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DH's cancer progression - DH has died [title edited at request of OP]

726 replies

Chasingsquirrels · 07/02/2017 20:44

DH was diagnosed with cancer of the oesophagus with liver secondaries last sping.
He was HER2 positive and had initial chemo then continuing herceptin.
It was very rocky post initial diagnosis - his throat closed up completely and he was hospitalised following a failed attempt to fit a feeding tube, was fed through a PICC line for a week and then they managed to fit a stent.
He coped well with the chemo and the results were quite positive with the liver nets reducing quite significantly and being held by the herceptin.
In the autumn he has a scan following a period of sickness and the main tumour had grown. He had a second stent fitted and then had radiotherapy.
He seemed to be recovering in January but then had a further period of sickness and another scan 10 days ago showed the liver mets have grown and tumour nodules in his lungs.
The consultant said 3-6 months at this stage, with the possibility of second line chemo which if it works could add a few months to that.
DH's general health has gone downhill rapidly the last few weeks. He is very tired, but unable to sleep for more than an hour at a time, has severe pain episodes and underlying general pain, plus tinnitus from the chemo. He has lost a lot of weight.

I've made the decision to take a leave of absence from work, and have been spending the last few days handing things over.
I feel so conflicted about it, he is my direct line manager and to a large extent I've been doing part of his job as well to enable him to keep working which he wanted to do. I'm utterly exhausted and just can't do it anymore.
He has also accepted that he has to stop now.
I don't want to just give up, but I feel I have to spend thus time with him.

I have no idea what my future holds.

OP posts:
Isadora2007 · 22/03/2017 16:22

What a wonderful place to go- in the arms of his beloved wife. Rest in peace John. Much love to you and your children- and his. Also his other family and friends as am sure he is a huge loss to them all. Holding you in my prayers. Flowers

bookbook · 22/03/2017 16:24

I also have seen this on the other thread.
Just wanted to say so sorry xxx

ThroughThickAndThin01 · 22/03/2017 16:25

So sorry OP, my thoughts are with you.

MrsGotobed · 22/03/2017 16:35

Chasing, I'm so sorry to hear about John.

I saw your post on the other thread too. Sending you love and strength Flowers

Badders123 · 22/03/2017 16:37

I'm so sorry 💐

Frazzle76 · 22/03/2017 16:39

Sending love and hugs. The next few weeks will be very hard and at some point you might well feel guilt over a hundred different things. Keep reminding yourself that you did absolutely everything you could and he was surrounded by love all the time. That's an incredible gift. Xxx

inlectorecumbit · 22/03/2017 16:39

Chasing l have followed this journey on this and your previous thread.

Bastard cancer !!!

Sending love and sympathy to you and your family from DH and me.
Flowers

ImperialBlether · 22/03/2017 16:44
Flowers
2017SoFarSoGood · 22/03/2017 16:58

Chasing so very, very sad for you today. So very glad that he died in your arms, feeling that special love that you shared until the last. It may have come to you both late, but it was surely meant to be, and it was.

Love and sympathy to you and your family Flowers

Chasingsquirrels · 22/03/2017 17:08

The undertaker has just been and taken his body away.
The undertaker is a client of ours, and John has known him for years. I don't actually suppose it makes any difference to how they'll deal with his body but I think I feel happier about it than an undertakers I've never met.
I phoned them and asked to speak to him or his mum (family business) but she was away and he was out. The receptionist started taking down the message all business like and as soon as I said his name (I didn't change my surname so they didn't recognise it from mine) her tone just changed completely and the undertaken rang me back as soon as she got a message to him.
He said one of their mutual friends, who has been popping in daily for the last few days), had been keeping him up to date so he'd obviously told the receptionist.

My boys are home, they've stayed with their dad the last couple of nights but popping in after school to touch base. They both said they wanted to see his body, and he has been in such discomfort the last few week that I think it was good for them to see his body just at rest.
My mum and dad are stating tonight.

OP posts:
Chasingsquirrels · 22/03/2017 17:11

When the undertakers first became our clients, before DH and I were together (I worked for him for years before we got together), we had a tour of the building and then the undertaker asked if we wanted to see the mortuary. John was very squeamish and didn't want to go near it.

OP posts:
iknowimcoming · 22/03/2017 17:15

Chasing - so sorry for your loss. Lovely that he will be taken care of by people that you know and trust. Those tiny details bring such comfort. Take care of you and hug those boys tight Flowers

FiveGoMadInDorset · 22/03/2017 17:17

I think it was good for your boys to see John at peace and i am hoping that him being looked after by people that you know will be some small amount of comfort for you

Namechanger2015 · 22/03/2017 17:35

So very sorry to hear your news.

BusterGonad · 22/03/2017 17:58

Oh Chasing, I'm so utterly sad and so sorry this has happened to you and John, you were with him at the end, he felt your love around him when he needed it most. I can't even begin to imagine how you must be feeling tonight. Take care of yourself. Xx

daisychain01 · 22/03/2017 18:29

Devastating news Squirrels
You gave John an amazing gift of your love over those years. He will have been so comforted having you close at the time of his passing.
Please take care and just take things moment by moment thats all you can do xx

Gasp0deTheW0nderD0g · 22/03/2017 18:32

I'm so very sorry for your loss. Thinking of you and your family.

Thanks
fanniboz · 22/03/2017 18:41

So sorry, there are no words. We're all here for you Flowers

Iloveantiques · 22/03/2017 18:50

I'm so sorry for your loss today.

Costacoffeeplease · 22/03/2017 18:56

Sorry to hear this, my sister in law died of oesophageal cancer 10 days ago, 3 months after diagnosis. It's a very cruel disease

CiderwithBuda · 22/03/2017 19:05

I am so sorry Chasing. Huge hugs to you at this sad time. X

MrsMozart · 22/03/2017 19:08

I am so sorry. May he rest in peace, and may you find peace and strength. Thinking of you all xxx

Blossomdeary · 22/03/2017 19:18

Thank goodness that he left this world with the comfort of his dear partner by him and surrounded in your love - I commend you for your bravery and strength and send you all my sympathy.Flowers

uncoolnn · 22/03/2017 19:25

Thinking of you and your family chasing Flowers

Chasingsquirrels · 22/03/2017 19:36

It's weird how Mumsnet is so anonymous (although if anyone knows me in RL you'd sure as hell recognise me from this thread) and it's all dh and dp and dcs. But when it come down to it I want to name him, and you all recognise that need and use his name for me.

OP posts: