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Recurrent MC--Testing and beyond--Part 5 continues here

999 replies

LAF77 · 02/05/2011 09:23

Here is the list of us on the thread and where we are in our journey through RMC. Nearly 4,000 posts in a year, so mark your place for the next thread.

Part one Part one

Part two Part two

Part three Part three

Part four Part four

STARTING TESTING
LOLA78: mc1 Dec 07 (6wks), DD Oct 08 (problem free pregnancy and natural birth), mmc2 Nov 10 6wks ERPC at 10wks, mc3 Feb 11 at 7wks - suspected ectopic but mc naturally, mc4 mar 11 at 5wks (started 75mg aspirin from a week before bfp) - hospitalised for excessive bleeding and clots. Now referred for testing at local fertility clinic, we have started having blood tests and am on 5mg folic acid.
SCOOTERCHASTER: DS Oct 08 (managed for SVT heart from 35wks), mc1 Sept 10 (7wks), mc2 Dec 10 (9 wks - hb @ 8wks), mc3 April 11 (7.5 wks, hb day b4 mc).
HAIRYLIGHTS, age 42, MC1 (Jun 10, very low HCG, suspected ectopic, methotrexate), MC 2 (Nov 22 2010, MMC,ERPC, no heart beat at ten weeks, fetus 8 week size), MC3 (MMC - Medical Management, Feb 13 2011, MMC at 7 week scan). Waiting to TTC
PANDA 3MMC, no.1 (embryonic loss - empty sac) 7weeks, no.2 at 12 weeks, no.3 at 8 weeks. Awaiting raft of tests for recurrent MC
CLAIREDELOON Age 38 1st mmc, development stopped approx 5 weeks (2007), 2nd mmc development stopped at approx 6 weeks (2009), 3rd mc development stopped at 9 weeks after seeing hb at 8+3 (2010). Bicornate uterus, starting testing Feb 2011.
NOTSOBARRENBROOK Age 35. 1st mmc @ 6 weeks (Jan 2009), 2nd mmc @ 6 weeks (Jan 2010), 3rd mmc @ 11 weeks, development stopped at 6 weeks 3 days (March 2010), 4th mmc @ 5 weeks (August 2010). Possible adenomyosis, awaiting hsg and results of testing from St Mary's.
MILKYWAY2007 Age 28 - DD age 3. 1st MC Oct 2009, 6 weeks. 2nd MMC March 2010, 11 weeks (baby passed away at 7 weeks). 3rd MC July 2010, 6 weeks. 4th MMC 24 Jan 2011, 9 weeks - no amniotic sac, baby measured 7weeks 4 days, no HB, had seen a healthy HB at 7 weeks. Blood clotting, hormone, genetic karyotype and shape and health of uterus checked and all clear. High dose folic acid prescribed.
LUCKYFOR2 Age 32 - DD age 5. DD age 3. 1st MC May 2010 found at 12 week scan passed away at 9 weeks. 2nd MC September 2010 natural at 8 weeks. 3nd MC January 2011 at 16 weeks, saw hb at 13 but no hb at 15.5. All tests have come back clear. Going to take Aspirin and Progesterone in next pregnancy (will be on Promise trial) currently ttc.
IGGI999 - Age 40, 3 year old DS. 3 MC last year, at 6, 8 and 8 weeks. Last two had hb detected. NHS blood tests came back clear, except for presence of antinuclear antibodies. To take aspirin for this. Going to see Shehata in May as think steroids are needed.
CONFU3ED - Age 35 1st MC 1998 14 weeks. DD age 11. 2nd MC July 2009 5.5 weeks. ERPC Twice. No tests. 6 months Clomid 3rd MC January 2010. The foetus sent for testing - came back fine. Been referred to recurrent MC clinic at the hospital for tests, waiting for appointment. Was told I have PCOS through a scan but never diagnosed.

