Still the storm

[Willowkins]

Continuing the support thread - mostly for the partners of people living with terminal cancer - www.mumsnet.com/Talk/life_limiting_illness/3266385-The-calm-before-the-storm?pg=10

I'm here too Spoon with hugs from across the planet

Thank you all!
Just talked to DH. He's more comfortable. But didn't know/understand why he was in the hospital. Grateful for a good 15 minutes of clarity and chatting before he fell asleep again.

I'm so sorry Spoon, I'm here listening and caring too. x

DH has improved on steroids and it looks like he can come home again in a few days.
His test results are bad though and all further treatment is off the table.
But he's improved so the doctor now thinks he has weeks left rather than days.
I really hate covid. Hospital is still on a no visitors policy so I can't be with him.
Hugs to all

I'm so sorry @spoon27 , that must be incredibly hard. I hope he can come home to you very soon.

Thanks
Im on my own in the house for the first time since DH went back into hospital. I didn't think it would feel this different with the kids not here rather than just asleep
Going to put some music on and clean. I know it will help with everything to have a clean house (and we have a rental inspection, awesome timing)

@Spoon27 I completely get the cleaning thing - it somehow helps to 'still the storm' in my head and at the same time feels like you are actually doing something positive. You will definitely feel the benefit of a clean and tidy house when your DH comes home as you'll be able to spend your time together, not worrying about the mess.

I'm also a firm believer of tidy house, tidy mind. It really makes a difference to my state of mind.

Keep posting here if it helps. I'm thinking of you. x

Hey Spoon27 nothing like a clean house - always makes me feel better when I can see the floor.

Thank you all. It's great knowing you are all here.
DH is getting increasingly delirious. Today in particular has been really hard. The doctors have made the call that he cannot make his own decisions and advised that he be transferred to the palliative ward rather than coming home now.
His parents and sister and my mother arrived today, but we still can't visit until he is moved to palliative. I fear they may have missed seeing him alert and as himself.

Gah and now he is allowed a visitor, but my son had a covid test this morning for a sore throat so none of us can go until that comes back. And DH's family were told they need covid tests first as they came from interstate. So still waiting to see him!

Also Fark, as I suspected he hadn't told work the seriousness of his condition and he'd been responding to work messages until Friday. I just had to tell them and ask them not to send him work questions in case he responds with a story about time being determined by the placement of licorice allsorts or stealth bacon gifting ninjas.

I'm so sorry he hasn't made it home - and all the consequences for you and the family that comes with that. I hope all Covid tests are clear so you can be with him soon.

Thanks, all the covid tests came back negative and we were able to see him today. So good.

Oh I am glad about that @Spoon27 xxx

@Spoon27 glad you all get to see him xx

I'm alternating between tears and fury.

Just had a phone call from my solicitor today - the expert report states that Steve would have lived if they had actioned it when it was first noted 😞 it would have been curative surgery. I get a copy of the report tomorrow but it names the doctors and lists three occasions when it was there and should have been followed up and actioned.

Oh @notapizzaeater. The sheer rage you must be feeling. The utter despairing unfairness of it. I’m so sorry. Is there any action you want to take?

@Frikonastick I'm waiting to get the report and read it this weekend and decide 😭

I'm so sorry to hear this. It's a bitter blow and your mind must be a whirl. We're here for you when you decide what to do next.

Oh notapizza, I'm so sorry to hear this.

My DH died this morning. I'd spent the night with him but gone home to check on the kids and get a couple of hours sleep. His older sister managed to see him, though he wasn't responsive since I left this morning. He died with his mother and sister before I got back. Soo many thoughts and emotions but no words for them.
Hugs to all

Oh dear @spoon27 I am so, so sorry. My heart hurts for you while yours must be breaking. There's nothing I can say to help but please know we are thinking of you. x

@Spoon27 I am so very sorry for your loss, I hope you have people with you and are getting the support and comfort you can xxx sending all the strength xxx

@Spoon27 please take time to grieve and take care of of yourself. ((Hugs)) x

Spoon I'm so sorry to hear this