COT DEATH

[nannyoakley]

I'd be interested knowing what anyone thinks about cot death being in the news so much and what your thoughts are on cot death. Most parents are left confused by what to do and we hear from people all the time wanting to know what is going on - why there are so many cot death parents being released from prison, why they were ever in prison in the beginning. The main gist of our campaign is to make sure our news about mattress wrapping for cot death prevention reaches the public, and give parents an informed choice, we believe it should be the parents who decide what they want to do - and believe me, we hear from people every day wanting to know about the Cot Life campaign.

Please ask questions / tell me what you think about what you are hearing in the news and reading on the internet, your thoughts are valuable to me and I think this is a serious issue that needs public debate.

Hope you can help.
Many thanks
Julee

I may not agree with what NannyOakley says, I may not even understand what she is talking about but dear! the woman has lost a child to cot death and I think she deserves at least some respect to have her own opinion, as many of us here could believe that mmr is related to autism or that is dangerous to co sleep, or that is dangerous for babies to sleep on their own. Sometimes I'm embarrased of Mumsnet...

nannyoakley, you lost your little boy because he was placed face down on an unwrapped mattress. You support wrapping mattresses, an unproven, unfounded nonsense, IMO - and yet you haven't mentioned your feelings on placing babies on their backs.

Why?

nannyoakley, why did the cot death rate fall dramatically after the back-to-sleep campaign was launched?

And do you support it?

I believe the back to sleep campaign saved many babies from cot death - but it did not completely stop cot death - 7-10 babies continue to die each week in the UK - I believe this is because turning a baby away from the fumes of chemicals in the mattress is doing the baby a lot of good and the reason babies continue to die is because the bedding is also a factor - duvets are still sold and used - despite fsid's recommendations not to use them and other bedding also contains the chemicals.

Chandra - do a search for "julee Oakley" on google - see how many places she's 'spammed' with details about plastic wrappings! Then do a search to see how many times she's mentioned losing her child to SIDS.

Erm - what's a "wrapped" mattress? As opposed to an "unwrapped" one???

Posted by www.nhs-exposed.com on April 28, 2001 at 10:30:07:

In Reply to: COT DEATH PREVENTION CAMPAIGN posted by Cot Life Society on October 31, 2000 at 21:58:51:

COTLIFE MONITORS ANYONE WHO DISAGREES WITH THEIR VIEWS.

Full story on www.nhs-exposed.com ( Dare to Debate Section).

NHS EXPOSED has been threatened with defamation proceedings for a message board posting by a New Zealander.

This is what happens when anyone disagrees with Ms Julee Oakley. Surely it is within the public' s best interest to debate whether Dr Sprott's theories are infact correct. We are apparently not allowed to do so by COTLIFE2000. The question is WHY?

Dr Sprott and his staff requested that Julee Oakley monitor our message board and report any instances of the words listed in the email below , back to them.

Do such questions affect their sales? Draw your own conclusions.

- Original Message -
From: T. J. Sprott
To: Oakley, Julee
Cc: NHS EXPOSED
Sent: 19 April 2001 02:57
Subject: NHS Exposed website

Dear Julee,

Thank you for your e-mail letting me know that you will keep an eye on
the NHS Exposed website for statements relating to mattres-wrapping.

Dr Rita Pal has subsequently sent you a copy of her e-mail to me regarding postings on the NHS Exposed website. In that e-mail she stated: "All... postings to NHS Exposed message board containing your
Cotlife2000.com will be automatically rejected by the
message board software."

Notwithstanding this statement by Dr Pal, would you please continue to keep an eye on the website for relevant postings. As you will appreciate, regardless of absence of reference to Cotlife2000.com, such postings could presumably be accepted by the website if they contained reference to (for example):

Sprott
Richardson
toxic gas theory for cot death (crib death)
mattress-wrapping
polythene (polyethylene)
polyvinyl chloride (PVC)
sheepskins
phosphorus, arsenic, antimony
phosphines, arsines, stibines
SIDS 2000 Conference
New Zealand Cot Death Association
National Maori SIDS Prevention Unit
New Zealand Coroners
Limerick Report
suffocation
etc.

Please forward to us copies of any relevant postings.

Best wishes,
Alison.

Nannyoakley, can you clarify, did both your children die of cot death ?

hub - I think she's had 3 babies, lost one - Adam to SIDS.

I really don't care how often she posts, and honestly speaking, there are many other things that we, as new mothers, panicked about more than matress wrappings. I'm only asking for freedom of expression and respect to her personal loss. If she happend to be a troll it's not my problem, but if she isn't I would feel very bad about making such mistake.

According to this she lost a daughter too. Facts a bit shaky here?

Gwenick ))) hub - I think she's had 3 babies, lost one - Adam to SIDS.

I have four children - My son Adam died and my eldest daughter suffered near miss cot death and is left brain damaged as a consequence.

To save me time I am not going to answer any sill questions.

I am not a scientist - Dr Sprott is the person to ask! www.cotlife2000.com/

I admit that I have posted the Cot Life message on many boards and although some have had a good go at me - fortunately many have listened - including midwifery organisations and they have placed our information on their websites.

Chandra, whilst I appreciate your post Julee was asked very nicely and very reasonably to stop spamming parents who happen to volunteer for a charity (the NCT) her response was to both continue to spam and send all the papers a press release saying how the NCT were victimising a cot death parent.

She isn't a troll, and I do feel very sorry for her but she has got a lot of people's backs up over the way she goes about things.

Actually JaHnH cot death did happen to my son and my daughter - my baby son died - but my daughter survived...

Cot Death is a very emotive subject and a subject I take very seriously because it happened to my baby son and my daughter -

nannyoakley, do you think there's a genetic link with cot death?

I truly don't want to upset you or be callous towards you, but I do find the way you approach this very in your face.

Luckily for all of us we can buy one of Nanny Oakley's mattress wraps for just £14 (inc p&p) on ebay NOW.

Here

But she doesn't make any money on it. It really costs that much to make a polythene wrapper for a mattress. And to think we all just rip off athe cover which comes on a new mattress and chuck it away, hey....

Perhaps the one we chuck away isn't made of 125 micron polythene like wot Dr. Sprott said it should be made of ?

Surviving cot death is an odd concept to me. Sorry.

What bit of surviving death do you find hard to understand JanH ?

same here Jan - especially after finding this

"Please help make Sarah�s Birthday special.

My daughter Sarah will be celebrating her 21st Birthday on Wednesday 27th August 2003. Sarah has cerebral palsy and lost the power of speech after suffering a stroke aged 7 years.

I am hoping anyone reading this might help make Sarah�s birthday more special by sending Sarah a birthday card for the day. We are asking as many people as possible to do this just because it is Sarah�s 21st.

Sarah has saved her birthday cards from age one to present day and receiving as many cards as possible will give her something special to add to her collection of precious memories.

Please send cards any time from now to address below and I will save them back.

Thank you to anyone who can help.
Julee (Sarah�s Mother)"

um - if you survive then it wasn't death?

I thought you didn't make money from them, nannyoakley?

Oh, I see. That kind of death.

hunkermunker

Remember I am not a scientist - and Dr Sprott can tell you far more than I can -

but I don't believe cot death is genetic for various reasons - what a scientist is saying (the way I see it) is that a gene is at fault in a baby - but if you turn a baby onto it's back the gene rights itself? Can that be right?

I don't know what you mean when you say that my approach is very in your face. How else can you start a conversation? - I asked for a debate that was all!

nannyoakley, do you think there's a genetic link with cot death?

I truly don't want to upset you or be callous towards you, but I do find the way you approach this very in your face.