UNDERGOING TREATMENT
HAVINGKITTENS Age 41 - MMC1 Nov 07 8wks (discovered due to bleeding at 10.5wks) ERPC, TOP1 for TS21 Aug 08, TOP2 for TS21 Feb 09, TOP incomplete, ERPC performed, Genetic Counselling & tests confirmed no chromosome problems with us, "just bad luck ", MMC2 Feb 10 5.5wks (seen at 8wk scan, no bleeding), MMC3 May 10 (as MMC2), RMC testing at UCH, no cause found - empirical 75mg asprin & vit D + early & regular scans for next pregnancy, MMC4 No fetal pole seen at 6.5 wks, follow up scan 10 days later, told of MMC, then "Something" spotted so instructed to wait another week before they would allow ERPC, ERPC a week later, waiting for NK Cell test results from Mr S on NHS, taking 75mg Asprin, Vit D, Pregnacare Plus (w/Omega 3), 5mg Folic Acid (been taking since 1st TOP to try & prevent TS21 or similar issues), NK Cells levels almost double what they should be. 25mg Prednisone from ovulation - CD1 or if BFP then 'til 12 wks and then weaned off 'til 14wks plus Progesterone pessaries from BFP - 16wks, Folic Acid, Omega3, Vit D - 12wks, Asprin - 20wks.
CRYSTAL5 Age 38 - DS age 4. 6 m/c 1 at 11 weeks, 5 at 5/6 weeks. Ok blood tests, under Endocrinologist for Hypothyroid
LADYBEE 37, MC1 (5wks), DS (2), MC2 blighted ovum discovered @ 8 wk scan, MC3 natural @ 9 wks following hb seen at 7 1/2 wk. PCOS previously diagnosed, Factor V Leiden heterozygote discovered in recent testing. Treatment with aspirin (from BFP) + clexane started at 6 weeks. MC4 MMC @ 8.1 wks (discovered @ 11 wk scan) following hb seen at 6+6 wks. Consultant suggests aspirin + clexane to start at 4 weeks, plus progesterone pessaries. Management of MC tbc.
DIGITALGIRL Age 32 - DS 2.8 - 4MCs since ttc#2. MC1 Nov2009 @5wks. MC2 Apr2010 @6-7wks. MC3 Oct2010 @7-8wks. MC4 Mar2011 @8wks. All natural, except MC4 managed with ERPC for karyotyping. Clotting tests normal. DH & I genetically normal. On Metformin for mild PCOS, plus 75mg aspirin, Pregnacare Plus & 25mcg VitD3. Diagnosed with high NK Cells (1.25) after MC4. Starting TTC in May with prednisolone from ovulation and will add cyclogest once pg. Under care of Mr S.
PUREEQUEEN Age 34, MC1 (7 weeks Jan 08) MC2 (6 weeks March 08), DS born (prem) 2009, MC3 (9 weeks Oct 10). MC4 Jan 2011. First 2 natural mcs latter 2 mmc/ERPCs. Chromosome test MC4 showed she had a genetic abnormality (cri du chat). Karotyping for me and DH fine but with "increase in length on satellite of short arm 13 and 15" (??) . Also have endo &septate uterus. Now TTC and will take aspirin and progesterone.
LAF77 , Age 33, MC1 (7 weeks Apr 10) MC2 (5 weeks Sept 10) MC3 (9 weeks Dec 10). All have been natural mcs and number 1 and 3 were embryonic . No children, First appointment with St. Mary's in April, second round of bloods in May, with results in June.

