hello

[sparky12345]

oh theres no one here.
well-this is probebly a good thing but just in case anyone is hesitent about starting this off-
hello-im sparky-welcome and feel free to talk.

Mine is not as serious (Fibromyalgia and Osteoarthritis) but it is life long and debilitating. Can I join?

Um, hi. Usually on this sort of thread refreshments are offered. I brought some wine with a very special form of alcohol which won't interact with anyone's medication. And some Shloer for Riven, who I think I remember is a Muslim and I'm assuming thus doesn't drink.

It's all gone quiet! Where'did you all go? I've got MS too. it's very fashionable just now which is nice

Is it fashionable now , alice l [ grin] Splendid , hadn't noticed but like to hear about trends like this .

MSer here too , over 20 years now , affects me all the time but still pretty mobile .

Very sorry to see the posters in a more serious position / with dc affected .

Fashionable illnesses are good in that they attract plenty of research funding. But rare and unusual ones have their advantage too in that you become an interesting case and doctors will always remember all your details...

Ah yes , thanks BDAFL . Hmm , glad to hear there are some compensations for those with the really rare conditions !

Always was an indie chick!!

Breast - I had no idea MS attracted any practical interest of a kind that might involve money.

Don't mind if I do, Breat. Make mine a double.

Hello, please can I come in? Had most of a bottle of wine and worked up the courage. Your stories have touched me so much
My magical multi-talented dad has terminal cancer , finding it so hard to cope. I didn't know this thread was here until today, was working out how to find the words to post a new thread on bereavement.

look forward to chatting some more, praps when I am not so pished!

Hope you didn't have too much of a headache this morning! Welcome in. Sit down and get comfy.

evening all, I seem to be immune to hangovers stitch which is a good thing at the mo!
What sort of a day have you all had? I woke up to a condolence card from my hateful MIL to say sorry your dad is dead. He's not you silly cow! We have a couple of weeks left we hope! I didn't know whether to laugh or cry. My mum got one too and was so upset.

Reading your stories is so humbling. There is so much to say and discuss. Shall we start some new threads for more specific things? I'll wander back and do one now

Certainly, this is a scary little nook of MN in which to be posting, and it took me the death of a fellow MNetter and a few glasses to find the courage to jump in.

Vogon I'm sorry about your dad. I'm sure people here will be full of support and advice.

perhaps we should make it a bit less scary, I have put up a vase of flowers, a selection of really caloriffic chocs and am just about to drag in some super duper reclining chairs so those in pain can get comfy. Oh and some nice cushions, with sparkles on.

Just setting out to see my dad for a couple of hours of hugs.

MIL from hell btw omg

hello everyone-welcome to all the newbies.
sorry i havent been around-i got a bit funny and scared and didnt want to be here as i was trying to run away from what i was feeling.
anyway-back again in a better frame of mind.
(((((((hugs Vogan)))))))

sparky

don't run away Justa! Despite what we are all going through, I reckon that this is developing into the loveliest haven on the interweb, none of those bitchy types dare come in!
Trying to carrying on and be normal while being totally consumed by these things is just so exhausting isn't it?
I am going away with dh and the kids and some friends today for a few days, feel immensly guilty as just want to be with mum and dad.

I'll be back in on Friday night for a glass of something, hoping to see some action in here!

Hi again Sparky... do you want to talk here about what you're feeling and what you're scared of?

Just painting the walls in here. I chose the slightly tasteless shade of purple because people usually paint rooms for sick people in nice pastels or pretty florals and I'm guessing we'd most of us here want something a bit less solemn. Shall I ask on Freecycle for some really bright curtains?

Alongside the comfy chairs I've set up some massage couches. I would really love an invigorating session of reflexology.

Hi everyone..I agree..it's a little scary to be here. I'm so sorry for what everyone is going through. It's my dh that has a life-limiting illness(es). He is HIV and HepC positive. He's actually pretty healthy right now, but I find that as it's a big 'secret' due to the stigma attached, it is hard sometimes as his wife as I can't really talk about it with many people.

It's also kind of a waiting game..he might get ill or he might not. So that's kind of why I don't want to intrude on this space when there are others that are really suffering.

But I might sit quietly in the corner and have a glass of wine if that's okay - i brought a pinot noir to share?

As bright as possible I say. It is nice here isn't it?

Hi rockme and welcome! Don't feel you need to be quiet... I'd love a glass later on. I'm sorry to hear about your DH. This uncertainty must be really stressful..

I'll have that glass of pinot noir now. Thanks.

I was supposed to get a crucial letter from the consultant ten days ago, and the delay is starting to wind me up.

I think we need some music in here. Any suggestions?

something upbeat...you feel like chilling or dancing? I'd say Earth Wind and Fire for dancing...a bit of marvin Gaye for chilling?

Can I add The Smiths? Cheery stuff

Hiya, I'm new on Mumsnet though I've browsed plenty before. I was recently diagnosed with cancer and it's been a bit of a shock. I'm really of hoping that it's not going to be life limiting and things are going well but I do understand "the fear". It's knocked me sideways to be honest .To find myself reduced to a quivering wreck was quite a shock as I'd have thought that I would have been one of the strong brave types. But really just wanted to say hi to everyone here and while I don't know exactly what you're feeling I have a bit of an idea.