I have a child who is now a grown up woman, who took violent and extended epileptic fits and went into status epilepticus many times. She was born with
a recognised syndrome and severe learning difficulties. No speech. Doubly incontinent. But generally quite a happy soul. We get by. Somehow.
Every time she went into status and was hospitalised, they warned us it was doing more damage to her brain. And that she might lose any abilities that we'd worked hard to help her with. That was a hard pill to swallow.
But as it happened, these fits did not make any change to what she had learned
(in her limited way, obvs) and when we got her back home she was same as ever. So they (the fits) obviously did no significant damage to her brain function.
Having, sort of, been there, sitting for days at a time with a child who is heavily drugged to keep them still and maybe could die . . . . . whilst also wrangling her toddler sister, I cannot imagine being told by doctors that my daughter was
effectively brain stem dead. And doubting them, or taking umbrage.
They have looked after her from birth. I would believe them.
They have nothing to gain or lose. I didn't have to make a choice because she rallied and got better. So I didn't have to deal with a bad outcome.
Had it been a different outcome, I'd have dealt with that also. It would not have been the fault of anyone.
Poor Hollie is being manipulated. She is going to regret all this. I feel so sorry for her that she feels she has to keep on keeping on. Her son is beyond help.
Anybody's help, He's gone and she needs to look inside herself and ignore the
Archie's Army that's keeping her going. And the Christian whatever, just ignore them. Just stop it. He's gone. Archie is gone. It must be a devastating thing for a mother to face. But better to face it alone and accept it than join in with the media circus which will ensue.