PREGNANT
MATTSMAMA Aged 41. 1st MMC November 2004. My DS (who I love with all my heart) born 2006. 2nd MMC July 2010. 2 chemical pregnancies September and October 2010. Under Dr Shehata and got BFP on first round of treatment for high thyroid antibodies and high killer cells.
BANANA87 Age 30- 1mmc@7 weeks, DD (2), 1 mmc 6 weeks, 1 mc 7 weeks, Going to try aspirin and progesterone as per consultant. Clotting bloods normal.
MUMMYABROAD Age 36, 1DS (2.9), 1MMC Mar 2010 (@14weeks) Ashermans diagnosis and treatment Nov 2010, Started TTC Jan 2011 BFP on Cycle 2 EDD 4/11/11. Heartbeat seen at 10 weeks.
GLITTERYBITS 1 anembryonic MC (12 weeks), unexplained infertility, 1 round of clomid, currently pg and terrified!
JUSTMEE Age 21, MC1 (7 weeks), MC2 (6weeks), MC3 (5weeks) currently pregnant with 4th pregnancy using clexane injecting 20mg a day
LOVELYBUNCHOFCOCONUTS Age 23, 1 MC (13 weeks), 1 MMC (10 weeks - growth stopped at 7), 1DD born 2008, PCOS diagnosis, bi-cornuate uterus. EDD 03/10/11
LOVEMYSLEEP Age 39, 1 mmc, dd born(now 5), 2nd mc (9wks, 2days), 3rd mc (9wks, 3days) and 4th mc at 5 wks. All tests on NHS came back clear. Currently undergoing treatment with Dr.Shehata for very high natural killer cells - aspirin, progesterone, steroids, omezaprole and one intralipid infusion completed.

GRADUATES WITH BABIES!!
LUNATIC dd1(4) 2 mmc (8 wks) dd2 stillborn (32+5). Seen at St Mary's. clotting problem, pg #5 aspirin 150g daily. Ds1 born 9/2/11 c/s @ 35 wks
STILLFRAZZLED Age 35, DS1 (3.6yo), 1 mc @ 5 weeks Jan 09, 2nd mc @ 9 weeks March 09, DS2 born @ 35+3 on 04/01/11 with Intra Uterine Growth Restriction but currently home and doing well.
MUMATRON Age 28 2 dc then 4mc, 3 @9weeks 1@5weeks, tests showed possible free protein s ishoo. dd2 born 06/01/2011, aspirin, claxane and high dose folic acid through pg.
JULEZBOO Age 29 1 mc @ 14 wks, DS1 (8yo) 4 mc @ 5/6 wks, DS2 (3) 2 mc @7 wks... DS3 (14/01/11 @35 wks) Dx with Factor V Leiden and Septate Uterus. Clexane and Aspirin throughout pregnancy and progesterone with DS3.

OP posts:
Havingkittens · 28/06/2011 16:15

LAF Sorry to hear you're having a rough time at the moment. Thing do seem to all pile up at once and I think if you're feeling vulnerable to begin with it's easy to become overwhelmed. It sounds to me like your DH means well but is clumsy with his wording. I'm sure he doesn't think you are being stupid feeling threatened by recent contact from his daughter, but more that he wants you to know that you shouldn't feel threatened. As far as the being jealous of your friend for being pregnant, that's probably his perception or way of wording it. He's probably not being dismissive. Maybe that's just his understanding of the situation. Men are a bit rubbish at communicating about emotions and they often say the wrong thing but I don't think they always mean it in the negative way we interpret when we are feeling emotionally vulnerable. I hope Wink

I think men struggle with our negativity and despondence in these situations because they feel helpless and are not used to having things completely out of their control. They want to be able to protect and make things right and so telling us not to be negative is their way of trying to 'gee us up' if you like. Well, this is what happens with my OH anyway.

ilove I hope you are ok. Not an easy time for you either.

Digital I don't think the steroids have any effect on my luteal phase. I came on 15dpo this month. That's about normal I think for me, although last month was a bit of a freak month as I OV'd on day 14 and my cycle was only 24 days. This month is was 29 days. Usually 28.

Anyone else on the steroids yet who feels wiped out the couple of days after stopping? I was wondering if there was any connection as I feel quite manic towards the end of the 2 weeks and then when I come off them I am knackered and seem to have headaches.

I'm afraid the only experience I have of antidepressants was about 12 years ago when I was on Fluoxetine for 6 months but wasn't TTC then so don't know anymore about MC risks. Interesting to read comments about 4th pregnancies after 3 MCs in a row being successful. I certainly hope there's something in that! The two pregnancies before my last 3 MCs were TOPs, and my first MC was before that so it would be nice if that was true.

