Thread #6, living with incurable cancer, taking ALL the drugs, and remembering our fallen comrades

[SewingBees]

New thread!

Have you broken up from school now @lucysmam? What meds are you on? At least it’s being sorted now.

No, we have another week and 2 days to go. So so ready for it to be done!

I'm still on the Abemaciclib/Letrozole combo. You'd think they were new drugs with the farce it's been!

@lucysmam I’ve messaged you.
dh is happy to chat to talk you through it and if he can’t help directly he’ll give your details to a barrister who will help xxx

Oral fucking thrush, no taste buds, cracked lips, cracked skin, bits of skin peeling off my tongue. I’m going to fucking cry!!!!!😢😢

@Enigma53 That really sucks. What's the treatment?

@SewingBees gemcitabine and docetaxol. Think I may be sick. Just can’t do it

@Enigma53 you need nystatin. Can you get it via chemo helpline?

You need to get some nystatin and some oral local anaesthetic mouth wash. You could go to oooh?

I’ve tried facebook messaging her

FFS. Just put a film on to watch and the main character has fucking cancer. This happened to me last week as well. No warning in the preamble. Give me a break!

I did that too. We need to warn each other. On too much morphine here

I did watch The Replacement on Netflix - far fetched, but nothing to do with cancer. Was on bbc - so decent programme

I'm watching North Shore on Netflix. It's reminding me of my trip to Sydney last year and living there half a lifetime ago.

Oh gosh you have a much more refined tv taste then I do. Since this happened I can only watch trash. And both the soaps have cancer stories going which is a pain.

@EachandEveryone I watched it in snippets - sometimes literally seconds. Couldn’t really be bothered. But then I had to know what happened 🤣

@SewingBees I forgot your trip- remember when that was a big deal? Was exciting to go so far

@RedRosesPinkLilies Hard to believe it was nearly a year ago. This year we're going to Wales - slightly closer to home!

My friend who lives in Sydney is coming over in November for a few weeks, I'm looking forward to seeing her again.

Off to a&E when I can stop vomiting.
I can’t believe I just asked my partner to euthanise me! 😱😢

Are you ok? Sending you so much love

Been admitted. Severely neutropenic 😢 Oral thrush in oesophagus

@Enigma53 I hope you are well looked after. Are you likely to get a blood transfusion?

@Enigma53 not much I can say. Thinking of you

Thinking of you. Can you have visitors?

partner has been and gone. On iv antibiotics, fluconazole, potassium, and injections to boost bone marrow function. Just took a tiny bite of a soft white bread sandwich; half the skin came out my mouth too 🤢🤮

How is everyone on this shitty day??

Aw man that sounds awful! If you want some company I’ll come and bring some ice lollies! I’m literally melting today