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Menopause

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Who decided NOT to take HRT? What is your experience?

313 replies

Agree · 09/01/2024 10:16

Please can menopausal / post-menopausal women share their experience of deciding not to take HRT and how it's worked out for you?

I'm not sure it's for me and am dithering.

My main reason for leaning towards HRT is vanity and not wanting to age quickly

OP posts:
Thread gallery
6
ShinyAppleDreamingOfTheSea · 09/01/2024 15:32

I didn't take HRT. It was because I had read so many magazines - those aimed at older women eg Woman & Home and health magazines - in the 1990s/2000s which were focusing on a natural menopause, and also reading some articles pointing out the negatives, that I figured it was something to be avoided and just bought a few pills in Holland & Barrett .

Have since seen so much more positive Information pro HRT (including on here) that I have wondered if I missed out and even if I have negative impact on my health still from not taking it .

Would it have given me more energy ? Helped me through what was a difficult period in my life with the stamina to do some exercise rather than collapsing at the end of the day ? I don't know.

AzureBlue99 · 09/01/2024 15:37

Haven't read whole thread.

Me, 2 years post menopausal.

No HRT. I am big on supplements and thought I would try that route if symptoms were bad.

I started to get minor flushing a few years back. Mainly after alcohol, the occasional one which woke me up. When they started appearing in the day, took Menoforce. They worked almost immediately and I have had zero flushing since then. I had no expectation they would work.

Had my one and only UTI. I now take D Mannose if something feels amiss as a preventative.

Joint pain, particularly feet. Tumeric for that which alleviates it by 95%. I stopped taking it over Xmas, foot pain returned. Back on it, and it has gone.

My main issues with the menopause are self doubt. Anxiety (bad). Insomnia. Self doubt, it's with me. Anxiety (stopped my self procrastinating which helps me feel organised) - and also take L-Theanine every now and then which takes the edge off. Anxiety makes me overreact. Insomnia, no screens before bed, try to read good books to stop the over thinking. My workplace contributes massively to my anxiety- not an issue in the main. Menopause has robbed me of the ability to cope, like a layer of me has been swept away and coping mechanisms depleted.

Body wise, spongy bod. But hair and skin look good.

AzureBlue99 · 09/01/2024 15:39

Meant to add other women I know on HRT all complain about the same as me, so even going on HRT is no guarantee. Same issues faced.

AzureBlue99 · 09/01/2024 15:41

I do think genetics plays its part. I have never suffered much menstrual wise. Same with menopause.

usernother · 09/01/2024 15:44

I had no menopause symptoms so didn't feel there was any reason for me to take it.

Vroomfondleswaistcoat · 09/01/2024 15:47

I'm 63 and never took HRT. I had a Mirena coil fitted, at the age of 48, and I don't know whether the hormones from that just took me through, but I never had any symptoms at all. The coil stopped my periods, so I have no idea when these would have stopped of their own accord; I had no hot flushes (I'm always cold, so I'd rather looked forward to these), no mood swings, nothing. So there seemed no point in taking HRT. Maybe I became a bit more vague, but since I'm single there's been no one to point it out.

I might look into vaginal oestrogen cream, as I think I have vaginal atrophy, which can sometimes be uncomfortable, but that will be it.

Pater01 · 09/01/2024 15:50

I have just turned 47. I was doing fine on my contraceptive pill then in the summer BAM the peri symptoms hit. I am normally good with most things, but the anxiety, lack of sleep and aches and pains where too much, started HRT in September. Still trying to find the right balance, but I couldn't do without it. My mum had a hysterectomy in her 40s so I have no idea when she would have been through it. Everyone I speak to in my circle of friends is doing fine, just hot flushes and getting through it. We are all different and I would never judge anyone for taking HRT, knowing what I am going through. I hope when my periods stop I will feel more balanced. But for now I intend to keep taking the HRT for the long term health benefits. Cant say if HRT helps with ageing, but I am growing old gracefully, already have grey hair!

HeChokedOnAChorizo · 09/01/2024 15:52

I am 51 but still taking the pill so i dont have periods, i have no idea if i am going through the menopause or not. I think i am, i am having trouble sleeping, waking up all the time and putting on weight.

I am assuming i am at the start of the menopause but if it stays like this i wont be taking HRT as i can cope with the symptoms if this is how they stay.

