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Recurrent MC--Testing and beyond--Part 5 continues here

999 replies

LAF77 · 02/05/2011 09:23

Here is the list of us on the thread and where we are in our journey through RMC. Nearly 4,000 posts in a year, so mark your place for the next thread.

Part one Part one

Part two Part two

Part three Part three

Part four Part four

STARTING TESTING
LOLA78: mc1 Dec 07 (6wks), DD Oct 08 (problem free pregnancy and natural birth), mmc2 Nov 10 6wks ERPC at 10wks, mc3 Feb 11 at 7wks - suspected ectopic but mc naturally, mc4 mar 11 at 5wks (started 75mg aspirin from a week before bfp) - hospitalised for excessive bleeding and clots. Now referred for testing at local fertility clinic, we have started having blood tests and am on 5mg folic acid.
SCOOTERCHASTER: DS Oct 08 (managed for SVT heart from 35wks), mc1 Sept 10 (7wks), mc2 Dec 10 (9 wks - hb @ 8wks), mc3 April 11 (7.5 wks, hb day b4 mc).
HAIRYLIGHTS, age 42, MC1 (Jun 10, very low HCG, suspected ectopic, methotrexate), MC 2 (Nov 22 2010, MMC,ERPC, no heart beat at ten weeks, fetus 8 week size), MC3 (MMC - Medical Management, Feb 13 2011, MMC at 7 week scan). Waiting to TTC
PANDA 3MMC, no.1 (embryonic loss - empty sac) 7weeks, no.2 at 12 weeks, no.3 at 8 weeks. Awaiting raft of tests for recurrent MC
CLAIREDELOON Age 38 1st mmc, development stopped approx 5 weeks (2007), 2nd mmc development stopped at approx 6 weeks (2009), 3rd mc development stopped at 9 weeks after seeing hb at 8+3 (2010). Bicornate uterus, starting testing Feb 2011.
NOTSOBARRENBROOK Age 35. 1st mmc @ 6 weeks (Jan 2009), 2nd mmc @ 6 weeks (Jan 2010), 3rd mmc @ 11 weeks, development stopped at 6 weeks 3 days (March 2010), 4th mmc @ 5 weeks (August 2010). Possible adenomyosis, awaiting hsg and results of testing from St Mary's.
MILKYWAY2007 Age 28 - DD age 3. 1st MC Oct 2009, 6 weeks. 2nd MMC March 2010, 11 weeks (baby passed away at 7 weeks). 3rd MC July 2010, 6 weeks. 4th MMC 24 Jan 2011, 9 weeks - no amniotic sac, baby measured 7weeks 4 days, no HB, had seen a healthy HB at 7 weeks. Blood clotting, hormone, genetic karyotype and shape and health of uterus checked and all clear. High dose folic acid prescribed.
LUCKYFOR2 Age 32 - DD age 5. DD age 3. 1st MC May 2010 found at 12 week scan passed away at 9 weeks. 2nd MC September 2010 natural at 8 weeks. 3nd MC January 2011 at 16 weeks, saw hb at 13 but no hb at 15.5. All tests have come back clear. Going to take Aspirin and Progesterone in next pregnancy (will be on Promise trial) currently ttc.
IGGI999 - Age 40, 3 year old DS. 3 MC last year, at 6, 8 and 8 weeks. Last two had hb detected. NHS blood tests came back clear, except for presence of antinuclear antibodies. To take aspirin for this. Going to see Shehata in May as think steroids are needed.
CONFU3ED - Age 35 1st MC 1998 14 weeks. DD age 11. 2nd MC July 2009 5.5 weeks. ERPC Twice. No tests. 6 months Clomid 3rd MC January 2010. The foetus sent for testing - came back fine. Been referred to recurrent MC clinic at the hospital for tests, waiting for appointment. Was told I have PCOS through a scan but never diagnosed.

