Charlie Gard 10

[user1498911470]

Hi guys new thread.

Let's try to keep this one as sensible and measured as the past 7 threads have been.

Please note the MNHQ comment on thread number 7.

"Hi everyone,

..... We had to remove several parent-blaming posts, so we'd like to ask folk not to do this. We think we can all agree that this is a truly awful time for all involved and we just wouldn't wish it on anyone. If there's anything we could do with more of, it's support. We'll continue to remove reported posts that break TGs (if we've missed something, do feel free to let us know).

If we have to make too many deletions, we will need to look at removing the thread; which is the last thing we wish to do.

Thanks all"

Starting now as 9 will fill up quickly.

I really don't get why the us is so anti "socialised" medicine

Because poor people shouldn't get something for nothing

coz rich = hard working and poor = lazy and work shy of course

I read on the NHS an intensive care bed is at least £1,500 a day in costs, so for over seven months that is a lot of money for the NHS already. With all the legal fees on top.

No, Writer, but the parents are occupying an entrenched position that they see no way out of, and so cannot look at it like that. You do have to feel sorry for them just for that, let alone the rest of it, no matter what they have done or said or what else they may say or do.

I think the judge twigged that last time, and is now trying to lead them to the exit without alienating them even further.

I think that whatever Hirano says or recommends, the parents will still be stuck in that position, and the only person who can extricate them is the judge. CY may be brighter than I am giving her credit for, and the meeting may have an effect. It would be so much better for her and her dh if that were so.

£315,000 for seven months.

I read on the NHS an intensive care bed is at least £1,500 a day in costs

That doesn't sound accurate to me, That sounds closer to the cost of a regular ward NHS bed.

I'll try and check that figure. You are right Tinsel, i think.

Re the US, I wonder if socialised medicine is too close to communism in their heads?

My DS was in NICU for over 100 days, required home oxygen & home visits from the outreach team, plus years of intervention from consultants & AHP's (still ongoing).

I shudder to think what the cost would be, and am so bloody great fun for the NHS.

In 2011/12:
• A ward bed cost an average of £413 per night
• A Level 2 High Dependency bed cost an average £857 per night.
• A Level 3 Intensive Care bed cost an average £1932 per night

But that is a few years ago, and doesn't state if adult or PICU. Or if before tests etc added.

I was pondering the stats given re BBB and chances of improvement.

Let's say I want to take a dream trip to the U.K. The travel agent tells me "yes, we can book your flight BUT there only a 55% chance that your plane will actually take off. And even if you make it to Heathrow, there's only a 10% chance that they'll let you into the U.K. And if you do get through customs you'll have to sightsee wearing a blindfold and earplugs.

Not a 'trip' I'd be willing to take.

You can see how each outcome might be helpful for GOSH -

Mario says yes- he may go to US for treatment or he may supervise it hear, taking over some of the reponsibility.

He says no- parents then hear it from him and makes it easier (unless they blame GOSH)

Mirano, not Mario

A ward bed cost an average of £413 per night
• A Level 2 High Dependency bed cost an average £857 per night.
• A Level 3 Intensive Care bed cost an average £1932 per nighT

That's from a document relating to a hospital in Wales, dated afaicr 2016.

Jux same one I saw

Thread seems better since moved from AIBU

Lovelybath, snap!

Dr Hirano said on the witness stand that he had more evidence from his 10-patient study that only reported in May. This was the new evidence.

My slight concern about the meeting is that everyone will come into it with such different approaches and assumptions. The ethicist who chairs this will have to have the cunning of Scherazade, the wisdom of Solomon and the patience of Job.

Lovelybath, there I was thinking that you'd come up with some amazing SuperMario metaphor

I do wonder why there are petitions and what actual use they can do.

I don't think the meeting between the medics is going to be difficult from the Drs point of view, they will all simply present their case and discuss the options. It is Connie that will be the "problem". As has been said before I really don't think she will cope well hearing Charlie referred to in clinical terms like "the patient" or "the subject".

Well, she will have to remain quiet i think.

Dr Hirano said on the witness stand that he had more evidence from his 10-patient study that only reported in May. This was the new evidence

Yes, but that was a muscular improvement, not brain, right?

Sorry but 'mario' made me snort with laughter.

Did we ever hear back from the Italian doctor by the way?

Do you think the UK Doctors will be critical of Dr Mario's facts, statements and predictions in light of the fact that all his previous cases haven't had the same condition as Charlie?

If the UK doctors think having the Vent turned off is preferable to experimental treatment then I can't imagine they're going to very receptive to Mario's claims?

I'd love to be a fly on the wall in that room tomorrow.

The thing i find wierd about us healthcare is the being paid for blood and sperm donation ... They are basically buying and selling bodily fluids for profit

Some might well take the view that adoption agencies are "selling" babies for profit too; as so often in the US, what you can achieve depends on what you can afford:

www.babycenter.com/0_choosing-adoption-cost-benefits-and-risk-of-the-main-options_1373536.bc

AcrossthePond55 - that’s a very astute analogy. Many people, including me, find it difficult to interpret statistics but using a real-life example that even non-travellers can recognise makes the percentages more understandable.