I've not been posting much recently as I've been feeling a bit overwhelmed too, although now I think of it the PMT probably didn't help! I'm so concerned for my poor dad who is just having a terrible time coming to terms with loosing his wife as well as the abuse, neglect and poor care she suffered during her last weeks in hospital. On top of that my granny fell and cracked her head on the sink in the night last week. Luckily she is ok but she falls so much these days it's hard not to worry constantly! My mum just had her scan today and her cancer has grown a little (not spread, at least) so she is probably going to have to go back on her chemo. And to top that lot off, I'm not bloody pregnant! Grrr!

Good luck tomorrow Steph

luckyfor2 · 28/06/2011 16:34

ilove I can't believe the percentage of mc from the drug...it really does make you think. Hopefully your husband will be off them soon and it will be something less to worry about. Unfortunately you'll never know whether it had anything to do with losing your baby or not but it is always going to make you wonder. I stopped taking my pregnacare for a week during the time that we lost our last baby and even though the consultants have said that it has nothing to do with it and rationally I know it hasn't I can't help but think that maybe if I'd have kept taking them everything would have been fine! Our baby was born with his arms across his chest and I always think of him just peacefully going to sleep. I really hope that happenned and for you too.

The amount of successful 4th pregnancies after mc are very surprising. Apparently women with no medical problems found who have TLC (ie. regular scans and consultant appointments) in their next pregnancy have around 85% chance of a successful pregnancy compared to something ridiculous like 35% who don't have the TLC - I really don't know how that works and no consultant does but for some reason it seems to work (accordingly to Lesley Regan and other professionals).

Steph I hope your scan goes well tomorrow.

milky How was your midwife appointment?

I'm really trying to get more positive after my last telling off from the consultant and have finally fished out some of my maternity clothes, my clothes are way too tight for me and trying to hide it is seriously becoming a joke. Its just that everytime I've got my maternity clothes out I've had to sadly pack them away and I really don't want to have to do it again. Anyway, one step at a time - I haven't worn anything yet the move to the drawer is one step. I'm thinking that IF I could possibly get to 20 weeks I might feel a tiny bit confident.

Hope you're doing okay, iggi and LAF.

Waves to Kittens, Digi, Coconuts, Justme, Mummyinwating, knitter and anyone else who I've missed.

luckyfor2 · 28/06/2011 16:40

kittens sorry I seemed to miss your post. It sounds like you have an awful lot to deal with at the moment kittens, I'm so sorry your mum's cancer has grown and your dad is struggling so much, its a time when you could really do with feeling strong and the steroids and situation must be making it really hard for you. I'm so sorry and really do feel for you.x
I think you have totally summed up mine and every other person's husband with how they say the wrong thing/mean another. They really don't mean to do they!

LAF77 · 28/06/2011 18:42

gosh kittens when it rains it pours! I'm sorry you have so much stress in your life when you are TTC. Is your dad going to come and stay with you for any period of time? How terrible that your mum has cancer as well. Does she live nearby?

Your comments (and milkyways) about your partners have reassured me that I haven't over-reacted. We had another discussion about it all again on Sunday night and he thinks that I dwell too much on remembering what happened and I go through "episodes" where I'm moody and withdrawn. He can't understand how I feel and why I can't forget about it and move on. I'll never "be over" the experience. A friend of mine read this ((heavenisforreal.net/)) book and I want to read it too as it might help me deal with the mcs.

how did the scan go milky I know your feelings about the slowing heartbeat. It is still awful to remember how it felt knowing that my baby was dying inside me and I couldn't stop it from happening. I don't think that they felt any pain though.

iloveblue that is an interesting comment about your partner's medication. It doesn't seem like men are investigated at all for their role in RMC. Would you be able to wait until Sept before TTC?

lucky you are doing so well. I can imagine it is so hard for you to want to believe that this time it is for real.

good luck tomorrow steph thanks for the reassurance coconuts when are you due? hope you are OK iggi

xx to all....