UNDERGOING TREATMENT
HAVINGKITTENS Age 41 - MMC1 Nov 07 8wks (discovered due to bleeding at 10.5wks) ERPC, TOP1 for TS21 Aug 08, TOP2 for TS21 Feb 09, TOP incomplete, ERPC performed, Genetic Counselling & tests confirmed no chromosome problems with us, "just bad luck ", MMC2 Feb 10 5.5wks (seen at 8wk scan, no bleeding), MMC3 May 10 (as MMC2), RMC testing at UCH, no cause found - empirical 75mg asprin & vit D + early & regular scans for next pregnancy, MMC4 No fetal pole seen at 6.5 wks, follow up scan 10 days later, told of MMC, then "Something" spotted so instructed to wait another week before they would allow ERPC, ERPC a week later, waiting for NK Cell test results from Mr S on NHS, taking 75mg Asprin, Vit D, Pregnacare Plus (w/Omega 3), 5mg Folic Acid (been taking since 1st TOP to try & prevent TS21 or similar issues), NK Cells levels almost double what they should be. 25mg Prednisone from ovulation - CD1 or if BFP then 'til 12 wks and then weaned off 'til 14wks plus Progesterone pessaries from BFP - 16wks, Folic Acid, Omega3, Vit D - 12wks, Asprin - 20wks.
CRYSTAL5 Age 38 - DS age 4. 6 m/c 1 at 11 weeks, 5 at 5/6 weeks. Ok blood tests, under Endocrinologist for Hypothyroid
LADYBEE 37, MC1 (5wks), DS (2), MC2 blighted ovum discovered @ 8 wk scan, MC3 natural @ 9 wks following hb seen at 7 1/2 wk. PCOS previously diagnosed, Factor V Leiden heterozygote discovered in recent testing. Treatment with aspirin (from BFP) + clexane started at 6 weeks. MC4 MMC @ 8.1 wks (discovered @ 11 wk scan) following hb seen at 6+6 wks. Consultant suggests aspirin + clexane to start at 4 weeks, plus progesterone pessaries. Management of MC tbc.
DIGITALGIRL Age 32 - DS 2.8 - 4MCs since ttc#2. MC1 Nov2009 @5wks. MC2 Apr2010 @6-7wks. MC3 Oct2010 @7-8wks. MC4 Mar2011 @8wks. All natural, except MC4 managed with ERPC for karyotyping. Clotting tests normal. DH & I genetically normal. On Metformin for mild PCOS, plus 75mg aspirin, Pregnacare Plus & 25mcg VitD3. Diagnosed with high NK Cells (1.25) after MC4. Starting TTC in May with prednisolone from ovulation and will add cyclogest once pg. Under care of Mr S.
PUREEQUEEN Age 34, MC1 (7 weeks Jan 08) MC2 (6 weeks March 08), DS born (prem) 2009, MC3 (9 weeks Oct 10). MC4 Jan 2011. First 2 natural mcs latter 2 mmc/ERPCs. Chromosome test MC4 showed she had a genetic abnormality (cri du chat). Karotyping for me and DH fine but with "increase in length on satellite of short arm 13 and 15" (??) . Also have endo &septate uterus. Now TTC and will take aspirin and progesterone.
LAF77 , Age 33, MC1 (7 weeks Apr 10) MC2 (5 weeks Sept 10) MC3 (9 weeks Dec 10). All have been natural mcs and number 1 and 3 were embryonic . No children, First appointment with St. Mary's in April, second round of bloods in May, with results in June.

PREGNANT
MATTSMAMA Aged 41. 1st MMC November 2004. My DS (who I love with all my heart) born 2006. 2nd MMC July 2010. 2 chemical pregnancies September and October 2010. Under Dr Shehata and got BFP on first round of treatment for high thyroid antibodies and high killer cells.
BANANA87 Age 30- 1mmc@7 weeks, DD (2), 1 mmc 6 weeks, 1 mc 7 weeks, Going to try aspirin and progesterone as per consultant. Clotting bloods normal.
MUMMYABROAD Age 36, 1DS (2.9), 1MMC Mar 2010 (@14weeks) Ashermans diagnosis and treatment Nov 2010, Started TTC Jan 2011 BFP on Cycle 2 EDD 4/11/11. Heartbeat seen at 10 weeks.
GLITTERYBITS 1 anembryonic MC (12 weeks), unexplained infertility, 1 round of clomid, currently pg and terrified!
JUSTMEE Age 21, MC1 (7 weeks), MC2 (6weeks), MC3 (5weeks) currently pregnant with 4th pregnancy using clexane injecting 20mg a day
LOVELYBUNCHOFCOCONUTS Age 23, 1 MC (13 weeks), 1 MMC (10 weeks - growth stopped at 7), 1DD born 2008, PCOS diagnosis, bi-cornuate uterus. EDD 03/10/11
LOVEMYSLEEP Age 39, 1 mmc, dd born(now 5), 2nd mc (9wks, 2days), 3rd mc (9wks, 3days) and 4th mc at 5 wks. All tests on NHS came back clear. Currently undergoing treatment with Dr.Shehata for very high natural killer cells - aspirin, progesterone, steroids, omezaprole and one intralipid infusion completed.

