Have any mum's got crohns disease ?

[Louise1970]

I know this site is for children, but was woundering if any mothers have crohns disease..

chrons is part of the family of diseases that ankylosing spondilitis is .. and that is an auto-immune disorder with a genetic marker to help diagnosis (if that is of any interest)

Reading about countess's mum being on drugs for the rest of her life. I too am on tablets and drinks and injections for the rest of my life. I have not come accross many that have life term medication. Wow, isn't mumsnet great.

Twiglett, i need to go and look up what you have just written. Way over my head.

sorry .. DH has AS .. one of the ways they diagnose it is that people present with certain symptoms (pains / inflammation etc) and they do a blood test .. if the blood has a certain genetic marker (in this case HLA B27) then it is more likely that AS should be considered .. but having the genetic marker does not mean you'll develop AS .. if you follow

anyway AS is an arthritic like condition it is just grouped together with chrons for some reason I can't remember

Yes crohn's along with lots of other things (eg MS, Lupus, Rheumatoid Arthritis) is an auto-immune disease, I am allergic to all the usual drugs so I take immunosuppressants to stop my body attacking itself!

Jessica I'm so sorry about your mum. Getting tested must be really distressing for you bringing back such bad memories.

There have been times when I haven't been on anything but I've been on azathioprine (immuran) since my last big flare-up. I think I'll be on it for the rest of my life or until it stops working.

Sorry to bring this one back to the top but thought I would just say "hi" as a fellow Crohn's sufferer. Touch wood, I'm quite well at the mo, and just found out i'm expecting my 4th baby. I have been diagnosed for about 4 years and have been on and off asacol during that time.

For 7 years i was told by my GP I had IBS. It took me to lose 2 stone in 2 weeks, to be going to the toilet 15-20 times a day, not being able to eat anything, and my shins to be covered in lumps (can't remember what they are called but they are part of having a flare up) - oh, and arthritis too, to get some attention from the GP. Ended up seeing a different doctor and she was great and sent me straight to hospital for tests. I suffered way too much for 7 years, having time off work with no sympathy from my boss (though i was swingling the lead) and having a terrible quality of life.

Anyway less of my sob story...

I'm really sorry for your loss, jessicaandbumpsmummy. You must get yourself tested though. Its so important that you know. At least you could keep it under control. I really do wish you all the best, J&Bmummy {{{{hugs}}}}}xxxxxx

and [hugs] to you other sufferers, and those with family members who have the disease xxxx

hi there,

thanks for all the support girls. I really am thinking i need to get tested now, not sure if this is a sign of Chrons or something less serious, but im actually passing blood in my stools now. Thought originally to be a small tear at my back passage, but after a few episodes of "loose" stools today, there is no way i have a tear down there, and feeling rather scared to say the least.

Anniversary of mum's death on Sunday, and cant stop crying this week - even considering going for counselling as I actually feel more affected by her death now than i did when it happened, i guess because i had a 2 week old baby and had to stay strong and get thigns organised on dad's behalf as he was in no state.

Waffling on now, sorry! Have this thread in my "watch" list, so am keeping up to date...... just really scared about gonig to docs in case it is Chrons.

J&Bmummy- sweetheart, you can talk to me whenever you want. I am more than happy to listen But you must seriously think about some couselling, it will make things easier to bear.

Now, I don't want to worry you, but this is the reason you MUST get tested - blood in your stools is one sign of Crohn's. It may be that you have just got a tiny cut due to a bit of "loose bowel activity" (a tiny bit of blood looks loads when its from that area!!) but you must go to the doctors.

J&Bmummy, what area do you live?

xx{{{{hugs}}}xxx

Im in Colchester, so probably no where near anyone that can help.

It was A LOT of blood and even what i thought looked like litte clots. Ive just read up on the Chrons website and it isnt the only symptom..... tiredness, abdominal cramps, mouth ulcers..... Im even more freaked now, so will have to phone docs tomorrow.

