Thread #6, living with incurable cancer, taking ALL the drugs, and remembering our fallen comrades

[SewingBees]

New thread!

@SewingBees - you make a good point. I think that’s it. He is unpleasant in his demeanour. I think you’ve hit the nail on the head

I hope this makes people smile. I’ve had some random pain on having sex and mild spotting which shouldn’t really be possible with no working parts down there. I’ve also got Covid but when I mentioned it to the Gp at my appointment this afternoon because if you get Covid you have to have antivirals and the Christie kept bouncing me back to my GP

so I went in f2f because that’s what they wanted and got the antivirals, then as I was there the dr asked if there was anything else I needed and I told her. She decides to do a pelvic exam.

As she inserts the speculum into my vagina I sold something on either Vinted or eBay and my phone made a kaching! Noise. I nearly pissed myself laughing and the dr just said ‘that wasn’t very appropriate was it’ 🤣🤣🤣 I’ve got raging thrush it turns out but my god it couldn’t have been at a worse time 😳😂🤦‍♀️

@sellotapechicken 🤣🤣🤣 you have the most incredible experiences!! I love the kaching!!! Dr needs a sense of humour.
Hope you’re better (from this) soon xx

That made me giggle @sellotapechicken 🤣 perfectly timed!

How is everyone?

@EachandEveryone I hope you're having a ball! 🎶

Not much to report here. Realised yesterday my meds appointment is the day before Trnsmt so I should be nicely rested for that - no point going back to work after. Current LL being a dick & ignoring the EA's email for a reference 🙄...you know...the thing that will enable us to move out like he wants <BIG SIGH>. Find out on Tuesday where we are for the next year at work - have a feeling I know exactly what the plan for me is.

Nothing new medically - feels like ages since I saw or spoke to anyone actually.

Right, off to read back what I've missed. Have a nice day everyone x

🤣I couldn’t not share

I am. Kind of. It’s very different for me and my wheels keep running out of battery the terrain is very rough.

@SewingBees just wanted to say good luck for today.
Please let us know how you are when you feel up to it xxx

@RedRosesPinkLilies I'm sorry to read you have been having such a difficult time.
I hope the tablets work for you xxx

@sellotapechicken that made me laugh, Kaching! 🤭

@Enigma53 how are you feeling at the moment?

I went to London with my son.
I got mugged for my phone. I never saw them coming. It was dark and they approached me from behind on electric bikes wearing balaclavas.
I wasn't hurt but it left me feeling jumpy every time someone went past me on a bike.
I'm not bothered about the phone, it's just a thing but I hate the way they made me feel and now the inconvenience of having to get a new one and start again.
Fucking wankers.
Apart from that, I had an amazing time. It was exhausting and I was mostly dragging my right leg around as it was so painful but it was worth it.
Back to the grind now with the hospital appointments.
Bloods today, chemo tomorrow and barium swallow Wednesday.
Next week chemo will be deferred so I can go glamping with my daughter and family.
Hopefully to relax (as much as you can relax around two toddlers) and without incident.

@GoldenDog1 Thank you. I'm at the hospital already on the hottest day of the year so far. It's already boiling outside and I live in the north (of England). I hope the theatre is well air conditioned for the staff.

I'm sorry to hear about your phone, that's a horrible thing to happen. That sort of thing makes us feel so vulnerable, and we're already quite vulnerable anyway. I'm glad you had a good trip though, love the photos on fb.

Fuck me I’m melting

@SewingBeeshope you’re doing ok! Theatres are usually warm to support the patient in regulating their temp but we wear thin scrubs and when it’s warm like now we all get changed between cases. I really miss work

@SewingBees how are you doing?

Hope all went well @SewingBees and your recovery is smooth.

@GoldenDog1 I’m glad you had a lovely London trip. Beautiful fb photos. What a shame re: the fucker who stole your phone; eejit! 😡

Im off for my new chemo shortly. Bloody dreading it! Needs must and all that!
Anyone seen Mrs Harris goes to Paris! Lesley Manville is the star. Bloody good film!

Hi all, I'm doing ok in hospital. My surgery went well and I'm recovering ok. First night and day in pain and getting over the general anaesthetic was pretty pish, but I'm brighter now. Hoping to be discharged tomorrow afternoon, going to my sister's for a week. The hospital food is absolutely dreadful, I don't remember it being this bad last time. I'm living on the snacks I brought with me and stuff my visitors are bringing. I also can't face eating my dinner at 5pm.

@RedRosesPinkLilies How are you doing? I saw some lovely photos on Facebook, but they also felt a little poignant ❤️

Not doing great. Vomiting a lot. Have seen a GP and being admitted to ARI. High pulse, low BP, slightly raised temp. I think my husband knows to post on Facebook

Sending you so much love

@RedRosesPinkLilies I hope they are making you comfortable and can stop
the vomiting. Sending love ❤️ x

@RedRosesPinkLilies ❤️ Do you have any idea what's causing the vomiting? Do you have a hospice involved in your care?

I know it’s late. Have finally seen a more senior Dr @23.30.
she agrees that a degree of obstruction is likely. Being sent for abdominal x ray to check
Typing one handed and non dominant- so will leave it at that for now

Hey I’m around if you want to message or chat. Will they operate to remove the obstruction? Thinking of you

@sellotapechicken no, it’s very unlikely for them to operate in my situation. Think it’s conservative measures- the intestine is being compressed by outside itself rather than intra luminal (is that right?)

Prognostically, I’m sure it’s not good. My ascites drain site is also infected.

It’s been a long night - worst bit was the sitting outside the ward, ultimately being sick in front of everyone. Even though the GP told me I was triaged as urgent, I think it goes more in order of arrival. The staff don’t seem to know the reasons for referral

Yes you are right about compression. Sorry pressed send too soon!! I think im just used to asking about surgery sorry. That’s so degrading you had to be sick in front of everyone.

can you get the hospice involved? So sorry you’re going through such a shitty time. Ask for all the drugs

@sellotapechicken How are you? Sorry - I must stop messaging- I’ve occluded my drip again. It’s in my right elbow - worst place!

@RedRosesPinkLilies that sounds utterly shitty. I'm so sorry they left you sat outside the ward.

Sending you love & strength x

@RedRosesPinkLilies how are things?

@sellotapechicken thanks for being available for our lovely @RedRosesPinkLilies this am. This group is so important ❤️

@RedRosesPinkLilies I'm so sorry to read your update.
I'm sorry you are going through all that.
Sending you so much love
Xxx