GRADUATES WITH BABIES!!
LUNATIC dd1(4) 2 mmc (8 wks) dd2 stillborn (32+5). Seen at St Mary's. clotting problem, pg #5 aspirin 150g daily. Ds1 born 9/2/11 c/s @ 35 wks
STILLFRAZZLED Age 35, DS1 (3.6yo), 1 mc @ 5 weeks Jan 09, 2nd mc @ 9 weeks March 09, DS2 born @ 35+3 on 04/01/11 with Intra Uterine Growth Restriction but currently home and doing well.
MUMATRON Age 28 2 dc then 4mc, 3 @9weeks 1@5weeks, tests showed possible free protein s ishoo. dd2 born 06/01/2011, aspirin, claxane and high dose folic acid through pg.
JULEZBOO Age 29 1 mc @ 14 wks, DS1 (8yo) 4 mc @ 5/6 wks, DS2 (3) 2 mc @7 wks... DS3 (14/01/11 @35 wks) Dx with Factor V Leiden and Septate Uterus. Clexane and Aspirin throughout pregnancy and progesterone with DS3.

OP posts:
igggi · 07/06/2011 21:50

Suffolk I had a similar position, just phone up first thing tomorrow and see what they advise - it might be to start the treatment until they get the results, I don't know. I was very embarrassed calling to say I'd got pg when I'd been told not to - the midwife didn't seem bothered at all, I think it must happen a lot! Good luck.

Digi your reiki experience sounds so interesting, it certainly won't have done any harm and what if she's right?! It reminded me to book some acupuncture for tomorrow to try to get a bit healthier.

Bleeding & pain stopped, let's hope that's it.

igggi · 07/06/2011 22:19

Argh, posting about the acupunture reminded me to check what time it's for, and it's the same time as the massive grocery delivery I've ordered..

suffolksteph · 08/06/2011 11:14

Thanks igggi I'm really sorry to read of your news.... Hope you hanging in there okay.... Although having been there myself its a pretty stupid thing to say... just know that my thoughts are with you...

Digi Healing can be lovley.. it doesnt harm anyone and if you can get something out of it go for it..... I'm trying Kinesiology later this month after a few people mentioned it and thought I would give it a go.... But I'd love to have some healing too....

I called St Marys this morning and the Nurse is outoff the office until the 20th June... and the other numbers are not manned today as its clinic day..... So I'm still a little in the dark... having really all obout Sticky blood the last couple of days I would say thats its me completly.... I really hope they give me the Heprin.... I started taking 75mg of Asprin today just encase....

digitalgirl · 08/06/2011 15:25

Suffolk is it worth trying to get heparin from your gp? They should have a copy of your results from St Mary's so should be able to work out what dosage to give you. Good luck, really hope this one works out for you.

Thinking of you iloveblue will they give you the results of the blood test today?

KnitterNotTwitter · 08/06/2011 16:27

Just popping in... my first appointment is tomorrow and I'm actually getting quite nervous - daft I know! I will mention my 'secret' concern - thanks for the response on that digi... Will let you know how it goes...

Hope everyone else is doing ok...

suffolksteph · 08/06/2011 17:56

Evening Ladies... Finally got a call back from St Marys... They are not going to give me anything.. and cant even say about Asprin....

I really feel stupid for not waiting a few weeks.... And not sure if I should take 75mg of asprin any way...?

iloveblue · 08/06/2011 21:10

Hi digi - thankyou for thinking of me
I got the first set of my HCG results (taken on Monday). They were 14000 ish. The nurse I spoke to said this is high and they would have expected to see more than just a possible gestational sac on the scan.
I think (from my limited googling research) that she was implying that they should have seen a yolk sac too, although she did say she has seen cases like this that have been fine.
I found this though which seems to say that the yolk sac can occur anytime between 5 +3 and 6 weeks. I think I was 5+5 when I had the scan.
Its just something else to worry about - its hard.

