Meet the Other Phone. Only the apps you allow.

Meet the Other Phone.
Only the apps you allow.

Buy now

Please or to access all these features

Local

Find conversations happening in your area in our local chat rooms.

Council house waiting lists medical

125 replies

panda2023 · 19/02/2023 07:54

Hi. So ive been on waiting list band B for around 500 days now on medical grounds.current property has 4 flights of stairs which cause a struggle every day. Been offered a property which is going to mean i have to get 2 buses and an hour trip to get my disabled child to school , 2 buses to get home again. I am worried if i turn it down i wont get offered another. Also what happens if i move to a rented ( still cannot adapt to suit needs) but eliminates the stair issue. Will they see the need to move as less. Or am i better off staying and waiting. The thought of that kills me as its such a struggle in our current home. What to do

OP posts:
Nimbostratus100 · 19/02/2023 14:35

GoAgainstNicki · 19/02/2023 13:36

What a nice person you are.

OP has not one but TWO disabled children. She’s also mentioned that she lost her husband and is now a single parent. What the fuck is she meant to do?! She’s literally a career

there is so many choices these days. I really hope the OP manages to get back into her career or a new one, she will be so much better off, not having to choose between the least worst options the council can offer. Maybe she cant, but there is nothing at all that she has said that make that line of progress and impossible one to follow. I have a friend who retrained online as an accountant during lockdown, and is now working freelance, hours to suit, around her disabled childrens schooling, and now , for the first time, in a position to get a mortgage. THe OP might be in a position to try something similar, they may even already have a deposit, if they lost a husband who had life insurance.

There is nothing at all in any of these posts to mean anyone has to assume the OP cannot get back into work, and open up a whole new world for herself and her children

JustKeepBuilding · 19/02/2023 14:43

Good for your friend, but it isn’t possible for many parents of disabled DC. The OP posted if only she could get a job, so she clearly thinks in her circumstances it isn’t viable.

According the Contact 61% of parents with disabled children had to give up work because for their child’s disability.

Even the government realise carers often can’t work, which is why when they claim e.g. UC there are no work requirements for carers.

Stomacharmeleon · 19/02/2023 15:02

@JustKeepBuilding sorry I didn't see that I apologise. To you and op.

panda2023 · 19/02/2023 15:28

JustKeepBuilding · 19/02/2023 14:43

Good for your friend, but it isn’t possible for many parents of disabled DC. The OP posted if only she could get a job, so she clearly thinks in her circumstances it isn’t viable.

According the Contact 61% of parents with disabled children had to give up work because for their child’s disability.

Even the government realise carers often can’t work, which is why when they claim e.g. UC there are no work requirements for carers.

Thank u for your support

OP posts:
Sluj · 19/02/2023 15:46

I still think the best thing is to talk to housing in the morning and see if they think anything suitable in a better position will come up and then decide from there. Until your second child is actually assessed and diagnosed with something, there won't be any grants for adaptations they may require.
Take it a step at a time and deal with the pressing issue of not being able to carry your other child up 3 flights of stairs. Are you at the point where this is now almost impossible or can you afford to wait another year or two? That's what you have to consider carefully.
I wish you the best of luck.

panda2023 · 19/02/2023 15:50

Sluj · 19/02/2023 15:46

I still think the best thing is to talk to housing in the morning and see if they think anything suitable in a better position will come up and then decide from there. Until your second child is actually assessed and diagnosed with something, there won't be any grants for adaptations they may require.
Take it a step at a time and deal with the pressing issue of not being able to carry your other child up 3 flights of stairs. Are you at the point where this is now almost impossible or can you afford to wait another year or two? That's what you have to consider carefully.
I wish you the best of luck.