OP posts:
iloveblue · 28/06/2011 21:08

Lucky - I've got Lesley Regan's MC book and there is a chapter at the end about TLC - it is staggering the difference it makes.
I can understand how nervous you must be but hope you can start feeling more confident soon - I have a good feeling for you x

kittens so sorry to hear about your mum, dad and granny. Why do all these horrible things seem to happen at once Confused I really think this thread deserves some good news soon.

LAF we have decided to wait to TTC (if it all - DH would be happy to give up) till next year. It will take 3 months for his system to clear of the anti-D's, so if he comes off them in September that will be about right.
I need some time not being pregnant, worrying about being pregnant or trying to get pregnant. Its so bloody draining.

Hope everyone else is ok x

milkyways · 28/06/2011 21:18

kittens Sorry for everything that is happening in your life right now. Like others have said - it is an awful lot to deal with especially with the steroids and PMT. Hope you are okay.

iloveblue I did a quick search about venlafaxine and male fertility, and came up with this www.rxlist.com/effexor-drug.htm apparantly, male mice were not affected by high doses of the drug. Other websites, however, state that sperm count and motility can be affected by the drug. Finally I found this www.jurology.com/article/S0022-5347(08)01837-5/abstract. Although it doesn't mention Venlafaxine (because I can't see the full text!), it does mention SSRI's damaging sperm DNA integrity, which may be a cause for concern. Hope this helps your research.

lucky It's good that you've taken some of what the consultant said on board. I know it's hard to be positive but like you said, just take one step at a time and you'll get there.

LAF That looks like a good book. It's interesting because my Mum had a miscarriage between my eldest brother and the second eldest. When we used to be together as a family, I used to always feel someone was missing but I never mentioned it to anyone. After my first miscarriage my sister told me that Mum had had a mc too, and suddenly it all made sense. I just feel that every baby lost had the potential to be a living person, and although my babies passed away before being born, they are still part of my family. So it is

Good luck for tomorrow steph

Met my midwife today. She was a bit distant and unenthusiastic, but it may have been because it was the end of the day and she was a bit tired. I didn't expect to be mollycoddled, but it would have been nice if she was a bit more sympathetic about my miscarriages, instead she asked about all the losses and then looked at the list and came out with "that's alot" Hmm. I am just scared now that I have jynxed myself, and that this is the end for me. Everytime I have gone into my surgery to acknowledge my pregnancy it ends about a week later....

Hope everyone else is okay. Stupid weather turned again today!

iggitwotimes · 28/06/2011 21:21

Hi guys. Am really poor at keeping up, though I do read all the posts. Feel guilty when I see some of you mentioning my name, it is so nice to be thought of. Have had some bleeding today, may be start of AF - and my first thought is oh god no I have to ttc again now.

LAF77 · 28/06/2011 21:33

Hugs for you ilove you have had a really hard time in the last year. it is heart wrenching to put yourself on the sideline for 6 months. It's what I've had to do and there are a lot of hard days when you wonder how much longer you can put up with it. I've hoped that in the end it will put us in a better place. It helps to put your mind at rest knowing that you have eliminated all the possibilities for things going wrong. There is so much that is unknown and uncertainty is hard to cope with. X

milky I'm sorry that the midwife was so dismissive of you. Even with all the TLC going, we RMC women would fret about the outcome because we have had heartbreak time and time again. It feels like superstition when you think, if only I can get to this stage without anything happening, it will be OK or thinking that completely unrelated events like going to book an appt are the time when it will end. You aren't alone. I think we all need reassurance that we aren't all OMW because no one else gets it. X

OP posts:
iloveblue · 28/06/2011 21:45

Thanks for the links milky. Do you have a medical background? I would never have found those articles.
There does seem to be a link doesn't there - I think the next step may be to get DH's sperm tested. It would be such a relief if it did turn out to be the cause.

Sorry your midwife was distant with you. It makes such a difference when we can deal with caring medical professionals that really listen and make you feel human.

Hi iggi and thanks for the kind words LAF.

I'm still spotting, although its heavier than it was yesterday - period pain has gone. I just hope this doesn't go on for days.

