RIP Alfie Evans

[Lorddenning1]

I'm so gutted for his family, I was hoping he would prove everyone wrong, I keep giving my 15 month old baby boy big hugs :(
Rest in Peace little soldier 💙

Rest in peace little one. You earned your wings. Fly high now. Hope your mum and dad can find peace in Time xxxx

Grief tourists?? You can't be a parent because no parent who hears of a child dying can just ignore it. When I think of my dcs running around at that age when poor little Alfie was hooked up to machines, it breaks my heart. There but for the grace of God go I.....

Rip Alfie, so sad.

Did anyone watch the ballon release at 2.51 💙

lord this thread will not go the way you intended. Already the thinly veiled ‘I told you so’ gloating is being posted.

I don’t know why these dementors can’t keave this family alone

RIP Little Alfie, my heart goes out to Tom and Kate right now

I hope the angels have taken you from the vultures now little tacker, my sympathies to your Mum and Dad

I was hoping he’d prove everyone wrong I assume you mean that in an abstract sense, OP? He was never going to get better, poor little boy. I’ve commented on some of the previous AE threads but stopped - I couldn’t understand the “almost fervour and race” to create the next thread. I understand wanting to discuss the ethics around the case, but after a while it felt rather unedifying. Absolute empathy and respect to those posters who shared their own stories. I hope Alfie died painlessly and that his parents receive appropriate support. Some aspects of the threads have not shown MN in the best light IMVHO.

Dancingleopard it's definitely opened my eyes to what mumsnet has become, I have been quite naive before :(

I think it's perfectly possible to be a parent and to be immensely grateful your own children are not in that situation without being in any way emotionally involved in this - someone else's - sad story. Of course in a general superficial sense I find it sad that a baby had an incurable brain condition and has died, but I'm not personally distressed about it. We emotionally detach ourselves from most of the terrible stuff going on in the world - we need to in order to survive. So I don't think not getting emotionally involved in one particular news event is a sign that you don't have children or are lacking in empathy.

Avon calling, I meant I hope he would prove people wrong and survive off the life support, did I think he would start walking and talking, no, and that maybe just this time the medics were wrong, I have since read the court documents and it's clear he wasn't coming back from this :(

RIP little one, no more pain for little Alfie.
Sympathy to his parents and friends.

I am very very sorry for Alfie's parents.
I am furious with the people who misled them, and I include the Pope in that, into thinking there was any hope of a recovery.

I am catholic and the pope went down in my estimation over this. He should never have got involved. A priest acquaintances know, posted on Facebook that he was going to offer mass for Alfie. I asked if he would also offer it for all other babies and children who also did this week. They are just as important.

Interesting that a professor at the University of Oxford said that the hospital should have provision for offering parents such as Alfie's better guidance and support in these types of situations.

Remarkable also that there were 7 thousand-long threads of people all wanting to give their opinions about this baby's life and the people around him, justifying it by saying they cared about his best interests. Yet there are less than 100 condolences here now he has passed away.

I'll add my condolences again as I think the poor little tacker deserves them and I refuse to slag off or add wild speculation about his Parents and family.

To all you derailing this thread , shame on you. Typical mumsnet. Can’t even have a threaf to express empathy for a very sad situation without some arseholes jumping

It gets very tiring to be told what thoughts and opinions one can and cannot express on an open forum on the internet. We must stop using the argument that we cannot ever disagree with people who are grieving. A lot of what that family did and said was dangerous and wrong and may well have had an adverse effect on other babies end of life care - whose parents had not failed against medical advice and plastered their story all over the media.

I thinks it's natural to want the medics to be proved wrong re death - because no one wants a baby to die. Or anyone for that matter!

I don't believe we should ever quash hope or stop praying for a miracle - and I don't think knowing how something will end and having hope are mutually exclusive.

It was clear this young boy didn't have a condition comparable with life. I know a 12yo with the same description. There is a difference in quality of life they have though.

I also know a number of children who've been on life support and had it removed as they felt there was nothing else they could do.
One has been there twice - and survived twice!
Two were seemingly healthy despite severe disability and were on LS within weeks of first feeling unwell and on LS for merely a few days as they couldn't survive and their condition meant they were likely to have cardiac arrest and die anyway.

The consultants are generally correct. The LO who survived twice wasn't responding to AB for sepsis but recovered after everyone said their goodbyes. They were extubated but in this case they didn't say wouldn't survive - said unlikely.

Yes Cocoa I read the article as well. It's very upsetting to read what the brain scans showed about Alfie's deterioration. What a horrible horrible condition.

Condolences to Alfie’s parents.

I was hoping against hope for a miracle. Alfie’s end of life care seemed quite heartless to me but this is just how I feel. The storming by the family members of the PICU pod will stay with me. All the talk of better care overseas didn’t take into account the cost of that level of care long term. No amount of health insurance would pay long term and maybe 1% of population could afford those bills. I am sorry his life ended in the way it did.

my thoughts are with Alfies loved ones today