Congrats on BFP suffolksteph - I would be tempted to take the aspirin anyway if it was me. Could you mention it to your GP and see what they say?

digitalgirl · 09/06/2011 08:27

iloveblue hcg does sound high - but at least your body is doing it's best to sustain this pregnancy. Fingers crossed the next scan shows a development.

Suffolk I've been prescribed Aspirin despite no clotting problems, so I would suggest you take it based on your results.

knitter good luck today!

I have just popped my first steroid tablet. Two very strong positive opk's yesterday and the day before. Lots of cramping and bloating feelings especially last night. Temp finally up today. Sex everyday since Sunday night so we have done everything we could. Wish me luck.

suffolksteph · 09/06/2011 09:34

digi very best of luck......... x

luckyfor2 · 09/06/2011 21:23

Hi girls - Been a bit of a mad week here!

Digi fantastic news about positive OPK yeah, I really hope the steroids go okay and everything works out this month for you.

Suffolk congrats on the BFP - sorry you're in this situation. I'm surprised that St Marys couldn't offer any more help than they have. I would also be tempted to take the aspirin. I take it without having anything come back for clotting.

ilove Hi sorry yes I should have explained, I've been on the 20 weeks thread a few times. I've got 2DC similar ages to yours and unfortunately been through the same hell! The news that your hcg has risen so highly is v.positive though. I guess the sac could be delayed in developing for various reasons and lots of peoples dates are slightly out due to implantation. When are they rescanning you?

knitter I hope your appointment has gone well today.

milky how are you - have you had this week's scan?

I've got abit of a silly thing to tell you...I was booked in for my nuchal scan today but on Tuesday I was browsing the internet wanting to see what a good nuchal scan should look like and comparing it to my last week scan pics. I was absolutely heartbroken because all the pics on the internet for downs looked just like my pic. I was convinced all was over, anyway, my husband rang the clinic and they put him through to the fetal medical consultant who saw us that afternoon (she was so nice) and told us that it was simply the membrane of the sac that I could see on the scan and she said that the normal scan pic could no way show what a nuchal scan shows. Anyway, the measurements all came within the right guidelines and hopefully when the bloods come back it wont be the horrible news that I was expecting! The consultant told us that everything looked good but obviously cannot tell us for sure until the bloods come back. It was horrible,I was crying in the consultants office when she told us what it was - she must have thought I was such an irrational idiot! So this week has been abit of a rollercoaster and it just shows what Dr Google can do. I felt like such a fool when I left.

Oh and DD1 asked me if I had a baby in my tummy yesterday which caught me by complete surprise. I've been trying so hard to keep it from them but my tummy gets very big so early on. I told her no and she seemed to accept it but she's such an observant little girl.

LAF77 · 10/06/2011 08:25

Digi here's to hoping that this one is a keeper. Do you find with your cycles that you will know in 2 weeks or is it longer?

Steph if you have TEG, you need to be on a higher dose of aspirin. Lunatic had the same issue and 75mg won't be enough. However, St. Mary's seemed to be concerned about the APA more than TEG for you? When is your first scan appt with them? They will test for TEG during pg, but not APA.

When do you get your blood results lucky

iloveblue I'm sorry that you couldn't get a conclusive answer about your pg. It seems that they are rising which is good. Has the spotting stopped?

Caz where are you in the country? Do you have a local RMC clinic? Some clinics look at 3 in a row and others will look at overall mcs. You should talk to your GP and ask to be referred to an OB/GYN in your area. They can advise what your options are for specialist RMC.

knitter hope you have some comfort after your appt.

Thinking of you hairy kittens and iggi hope you are OK.

11 days to go until I get my results!

OP posts:
Havingkittens · 10/06/2011 09:37

Hello, annoyingly I typed a long post yesterday and then when I tried to post it Mumsnet was doing their "Down for 5 minutes" thing and it disappeared. God, how I hate that! I must remember to copy my posts with a view to having to paste them back in when they get lost. This always seems to happen to me when I've written a particularly long one too!

So much going on here in the last couple of weeks, it's hard to keep up!

Great that you're finally ovulating Digitalgirl, what a relief! You've been putting in a stirling effort this month so fingers crossed for you. How are you getting on with the steroids?

iloveblue the rising hcg levels sound good. May they continue to rise! When's you're next scan/blood test?

hairy have you decided whether to have a scan yet or not? Leslie Regan seems to be in favour of having early and regular scans. Apparently there is something in it that can give the pregnancy a better chance. They can't explain it scientifically but they have said that in comparitive research that less women who have early and regular scans miscarry than those that don't. Possibly something to do with the hormones or endorphines released when seeing the baby. I'm not sure what I feel about that myself but if you have her book, it's under the TLC chapter.