Havingkittens · 29/06/2011 10:26

ilove I completely understand your decision to take time out from TTC. That's exactly how I felt after my last MC, which is why I was happy to wait for an NHS appt with Mr S. Maybe you could try to get your GP to refer you to him on the NHS whilst you are waiting?

Milky sorry to hear you didn't get much empathy from your midwife. I guess they must meet so many people in our position that they switch off and become a bit numb to it all. Not ideal though as what is everyday to them is very personal and heart wrenching for us. Not to mention frightening. I hope she comes good next time for you.

Thanks for all your kind words. I am ok, but these things are preoccupying me somewhat. My mum's cancer is not likely to go into remission but it hopefully can be managed. She has had 2 three month breaks in a row from her chemo which has been great for her and has given her a chance to have a normal half of the year, doing all the things she loves without feeling like shite. I suppose it was rather optimistic to think she'd be able to have another 3 months off. My dad won't be coming over to the UK. He isn't really in a position to at the moment and actually he hates the UK so I don't think it would do him much good. All I can do at the moment is call him regularly and give him a bit of support that way. I'll be heading down to see my granny this weekend as it's her 91st (!) birthday. I'm looking forward to giving her a cuddle Smile - she's the best.

Better go. Got to get to a shoot. Sorry for scant personals. Hope everyone's ok. x

iloveblue · 29/06/2011 10:42

Whereabouts are you based kittens? I'm in Shropshire and I just don't think regular travelling to London to see Mr S is viable.
I was going to speak to my GP about a possible referral - is there anyone nearer to my neck of the woods that anyone knows about.
I know Prof Quenby of who is now based in Birmingham from what I can tell but I've heard that she is no longer doing NK cells testing.
Also, would it be possible to be referred when I am currently waiting to see my local consultant?

Hope everyone else is okay - thinking of you today steph

KnitterNotTwitter · 29/06/2011 13:43

Hey
just checking in... planning a quiet month this cycle so not much excitement from me at the moment!
got my blood tests done on friday - 7 vials of blood!! Took them three attempts - one in each arm and one in the back of my hand before they filled them - I have tricky, slippery, collapsing veins!
Next it'll be a scan late July then results early August....

I am going to have a vitamin free month this week - fed up of popping the pregnancy vits each morning. Then next month/cycle i'm going to top up my selenium, magnesium and Co Enzyme c10 which someone suggested on another board. Then the next cycle after that - when we'll be back on the shagwagon again I'll go back on the evening primrose oil, pregnancy vits and Wild Yam...

I'm going to keep the temping going as that is interesting and I want to get in the habit... Mind you DS is in a funny mood since Glastonbury and I ended up sleeping in his room last night. He kept saying that he wanted to talk to me and that he wasn't tired. In the end we went to sleep at 10pm..... early for me and late for him! Fingers crossed we don't have a repeat tonight.

Glastonbury festival was great - saw lots of cool things and DS and DH enjoyed themselves too.

love and hugs to you all

Havingkittens · 29/06/2011 18:57

ilove I am in London so I guess it was quite convenient for me. Although I had my first appointment in Carshalton (Surrey) with him for my initial consultation and blood tests, then the results were given to me by phone consultation and was told that when I get pregnant I should let him know but that I could have all my scans done at my own hospital, so it may be that you would only have to come and see him once or twice. Maybe it would be worth speaking to his secretary.

LAF77 · 29/06/2011 21:07

How did it go steph ?

OP posts:
suffolksteph · 29/06/2011 22:15

Evenind ladies.. thank you all for your good luck wishes...

All went well.. for the first time ever we were bang on dates 6+2 with a strong HB.

St Marys have now discharged me... as we live so far away all further scans are hopfully going tobe done at my Local EPU..
Mr horner was surprised I was taking 150g of Asprin... as with my history of all tests being normal there is no need to take it.. I sais that the lady on the phone suggested it and I was more than happy to take it... I'm not going to stop now... he siad that was fine.

I'm still scared but I'm finding PMA from somewhere...

