hello

[sparky12345]

oh theres no one here.
well-this is probebly a good thing but just in case anyone is hesitent about starting this off-
hello-im sparky-welcome and feel free to talk.

hello night have a glass of Collapso - welcome. Let me put on some more cheerful music on.........a bit of Paloma Faith? Sorry you found your way here iyswim but glad to see you. The Fear is a barsteward is it?

i mean, isn't it...pesky typing...

evening all, loving the new purple walls and lovely new recruits to the 'Crap Club' rock me and night sorry about your predicaments, hopefully this is a nice place to come for some unmumsnetty type hugs.

Perhaps we should have some kind of icebreaking games or something, blimey I sound like a Brown Owl

Hi to all newcomers and sorry you're here.

Have a day. Test results came back showing several new and unanticipated additional issues and I just feel so ill.

But I've got the curtains in my bag... they're orange with '70s style sunflowers on them. I'll put them up when I've finished my tea. Does anyone have anything chocolatey?

Hi, Breast, sounds like a bit of a bitch of a day. How are you doing?

Trying to crawl out of my boring little nook of self-pity. Fed up with all of this.

How are you?

Hello Rockmemum. I'm in exactly the same position - my DH has the same condiitions - is yours a haemophiliac as well?

In some ways the haemophilia thing makes it much easier (Chris Morris' 'good aids!') and in other ways it just adds on another life limiting illness. I agree completely with what you said about how it changes your relationship. I think in some ways it has made us very much stronger but there are still huge blips.

DH has responded well to treatment for HIV but not to the HepC. We're waiting to see what happens with the new treatments but there does seem to be an awful lot coming through.

The stigma is hard. This isn't my usual posting name as I'm at work and don't want people to associate it all. At least our families know - apart from the DCs - and are very supportive.

PM me if you want to chat.

Can I put the lava lamp on that table?
Well, at the mo I'm starving as dp just got in and is scrambling an egg (please resist urge to go 'PHWOAR he can scramble my eggs any time')
In general, ok.
Sorry to hear everyone's a bit down.

Can I join in too? I dont post much but my dh has MS, diagnosed 2 yrs now. Health wise he is doing alright now but its been a rough 2 years. Good few hospitalisations, relapses, meningitis etc, hopefully he will get a good run of health now.
I am finding things tough at the moment emotionally. When he was ill it was easier in a way, I had no time to think. Now he is back on his feet I find myself really resenting the MS and sometimes resenting dh himself for having it, which I know is totally unfair, its not his fault. Does anyone else ever feel like that, I feel so guilty for even saying it.

Better to say it than let it fester. It sounds quite understandable to me - you've had your life turned upside down too. You've every reason to feel anger etc. I'm absolutely furious I'm ill although everyone says you accept it eventually. Ha! Don't feel guilty. I'd talk to DH, he's probably already felt angry on your behalf. I talked with my DH and together we agreed we'd get out there and grab as much life now, for us and the DSs. It's still v hard and wr are not perfect but understanding each other a bit more has definitely helped. Good luck.

Elah..yes, I often feel resentful. I think it's part and parcel. And yes, I do feel guilty about that. In the very long time I've been with him, I've realised that it's important for me to have a life too, away from 'the illness'. That's not to say I try not to be caring, worried, concerned..I just know that I can't be good at caring if I am feeling resentful about it.

Sonic...not many of us about. No he's not a Haemophiliac .ha-ha 'bad aids' I guess..hence the stigma! Of COURSE I've namechanged!

bonsoir everyone, I have a bottle of bitter for tonight. Get me.

Being so emotional is so bloody exhausting innit

aww...thanks Vogon..I like a bitter every now and then.

Just have to go with that emotion I think....

Bitter was nice but not quite enough to get me pissed, so I have wine tonight!
My mum has moved into the hospice to be with my dad in the final days. She has had an aromatherapy massage, the nurses have just run her a jacuzzi - (with speakers in!), poured her some whiskey and given her a hairdryer and some tongs.
How amazing is that???!!!!

Sadly I have to graduate to the bereavement boards, I'll pop back and see how you're all doing xx

So sorry vogon. Take care.

i run off cos i dont want to face things and im frightened that if i face things i will lose my fight.
i left mn a little while ago but i come back and took a look here.
Vogon..i saw youre post and looked for you on bereavement but couldnt find you.
i dont know if you will ever see this but......(((((((big tight hug)))))-im so sorry.
sparky xxx

So sorry Vogon, my sympathies.

So I'm back on a different chemo, with the Marsden. With one timetabled five days before Christmas... Perfect timing!