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Original poster

Council house waiting lists medical

125 replies

panda2023 · 19/02/2023 07:54

Hi. So ive been on waiting list band B for around 500 days now on medical grounds.current property has 4 flights of stairs which cause a struggle every day. Been offered a property which is going to mean i have to get 2 buses and an hour trip to get my disabled child to school , 2 buses to get home again. I am worried if i turn it down i wont get offered another. Also what happens if i move to a rented ( still cannot adapt to suit needs) but eliminates the stair issue. Will they see the need to move as less. Or am i better off staying and waiting. The thought of that kills me as its such a struggle in our current home. What to do

OP posts:
GoAgainstNicki · 19/02/2023 11:46

panda2023 · 19/02/2023 09:52

I fully understand and its tough going. I also need a bath for the autistic child but the council say we only need a wet room / walk in shower. But i have two kids with opposite needs. I would be happy to wait for the right home for us and rent a two story house for a while but if that means we loose band i wont

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It’s really hard isn’t it?!

My son is 9 months and has a genetic disorder and we have a medical banding for him. But my daughter is 1.5 and would need to use a bath etc so it’s really difficult when there’s people in the household that have opposing needs.

I definitely think it’s worth speaking with the council and see what they advise

Posyapocalypse · 19/02/2023 11:53

Maybe you need to get yourself a better paying job, and have more choices

And maybe you need to get yourself some empathy and a reality check.

Confuzzlediddled · 19/02/2023 11:56

OP please look at the grants for the advance payment for motability, they are means tested but it sounds like you're in exactly the situation they're designed for, they will take both children's needs into account. At least that will make part of your life easier.

Original poster
panda2023 · 19/02/2023 12:00

Posyapocalypse · 19/02/2023 11:53

Maybe you need to get yourself a better paying job, and have more choices

And maybe you need to get yourself some empathy and a reality check.

If only i could get a job

OP posts:
Nimbostratus100 · 19/02/2023 12:04

bagelbagelbagel · 19/02/2023 11:00

OP has two disabled kids, which they seem to also be parenting on their own. Love to see how you'd manage that.

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and that prevents you training and working how......?

Why is this option not even a consideration?

Nimbostratus100 · 19/02/2023 12:05

Posyapocalypse · 19/02/2023 11:53

Maybe you need to get yourself a better paying job, and have more choices

And maybe you need to get yourself some empathy and a reality check.

but this is a better long term solution? surely? and it isnt even being mentioned? why not?

JustKeepBuilding · 19/02/2023 12:10

Nimbostratus100 · 19/02/2023 12:05

but this is a better long term solution? surely? and it isnt even being mentioned? why not?

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Because the OP is a carer to 2 disabled DC. If you had an ounce of understanding you would realise that for many, many parents of disabled DC their caring role prevents them from working.

2reefsin30knots · 19/02/2023 12:12

Your older child's taxi route and crew could change at any time anyway. The routes get changed when new children are awarded transport and in my (extensive) experience, crews change all the time. Sometimes a taxi breaks down and they have to send a different crew. Sometimes the regular crew take a term-time holiday. Sometimes a different crew turns up completely out of the blue.

Confuzzlediddled · 19/02/2023 12:15

@Nimbostratus100 the OP already has a full time job, caring for two disabled children, in fact it's more than full time, she will be working a lot more than the 37 hours a week most people do...

Toddlerteaplease · 19/02/2023 12:15

Unfortunately I don't think you can prioritise your child's routine, over your need for appropriate housing. He will have to change that routine as he gets older and moved to different schools etc anyway.

NewNovember · 19/02/2023 12:16

panda2023 · 19/02/2023 10:27

Hi. I can drive i just cant afford to buy or run one. Since loosing my husband and our youngest getting his diagnosis i had no choice to give up a very good job. My sons therapy and appointments take over my life.
I used to have a car. But even with mobility involved the down payments on vehicles now are sky high. My mom takes me to the three hospitals for his appointments at the moment but may find it harder with distance between us. My child is in a wheelchair- no canopy so rain and hoping on and off buses isnt easy. Ill figure something out.

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Do you know motability provide grants that cover the full cost of the upfront payments for WAV's

NewNovember · 19/02/2023 12:17

Here op
www.motability.org.uk/charitable-grants/

Toddlerteaplease · 19/02/2023 12:22

Are there any schemes where you live, where you sign up and can borrow a car as and when you need it? It would save the expense of running and buying a car.

