Immune testing dr sheata or dr gorgy? Who is better ?

[ShareLove]

Which doctor is better ? I want to check immunes due to recurrent pregnancy losses any advice greatly appreaciated ! X

I don't think it's a case of who is better. I think it's their approach that you have to feel comfortable with and makes sense to you, plus being able to afford and commit to their treatments.
For me, Dr Gorgy feels a bit too radical and his treatments are very expensive - I'm doing ivf and I can't afford IVIG (and LIT feels quite extreme to me and not something I'm open to try).
I've had extensive testing with Dr Shehata and pretty sure we understand where our issues lie. I felt like my body was attacking my pregnancies as there was a pattern to my losses and my results with him show that, so I don't feel the need for further testing. Despite losing 2 pregnancies on a full immune protocol we are staying with Dr S, but I know some who have moved on from Shehata to Gorgy but not carried to full term yet.

@VenusStarr aww thanks for this info ! Really appreaciate it ! I am so stuck ok choosing , I have no idea , basically Iv lost 6 pregnancy’s at 5-6 weeks , and I don’t know who would better know what’s wrong with me as I don’t know what they both would do differently ?! Maybe I’ll see sheata after all ! X

@ShareLove i am in the exact same position as you, 6 losses in the past year. 3 chemical and 3 around the 6 week mark (but 2 were missed miscarriages that I needed surgery for at 10 weeks). I am leaning towards dr shehata but honestly I’m so confused! Did you make a decision?

@Ralowi hey , sorry about your losses it’s soo hard and frustrating ! I am with ivf clinic now and my consultant is willing to prescribe me predionsole steroids (which is all I wanted anyways ) without checking for immunes so I’m very happy with this , but if he didn’t I would have gone to sheata 😁

@ShareLove that’s great news and has saved you a small fortune! I’m not going down the ivf route (yet) although I would love that extra reassurance I don’t know if we need it. Fingers crossed for us. We haven’t actually decided whether to go for it yet but if we do it will be dr shehata I think

@Ralowi aww wishing you best of luck ! Yes I’m lucky I got steroid without testing as it saved me probably £1500 on testing with sheata . And I did a lot of reasearch on gorgy and sheata and I prefer sheata as it’s much easier as it’s only blood tests , no womb biopsy . So much easier to arrange . Don’t have to be specific day to go back in your monthly cycle . But I would have gone to sheata if I had to . I’m sure with our history it’s something to do with immunes xx

@ShareLove agreed but the sad part is I had never heard of it till I posted on here! Now I’ve listened to dr shehatas podcast and done a bit of research it all makes sense. It’s kind of infuriating it’s not even had a mention at the recurrent miscarriage clinic. Just get given progesterone and told to carry on. I’d have probably not had my last 3 miscarriages if I had found out sooner. Definitely wasn’t keen on the biopsy! Although I always have issues when having bloods that doesn’t make me anywhere near as squeamish x

@Ralowi argh ! I hate mumsnet ! If I message too long message the page refreshes and I lose my full message now I have to type again 😫
I wanted to say , it’s so unfair that we , the people who have infertility problems , are expected to have thousand of pound to have a baby as well as hurt and pain of losing babies ! As well as money worries just to have a baby . It’s so unfair ! If I didn’t have money for testing immunes tht would mean I would never have baby because nhs testing says all is ok ! Good job I have money to do testing ! But some people are not so lucky and don’t have money which is sad as it means they will never know the reason for losses. X

@Ralowi and the people who have no money and have immunes issues but no money to test for it , probably will never have a baby ! It’s sad that nhs don’t take part of immune testing ! I understand it’s still quite new to the system , which means nhs is not prepared to take part of it yet ! X

@Ralowi I have had 6 losses , 2 at 5 weeks and 4 at 6 weeks along , I never get past 6 weeks + x

@ShareLove ive had that problem too, it’s so annoying. Thought it was just me. Yes I’ve just said exact same to my husband, basically I think we should go for it because we’ve already been through so much that would all be for nothing if we didn’t. And because we can afford it whereas others sadly can’t. Having a child shouldn’t come down to money and I’m sure in years to come immune testing might be part of recurrent miscarriage testing. But also a generation back people like us had no answers and no children 😢

