Thread #5 for those living with incurable cancer, supporting each other and remembering the lovely friends we've lost along the way

[SewingBees]

New thread, an open invite to anyone living with Stage 4 cancer to share your worries and joys and just generally chit chat about whatever you're going through today x

At least your family are coming to see you. My brother occasionally tells me “ keep going sis, like I’m some fucking Duracell battery rabbit which runs flat every so often!

Went to reflexology today. Met an old colleague. She’s had stage 3 BC. Tons of chemo, immunotherapy, radio, surgery. It’s got rid of the tumour. Whilst I was happy, this is not my reality.

Mouth very sore. Had IV fluids yesterday and told them again. I’ve now got gengigel to try.

Coffee with school chums tomorrow and might bake a cake. Going down to Bath in 2 weeks to collect daughters stuff from uni house. Will make a weekend of it and even try to eat pizza!

xxxxx

@Florsilvestredelcampo yes, I get that sinking feeling. Hopefully Whatever is comfortable, no matter where she is. The virtual love is vital - no one else irl gets the frustrations of this shit show & making the best of it.

@Enigma53 I haven't ventured into AIBU for...well...years.

@EachandEveryone picture that Glasto goal! Although burger van food may not be better 🤣

Are you in over the weekend?

We're home, apart from a Primark trip with dd2 <yay!>. Manchester for an Inhaler gig Mon/Tues though...357 pit tickets left for Halloween (Inhalerween) at the Royal Albert Hall...couldn't miss out on those 🤔.

Yes I’m in all weekend you could’ve used my flat if you are down here

We've booked a hotel - can cancel up to 24 hours before the date. Fingers and toes crossed dd manages to secure tickets rather than need to do that though 🤞

Inhalerween is go! 🎃 It would appear the dress code is Halloween costume/costume of some sort 🙄. Mad scientist maybe with my fuzzy hair 🤔

Well...I bought a new bra today for the princely sum of £9, with pants. In the size the boob lady measured & suggested.

It is way too big. For non wonky boob as well as wonky 🙄. Even with the little chicken fillet thing from the bra lady (cannot remember what she called it!). I suspect an AA would also be too big for both.

& where tf sells nice, cheap, bras in that size, to try and see!? Grown up, pretty or lacy affairs, not kids styles. Ffs.

Dd2's happy...she got a pretty bra out of my booby adventures. I got a 3 pack of pretty pants that don't now match any of my bras <BIG SIGH>.

Just to let you all know, our lovely @Whatevershallidowithmylife passed away on May 3rd ☹️

@Enigma53 I am so sorry. How did you find out? I hope it was peaceful. What a crap time this is
I am enjoying my trip to London - but keep sadly thinking it will be my last. And also picturing DH meeting with friends without me.
xx

@RedRosesPinkLilies well you know me, I’m a worrier when it comes to our group. I had to find out, so messaged her lovely husband.

You just keep getting out and about, don’t think too far ahead. We all have to just keep on going xxx

Eva (@Whatevershallidowithmylife) was very poorly, more than she let on to us. She was at peace at the end. God it’s sad xx

That's hard to hear. So sad.

It is sad I feel for her family.

im being transferred to rehab today has anyone ever been? Im hoping they don’t wake us up at 5an like this lot.

Oh, what sad news to wake up to. I'm glad Whatever was at peace at the end.

@Enigma53 thank you for letting us know, and being the group worrier 💐

So sorry to hear about @Whatevershallidowithmylife.
I was worried she had passed away when she stopped posting.

Thinking of all her family and friends.

I've been taking a little break from the group.
I've been enjoying a few days out but can't help feel guilty about it when you know others in here are going through really tough times.

I don't have much to update really.
I was hoping to get my scan results last Monday but they weren't there. I was told it would be at least another couple of weeks.
Really difficult, as I've mentioned before, the pressure in my stomach has caused me a lot of anxiety.
Being able to get out and about has been a welcome distraction.
However, those couple of days out have really taken it out of me, to a point I've felt unwell afterwards. I'm still grateful though.
I will be spending this coming week doing nothing.
It's my week off chemo and I usually like to do something but I need to listen to my body and my body is screaming rest.

@Enigma53 thank you for letting us know about our lovely Whatever.
I'm glad for her and her family that the end was peaceful.

