't working out and the fact that I'm now trying for the 7th time to get pregnant so that must say something. Most confusing! I suppose it's a case of Biology vs Peter Pan Syndrome. lol.

Lola78 · 25/05/2011 10:11

Hi all, haven't been on for a while - been quietly worrying myself sick with this pregnancy. So far all seems ok, am 8 1/2 wks now and had my booking appt with midwife mon and she referred me for early scan. Just called hospital and the scan is on friday at 3.20pm. I have just burst into tears with fear. I am so scared.

digitalgirl · 25/05/2011 12:50

Oh igggi and poor Lola it's perfectly understandable to be thinking the way you both do. I'm not even pregnant yet if I did get pregnant this cycle I have already calculated how far along i might be for my next shoot in case it falls over the dreadful 7-8 week mark. It's awful how you try and prepare yourself for the worst. You just have to remember that it's got to come good at some point - as it did for all our veteran grads - and this may just be the pregnancy that works.

kittens Those darned 2ww symptoms! Keeps you on your toes. Sorry to hear you had to deal with 2 blabbermouthed preggos yesterday. Am dreading meeting up with my friend who announced last week. She's so excited about it and I just don't want to know.

Haven't heard back about the karyotyping from my erpc 11 weeks ago. Wondering if I should bother chasing for the results or just wait a bit more. Not sure I want to know the results now I've been diagnosed with high nk cells.

Also I still appear to be infertile. No ewcm and cervix closed for business. I hate having long cycles.

igggi · 25/05/2011 12:51

Oh Lola I know no point in saying don't be scared but try to stay a (wee) bit calm. You will cope with whatever happens, sadly we know this from experience. But why shouldn't it be your turn for some good luck?

HavingKittens thank you very much for your replies. I like the idea of the "holding zone". What I find hard is making sure life goes on during this time, it's like I don't want to think of or do anything else, and heaven forbid I let any hope of getting a baby creep in along the way.
In my opinion any twinges post ovulation are all implantation related! I could of course be wrong.. And any twinges after a bfp are automatically mcs.

Am telling myself this pg takes me one step closer to either having a baby, or being able to give up and move on. Either of which would bring more peace than we have at the moment.

igggi · 25/05/2011 12:54

Digital, I had to chase and chase my karotyping results. Get GP to write to the hospital or something. (I had a report dated Feb, and I got the report in April).
I know what you mean about not wanting to know - I have been so convinced I have an immune issue, so finding out mc3 had chromosomal abnormalities was very hard. Although, there is some peace in knowing that NOTHING you did differently could have saved it.

Havingkittens · 25/05/2011 13:10

Yes, Digital chase up. I can't remember exactly but I think my full Karyotyping results were supposed to take about 6-10 weeks, so at 11 weeks it wouldn't hurt to give them a nudge.

The thing to remember is that even though immune issues may be the overall cause for our miscarriages if we've tested positive for high NK Cells, chromosome problems are still one of the most common reasons for failed pregnancies. That's now mother nature works even when we don't have a 'history' or reason for our miscarriages. So even if the Karyotyping results come back saying there was a chromosome issue with that lost pregnancy, unless it shows up that there is a translocation in the chromosome pattern then it is just random misfortune, a blip, if you like, that happened when the two gametes met and is unlikely to happen twice in a row (unless you're unlucky like me, but it is uncommon). If karyotyping does show up a translocation then it is likely you would be referred for genetic counselling to discuss this further but otherwise it's just a matter of 'natural selection'. I hope that puts it into perspective a bit. This was my obsessive area of research before miscarriage testing became my latest project!

igggi · 25/05/2011 13:46

Havingkittens what does a translocation mean exactly? My last baby was found to have trisomy 8, is that a translocation or a blip? But karotyping on DH and I came back normal. No genetic counselling suggested.
Sorry to hound you, but you seem (sadly for you) to have a lot of knowledge in this area.

Havingkittens · 25/05/2011 14:45

I'm just having to have a little think about whether I've got my terminology right. I think it's translocation which means it's genetic and a disjunction which is just an extra chromosome randomly introduced. There are two different causes for any of the various Trisomies, and they show up differently on the slides so they can tell which is which. The most common cause is just a random blip, something odd that happens when the sperm and egg meet and an extra chromosome is formed in error. This can be the cause for any of the Trisomies. Basically a Trisomy is a term for something that has 3 chromosomes instead of the usual two. I can't really explain properly how it looks differently and it probably wouldn't make any difference to you anyway having not been shown your karyotyping slide results but trust me, if it looked like there was a genetic problem they would have let you know about it. So, yes, it's sadly just one of those things. As my genetic counsellor explained to me, reproduction, like everything else that happens in your body is so complex, and is sometimes prone to error. A positive result for chromosome problems may shed some light on why that one particular pregnancy didn't make it but it's unlikely to be a pattern if you see what I mean.

LAF77 · 25/05/2011 14:53

lola big virtual hug. I have felt the same way in the past before scans, sleepless nights wondering what the next day will bring. We are all here rooting for you, hoping that this time it is different.

kittens i understand what your point about the situation and making others feel uncomfortable. I'm prepared to tell people who are not close to me about the miscarriages, but I might not be so open with some members of my family. Go figure.

Glad to see that you are OK coconuts

Iggi it is a shame about the alcohol ban during pg because I think a good stiff drink would help all of us with our nerves.

I had my second appointment at St. Mary's this morning. My scan confirmed that I have some fibroids, but they are not in my womb, so we will see what they say at the next appointment. I didn't get to ask anything about the non-fussy uterus as it wasn't appropriate to speak to a sonographer about it. I think I may be seen by Lesley Regan in June as her name was on my bloods paperwork, so I'll ask then.

For anyone planning to visit St. Mary's on the ultrasound and bloods, make sure to check in to the ultrasound department first. I was waiting there from 08:30 just to be prepared and all sorts of people jumped in front of me because I didn't know that there was a separate reception for ultrasound. There is a lot going on there as they have an emergency gynae clinic, plus ultrasound, plus consultants all in one small area.

OP posts:
Havingkittens · 25/05/2011 15:04

LAF pretty much most of my friends and family, and plenty of random strangers know about what I've been through. I am definitely a cards on the table type of person. I do just have to be careful in professional circumstances. Sometimes it's best just to be evasive in these circumstances. If I'm with a presenter for example and I have an hour with her to get her ready to go in front of camera, going into my unfortunate history with her is not going to put her in the best frame of mind for being bubbly on camera for example!

I don't know much about fibroids LAF, if they are not in your womb is it likely they are causing problems or not? I guess that's what you are waiting to hear right?