Onwards and Upwards: Staying stale in the teacup of life

[biscuitsandbandages]

This is my 3rd thread as I go from a shock diagnosis of leukaemia towards what will hopefully be a cure.

Life is shit but I am strong and there will be happy times again.

Thank you everyone for your ongoing suppport x

Sending you love and hugs. This sounds so tough. Just keep focussed on those lovely wee crumbs x

Biscuits, you are often in my thoughts.
I am so sorry things are so tough right now, sore mouth must be awful...

Hoorah for crumb cuddles and crumb drawings. You will get through this, you will get there.

Stay stale xx

Biscuits, you are often in my thoughts.
I am so sorry things are so tough right now, sore mouth must be awful...

Hoorah for crumb cuddles and crumb drawings. You will get through this, you will get there.

Stay stale xx

Apologies for double post, laptop having a bit of a moment...

Have been thinking of you too Biscuits-we're still in hospital after DS' transplant...Seven weeks today . He developed mucositis too and it looked so painful so my heart goes out to you. He also developed VOD so has been a long process - he was definitely the exception rather than the rule though. Most of the other kids got out between days 21+ and 28+...Hoping you will be feeling better very soon and those lovely cuddles helped, x

Oh brave! Souns like your little soldier has had everything thrown at him! Im so sorry you are both still in

Oh biscuits I am so sorry that you are still in so much pain. I hope it gets better very soon.

I'm very glad to hear that you got to enjoy some lovely crumb cuddles.

Keep on keeping on brave lady.

Brave I hope you and your son are able to get home soon.

Thinking of you biscuits and happy you got crumb cuddles

Hello Biscuits. Thinking of you today and willing you better. Hope throat and mouth feeling less sore.

I am sitting in a cafe in Auckland, hiding from the rain and checking in on you biscuits. Sending you from across the world. Kia kaha (stay strong).

Baby girl Is poorly again. Only HFM and she will be ok but the boys were nevwr ill this often sand i was there to divide the slack when they were ill and combined we took less thn 5 days off work for us or them in 4yers.

Biscuits- I really hope you pick up soon, and that your dd is quickly on the mend as well.

You've had a rough old time of it. From seeing how things have gone with my db, it does seem as though the landscape can change pretty quickly though. His leucocytes and neutrophils didn't start to rise until about day 9 post transplant, and then the next day dropped back to zero, but then increased rapidly and he's actually just gone home! This is two weeks post transplant! I believe his consultant said his blood count needed to be 20% of normal to go home, so obviously he's got a way to go yet and who knows what other barriers may pop up, but it seems reassuring to know that the body can turn things around so fast.

Thinking of you loads and hoping you turn your corner soon

So sorry to hear about smallest biscuit.

Think of you so often.

poor little crumb sending positive vibes to both of you

poor littlie crumb, thinking of you and family - hope your mouth is less sore x

Wow lines! That's amazing. I know they expect me to be here in 2weeks time at least because it was mentioned again today in the context of when to change some iv meds over to by mouth instead.

Mouth is slowly improving but throat and swallow still as bad. They started me on daily anti fungus treatment yesterday as I keep having temperatures and they arent sure why. Dont know if it will help or not. I know the higher dose is making me feel pretty bad.

hopefully the antifungal will knock the temps on the head and your mouth will continue to improve. having a sore throat and painful swallow is just miserable
I really feel for you. Clearly it's keeping you awake. I'm willing the antifungal to be the difference. We're all thinking of you.

I used to know a lovely old man who was a WW2 veteran and he had been through some tough times. He used to say 'sometimes the only way to get from A to B is to go via all the other letters of the alphabet. It makes everything a whole lot more difficult but the important thing is that you get to B in the end'

It sounds like your road to recovery is taking you the long way round the alphabet but you will get there in the end biscuits.

Sending positive healing thoughts to you and the littlest crumb

Hope today has been better for you biscuits. x

Biscuits haven't seen your thread before but wanted to wish you good health for the future and say I love the picture your children drew for you.

biscuits I'm wearing my witch hat tonight and wishing you a peaceful and restful night.

1st November! Another month down and edging ever-closer to the end of a dreadful and difficult year for you, biscuits (aside from the birth of your beautiful DD, of course; little miracles happen even in dark times!).

A new year is dawning. And faith is a bird that feels dawn breaking and sings while it is still dark.

Have faith, biscuits. Stay stale.

Stay stale biscuits xx

if winter comes can spring be far behind?