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Thread #7, living with incurable cancer. Taking ALL the drugs and remembering our lovely friends

201 replies

sellotapechicken · 05/03/2026 01:54

The other thread was full! I am waiting for the oncology assessment unit to decide what to do with me tonight. I keep spiking temps but it goes after paracetamol so they can’t decide if it’s a reaction to immunotherapy or not..

Hoping this works!

OP posts:
balkanscot · 22/06/2026 16:32

@SewingBees Good to hear from you and that you have a plan in place. Fingers crossed you can get out on Monday as planned. I can imagine it must have been terribly traumatic. Are your family on hand to help?

@Ventress Glad you got back from the hospital.

@Middleageddreameresawsss 7 weeks indeed! Beyond cruel but actually it has already been 2 weeks. I almost want to bury my head in the sand and don’t want to know at all.

I medically retired 18 months ago - I draw a civil service pension (not the final salary one, that ship had sailed before I joined). Supplementing this with PIP, plus drawing a small interest on 2 investments (deliberately left small-ish as not to be taxed). Luckily my civil service pension stated paying out before the Capita debacle. It is shit. Always thought I would stick it out until “natural” retirement. One of my colleagues retired at around the same time as me, his one was “natural” due to age. Couldn’t be more different than mine.

Lining of mouth is becoming more sensitive and I am panicking I would get that bastardly mucositis that had plagued me for 5 weeks while I was in hospital at the start of the year. I am using all my medicine I was given on discharge, plus bicarbonate of soda mouthwash, Diflam, everything! I am finding I have to avoid spicy/salty food again. Oh, yes, I also have a build up of ear wax in my right ear and have been using prescribed olive oil ear drops. I was petrified in case my muffled hearing in that ear was due to Epirubicin which can cause ototoxicity but GP confirmed it was excess ear wax. But even so, it is making me grumpy as hell, combined with my mouth. And waiting for the scan results. I just can’t get into the Summer mode.

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