Yes i plan to contact them. They have granted adaptations. He has a diagnosis. We just need something a little closer to schools / therapies family ect. I cant leave my 11 year old whom has autism at home alone while she waits 20 min to be collected for school ( has the mental age of a 7 year old ) couldn't be trusted to lock the house or wonder off. while I leave to take the youngest ( disabled one ) to school on our 1 hour journey to school and the same at home time. :(. Im trying not to be unreasonable but im in a catch 22. I guess ill have to stay put

OP posts:
JustKeepBuilding · 19/02/2023 15:57

Until your second child is actually assessed and diagnosed with something, there won't be any grants for adaptations they may require.

OP’s DC has autism, but even if they didn’t you don’t need a diagnosis for DFG.

Merchantadventurer · 19/02/2023 15:59

Please also contact Children’s services tomorrow and see what support they can offer. The may be able to help in some way. Do not turn down this house without exploring all your options

panda2023 · 19/02/2023 16:19

Confuzzlediddled · 19/02/2023 12:15

@Nimbostratus100 the OP already has a full time job, caring for two disabled children, in fact it's more than full time, she will be working a lot more than the 37 hours a week most people do...

Thank you for your answer. And understanding my situation. ❤️

OP posts:
panda2023 · 19/02/2023 16:20

Toddlerteaplease · 19/02/2023 12:15

Unfortunately I don't think you can prioritise your child's routine, over your need for appropriate housing. He will have to change that routine as he gets older and moved to different schools etc anyway.

No he doesnt he is in his final school. The most important one. They have gone through so much already

OP posts:
panda2023 · 19/02/2023 16:21

NewNovember · 19/02/2023 13:25

No it's definitely not limited to £2k I know people who had the full amount paid £10k one person.

When i applied for help they said they could fund £2k of the £8k

OP posts:
panda2023 · 19/02/2023 16:24

JenniferBooth · 19/02/2023 14:11

She has been offered a house that meets her needs, and it’s free

WOW So who is this HA who is allocating these houses rent free. Because i bet they are inundated

These houses arent free and are always bare. I would need to spend a small fortune getting it liveable. Have no issue with that if the property was in an area i could stay in. You have to pay rent on these fyi.

OP posts:
panda2023 · 19/02/2023 16:45

itsgettingweird · 19/02/2023 10:35

Have you contacted charities such as new life and family fund?

You can ask for the rain canopies for wheelchairs etc.

Also look again at motability and what grants you may be able to get towards deposits etc (the deposits for WAV are sky high currently Sad).

Ignore the idiots who think you shouldn't get help and pray they don't find themselves suddenly in this situation one day as they obviously wouldn't want help.

I agree with speaking to your housing officer. Look at everything you can do. Look at if local charities can fundraiser a vehicle deposit for you. Lions, rotary clubs, motorcycle clubs etc are absolutely brilliant at supporting families who've been plunged into horrendous situations they need help to get out of.

Thank you

OP posts:
JenniferBooth · 19/02/2023 16:49

@panda2023 i was being sarcastic in reply to a PP

panda2023 · 19/02/2023 16:51

Thank you to those who have completely understood my dilemma and have given compassion in their responses, whoever it is no surprise to me that there are some ignorant uneducated people out there that have absolutely no idea how hard it is to bring up two disabled children on your own. Why would somebody assumed that my husband had life insurance we are both young we did not think about life insurance. Nobody expects the bad things to happen, but unfortunately they do, it leaves people in negative situations. People should never does assume that these houses are free and in fabulous condition as they are not. I never dreamt I would be in this situation but here we are! I don't need the negativity I am merely asked for some support and advice from people who had been in a very similar situation.

OP posts:
panda2023 · 19/02/2023 17:11

2reefsin30knots · 19/02/2023 12:12

Your older child's taxi route and crew could change at any time anyway. The routes get changed when new children are awarded transport and in my (extensive) experience, crews change all the time. Sometimes a taxi breaks down and they have to send a different crew. Sometimes the regular crew take a term-time holiday. Sometimes a different crew turns up completely out of the blue.

