Issues raised by the CG case 11

[Venusflytwat]

This is a thread following the legal and ethical questions raised by the recent court case involving Charlie Gard.

Please could we refrain from insulting or otherwise "bashing" his parents. It isn't in the spirit of Mumsnet and will get the threads removed.

Please could we also remember that at the heart of this case is a terminally ill baby and his heartbroken parents. There are those participating in and watching this thread for whom these issues are painful. Please let's try and be mindful of them when we post. This isn't a place for name calling or trivialising the very real pain they feel. Many parents of severely disabled children are on here.

Lastly, here are some hopefully useful reference points of facts surrounding the case.

13 July GOSH position statement on latest hearing (includes update on Charlie's condition):
http://www.gosh.nhs.uk/file/23611/download?token=aTPZchww

7 July GOSH statement on Charlie:
http://www.gosh.nhs.uk/news/latest-press-releases/latest-statement-charlie-gard

June 2017 Supreme Court decision:

May 2017 Court of Appeal Decision:
http://www.bailii.org/ew/cases/EWCA/Civ/2017/410.html

April 2017 High Court Decision:
http://www.bailii.org/ew/cases/EWHC/Fam/2017/972.html

GOSH FAQ page on Charlie:
http://www.gosh.nhs.uk/frequently-asked-questions-about-charlie-gard-court-case

Friendly I totally agree that her disdain towards GOSH is unacceptable.

And to the extent to which she is encouraging threats then that's crossing a line that shouldn't be crossed.

My point is simply on the idea that the fact that she thinks she is an expert should not be criticised. She may not agree with some of the points raised by GOSH due to her research, I know that I have had to argue with some experts that I think that their view is incorrect.

Sandthefloor, probably for the best, if you can't understand that it was the CA being mocked and not the family, then you probably should leave it.

taratill, completely agree with that.

Sandthefloor, I haven't seen anyone mocking the parents. CA most definitely.

Over these 11 threads virtually everyone has said they have sympathy for the parents. Some posters have even had similar experiences themselves. It doesn't mean the whole subject is untouchable and I debatable.

*undebatable.

Can't see how citizenship or residency makes any difference. People in London are subject to the English courts' jurisdiction.

mocking them is out of order - a dishonest accusation when any mocking of the lighting in blue is mocking the use of lies, especially wholly transparent ones.

Neither can I polly

metro.co.uk/2017/07/19/charlie-gard-given-us-citizenship-so-he-can-be-treated-in-america-6790390/?ito=fb

FFS now the Metro is quoting the mail who is quoting fucking twitter

this is not okay

and I bet when it is clarified down the line GOSH will have "stripped" charlie of his citizenship (that he never had) somehow….

Maryz, I wonder why she has done that? perhaps because they have said they cannot treat Charlie< cause surely if they could treat Charlie her veiw would be different? does that make sense?

The only affect is we could see a pro Charlie demonstration outside the British Embassy in Washington and Maybe Rome.
And trump could tweet about it and cause a diplomatic incident.

TinselTwins, its just lazy journalism.

There is only 10 postsletf, I would like to fill this one up first, heres the link, but please wait till this one has finished x

www.mumsnet.com/Talk/in_the_news/2983601-Charlie-Gard-12?watched=1

I don't think the 'parody account' is actually a parody. The header says it's a 'ParroTweet mirror of the United States Congress (104 actively serving, verified Twitter members).'
It seems to be pulling together tweets from different congressmen etc in one place and has reproduced this Fortenberry's tweet word for word.

Haven't seen anything from anywhere else verifying this claim but gutter press, as usual, running with it without checking facts (I thought that was the first rule of journalism?).

I'll wait until BBC confirms it, which could be a very long wait.

on the point of lazy journalism isn't there a code of practice or something like that that requires verification of sources.

Hard to believe they can get away with just quoting something from Twitter as 'the truth'.

Someone reckons they are back at court on Friay, cant remeber where I saw it, may have been Charlies army.

Friday

There are a huge number of experts in Autism. There are very, very few, who have knowledge of Charlie's condition because it is very rare. So rare that the American Dr has not performed any experiements on babies/children that are the same as Charlie. I respectfully suggest there is a difference between expert/parental diagnosis of autism, where there are numerous opinions and expert advice availableto parents, and Charlie's condition. That is not to say that every aspect of a child's development is not of paramount importance to the parents.

Once a case goes to court because parents and a hospital disagree over a fundamental decision, the Guardian appointed speaks for Charlie. The parents are clearly not "experts" in accepted meaning of the word. How can they be? They have a body of knowledge picked up from being parents, but it must, by definition, be limited in terms of this complex case.

At the moment, CG is in the care of GOSH. The parents do not have the right to remove him to the USA, this is what the case is about, and neither do our courts have to take any notice of pressure from the USA. Our laws prevail in our courts. What anyone thinks in the USA is neither here nor there. The only one who counts is Dr Hirano and he is only one expert. Others may have a different view as has been reported in The Telegraph for example. I rather suspect that a newspaper such as the Telegraph would be silent unless it had a very good source. In comparison to the utter rubbish reported elsewhere the Telegraph's piece is balanced.

taratill, it saves them going out and getting a story, but there really should be a stop put to all the false news.

People mock the Aunt all the time on here. If it was my nephew lying in that hospital I would be devastated.

New thread guys.

www.mumsnet.com/Talk/in_the_news/2983601-Charlie-Gard-12?watched=1

I read that the report containing all the final tests and evidence is being submitted on friday (presumably it takes a few days to finish and write up) and the final hearing is on tuesday. I have no idea if that is true, I read it on CA