Twoshoesnewshoes · 09/01/2024 15:54

I tried HRT twice, for tiredness mainly.
it caused me to gain weight very rapidly both times, so I don’t want to go on it again unless I really have to.
I use menoforce if I get hot flushes, and take magnesium which has helped me sleep really well- much more so than HRT did.
I don’t have a lot of dairy which helps too.
given the weight gain and the added risks, I’m hoping to avoid HRT and muddle through.
iron and b12 helped with the tiredness.

HRTforme · 09/01/2024 15:55

SebastianFlytesTrousers · 09/01/2024 14:37

@HRTforme Not quite the 80% you mention......

In the UK, 21.9% of women and 6.7% of men aged 50 years or more were estimated to have osteoporosis.
Source: www.osteoporosis.foundation
United Kingdom - International Osteoporosis Foundation

Ok I think the figure I was thinking of must have included osteopenia...

www.hopkinsarthritis.org/arthritis-info/osteoporosis-info/#:~:text=How%20common%20is%20osteoporosis%3F,%2C%20and%2054%25%20have%20osteopenia.

However having had a bit of a google there appears to be conflicting information out there eg this one suggests 1 in 2 women over 60:

www.betterhealth.vic.gov.au/health/conditionsandtreatments/menopause-and-osteoporosis#treatment-for-osteoporosis

And of course any figure only include those who have been identified as having osteoporosis which doesn't happen often until after a fall. I've found a couple of sources which indicate that all women lose about 10% of bone density in the 5/6 years after menopause.

HRTforme · 09/01/2024 15:58

Boomboomshakeshaketheroom · 09/01/2024 14:37

Please can menopausal / post-menopausal women share their experience of deciding not to take HRT and how it's worked out for you?

Just reiterating the OP's question in case @cardibach and @HRTforme missed it.

Sorry what's your point? If you note my initial post was about my post-menopausal MILs experience of not taking HRT hence completely relevant.

And anyone can post on a thread as long as they comply with talk guidelines, it's a public forum. Who made you thread police?!?

cardibach · 09/01/2024 16:01

Boomboomshakeshaketheroom · 09/01/2024 14:37

Please can menopausal / post-menopausal women share their experience of deciding not to take HRT and how it's worked out for you?

Just reiterating the OP's question in case @cardibach and @HRTforme missed it.

I have said I’m not the target audience elsewhere. However I don’t think making a decision by only hearing one side is a good plan. I’ll bow out now though.

HaggisPakora · 09/01/2024 16:11

It's these sorts of judgey sentences which wind up those of us who are using HRT: "meddling with the hormones/natural chemicals in my body".

Why can't people just say that they sailed through menopause, didn't have symptoms they felt were worth seeing a GP about, are a strong believer in natural remedies or whatever. Why does that have to come with the "meddling" judgey language?

I also feel that the articles about "risk" raise more questions than they answer. "HRT" isn't one thing - some women (most, probably) have both oestrogen and progesterone to protect the lining of their womb, other women like me who have had a hysterectomy just have oestrogen. Some have testosterone too. Some take tablets, others use gels, sprays, patches. Doses on the patches range upwards from 25 mcg a day to over 100 mcg. It is generally believed that transdermal oestrogen HRT (spray, patches, gel) is minimal risk, tablets are higher risk. But HRT is not the only risk for breast cancer, the other risks are things like having your first pregnancy later, or being overweight, drinking alcohol, family history. Many women find that being on HRT gives them their "oomph" back, and gives them the energy to get off the sofa and go for a walk, or overhaul their diet, so the HRT might be increasing the risk in one aspect, but also helping them decrease other risks. It is complex and individual.

The REAL scandal is the fact that menopause and peri/menopausal women are regularly fobbed off by the medical profession, sent away repeatedly with prescriptions for vitamins or anti-depressants, not taken seriously. Some GPs are fab. The majority are poorly-trained, lacking in understanding, reluctant to prescribe, reluctant to refer on to a specialist. It's fucking awful plucking up the courage to spill your guts to the GP and explain just how low and dreadful you feel only for them to do nothing about it.