The company we are
With has not changed crew times wct ever ! Used for over a year now

OP posts:
2reefsin30knots · 19/02/2023 17:58

panda2023 · 19/02/2023 17:11

The company we are
With has not changed crew times wct ever ! Used for over a year now

I've been loading kids into and out of taxis for 20 years in 4 different LAs. Crews and routes can change with very little notice.

panda2023 · 19/02/2023 18:31

JustKeepBuilding · 19/02/2023 15:57

Until your second child is actually assessed and diagnosed with something, there won't be any grants for adaptations they may require.

OP’s DC has autism, but even if they didn’t you don’t need a diagnosis for DFG.

Again ... thank you. The amount of negativity alarms me. People really do need educating it seems

OP posts:
GoAgainstNicki · 19/02/2023 18:34

Nimbostratus100 · 19/02/2023 14:35

there is so many choices these days. I really hope the OP manages to get back into her career or a new one, she will be so much better off, not having to choose between the least worst options the council can offer. Maybe she cant, but there is nothing at all that she has said that make that line of progress and impossible one to follow. I have a friend who retrained online as an accountant during lockdown, and is now working freelance, hours to suit, around her disabled childrens schooling, and now , for the first time, in a position to get a mortgage. THe OP might be in a position to try something similar, they may even already have a deposit, if they lost a husband who had life insurance.

There is nothing at all in any of these posts to mean anyone has to assume the OP cannot get back into work, and open up a whole new world for herself and her children

Ok and that’s YOUR friend. Why do you need to come on here commenting in a bitchy tone telling the OP that maybe she needs a job or whatever it is that you said.

I have 2 under 2, one with a genetic disorder and I’ve recently started working part time. Does that mean that I should now comment on every parent’s post who has a disabled child telling them to work just because I do?!

And not being funny but how much time do you think the OP has to get in to a full time career where she can eventually save up to either rent a more expensive place or have a deposit on a house? She’s a career! Why aren’t you getting it.

I’m not going back and forth with you, you’re pissing me off

NewNovember · 19/02/2023 18:44

panda2023 · 19/02/2023 16:21

When i applied for help they said they could fund £2k of the £8k

I would get that looked at again, I volunteer and have had grants approved for clients up to £10k. That was a very large specialised WAV however grants of £6k plus are not uncommon. If you are in receipt of means tested benefits which I assume you are you should be getting the whole WAV costs covered, that it assuming you don't have a high amount of savings.

Blip · 19/02/2023 20:32

OP I'm concerned for your health here with carrying your child up and down stairs, the last thing you need is for your own physical health to be affected on top of everything else you are dealing with. It sounds like a really difficult situation and I hope you can get some more help and support.

Stomacharmeleon · 20/02/2023 10:31

@2reefsin30knots we used to expect one at the very minimally yearly when they renegotiated the contracts. It was usually much more than that though. I never understood (apart from the obvious $) why they thought that was a good idea!

panda2023 · 21/02/2023 13:37

Blip · 19/02/2023 20:32

OP I'm concerned for your health here with carrying your child up and down stairs, the last thing you need is for your own physical health to be affected on top of everything else you are dealing with. It sounds like a really difficult situation and I hope you can get some more help and support.

I was in hospital as i needed some fluid relief on my spine due to carrying my son all the time. Sadly they are not interested in my health or mental health. :( this is why i ask if i am aloud to rent a single flight stairs property and illuminate one of our housing issues but would still need an adaptive one when one comes available

OP posts:
Stomacharmeleon · 22/02/2023 13:52

I understand why you want to move but it's not advisable. They will argue that you are adequately housed/ can house yourself.
I would also look into the fact this is affecting your health and well being. I see no reason why that should not be taken into consideration.

jacob1997 · 31/05/2024 10:42

This reply has been deleted

This has been deleted by MNHQ for breaking our Talk Guidelines.

New posts on this thread. Refresh page