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Charlie Gard 15

999 replies

cjt110 · 24/07/2017 12:59

This is a thread following the legal and ethical questions raised by the recent court case involving Charlie Gard.

Please could we refrain from insulting or otherwise "bashing" his parents. It isn't in the spirit of Mumsnet and will get the threads removed.

Please could we also remember that at the heart of this case is a terminally ill baby and his heartbroken parents. There are those participating in and watching this thread for whom these issues are painful. Please let's try and be mindful of them when we post. This isn't a place for name calling or trivialising the very real pain they feel. Many parents of severely disabled children are on here.

Lastly, here are some hopefully useful reference points of facts surrounding the case.

13 July GOSH position statement on latest hearing (includes update on Charlie's condition):
www.gosh.nhs.uk/file/23611/download?token=aTPZchww

7 July GOSH statement on Charlie:
www.gosh.nhs.uk/news/latest-press-releases/latest-statement-charlie-gard

June 2017 Supreme Court decision:
www.youtube.com/watch?v=P6rPmvGlNhA&app=desktop

May 2017 Court of Appeal Decision:
www.bailii.org/ew/cases/EWCA/Civ/2017/410.html

April 2017 High Court Decision:
www.bailii.org/ew/cases/EWHC/Fam/2017/972.html

GOSH FAQ page on Charlie:
www.gosh.nhs.uk/frequently-asked-questions-about-charlie-gard-court-case

Timeline so far

August 4, 2016 Charlie born 8lb 3oz to Connie Yates and Chris Gard.

October 2016 Tests reveal mitochondrial depletion syndrome.
Believed to be only 16th sufferer in the world of rare strain.

Autumn 2016 Miss Yates finds specialist in US testing nucleoside therapy, but it has never been tried on Charlie’s rare type.

January Gosh doctors say drug would be futile because of irreversible brain damage. Parents contact US doctor.

March Gosh asks High Court to let Charlie die. Mr Justice Francis gives parents a month to make case for treatment. Daily Mail readers help raise £197,000 in days to help fly Charlie to US.

April Doctors say he is likely to be in pain. Judge rules Gosh should let him die.

May Court of Appeal upholds ruling. Parents appeal to Supreme Court.

June Supreme Court rejects appeal. On June 27, European judges back decision. Gosh gives parents more time with Charlie. Pope Francis intervenes, followed by Donald Trump on July 3.

July 7 Seven scientists hand Gosh fresh evidence showing higher survival chances.

July 10 Mr Justice Francis gives parents 48 hours to produce new evidence in case.

July 13 US specialist Dr Michio Hirano invited to London by High Court

July 17 Dr Hirano examines Charlie.

July 21 Court told scan results ‘very sad’.

Today, 24 July, High Court due to rule on the case, ten days before Charlie’s birthday.

OP posts:
sashh · 24/07/2017 15:05

sashh that was my comment, I said it because I was hoping that Armstrong wouldn't be quite so encouraging of blaming GOSH.

Sorry I wasn't meaning to be nasty, just that it is new for the parents.

LapinR0se · 24/07/2017 15:05

She is very very raw, please don't cast aspersions on her

Rache11 · 24/07/2017 15:05

Oh god no, she's still blaming gosh, this shouldn't be allowed

cjt110 · 24/07/2017 15:05

@JoshuaRozenberg
Connnie: prospect of improvement now too low. Deterioration in his muscles means there is no way back.

OP posts:
Saucery · 24/07/2017 15:05

This reply has been deleted

Message deleted by MNHQ. Here's a link to our Talk Guidelines.

jellypi3 · 24/07/2017 15:06

Is there really precedent for letting an extremely emotional, desperately sad mother give a statement like this IN court? I thought this sort of thing happened out of court?

AcrossthePond55 · 24/07/2017 15:06

Oh no. Oh, Connie.

MiaowTheCat · 24/07/2017 15:06

This reply has been deleted

Message withdrawn at poster's request.

CommunistLegoOoOoBloc · 24/07/2017 15:06

So much for distancing themselves from the GOSH-bashers. This is all designed to create as much furore as possible.

cjt110 · 24/07/2017 15:06

@skyrobcatherall

Connie Yates "treatment is now not in Charlie's best interests and we will let our little boy go... "

OP posts:
Cheby · 24/07/2017 15:06

I know she is angry but her comments are outrageous.

user1498911589 · 24/07/2017 15:06

What the hell is she playing at...

She's a mother who is about to lose her son. Cut her some slack.

cjt110 · 24/07/2017 15:06

@JoshuaRozenberg

Connie: treatment should have been tried. Charlie had a real chance of getting better.

OP posts:
jellypi3 · 24/07/2017 15:06

this is so, so wrong, she shouldn't have been allowed the stand...

WeDoNotSow · 24/07/2017 15:06

I'm sorry but this shouldn't be allowed

cjt110 · 24/07/2017 15:06

@skyrobcatherall

"Charlie did have a real chance of getting better if only this treatment was started sooner"

OP posts:
PenguindreamsofDraco · 24/07/2017 15:07

It's a pity she's using her (very unusual) position to do this. It's a pity Francis J. let her make a statement in court, although I can completely see why he did - because it gives her comments more 'respectability' when ultimately, she's still only voicing an opinion.

BeyondDrinksAndKnowsThings · 24/07/2017 15:07

Rob says "could have", josh says "would have"

???

AccrualIntentions · 24/07/2017 15:07

Will GOSH get an opportunity to make a final statement? Because CY's words, while obviously those of a grieving and heartbroken mother, sound designed to whip up further sound and fury against the hospital and its staff and don't appear from anything I've read to be at all accurate.

Butteredparsnip1ps · 24/07/2017 15:07

Oh god this is heartbreaking. Connie, you have it so very wrong

CotswoldStrife · 24/07/2017 15:07

FFS!

Looby4 · 24/07/2017 15:07

Can Gollop come back in to reassert the medical position?

cjt110 · 24/07/2017 15:07

@skyrobcatherall
0s
"We will always know in our hearts that we did our very best for Charlie and we hope he is proud of us"

@JoshuaRozenberg

Connie: it's what's best for Charlie now. We've always listened to the experts. We'll always know in our hearts we did the best for Charlie.

OP posts:
MirandaWest · 24/07/2017 15:07

I wish that the judge had said that she couldn't address the court.

11122aa · 24/07/2017 15:07

They should not have let her take the stand. It wont do anyone any good.

I wonder if the pastor is behind this as a way of trying to protect himself from being called a murderer.