@Ralowi I’m very lucky as I am going to have hysteroscopy scan soon on nhs to check inside the womb with a camera ! I feel so happy to have it done to make sure there is nothing wrong inside the womb . Because to me , the most important thing is the womb , because it all starts with the womb , if the uterus is not in the right conditions (polyps, scarring ect) then no matter how many times you get pregnant , it won’t last ! So I can rule this important part of my testing out! I’m relieved to know if my womb is healthy or not , if it’s not , then at least I will know , or they can fix it a bit if needed , remove polyps ect if needed x

@Ralowi omg yes I didn’t think about that ! Let’s say like 100 years ago ? If someone had immune issues , they never got to have a baby 😱 because immunes testing for now existant.

Because immune testing was non existant I ment *

@ShareLove i agree, I take all the tests I am offered! They have offered me a hysteropalpingogram rather than hysteroscopy, not sure why. I have had a child so I know 4/5 years ago my uterus was fine, but I’ve had 2 surgical evacs and a c section since then. I don’t feel as though they will find anything but like you say it will be reassuring. I know a lot of people have scarring etc and still have healthy pregnancies so I just don’t feel that could have caused so many losses (6 since last year and 3 before my son). They do say immune responses are more common in second pregnancies. My consultant said the hsg is to check the shape of my uterus and tubes, if the tubes are mishapen the only option is removal. But i am still convinced it is immune for me x

@Ralowi can I ask how old you are ? I’m 29 now , no kids ! Do you have kids ? X

@ShareLove yeah exactly, this research dr shehata is doing is only 20 years old. Before that I think it was heard of but rubbished. The podcast is really interesting if you haven’t listened. Someone on here sent me the link if you want it

@ShareLove you are really young, I wish I was 29! I am 36 now and I was 32 when I had my son. In hindsight we should have tried sooner but naively miscarriage didn’t even cross our minds

@Ralowi aww that’s good you already have a kid as you then know you can defenetly carry a baby but in my case I need clear camer hysteroscopy to check inside as Iv never carried a baby and can’t seem to carry past 6 weeks so maybe my uterus has something to do with it .
but yes I have heard of people on mumsnet of having secondarily infertile where they had a baby and can’t seem to carry anymore and after steroid treatment , it worked out again , I also heard , that after having a baby , it can cause havoc on your immune system , so if you didn’t have immune issue before , you can easily have it now and maybe that’s why it’s not working out anymore xx but I am also sure it’s immunes in your case rather then the womb because you already had a baby xx

@Ralowi ofcourse I have listen to sheata a podcast already , it’s great isn’t it ! Makes so much sense 😃

@Ralowi sorry I realised I have so many spelling mistakes , my phone is going slow motion trying to catch up to my typing , and changing words ! I hope you get what’ I’m writing even if I misspell words 😅

@ShareLove dont worry I can figure it out! Yeah I can see you would need to have the hysteroscopy to rule out scarring etc, i probably didn’t get offered the hsg till now because I have had a child. But with the c section and D&cs I’m sure I do have some scarring now. I felt exactly
the same as you 5 years ago. I thought I would never have children, but I’m confident you will and you have so much time as well x

I’m very similar 10 losses, 8 chemicals at 4-4.5 weeks and 2 mcs at 5.5-6 weeks. Never get past 6 weeks. IVF has shown us we don’t many blastocysts as most die by day 5, which might account for the chemicals - chromosomes/age etc. But I am also having dexamethasone during stims and will have steroids and intralipids when it gets to transfer. My clinic believes in immunes but don’t specialise in them… wondering if I should see Gorgy/Shehata as well but might wait and see how we get on when we transfer a pgta normal later this year.

@Phrenologistsfinger So similar. I think if you are already having the steroids and intralipids that is basically what they offer at the immune clinic only you pay a fortune for testing. So you are in the right place. Hope it works out for you, we haven’t had to factor ivf in as hoping it is just the immune issues but we will see x

Hi there, for those under dr. Shehata for immune testing, once you do the NK cells tests (cost £1000), did you have to ever repeat them or have you done them just once and based on them you were given steroids/intralipids? Thanks 🙏