In response to your other question about when to give up. I thought I would've given up a long time ago but I'm now trying for a 7th pregnancy. There just seems to be a compulsion that doesn't go away. For me, I think I won't give up until I have run out things to try. ie. having found out about my NK Cells I feel I should try and see if the treatment gives me a better chance. Like you, the consensus after my last loss was that I would only succeed with donor eggs and I haven't decided how I feel about that yet. When I was discussing it on the other thread I was on, in antenatal tests and choices, one of the girls on there had had donor eggs and advised me that I should have my NK Cell testing because if they were rejecting a pregnancy that was half my DNA then I wouldn't stand much chance with a pregnancy that was 100% foreign DNA without steroid treatment if I had an immune issue, so I'm glad I got tested. If the next one fails then maybe I will give up or maybe I will try donor eggs, not sure yet. There is also the added concern for me about having another trisomy, in which case I may also have to think about PGD. But I may stop before then. I wonder, when people do decide to stop trying, whether they reach a point of closure.

Milkyways great news about your scan. I understand how you feel about the pictures. I just stuffed mine in my bag and put it in a file when I got home. I don't have it anymore and didn't really look at it. BUT, hopefully, when all is fine along the way you will be pleased to have the pictures.

Caz I think you are in a position to ask to be referred to RMC. You may not have had 2 in a row but 4 out of 6 pregnancies ending in MC should be grounds enough. I'm sorry you're going through this again.

igggi how are you holding up? I'm sorry to hear your man stole your sympathy card. What is it with men, they often seem to manage that somehow! I hope your pain and bleeding have subsided and that he is now feeling better and making a suitable fuss over you.

Interesting reading about Digitalgirl's reiki and the conversation about skepticism, yet wanting to believe the good stuff. Reminded me of a similar feeling I have. A friend of mine's dad does numerology. When I lost my 5th pregnancy she said she wanted to get her dad to do my chart and asked for my full name and date and time of birth. She'd offered before and I'd said no, as I too am a skeptic, and also, if there is any truth in it, don't always think we should know what's supposed to be in store anyway. I was at a bit of a low ebb so I gave in that time. Anyway, she came back and told me that I would have a baby, but not for 2 years. I didn't really want to hear that at the time as I think I was waiting to test for my suspected 6th pregnancy and if that was right then it meant that pregnancy would also be doomed (which is was anyway). So, based on that timing, it would mean that if I got pregnant in the next few months the due date would be 2 years since that reading. So now it's planted a seed in my head, even though I am skeptical! Hmmm... we'll see!

suffolksteph · 10/06/2011 10:12

Hey Ladies.. Sorry about the really self indulgent postings but I really just have a bag load of questions and nothing supportive to say.. other than I wish you all well and am following all your stories to try and keep up but I?m pretty new to all this?

I still haven?t had another call back from St Marys? When they called to tell me that they were not going to give me anything.. I asked about Aspirin and she said that she?s could say but would ask Mr Horner again and call me back (8th), She did make me an appointment at their EPU for the 22nd... so I waited?. But no call back so I phoned again and left a message the next day (9th) to say that I think I needed to change the EPU appointment as I would only be 5 weeks and I think they need me to be 6 weeks by then?. But I still haven?t heard anything?..

I feel like a right pest if I call again but I?m getting worried as it?s nearly the weekend and I?ll have to wait till Monday to do anything?

I cant go to my GP as they have washed their hands of me as I?ve now been referred and besides.. if St Marys are not going to give me anything my Local Hospital is hardly going to do anything ?..My local Hospital is Rubbish with a capital R?

So I?m trying to remain calm and not over think things?. But It?s getting tricky.

I?m taking the 75mg of Aspirin but I?m not sure if I should up it to 150mg?.

And now my test lines are getting weaker so I?m wondering if it?s just a Chemical PG? As I?m feeling no symptoms yet?(Sorry I?ve never had a Chemical before so I don?t know what to expect)

So sorry?Off to have a blub ..

Havingkittens · 10/06/2011 10:44

Oh Steph, I can totally understand your anxiety. Don't worry about being a pest though. If it's the only way to get anywhere then so be it. Many people on here will tell you that it's the best way to make any progress.