Original poster
panda2023 · 19/02/2023 12:22

NewNovember · 19/02/2023 12:17

They pay towards it. Currently the wav is £8k down and they will help with about £2k i simply cannot afford the other £5k. I know the charity is amazing for those who have the extra monies

OP posts:
Beansontoast45 · 19/02/2023 13:24

panda2023 · 19/02/2023 10:15

Its people like this that really upset me do you have a disabled child? Do you know the endless work you have to put in, the endless appointees you have to attend. The illnesses and hospital trips. I used to have a very good job and a life that was worth living. I lost my husband to cancer and am left with two children. Please dont tie everyone in with the same bunch. I am no scrounger. I bloody graft.

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I do have a disabled child actually, I am also a single parent, the other parent contributes nothing and I have no family close by so yes, I absolutely do know what it’s like.

NewNovember · 19/02/2023 13:25

No it's definitely not limited to £2k I know people who had the full amount paid £10k one person.

GoAgainstNicki · 19/02/2023 13:36

This reply has been deleted

Message deleted by MNHQ. Here's a link to our Talk Guidelines.

What a nice person you are.

OP has not one but TWO disabled children. She’s also mentioned that she lost her husband and is now a single parent. What the fuck is she meant to do?! She’s literally a career

Stomacharmeleon · 19/02/2023 13:41

There are a huge amount of cars that require no down payments or minimal.
I understand the huge upfront payments to be for very specialised vehicles.

GoAgainstNicki · 19/02/2023 13:49

Beansontoast45 · 19/02/2023 10:05

People who work, get a mortgage and buy a house have to make sacrifices with location. Many people also have to buy do it uppers to afford to move and then pay for all the work themselves. Personally I don’t think people who are being given accommodation and having adaptions paid for them should be upset about making them.

If you don’t have anything helpful to say then maybe you should say nothing?

OP has TWO disabled children. Not everyone is in a position to save money for a deposit, let alone actually buy a house and have money left over to ‘do it up.’ I don’t know why you thought you had to comment this unhelpful shit

JustKeepBuilding · 19/02/2023 13:50

Stomacharmeleon · 19/02/2023 13:41

There are a huge amount of cars that require no down payments or minimal.
I understand the huge upfront payments to be for very specialised vehicles.

OP requires a WAV, which have large APs.

JustKeepBuilding · 19/02/2023 13:52

Beansontoast45 · 19/02/2023 13:24

I do have a disabled child actually, I am also a single parent, the other parent contributes nothing and I have no family close by so yes, I absolutely do know what it’s like.

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Then you will know that if someone needs adaptations because of their DC’s disabilities they don’t have to “pay for all the work themselves” even if they buy a property.

Mangolist · 19/02/2023 13:53

This reply has been deleted

Message deleted by MNHQ. Here's a link to our Talk Guidelines.

Helpful and clearly said from a lofty height of unawareness and of privilege. Some people just can't help themselves can they

Beansontoast45 · 19/02/2023 14:02

JustKeepBuilding · 19/02/2023 13:52

Then you will know that if someone needs adaptations because of their DC’s disabilities they don’t have to “pay for all the work themselves” even if they buy a property.

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I know many many people who have actually.

I don’t know what the issue is with my original post. I was pointing out that the op needs to make sacrifices like everyone else, and she is very very fortunate to be offered social housing. Saying that she doesn’t want to take the house because her child will need to move school and complaining of having to get busses etc comes across as very entitled. The fact the MP is useless and she talks about the new builds that she would prefer, how the council think she needs a wet room rather than a bath etc.

The point I was making is that sacrifices need to be made. I have to drive my children over an hour to school, I had to move to an area I don’t know, away from family and friends etc because that’s what I could afford. She has been offered a house that meets her needs, and it’s free!

JenniferBooth · 19/02/2023 14:11

She has been offered a house that meets her needs, and it’s free

WOW So who is this HA who is allocating these houses rent free. Because i bet they are inundated

JustKeepBuilding · 19/02/2023 14:18

Beansontoast45 · 19/02/2023 14:02

I know many many people who have actually.

I don’t know what the issue is with my original post. I was pointing out that the op needs to make sacrifices like everyone else, and she is very very fortunate to be offered social housing. Saying that she doesn’t want to take the house because her child will need to move school and complaining of having to get busses etc comes across as very entitled. The fact the MP is useless and she talks about the new builds that she would prefer, how the council think she needs a wet room rather than a bath etc.

The point I was making is that sacrifices need to be made. I have to drive my children over an hour to school, I had to move to an area I don’t know, away from family and friends etc because that’s what I could afford. She has been offered a house that meets her needs, and it’s free!

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Well those parents with disabled DC would have had the adaptations funded.

The problem with your post was it was judgemental. Just like your most recent one.

But anyway the OP hasn’t been offered a house that meets her DC’s needs if it only has a wet room as one of her DC needs a bath due to their ASD.

And it isn’t ‘free’.