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Life-limiting illness

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I think my mum is dying

69 replies

LazySusan11 · 10/01/2017 17:30

Even writing the title seems so surreal, she's been told she has amongst other issues ovarian cancer but has not been told how long she might have. She could have surgery but due to her other issues they aren't certain she would survive the major operation they have proposed or what exactly they will find should she be strong enough for surgery.

She's lost so much weight in the 5 weeks she was taken into hospital she looks frail and pale. She sleeps a lot has little appetite and no longer likes water which she has always loved to drink. She has had a few sips of ginger ale but that's it. She has a morphine patch and oramorph the dr says this is all 'normal' given her illness.

I don't know how long I have her, I don't know what to expect. The dr asked if she would like a McMillan nurse to see her but she said not yet.

I'm terrified of her being in pain or dying alone in a horrible way. Is there anywhere I can get any sort of information to help prepare myself? Thank you.

OP posts:
TheBitterBoy · 26/01/2017 12:35

I am glad she is in a place where she can have the right care. My mum had a morphine syringe driver in her last days and she was much more comfortable and pain free. Thinking of you.

Purplebluebird · 26/01/2017 15:57

Glad to hear she's got the right care for her now. Pain management is so important. Sending an unmumsnetty hug to you.

Sweepingchange · 26/01/2017 18:10

Thinking of you op and hope your mother is more comfortable now.

OrlandaFuriosa · 26/01/2017 22:11

Thinking if you.

Ask the hospital if they've got a leaflet on how to recognise the end and what to do next. We were given a brill one by the local hospice that had been produced by some NHS trust.

CoperCabana · 26/01/2017 22:25

You did the right thing for you and your mum. You will cope with anything and everything that happens. Try not to be too scared and try and say all the things that you want even if it feels like she isn't hearing them.

If someone had told me before, the the things I would have to do and cope with just before my mum passed, I would have said I can't do it and I can't cope. But I did do it. And you will and you are. Be kind to yourself and know you are doing everything that is right for you and your mum.

Take care.

TaggieRR · 26/01/2017 22:28

Hope your mum is more comfortable now.

mineofuselessinformation · 26/01/2017 22:32

Sorry, I know this is an intrusive question, but does she have a syringe driver in place?
We did this for my dad, and while he didn't really know what was happening in his final hours, it was peaceful and pain free for him.
Sending you strength. This is an awful thing to go through. SadFlowers

LazySusan11 · 29/01/2017 22:37

Mum is on an iv course of antibiotics seems it's a chest infection and not actually the cancer. She's really struggling to breathe and is now on a nebulizer. My nerves are shot, I can't sleep for worrying that we'll get the phone call. Obviously I want my mum to be well and with me forever but that's not possible and I swing between devastation and fear of the end and the worry of how much longer before there is some relief. I don't feel I'm coping at all Sad

OP posts:
OrlandaFuriosa · 29/01/2017 23:49

It's a dreadful rollercoaster wgerecthe only end is down. I'm sorry. The best thing to do is to ask the nurses and doctor how they see it, abdctry to get some rest for yourself.

OrlandaFuriosa · 29/01/2017 23:49

*Where the...

user1485903288 · 31/01/2017 23:32

This reply has been deleted

Message deleted by MNHQ. Here's a link to our Talk Guidelines.

QueenMortificado · 31/01/2017 23:33

Christ user, you really are a nasty trolly piece of work!

inaminutedarling · 03/02/2017 18:25

Lazy Susan your life is an exact mirror of mine and every description of your mum's condition matches my mums...the breathing, the getting weaker..unable to talk etc...they are even the same age! Your feelings are identical to mine so yes I guess we're normal? I don't know what your situation is now but after a rollercoaster 9 weeks my Mum finally died last week and it's completely surreal. I logged on to see if there was a thread about child bereavement (my daughter is 6 and I'm not sure she's coping very well) but your posts and your experience resonated so much that I just wanted to reach out to you. Hope you're doing ok FlowersFlowersFlowers

inaminutedarling · 03/02/2017 18:27

Also...although it's awful, in some ways it's an easier awful now than it was watching her suffer. Hope that makes sense

LazySusan11 · 03/02/2017 18:47

Hi @inaminutedarling I'm so very sorry for your pain and the feelings of loss for your mum. My mum died on Wednesday and I'm sure we're not feeling to dissimilar in the feelings of relief that's they are no longer suffering but the tsunami of deep sadness that they are no longer with us.

I hope you have some good support and if you want to talk please feel free to pm me. Gentle hugs to you Flowers

OP posts:
inaminutedarling · 03/02/2017 20:10

@LazySusan11 I would pm you but I have no idea how to!

OrlandaFuriosa · 04/02/2017 01:02

Both, I'm so sorry.

I lost my DM almost three years ago, under pretty similar circumstances. I feel for you.

Flowers
maddon · 05/02/2017 10:43

I'm so sorry for your losses inaminute and lazysusan. I hope the passing was peaceful and that you can get some rest and comfort in knowing that you did everything you could for your darling mums.

Inaminute you private message by clicking on 'Message Poster' in the right of the blue bar above the post.

inaminutedarling · 14/02/2017 13:03

Thank you Orlanda and Maddon for your kind words x

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