Big hugs to all...

iloveblue · 30/06/2011 21:03

Thats great news steph - so pleased for you x

scooterchaser · 30/06/2011 23:11

Shuffling in very late on this new thread sorry, I haven?t had an opportunity on a computer for ages. That said, I have been lurking a few times from my phone, rooting for everyone and trying to send lots of positive energy this way.

I have been trying to keep up, I am so sorry LAF and Kittens that life is really throwing its whirlwind your way at the moment. It rains, it pours?. surely there must be a sunshine moment around the corner for you.

Steph hooray for a good scan and I will continue to root for you and lucky, coconuts and milky and all other pregnant inspirations out there!

Knitter hi to you, glad you had a great time at Glastonbury. I have a DS a similar age, he loves that sort of thing.

A very disappointing journey for me so far. My third mc was in April and I have had nearly three months of tests which my GP has just told me are null and void. Although they were repeated many times, they never took enough blood/ reached the lab in time / had the right authorisation to test for the thrombophilias (one of which - Leiden Factor V runs in my family).

This is not the first time I have been let down by my GP surgery. Their communication with me has been appalling. I was told by letter(!) to make a telephone appointment with my GP and when I tried to, it went on file and the practice manager (not a medical professional) rang me instead of my GP. Neither of us knew what we were supposed to talk about!

Fed up with this I made an appointment with my GP this Monday, when I found out about my blood test fiasco and the fact that my testing journey up until now has been utterly pointless. She told me if I want to be seen by Dr S (her referral) I will have to cancel all the scans, testing and counseling appointments booked by the consultant that the EPU referred me to. Smack bang square one for me then!

My GP just said - I thought this might happen, and accused me of trying to play the system. A bit unfair, as I legitimately thought I could start the testing process via my EPU referral. If my GP thought it might happen (and was so sure her referral to Dr S would be successful) why on earth did she allow me to get so far down the line with the other hospital consultant? I had to have some embarrassing conversations today to unbook things and now feel as the consultant (who I really liked) will think that I have acted badly in all of this.

Meanwhile I have had several scary health worries which I haven?t even gone to the GP about because they make me feel so problematic! I give the surgery a very wide berth these days.

I am thankful I now get to see Dr S but wonder if it is worth pinning my hopes on anybody? Just steeling myself for more waiting and more mistakes.

On the positive side I am glad to be taking a proper (although enforced) break from TTC. I couldn?t face another pregnancy with no support from professionals. Milky real sympathies with your flippant midwife. Interesting that with all the research on the role of TLC, how rarely we seem to get any isn?t it.

Sorry for the long indulgent post, I just hoped that anybody embarking on their testing journey might avoid a similar saga by reading!
iloveblue I noticed that you were thinking of seeing one consultant while waiting for another, I would really try and get clear advice about whether your referral is likely to be accepted. If they think it will, I would just wait for that appointment and meanwhile try and hurry things along by ringing for cancellations. WISH i had done this instead of wasting so much time.

Waving to digi, hairy, freelance, purequeen, iggi and others who might remember me popping my head in in April. Anybody in Dr S?s waiting room next Tuesday lunchtime, see you there! Someone once posted what to expect from the first appointment, if anyone can point me back in that direction, I?d be really grateful :)

milkyways · 01/07/2011 13:06

steph Excellent news on the scan! Very pleased for you!

scooter Your post has made me so angry at your GP and surgery. How incompetent, unsympathetic and plain rude! How could your GP think that you were playing the system? I was told by my EPU that if I wanted to be referred to St Marys, I could have all relevant tests and scans whilst I waited for the date to come through. I am pretty sure that the same applies for private treatment too. Your EPU sound truely awful - have you thought about transferring to another hospital that is at a commutable distance?
I am really sorry for the crap you've been put through. I would definitely lodge a complaint about this because after waiting 3 months you would expect at least some kind of results, especially if Factor V Leiden is a known problem in your family.

knitter Have you had your vitamin D level checked at your hospital or surgery? I really recommend it and also start vitamin D supplements if you can.

Waves to everyone, hope you're all doing well. Good luck with the scan this week lucky, hope everything is going smoothly.

iggitwotimes · 02/07/2011 08:47

Can you buy co enzyme thingumy?

Hello, apart from popping the vitamins I am trying to have time off from thinkin/breathing/dreaming pregnancy. So sorry I am not here very often, doesn't mean I don't think about you all and keeping everything crossed for the pg people. I have has my first period post mc but decided to wait one more month as I really don't want to be on 2ww on holiday - steroids, no booze and stress - not ideal for a peaceful holiday! Sun is shining here, hope you all have good days.
(I was wondering where you'd got to Scooter! Smile

LAF77 · 02/07/2011 12:57

Great news steph will your EPU scan you weekly as per St. Mary's instructions? Did St. Mary's take another blood sample to test for TEG in pregnancy?

How are you getting on iloveblue are you still bleeding or has it stopped?

Hope you are OK milky and lucky

Enjoy your time in the sun iggi sometimes you have to just take a break from TTC and enjoy yourself.

Thinking of you kittens and hope you had a good time with your Granny.

Thinking of you scooter thanks for your support. Your experience with your GP is appalling and a reminder of how much of a struggle it is for us with RMC to get the treatment and care that we need to move on.

As for me, I've begun the path of TTC. I'm doing a lot better now and pulled myself together to cope with the situation as it stands in my personal life. Clearblue gave me the go ahead yesterday morning, so now I'll see what happens this time around. I'm so scared and think that I'm crazy for putting myself forward for pg 4. However, I don't think that I'm a candidate for immaculate conception at this stage in my life. This time, I've been a lot more scientific about TTC which isn't quite as much fun, but I'll try anything different to have a better outcome. DH has come up with some of his own bizarre theories about my MCs that have no basis in basic reproductive biology, so I'm having to humour him before I go away. It's too hard to try and even explain it.

Anyway, must get away from the PC and on with my weekend!

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hairylights · 04/07/2011 17:27

Hello all. I have been avoiding this section as I have been concentrating on this pregnancy and I just wanted to let you know that I have made it to twelve weeks and there is still a baby there with a heartbeat and moving and the right size :)

It's very hard to ever get over things, and I'm not counting any chickens, but thought some good news might be heartening.

Sorry that many of you are going through hard times.

milkyways · 04/07/2011 17:44

Good to know you're feeling better and are TTC LAF. Had a little giggle at your DH's bizarre theories, because my husband is totally hopeless when it comes to Biology on a whole! I gave up trying to explain things to him a very long time ago!

iloveblue how are you? Hope things are getting better?

Everything is (unbelievably) okay with me - I am meeting my miscarriage counsellor on Wednesday and I'm already welling up thinking of the things she may ask me. I hope I don't start crying before she even opens her mouth.

Waves to lucky kittens iggi steph and everyone else!

hairylights · 04/07/2011 17:54

milkyways I sobbed my way through the first three
Mc counselling sessions. Your counsellor will understand.

iloveblue · 04/07/2011 20:50

Hi all

hairy so pleased things are going well for you. 12 weeks is a real milestone.

Good luck with the TTC LAF and glad you are feeling more positive.

iggy I can totally relate to the idea of having some time off. Its exactly what I'm going to be doing for the rest of the year.

Good luck for the counselling milky - I think its a great idea, I hope it helps.

I had a heavy bleed on Friday with painful cramps - I think I passed the sac as well as some clots. I'm still bleeding lightly.
My tummy is still really hard so I'm wondering if there is more to come out - it went back to normal straight away with last mc. I look about 5 months pregnant and its hard to cover up.
I have a rescan on Saturday so hoping that it will be all gone by then - I really don't want to have an ERPC.
I have been quite positive up till now, but starting to feel a bit down today.

LAF77 · 04/07/2011 21:17

Wonderful news hairy I feel hope when I hear of others like me (no diagnosis) who progress in pregnancy.

So sorry to hear of what you are going through iloveblue it is so unfair.

Thinking of you all...

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