Still the storm

[Willowkins]

Continuing the support thread - mostly for the partners of people living with terminal cancer - www.mumsnet.com/Talk/life_limiting_illness/3266385-The-calm-before-the-storm?pg=10

@TooOldforBouncyCastles sounds really hard ((hugs)) xx

Dh finally had his chemo yesterday!

@TooOldforBouncyCastles that is really hard, so sorry you are going through this 💐

@notapizzaeater I hope dh has his pain under control

Palliative have added a 'diazepam' type med to his box of tricks until he has the ct and we know the plan 😢

@TooOldforBouncyCastles hope it's better today

@loubieloo4 great that he's managed to have the treatment

@Frikonastick hope alls well

How's everyone else doing ? I can't wait for the jab, will def be getting it, we're missing so much

@iwantavuvezela have you got any joy from the scammer ?

@notapizzaeater I could do with some diazepam to help chill me out a bit!

I have red wine to help me chill out.
Palliative team discussed move to hospice but I don’t think we’re there yet. Assessing her tomorrow but I think they will tweak,reassure and leave

@TooOldforBouncyCastles hospice are really good at getting pain / symptoms under control and getting them back out.

@loubieloo4 I know, I think caregivers should be prescribed meds !

@notapizzaeater the “healer” emailed me last week to say she would process the refund from next week! My thinking is that she has spent the money and is waiting on some to come in .... I am still not sure if she is returning the full amount or what her % of deposit is that she may keep. I think I will just wait to see what she refunds and then see how to progress. She has now had £6500 of my DHs money for 2 months !

@loubieloo4 I agree - I could do with some meds myself!

@TooOldforBouncyCastles

Hoping thy can get pain under control today

Hospice at home organised and she will be kept at home for as long as. They wonder if the drowsiness is due to anti sickness med as it coincided with that being started. It’s being stopped and the hope is she perks up in next couple of days. She only had half a tumbler of fluids today. No food for several days.

I can’t see her perking up.

I know this going to sound trivial but my dog is unwell. He’s off to the vet on Monday and I’m frightened they will suggest putting him to sleep. They did earlier this year but we asked for a change in meds and he’s been better but deteriorating. In May when they suggested it I said I couldn’t bear it because my mum was dying and I would not be allowed to stay with him. I feel the same now. It’s too much.

@iwantavuvezela it’s horrifying to think of chancers taking money of seriously ill people. I hope she does the decent thing

@TooOldforBouncyCastles it's shit timing, we lost our dog this year - horrific timing (not that any would have been good) we've got a new puppy now who we all love but It's been really hard work training and sorting as DH just can't do anything. Hope your sister is comfortable and rallies. Xx

@TooOldforBouncyCastles I lost my furbaby a few weeks after dh had been diagnosed, sent me other the edge. It's been over a year and I still get very sad and tearful at times 💔

Well apparently this morning she was awake and drank 600mls so huge improvement. Still not eating but awake is good!

@TooOldforBouncyCastles how's your sister today ?

@loubieloo4 how's DH been with the chemo ?

My DH a bit 'wobbly' today and been complaining about a constant dull pain in his thigh bone for last couple of days, ct can't come soon enough.

She is alert and drinking. Not eating and not leaving bed so obviously not well but not as dire as earlier this week. What a difference a little nausea patch makes!

@notapizzaeaterits horrible how every single pain leads down the very very anxious route

Hi... I have read the thread as my beloved dad has a huge lungvtimour and we are just awaiting test results and plan. I want to be able to support my parents as much as possible. I’m so sorry for what you are all going through.
@iwantavuvezela I really hope you get a as refund, and absolutely fight it if not, make it very public and so that can no longer practice. I have friends who do healing work s part of complementary therapies and they all offer totally free treatments to terminally ill people, with the intention of enhancing their time and not ‘curing’. The fact this woman took money, and this much, makes me so angry and sad!

@LavenderBee sorry to hear your news. It’s such crap timing. There’s never a good time but right now is the worst of times

Hope you're all having as good as weekend as you can. DH had brain MRI on Friday and due CT tomorrow on chest / abdomen. This is the one I'm worried about ! He's got increasing all the time pain on his left side (where he had bone mets zapped 6 months ago) and in his lower back. I had a phone consultation with pallative whilst he was in MRI and we've juggled his meds around to try and reduce the pain. He went to bed yesterday at 10.30 and I woke him up at 3pm. 😭

It's just shit - lots and lots of shit ! Hope we get answers soon 😱

@notapizzaeater fingers crossed for better news than you are expecting. My dh also sleeps a lot some days. Last week he did over 24hrs ☹️ he now has morphine (oral) for the pain. The GCSF injection that was traumatic to give! Even as a nurse, bloody DH's needle phobia, he fainted on me 🙈 thankfully he was lay down on his recliner chair so I just carried on 🤣 however it has worked wonders his neutrophils are 5.8 today. Chemo is to carry on every two weeks, even over Christmas/new year.

I did break the law last week though! Took my mum Christmas shopping that was in a tier 2 area (we are tier 3) we even managed a coffee and some cake in a cafe! Fuck it it was worth it and made me feel more human, we made sure to keep our masks on and washed our hands eleventy million times. I bloody well needed it.

How is everyone else....

@loubieloo4 DS 'does' airsoft so basically I drop him off in a forest and he runs round shooting people for 6 hours - also in tier 2 (we tier 3). It's too far to nip home so I had an amazing time too, breakfast, coffee, shops etc. He's there again this Sunday, I'm already getting excited, feels so good to be in the shops, actually seeing people !

We've had the ct today, am going to start chasing Wednesday for results, don't want Xmas to stop anything.

Rubbish couple of days - was on the phone last night at 11 to the pallative line - could not get his pain under control, he was crying, chucked a load of extra meds in him and he slept. We've the anticipatory meds (end of life stuff) here and they where checking we'd got them - if the pain wasn't under control in 30 mins we were instructed to phone district nurse for them to administer the pain med bit of them. Luckily he fell asleep. I've kept on top of his meds today and pain is a 7/8. We've a pallative call on the morning.

I just keep thinking there's never a good time to die but there's some really bad times 😭😭😱

Hoping pallative tomorrow will be able to see ct / mri and let us know anything.

@notapizzaeater: I'm so sorry. It is awful to feel so helpless. I really hope that some of the support people step in to help you. The injectable drugs for the district nurse to administer don't need to wait until end of life - if he needs pain relief I don't think you should hesitate to call them out. In the last weeks my DH was at home before he went into the hospice I called the district nurse and paramedics out several times to administer the injectables and they came very quickly.

Thinking of you.

@notapizzaeater. So sorry to read this. This is just horrible and unbearable

My sister is sleeping a lot and wakes just long enough to drink. That’s about it. She doesn’t seem in pain which is a blessing. I have no idea how long we have. Christmas looming just adds to the tension. It’s inevitable we are all thinking how long. This time last year in similar state of not eating my mum lasted another 5 months but she was in distress all that time. At least we aren’t in that situation.

DH is being admitted to hospice tomorrow morning - they can't guarantee he will be out fir Xmas but hope to get his pain under control. It's shit ! Like really shit .......