Love to all xxx

@GoldenDog1 you have you enjoy what you can. If we can do things we should. It’s usually overshadowed, at least a little, by our situation
Enjoy resting.

I too am sad about @Whatevershallidowithmylife and grateful to @Enigma53 for chasing it up. What a life we have.

Agree with @RedRosesPinkLilies
@GoldenDog1 feel no guilt at all. If you feel like doing stuff, do it. It’s important for our bodies and minds, to not be entirely consumed my cancer. Enjoy.
your rest time xx

Im off to Morrisons shortl. Will make a chicken pie for tea, maybe a banana loaf. Read yesterdays paper, sort my rabbits room, washing, tidying etc.

Tomorrow is a trip to B&Q! The house needs sprucing up somewhat!

Really want to go to London. I’ve developed an obsession with living there and think how wonderful it must be to have all that life on your doorstep. Ah well, one can dream! 😆

I haven't been posting here much, but the news about @Whatevershallidowithmylife is desperately sad. I hope she was comfortable in her last days, and am sending love to her family.

Not much new here. Scan results this week. Stable, which is a blessing. I got a few more details on the remaining tumour in my skull. It's about 1.5 cm long and hanging out in the auditory meatus, so if it starts to grow, I'll lose balance and hearing as the first warning sign. There's a complicated surgical approach to that area that would perhaps be an option if we need to get to it, but very risky, so we will only do more treatment if/when it changes.

Oh god, scan on Thursday 😱😳😱😳

Now I have some bloody discharge. I’ve had a hysterectomy so that’s not a good sign. I feel a call to hotline coming on if it worsens ☹️ My god, it just never ever ends 😢

@GoldenDog1 Definitely listen to your body. I spent yesterday on the sofa in my pyjamas watching TV and so far today's not looking any different. Tomorrow all I have planned is a trip to John Lewis personal shopper to find an outfit for a work awards ceremony in a few weeks time. I've no idea what they'll find for me, I've put on a lot of weight and am a funny shape now, but I intend for them to do all the running round.

Rest is important, as is living our lives and doing as much as we can when we feel up to it.

Love to all xx

Of course Im still stuck on the ward as pharmacy isnt ready. I wish theyd just tell the truth which is that realistically, I wont be going until Tuesday after the bank holiday. They made such a fuss about me getting ready. The surgeon on the round this morning said, my advice to you is to get the hell out of here and back on your cancer treatment. The first time a surgeon has acknowledged its the cancer thats causing all of this.

@EachandEveryone is your wound healed now? Will they let you go Tuesday?

What a ball ache @Enigma53 . How is it now?

@SewingBees @GoldenDog1 I've had a very slow day today too - just been & had an everything shower after painting peg people all day. Two sets finished & one base coloured, as well as packing for tomorrow and several loads of washing. Sounds more taxing than it actually has been - I've been sat down most of the day & am just prepping a very easy tea (with dd1's help when she arrives downstairs). Will continue this later on with crochet and snacks in bed before an early night 💤.

@EachandEveryone it's really frustrating isn't it! Last time I was in...I was there til shift change & this one nurse was like "you're meant to be gone...let me sort it all & get you out of here. They'll have to suck up taxi fare if they don't hurry tf up!". Shame lots don't see that, actually, so many people would probably benefit from not being on a ward.

Any nice plans for tomorrow, anyone? I'm off to Manchester with the girls for a gig. Just practising the lyrics now with a wine...in case they need me on stage, obvs 🤣. Unfortunately, the forecast is for a rainy afternoon 🙄.

My wound from my by pass? It’s dry so needs weekly dressing. I’m going to physio rehab because I can barely use my leg the pain is so bad. They have put a colostomy bag on that groin hole. That’s the one I’m worried about as nothing seems to be draining into it as I’m lied down most of the time I think I need to get to rehab and get some movement going. Im
dreadihg it but am determined. I will be at Glastonbury in five weeks!!

the weather looks fabulous I hope you are all having a lovely weekend xx

The forecast's dreadful for Manchester from 1pm tomorrow...just as we get there. I've been weighing up coat/jacket options but don't really have anything suitable or not too heavy for this time of year 🙄. Suppose if it is awful, we can nip to the Primark five mins from the hotel and see what they have 🤔