SebastianFlytesTrousers · 09/01/2024 16:11

@HRTforme Studies and statistics from around the world and various sources being as varied as they are, I think the most important guide for women (and men) who may be concerned in the UK is to use The Royal Osteoporosis Society risk calculator tool and discuss your own individual risk findings if concerned with your own GP or other healthcare provider. It saves on wading through papers, links and scaring people witless with studies that may or may not be accurate or easy to interpret:
https://theros.org.uk/risk-checker/?campaign=77a866ee-c708-ed11-82e5-0022481b5a28

Osteoporosis risk checker

Take our osteoporosis risk checker and get a personalised report on your bone health in just five minutes. 3.5 million people in the UK are currently living with osteoporosis – a condition where bones lose strength and become more likely to break.

https://theros.org.uk/risk-checker?campaign=77a866ee-c708-ed11-82e5-0022481b5a28

junebirthdaygirl · 09/01/2024 16:13

I am 63. Didn't have a very difficult menopause so haven't had any HRT. Had hot flushes a little bit but nothing major. Did have an overactive bladder but got botox for that. I focused on exercise..especially resistance training. Have no issue with osteoporosis as checked regularly and have had a complete heart check and no issue there. I did take supplements..Complete Woman from Boots which l think did help. Overall l am not concerned about my health having had no HRT.

Alphabet1spaghetti2 · 09/01/2024 16:16

I did take it initially after a surgical menopause at 28years. Stopped after 18 months because getting hold of it was taking so much effort - I would be running around Drs and pharmacies for three weeks every month. Eventually decided there was more to life and gave up. Never had any problems and actually felt better off it.

kitsuneghost · 09/01/2024 16:19

SebastianFlytesTrousers · 09/01/2024 16:11

@HRTforme Studies and statistics from around the world and various sources being as varied as they are, I think the most important guide for women (and men) who may be concerned in the UK is to use The Royal Osteoporosis Society risk calculator tool and discuss your own individual risk findings if concerned with your own GP or other healthcare provider. It saves on wading through papers, links and scaring people witless with studies that may or may not be accurate or easy to interpret:
https://theros.org.uk/risk-checker/?campaign=77a866ee-c708-ed11-82e5-0022481b5a28

keeps crashing on me at the last step
Think I've confused it as I have all the high risk factors and never broken a bone

BeforetheFlood · 09/01/2024 16:21

This thread is evidence of how poor the available information is around this subject (edit - not because posters are ill-informed, I'm not saying that at all!) GPs seem to be largely out of step with what we hear in the media and you can produce any number of research studies and papers that prove one thing, and an equal number that appear to show the opposite. It's no wonder women are caught in the middle and confused, and are suffering because of it.

There's no doubt that menopause has been woefully neglected as an area of research in the past and that women were fobbed off and their very real symptoms dismissed. I think we're in something of a pendulum swing the other way now, which is great for the women who suffer really debilitating, life-restricting effects of peri-menopause and menopause. But I think a lot of us are getting caught up in a sort of trend, led by celebrities like Davina and capitalised by the likes of Louise Newson, where HRT is pushed as some sort of midlife wellness cure-all, rather than powerful medication, with significant side effects for some.

I got swept up in it during the pandemic when I'd just turned 50 and was going through a period of intense anxiety and insomnia, with associated brain fog and inability to do my job. I got a last minute cancellation at the Newson clinic the week before the first Davina programme went out (and was told if I didn't grab it I would have to wait over 6 months for another one as they were expecting to be swamped once the programme had aired.) I wanted to discuss my symptoms and options with an expert because I didn't feel I could do that with my GP during covid when they were so stretched. However, within the first five minutes of the Newson zoom consultation I'd been offered HRT, and the rest of the 15 minute appointment was spent on how and when to take it, dosage etc. At the end I was left wondering what had just happened, with a prescription for Oestrogel and Progesterone and a bill for over £400, all in.

I never took the medication. I realised that all my symptoms were a natural reaction to the strange circumstances we all found ourselves in back then, and because of my age and media messaging I had fallen for what appeared to be the obvious cause. I'm absolutely NOT saying that other women don't have real and horrible symptoms that can be hugely alleviated by the right HRT - I know it can be a genuine lifeline for many, many women, but I do believe that a lot of us are swayed by the narrative that the life stage in itself is something that needs medicating, rather than the difficult symptoms some women experience as a result of it. There is a certain 'glow up' narrative. The justifiably celebrated new awareness of menopause and HRT has a kind of 'what are you waiting for, join in and rediscover your youth!' kind of zeal that doesn't leave much room for nuance or individual alternative options.

