Baby killed by a loving kiss!

[Biggogglyeyes]

so sad

LLG- I'd stay away if you had a cold sore, otherwise just wash hands and don't kiss. The chickenpox and shingles shouldn't be an issue- it's a different virus (herpes zoster rather than herpes simplex).

hold on jj, is that ds1, sitting on grass!!!

dh had to have valganciclovir after his transplant, due to his donor having CMV, which is related to the herpes virus as well i believe. its also a v v expensive drug, and we had to hope the PCT would fund it.

oh yeah he has no problem with grass now! That was post the eczema herpeticum until he was about 4 or 5.

"we had to hope the PCT would fund it." {shock] - that's terrible. They should fund whatever a transplant patient needs. Acyclovir isn't in that league, a few hundred, but pricey compared to antibs etc.

I mean

jj, we had the hospital on our side. they said if the PCT wouldnt fund it, then we could just it from the hospital, then they would bill the PCT. i know some tx patients had to fight for funding though,

God that's awful Andy why on earth would a PCT want a transplant (expensive procedure I presume ) to die/be seriously ill for the want of a few drugs.

That's the NHS for you. It should be the N"H"S.

i know. its pure madness. there is a drug, just beneath which does the same job but is cheaper. but doesnt work as effectively from my understanding. fortunatly in most cases its only needed for a couple of months after transplant and then not again, unless the CMV returns or causes problems. i know of two tx patiemts who had problems with CMV after their cdourse of drugs finished. peter has had no trouble regarding CMV so far, so hopefully thats it for him.

I assume that post transplant you don't particularly want to have to fight for effective drugs......

wow, thanks for the wake up calls people.

jj, your ds is stunning. how you dont eat him up is beyond me

Kerrymum, I thought it was GBS+, not A, or is it both? I know I had to have IV antibiotics during labour with Dd because of GBS+ which had(as I found out after my booking appt)been picked up during my last smear. I didn't know they checked for anything other than pre cancerous/cancerous cells.

Very, very sad about Mira

JJ, your bundle is gorgeous

DS1 is quite so gorgeous when he's doing something hideous like spitting (the latest)

poor baby and family rip.

kerry and jj.

my mum has had cold sores in the past, should i tell her not to kiss the dcs on the lips?
i don't think shs had one for a few years

i had no idea they could be this dangerous i just thought they where a normal fact of life

Well everyone gets a herpes infection eventually freespirit - even if you've never had a cold sore- you almost certainly have had the infection sometime - the first herpes infection is usually a blistered mouth and sore throat and often missed. But it would be dangerous for a newborn and potentially dangerous for someone with eczema.

I still kiss my kids. But I don't kiss ds3's eczema and I wouldn't kiss someone else's newborn, or my own if I had a cold sore. It's a swings and roundabouts thing really. Just bear it in mind and ask doctors if you ever think it's a possibility. Acyclovir works, it just needs to be given.

jj thanks for that info i can't tell you how shocked i am.
why do they not warm new mum and dad of the dangers.

i was really shocked by this, i've suffered with repeated cold sores for years, had quite a few during my pregnancy with dd, and i also had one appear the night after she was born, i stayed in hospital for 3 days and no-one ever said to me about the dangers of cold sores and newborns. i was breast feeding her, cuddling, kissing her etc, i had no idea of the risks.

It's rare freespirit. That's the problem really with docs not recognising it. My GP at the time was very good, and rang specialists to talk to them, then fought to get us an emergency appointment with a dermatologist, but he just didn't recognise it. The derm did - within 10 seconds.

jj im gald mumsnet has people like you and km to warn us and inform us of stuff
thanks