Thread #7, living with incurable cancer. Taking ALL the drugs and remembering our lovely friends

[sellotapechicken]

The other thread was full! I am waiting for the oncology assessment unit to decide what to do with me tonight. I keep spiking temps but it goes after paracetamol so they can’t decide if it’s a reaction to immunotherapy or not..

Hoping this works!

Thank you so much.
Im so sorry to hear about the brain mets. I havent had brain involvement. I have been on Cape tho. The tablets are quite big and I think it was a x2 day dose but not 100%. I felt tired, a bit queasy and that was about it I remember.
Ive learned that cancer is a highly complex systemic disease and most of the time makes no sense. Im so over it all too and find it exhausing and tedious to have to think about it all the time.

Delurking just to say, hope you have support around you @SewingBees , have your med team come up with a treatment plan yet?

Have you let work know about the upcoming treatment.....

Hey how are everyone doing? I hate the heat

@Enigma54 Happy very belated birthday! 🎊 And good luck on Friday. 🤞 Mine is on 8th June with a follow up appointment on 8th July. Full 4 weeks of waiting. Again. I want to live for another 3 months!

@SewingBees I am so sorry to hear about the brain mets. Do you have a firm plan in place? Have you stated on it yet? Losing your driving licence must be hard, yet another chip taken off ourselves thanks to state 4 cancer. Thinking of you. 💐

I am in Scotland where it has been hot but not as hot as down South. Although 25 degrees is scorchio for up here.

Off to another dose of Epirubicin this afternoon.

@Enigma54 good luck tomorrow! I have just had my 8th July appt. changed to 29th July - WTF??? I know it’s holiday season and all that but to wait for 7 weeks to find out CT scan results being a stage 4 patient is beyond any comprehension. I did ask if there are any appointments sooner, the only one they could offer me would be a week earlier, so I said no. I am going to see my brother during that week and I am not changing that - he is on annual leave then and that’s the only time I can see him properly. It may even be the last time I see him, who knows?

7 bloody weeks! I am speaking to the secondary BCNs tomorrow about how to juggle chemo appts. while I am away and I will ask them again to consider phoning me as soon as the results become available.

@balkanscot7 weeks is indeed hugely ridiculous! They have NO idea how stressful the waiting is, no idea at all. It doesn’t seem that uncommon though, unfortunately 🙈 How are you feeling after the last dose of epirubicin?

Yes, tomorrow’s the day. I feel ill with worry. Next Tuesday I have a blood test and see the oncologist, but I know the results won’t be in by then. It’s all just an absolute horror show.

@SewingBees how are you getting on? I’m sorry things are tough. Cancer takes so much, bit by bit, despite us trying to hang onto each and every bit of our lives. I’m also thinking of you.

I’m coming up to the dreaded 3 monthly bloods mark. I’ve not had a scan since Christmas and I’m in a mental fizz over “symptoms”. I’m probably just fat but I am so scared the fat tummy is ascites again. I’ve emailed the gynae CNS in a panic tonight requesting she ask my consultant if I can have one. I don’t know how to contact her otherwise which is probably a bit daft - her secretary never replies.

I have now put on 3 stone since pre hysterectomy and I am furious about it, but lack the willpower to do much about it - I exist in a constant battle between “I hate myself” and “fuck it why NOT eat cake I totally deserve it” 🤣

@Enigma54i hope your scan went well, when do you get your results?

@AGreatUsername definitely agree with you, why NOT eat cake??!? I’m the same with crisps. A sharing bag, literally means I share with myself and no one else!! 🤣 I’ve not experienced ascites, but isn’t it a fluid buildup and you would likely be suffering with other symptoms? Maybe constipation/ feeling full after eating? I’m sure you will be okay. A scan will definitely put your mind at rest.

I don’t know when I will get my scan results. I see the oncologist on Tuesday after my blood test, but i doubt my results will be in by then. What a shit show! 😳