Perhaps the lines are more feint because of timings of taking the tests, ie. more diluted, or maybe the test strips vary very slightly themselves. I've read of people getting very mixed results so early. Try not to panic yet, it's really early days. Symptoms often don't kick in until 6-8 weeks.

suffolksteph · 10/06/2011 10:59

Thanks so much kittens some times I think I'm going bonkers.....

Mini Meltdown over though.....

They called.... Its doesnt help that I praticaly work in a cupboard and get no mobile reception.... She has changed the appointment for the 29th and advised 150mg of Aspirin....

Relieved is not the word....I could cry....

So I'm up for a relaxing few weeks.. I might step away from the four HPT I do each day and stick to the Superdrug ones that always give me a nice little line....

So sorry for the self indulgence again.....

KnitterNotTwitter · 10/06/2011 11:40

Just reporting back from yesterday's appointment... All very basic and the next step is to have bloods taken on the 3rd day of my period and a scan mid-July... then they put all the results together and we've got a appointment on the 11th of August to go through them...

Strict instructions of no TTC until after the 11th of August - so I'm sort of hoping that we've not been successful this month... first time for everything I guess!

Hugs to everyone - seems like there has been some rollercoasters in the last few days :(

milkyways · 10/06/2011 17:13

Lucky I am really glad your scan went well. I would have been the same.

I'm currently guilty of googling like a crazy woman. Last week I spent all my time looking at what a 9 week scan should look like and this week i've been looking at 10 week scans.
I had a bad dream on tuesday about miscarrying, and since then i've been trying to feel my uterus but can't feel any bump or bulge so i'm not too optomistic about this pregnancy. I don't think I'm going to the loo very often either so my uterus can't be growing much. I have too many anxieties. I really don't want a fifth mc. I have my next scan on monday and I know I will have fallen apart by sunday.

Sorry for the self indulgent post but I really needed to get some of that off my chest. I hope everyone else is okay and as well as can be.

luckyfor2 · 10/06/2011 17:34

Steph so glad they finally got back to you with something constructive. Don't ever feel like a pest - you are their patient and it is their job to look after you, that is their only job so you and all their patients are their priority. Please if you need to know anything just ring and pester them at least then they know you're not going to go away and will always try and get back to you. Anyway rant over! Hope like you say that you can have a few weeks of rest now.

knitter glad your appointment went well I guess its just waiting now but at least you've got the motion going and have some dates to look ahead to.

kittens So annoying when that happens - its happenned to me before and just drives me mad - that or my computer decides to crash when I try and post. Lets hope your friends dad is right and that this next one when it happens is going to stick. I had a dream last year about me and one of my friends, at the time I was pregnant so it was abit strange but I dreamt that me and my friend who wasn't pregnant was walking around together both pregnant but she was bigger than me, anyway, she is now around 20 weeks so it seems my dream has come true. Very real it was and I was completely oblivious to mcs at the time having had none at that point.

milky I have only just started to feel a slight bump when I lay down very low down (I'm massive when I stand up ) and I know last time when I asked my GP why I couldn't feel anything she said that there is no way you can until at least 13 weeks so don't worry about that. I also don't wee very often and only have at the very beginning of pregnancies. Really try not to worry about these things (says me who has had a complete melt down this week) but really they are nothing to worry about at this point. Big hugs to your feeling like this though x Also, I'm guilty at looking at weekly scan pics to see what everything should look like the week after! (wouldn't have dreamt of doing that with my 2DD.

Big hugs to igggi hope you're doing okay and the bleeding has reduced/stopped. Silly husbands always get in the way don't they, you should have the most attention possible after the hell you've been through. x

waves to coconuts, LAF and Hairy and anyone else I've missed.

milkyways · 11/06/2011 17:20

Thanks for the reassurance lucky. I'm a bit more relaxed today, I passed my exams - I have no idea how - but it will keep my mind off the scan for the next day I hope!

digitalgirl · 12/06/2011 12:21

Hope you're ok this weekend steph

iloveblue did you get your repeat hcg results?

LAF not long to go now! Will you start ttc again after this appointment?