I haven't ruled out taking it. I'm not anti-HRT at all, but I am interested in optimising my health through diet, exercise, stress-management and medical monitoring where appropriate (I intend to book a DEXA scan to check bone health in the next year or so.) I am beyond delighted that women's health and wellbeing is being taken more seriously at last, by medical professionals and the media, but I think we need much more well-balanced information about all aspects of peri-menopause (medical, social, political) so we are equipped to make our own choices. (Which I think is exactly what the OP is asking for!)

I found Tania Elfersy on the Magnificent Midlife podcast an interesting listen for an alternative perspective. Not a path suitable for everyone, but a counter-narrative that might be useful for some. (will post a link, not as an endorsement but for information on a different way of approaching menopause for OP and anyone else who is not sure HRT is right for them.)

https://magnificentmidlife.com/podcast/137-being-wiser-about-menopause-tania-elfersy/

Episode 137: Being wiser about menopause with Tania Elfersy - Magnificent Midlife

Tania Elfersy talks about how we can be wiser about the menopause transition, so we suffer less and feel its power more.

https://magnificentmidlife.com/podcast/137-being-wiser-about-menopause-tania-elfersy

Ponderingwindow · 09/01/2024 16:26

I’m perimenopausal. I don’t consider hrt an option. My previous experience with hormones for both birth control and to treat a medical condition is enough evidence for me to not want to take the risk. Peri is nothing compared to how sick I have gotten every time I have tried to take any kind of hormone. I’m one of those rare women who experience the really bad side-effects in the package inserts.

SebastianFlytesTrousers · 09/01/2024 16:27

@kitsuneghost Fear not! If your situation is a bit complex or you believe your risk to be high, I'd definitely give their helpline a call in that case. Hope this helps. https://theros.org.uk/information-and-support/free-osteoporosis-helpline/

Free osteoporosis helpline - information and support | ROS

Contact our specialist nurses on our free osteoporosis helpline at The Royal Osteoporosis Society.

https://theros.org.uk/information-and-support/free-osteoporosis-helpline

SebastianFlytesTrousers · 09/01/2024 16:33

Brilliantly balanced post, @BeforetheFlood. Thank you so much!

Hatenewyear · 09/01/2024 16:39

I take HRT and although not life changing its helped with hot flushes, night sweats and brain fog. Not so much with anxiety or weight gain.

You don't get a certificate at the age of 60 if you haven't taken it. Women have valid reasons for not taking it, but just because it doesn't feel right seems a silly one to me.

Nandocushion · 09/01/2024 16:41

I haven't taken it but I'm 53 and haven't really had any meno symptoms at all so I'm not sure if I'm just a late bloomer, or if I've been lucky. I'd consider taking it if I needed it but for the moment I'm happy I haven't felt the need.

thatbigbear · 09/01/2024 16:47

I didn't take it - my main symptoms were anxiety/brain fog and hot flushes. I spoke to the local pharmacist about the anxiety and she said to ask the GP for a very low dose antidepressant - I have now been taking this for several years and it is working extremely well, to the point where I have been able to cut down the dose to the absolute minimum now, and it was never very high to start with. Hot flushes were boring but were very connected to stress/anxiety, so reducing those really helped and otherwise I just put up with them. Ditto brain fog.

I was asked by GP if I wanted HRT and we agreed that, as I'd managed without it so far (about 2 years from last period), there was no point in starting it now, so I never did.

I'm glad I was able to manage without, as my hormones have been a nightmare ever since puberty, so I leave them to it as much as possible...not an option for everyone I know, but I'm glad it was for me.

IbizaToTheNorfolkBroads · 09/01/2024 16:49

It only dawned me recently that I havn't had a period for about a year. This seems to have been pretty symptomless. I'm 53.

I was a mad woman full of mood swings, bad skin and bad sleep 10 years or so ago but I put it down to having a baby who didn't sleep and a preschooler who didn't poo. Trying times, but maybe I was peri?

Should I take hrt? See my gp? Do anything? I could do with losing a stone or 2, and it doesn't want to shift, but I am active (HITT, swimming, walking) and eat well. The teens are treating me much more nicely than their younger selves did. I feel better than fine. Teenage periods were awful and I had hyperemisis in both pregnancies. I'm just working on the principle that hormones don't agree with me, so the withdrawal of hormones might be alright! (Excuse my very rudimentary understanding of human biology).