@EachandEveryone I really hope they can give you something to keep you on your immunotherapy, it sounds like it's possible so I'm clinging onto the positives with you.
@Enigma53 Hoping today is a better one and you managed to get a better sleep last night.
I'm doing okay, just the usual stuff going on for me, tired and waking up in pain every morning, dealing with the pain through the day, putting on a brave face /slapping on the make-up for anyone who might see me and trying to stay awake and be "normal". Hate taking oromorph as it makes me queasy, so I've been trying this week to manage on just naproxen/codeine and paracetemol but it only lasts a couple of hours, if that and I look like shit, I can see the strain on my face.
Anyone tried a grounding sheet? A few weeks ago I was awake in the middle of the night, and you know when you are in pain and your eyes are crying but you aren't actually crying if that makes sense? I was in that state. It wasn't time to take any more painkillers so I was trying to power through and was doom scrolling Instagram and for days and days had been seeing adverts for one of those grounding sheets that plug into the electrical socket to pick up and "earth" you, supposedly to reduce inflammation and pain. I'd explored the "science" a few weeks before but decided it was bollocks but in my desperate state that night I thought sod it, nothing to lose except my money, and ordered one. Next morning I had complete buyer's remorse but of course it had already been dispatched (from China!) so there was nothing I could do. It took so long to arrive I had almost forgotten about it and when it did it was wrapped in the tiniest plastic bag, all scrunched up and I just thought I'd been well and truly ripped off. Still, I laid it across my bottom sheet as instructed, trying to get it into position where my upper torso would be and waited for results. First night, nothing, just woke up with it messy beneath me . Second night, nothing, just a messy bed. Third night, nothing, same again, all rucked up underneath me. Then, at the end of the week I woke with no pain, and it only came on after a few hours of being up and about. The same the day after that, and then the day after that. I actually woke up and felt like my old self, it was brilliant. Since then, because it was rucking up underneath me I've moved it further down the bed where my calves are and I just don't think it's working its magic now. Debating with myself whether it did work a little bit or if I believed it was going to work so it did (but I didn't think it was going to work so I didn't), or if it was just a coincidence or whether I need to move it back up the bed and have it inevitably scrunched up beneath me and try again with it. Or just admit to myself I got ripped off.
Having written all of the above, and re-reading it I've decided the answer is probably just get in touch with the GP and ask for better pain management and stay away from Insta adverts 😆