Thread #5 for those living with incurable cancer, supporting each other and remembering the lovely friends we've lost along the way

[SewingBees]

New thread, an open invite to anyone living with Stage 4 cancer to share your worries and joys and just generally chit chat about whatever you're going through today x

Fuck me this virus is awful. Loads of colleagues off with it. I have an apt at the chemo suite tomorrow & scan results apt Thursday...not one single person wants to share this shit...wonder if I have to have bloods done (I know the answer), and have to go in person on Thurs (know the answer to that too).

@Enigma52 hopefully all is well & it's doing nothing! 🤞

@EachandEveryone I've spent some time re-organising my chest of drawers today - after a nap - always feels much better after a tidy.

I have so much jewellery, I need some decent storage for it - none of it's expensive really, there's just loads of it!

I feel my niece has chucked away my “best gold” when she cleaned uP for me which I’m abit gutted about. I’d stopped wearing it as I couldn’t do the clasp anymore. I’m debating whether to buy it again! I’m absolutely rubbish at looking after jewellery Inhave to admit.

Sending love today @Enigma53

@Florsilvestredelcampo Thankyou lovely. How are you getting on?

@Enigma53 nope - spoke to one sister who says why bother and upsetting myself with them likely finding more. The other says go for the tests and hope they can do something to stop the bleeding. Ah feel I don’t know. Been thinking about you all morning, god i hope it goes well. Don’t get me started on the might be lot - bloody stress me out - they have no idea do they 🤷🏼‍♀️

@lucysmam I did all my drawers a few weeks ago. Mahoosive clear out and all new bought - bras, socks and pants- well needed!!

The last two days have been difficult. DH and DS gone away for a week ,combine that with chemo exhaustion and I have spent the last 2 days in bed. Today I got out of bed had my toenails painted and then had a breakfast in a local cafe in a attempt at normality, I may go back to bed later!

Ooh @Whatevershallidowithmylife that's a nice idea! I did treat myself to some spring coloured normal socks the other week instead of my usual massive thick ones...maybe I need new undies too 🤔

I usually treat myself to these https://www.boody.co.uk/collections/womens can’t fault them. I’m feeling better today so I’m off to get my nails done trying not to think about tomorrow

Just my bloody luck I go all the way there and they said I didn’t firm up my appointment! No I did make the appointment and when they asked me if I wanted a last minute cancellation yesterday I said I was waiting for my nurse to come and didn’t know when that would be. They took it upon themselves to cancel the original appointment for some reason

Chemo not working ☹️ Have gone into despair mode.

@Florsilvestredelcampohope you can get some rest and you enjoyed your cafe breakfast. I’ve just eaten an Indian ( despite my sore mouth!!) 🙈

Aw @Enigma52 so sorry to see your update 😥. What else can you try?

Oh fucking hell I’m so sorry. Go all out on the Indian. And wine / tipple of choice x did they give you another option?

I’m so sorry @Enigma53 . I hope there’s another option. I hope you find the strength to cope. Hard to say anything useful. Xxx

@enigma53 oh no, I'm so sorry. Did they mention trying immunotherapy next? I'm so gutted for you x

Im so sorry to hear that and I hope they have some options for you x

Thanks all. It feels like I’ve just been diagnosed all over again. The full scan report wasn’t in, so I don’t even know if it’s spread further. All consultant said was further growth, doxorubicin not working, come back in a week when we should have a plan! I feel it’s aggressive and fast growing like weed and time isn’t on my side ☹️

@Whatevershallidowithmylife I can see both of your sisters point re: your bleeding. I think if it were me, I’d want an MRI to begin with. Then make a decision from there. Is it slowing down at all?

@Enigma53 nah it’s just holding steady.

At least they sound like they’re going to have some sort of plan? You’ll be up and down till you know and there’s not a lot you can do to change that. We’re all here for you whether you want to rant or cry - one of us will be doing the same my friend.

@Whatevershallidowithmylife❤️🤝 Ive got your hand x

Is anyone around? I’m sad. I can’t leave the children, I just can’t. Why is this even happening??!?? 😢

I'm here x

@Florsilvestredelcampo how are you? X

Awake, with some of the same thoughts as you

I’m around