Thread #5 for those living with incurable cancer, supporting each other and remembering the lovely friends we've lost along the way

[SewingBees]

New thread, an open invite to anyone living with Stage 4 cancer to share your worries and joys and just generally chit chat about whatever you're going through today x

Oh and there is NO god. No no no 🤮🤬😢

No bowel movement? You must be backed up by now?? 😳

@Florsilvestredelcampo so pleased for you receiving such positive news. Enjoy the champagne 🥂

My day has been a day of two halves really.
This morning I got up, got dressed but wasn't feeling 100%.
I then had awful discomfort in my stomach and found myself tearing my clothes off because I couldn't stand my bra ( a very soft non wired one) or my waistband touching my stomach.
I ran myself a warm bath to try and get some relief and it did help.
I then had a long nap.
This evening I felt better so when my son invited me for a BBQ I jumped at the chance as I've not had one for a long time.
I went in some shorts that are too big for me and a baggy top as I still couldn't wear a bra.
I really enjoyed the BBQ.
However I started to feel off again so came home, put my PJ's on and came to bed.

Hopefully this pressure in my stomach will ease off by tomorrow.

I’m not backed up I’m not eating much. I can’t weight bear on my left leg so I’m dreading going to the loo anyway.

im so hot and itchy. Hopefully I’ll sleep after the 10pm drugs

@EachandEveryone how are you? Drugged up on the ket? Does it work?

I like the ket but I wish they’d give me int and leave me alone in my own little trance 😀 I also have to beg for it which part of PRN two hourly don’t the nurses understand? I keep telling them if I don’t get on top of this pain I won’t beable to weight bear and walk. I’m determined to go to Glastonbury!

You’ve got determination, I’ll give you that! Are the family still down?

Bed hopping here. Very tired and just
“ meh” My mum is now looking at The Marsdon for my treatment. I guess a second opinion won’t hurt? Only problem is, I’m NW based and London is London. Mmmmm… Will wait for the next disastrous set of scan results in June! 🙈🙈

No theyve gone back now sadly. I think they will be back the week after next.

@Enigma53 are you feeling any better? were you being sick on Saturday evening?I hope that's settled for you on top of everything else you're experiencing it seems particularly cruel.
@EachandEveryone I hope they are keeping on top of the pain control to enable you to weight bear and reach your goal of Glastonbury
Thank you for all the good wishes after my scan it has made me feel a lot lighter and I'm going to venture into Bristol today for a solo shopping trip before chemo.
Love to all on this lovely day x

@Florsilvestredelcampo have a lovely shopping trip. My mum is from Portishead and my auntie and cousin live in Pill. I love the Bristol shops. Do you visit Bath often? DD is at university down there.

I was sick until Sunday ☹️
Yesterday the diarrhoea started and chained to the toilet.
I’m so sad. This nasty aggressive beastly cancer is ravaging me and it’s not fair.

Enjoy the lovely weather everyone and hope you are all doing okay. Particularly @EachandEveryone our “ Glastonbury gal” @Whatevershallidowithmylifeso hoping you are alright?

xxx🌞☀️🌞☀️

I live about 10 mins down the coast from Portishead. I used to live in Bath I loved it but I haven't been to Bath for quite a long time x

How lovely.
We also used to go to Weston super-mare as kids.

And so the cycle of shit continues 🙄🙄🙈

Well I had two poos today so am delighted. The pain in my leg is still unbearable but they are talking about sending me to rehab the week after next. I literally don’t know what to do about the stairs to my flat.

Fuck, my mouth is bleeding now! 😡
No more treatment, that’s it. Nature can take action ☹️

Oh @Enigma53 you are having to cope with so much I'm sending love .

What care do you have @Enigma53 . Is hard to say - but are the palliative services involved? They’re meant to be helpful

Looks like the think my chemo is no longer working as it was. CT scan is being brought forward.

I also think I might have a UTI, beautiful hot sunny weather, and me not drinking enough. I guess I’m going to have to own up to the chemo nurses tomorrow. Blast

My treatment is on hold due to an open wound on my leg my oncologist thinks we have to wait for that to heal and immunotherapy can interfere with that.

my mates want me to hire a scooter for for Glastonbury £450!!!!

Anyone heard from @Whatevershallidowithmylife?

@Enigma53 no, no replies to tags here for quite a while. Quite concerned.

@lucysmamYep same. Nothing ☹️

She hasn't posted on fb for a long time either

I've been watching the call outs for@Whatevershallidowithmylife with a heavy heart .I take some comfort in knowing how much strength and virtual love I get from this thread . I think that we're all there for each other through this cancer shit show is something truly amazing.

On a different note there is a classic thread on aibu people are arguing if it is worse to be evacuated from hospital mid c.s or mid heart surgery. Not a situation where one things worse than the other! But it does prove that people can start an argument about anything on aibu

@Florsilvestredelcampo AIBU winds me up at times. The absolute arse end crap that people post! Grghhh

They’ve put a drain back in the original hole for the lymphatic fluid even though I’ve told them it won’t dry up until the cancer shrinks.

the ward is boiling and the food is rubbish. I honestly can’t see a way out of this shit show. I’m just very tearful today. I have friends and family coming down next Wednesday so that will be nice.

what are your plans for the BH?