Got my letter for my St Mary's appointment yesterday - which was 3 months to the date if my erpc and coincidentally my due date for my third miscarried pregnancy.
Its on the 28th by which point I'll have got my period if I'm not pg. I think I'll go to it if I'm not pg, even though I'm seeing Mr S it'll just be another opportunity to have the tests done. I just have to tell them by the 23rd so will be testing early. Will mention to them I'm already on aspirin and steroids. Maybe if I get pg I can have my scans there instead of my local epu. Don't think I could stand going back to the same room and being seen by the same nurse and having to endure that same overlong silence that you get when something's wrong.

LAF77 · 12/06/2011 20:22

Hi digi if I get the go ahead to TTC, I should be in prime position to TTC right away. My period is due at the end of this week, so I should be good to go. We'll see if I'm still "superfertile" and can fall straight away on this cycle. DH is likely to start working away from home, so it would be easier this way. A lot of "ifs" and interdependencies.

I'm not sure how daily aspirin would affect your clotting tests. There's no harm in confirming the appt and cancelling it after.

Hopefully, we can go through happy successful pgs together.

OP posts:
iloveblue · 12/06/2011 21:58

Thankyou for all the supportive messages everyone

Yes digi, I did get my 2nd lot of HCG results and they had only gone up by 300ish. The nurse at the EPU consulted the doctor and I was told I had to get to hospital asap as they suspected an ectopic and I may need surgery. This was all based on the fact that they had only seen a sac on Monday (the body can get confused and produce one anyway apparently), they had seen free fluid on the scan (could be blood from tube) and my HCG levels weren't doing what they should.
I spent Thursday night on the gynae ward - I was absolutely fine, no pain/bleeding. Had a scan on Friday morning which showed a gestational sac and a yolk sac - so ectopic ruled out, thankfully. Although the pregnancy had progressed since Monday the sonographer said it didn't look right and wasn't too hopeful.
I've got another scan on Friday so in the mean time its just wait and see.

Its been such a rollercoaster already - I just don't know if I could do this again.

lucky glad all is looking good still. x

Got my fingers crossed digi that you get a lucky BFP this month.x

Glad you're feeling more relaxed steph x

digitalgirl · 13/06/2011 10:13

iloveblue sorry it's all still so up in the air. Small mercy that it's not ectopic.

I just received my karyotyping results from my last miscarriage. Sad
She was a girl. And she had triploidy - three extra sets of chromosomes plus an extra set of x chromosomes (the sex chromosome) present. I quickly looked this up in Lesley Regan's book and it says that sometimes this is caused by more than one sperm fertilising the egg.

The report then goes on to say that recurrence of this is low but prenatal diagnosis may be appropriate for future pregnancies. Does this mean genetic counselling? The book says that triploidys are nothing to do with maternal age - so I'm guessing it's not an egg quality issue. Just bad luck.

Really not sure how I'm supposed to feel about this. Relieved that my body did the right thing rejecting a baby with problems so early? The book says that these babies can never survive to full term. Upset that this happened on my fourth miscarriage - what about the previous losses were they all down to bad genetics too - possibly not if recurrence is low? Confused that I'm now on steroids, what if I prevent my body from rejecting another baby with problems?

Feels like a lot to take in. Sad

Havingkittens · 13/06/2011 10:58

Digital I'm just heading out of the door so will have to be brief, but didn't want you going unanswered. I'd say that if it tends to be caused by two sperms fertilising one egg then it's unlikely to happen more than once. I also think that regardless of the steroids suppressing any immune reaction to a pregnancy, I suspect that if there are chromosomal issues with a pregnancy that would normally be miscarried this would probably still be the case. After all, those without high NK Cells still miscarry in most of these cases.

Why don't you start a thread on the Antenatal Tests and Choices board? There will be various people who have experience of Triploidy who can share what they know with you about chances of recurrence.

luckyfor2 · 13/06/2011 14:09

Ilove I'm sorry you've had to go through so much over the last week, relief that it isn't ectopic but you must be going through a tough time with all the waiting. Thinking of you.x

Digi I think it is so hard to find out the results at a time when you're just starting to move and it is such a lot to take in even though it is something we all want to know. Unfortunately it sounds like it was very bad luck last time and even though you're going to feel extremely anxious in your next pregnancy its so unlikely the same will happen again especially as you and DH genetics have all come back normal. Good idea about starting a thread kittens

I've just had the results of the nuchal and they are 1:31031 which is very low, still feel like there is no way I can relax as last time I got 1:50000 and I still mc. One step at a time though and I am really very pleased at the result.

Have you had your scan milky I really hope everything is okay. x