A lot of what I am scared of is Jess possibly having it when she's older..... and the fact I could go the same way mum did..... and how the hell would i tell dad - or would i just keep it from him?! God im so confused and so tired right now......

Hun, would you like to talk via fone??? I really am worried for you.

I don't live close enough to you to meet up with you (im in east kent) but I really think you should have some support through this. It helps sometimes to talk to someone who doesn't have an emotional tie (IYSWIM)

Medical research is doing wonders for Crohn's sufferers. You don't know, they might even find a cure. Thats what gets me through, but there are so many drugs out there that can help.

If you want to talk let me know and i can get my number to you.

BIG {{{{HUGS}}}}}

Thanks hun, Im gonna phone docs tomorrow for appointment - same day appointments only here - and Ill post tomorrow and let you know how i get on.

Im ok, just feel as if my world is crashing right now, but I guess its to be expected.

Thank you so much, promise to post tomorrow - am off to bed now xxxx

Goodnight. Hope you get some sleep. Take care and remember just shout if you need to get it all off your chest XXXX night-nightXXXX

Morning! How are you feeling today? Did you manage to get some sleep. I hope so. Been thinking about you this morning and really hope you have some luck with GP. You must fight for immediate action. Don't let them palm you off. I know you have more reason to get tests done but it took me 7 years for the doctors to realise something wasn't right and it wasn't just me being a nuisance patient.

I will be thinking of you today, j&Mmummy. Take care XXX

hey hun, im not too bad today.... feel better after a bit of sleep.

Doctors is at 3.30pm and hopefully DH will have finished work by then so he can take care of Jess.... if not, she will just have to sit in with me.

Not really sure what to say to doc now though, thought about just going in and asking how i can be tested for chrons....

Write down all the symptoms however insignificant they might seem, and tell him/her how long you have been getting them. I found writing them down helped me remember tham all. Remember to tell them about your mum and explain your concerns. But you know all this. I'm sure once the doctor has heard this he will know important this is.

I really do wish you lots of luck for this afternoon. Let me know how you get on, won't you. xxxxx

will do.

Thank you so much. Feel like i have kinda taken over this thread now!

Don't be daft!! Mind you we could rename the thread "the BB and J&Bmummy thread"!!!!

If it helps to chat on here, then nobody minds.

Will speak to you later after docs. Good luck {{{hugs}}} xxx

Well.... Docs was ok i guess. Got the answer i thought i would - they cant do anything until ive had the baby. The tests he wants to do involve x-rays and something else i cant pronounce (assuming its a camera jobby) and if i go back and see him once baby born, he will refer me..... good news i guess.

I'm really glad you got om okay at doctors. I didn'y know you are pregnant!! When are you due?????

You will probably have a colonoscopy (camera, err, you know where!!) which i've had done and its fine (make sure you tell them to knock you right out!!). you might also have a barium meal or enema. The meal is fine but the other is a bit uncomfortable. but you just have to remember its worth it to get sorted out.

But it is great news that he took you seriously, and wants to help. I'm really glad you went to see GP. {{{hugs}}}

thanks again for the support BB - dont think i could have gone through it today without you.

Im due 21st October so only 11 weeks.... its not too far away.

Made the step to tell Dad about docs today, he was really ok about it and was waiting for the "right time" to ask me to go and get tested himself!

Off to watch Bad Lads Army now, catch you later.

THANKS AGAIN xxxx

Oh, Hun, you're welcome. Anytime. Glad to be off help. Glad your dad was okay too.

But i'm sooo excited at the fact you are having a bubba!!! And so soon!!! OOOOOO!!!! I'm just 6weeks preg so ages to go for me.

We must stay in touch. xxxxx

Hi Jessicaandbumpsmummy! How are you keeping? I'm really hoping you are well and blooming

Just checking up on you!! Hope you don't mind. xx

When i was pregnant with DS i had a lot of blood in my stools one day - was terrified and saw a proctologist the next day and it turns out that it was piles (an internal haemhorroid) so nothing too bad and also pregnancy related so it could just be a side effect of pregnancy...