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Continued support for SPHINCTER INJURIES, FISTULAE and other CHILDBIRTH INJURIES - the Ragged Bits Thread

952 replies

Jacksmama · 22/06/2009 20:12

Hi all,
old thread here.

Cyee started this thread in May 2008 after her op, and it's been a haven of support for so many of us who have injuries to our bits from childbirth. Especially with respect to sphincter injuries, fistulae and incontinence after childbirth, there seems to be such a lack of support for women, and the entire subject seems to be taboo. It's as if most MD's think that "a certain amount of damage is to be expected after birth and you just have to live with it". Well, that is simply not the case - and this attitude is unacceptable.

There are all kinds of Ragged Bits stories on this thread. Be aware that THERE IS NO "TMI" HERE - this is the one place where you can spill it all. If you read through the old thread, which is nearly full, you'll see that someone, somewhere, has probably experienced it - whatever it is! So don't be embarrassed or ashamed... we'll tell our poo stories if you'll tell yours.

And also - there are success stories here. Several of us who have been through the medical mill have been successfully "repaired" and are "fully functional", so to speak or even expecting again. In those cases, please join us for Pervwatch - the "after action" report for anyone who is once again venturing into marital relations!

Welcome everyone. We're sorry you had to find us, but we're glad you're here.

OP posts:
Elsa123 · 30/12/2010 10:57

Hello, thank you for your messages. I saw the GP and she said she'll refer me to a Gynae. She reiterated the need to do pelvic floor exercises (which I am) but agreed that it was all not right down below and said it was concerning that it was getting worse and not better. Also the urethrocele and lump make making love impossible so even if I did want more children, we'd be stymied so hopefully something will be done. I left feeling more positive and my uterus hasn't prolapsed and she doesn't think my bladder has either, just rectocele, urethrocele and lump which she thinks is a blocked duct. I also found another lump yesterday.

I feel much better that I have some progress, I just hope I'm not sidelined at the referral. Here's hoping.

Cyee · 30/12/2010 20:45

Happy Christmas everyone (belatedly!). Hope you've all had a restful time. How have I (woman prone to wearing much black) produced a DD who can imagine nothing more amazing than princess pink from head to toe. Sighhhh.

Elsa - glad you've been referred - sounds like they're taking you seriously which is good.

Mollmum - welcome and congrats on your daughter! Sorry this happy time is being somewhat impacted by how you are physically post-birth. I'd definitely ask for those referrals - at the end of the day you can cancel appointments if you don't need them.

It's very early days post birth and your bowels can go a bit haywire. It can be your body's way of trying to help your poor bits post birth. However it doesn't sound ideal that the packing is coming out. I'd defo be pushing for a referral. Good luck with it and keep posting. More importantly try to enjoy your daughter and this amazing time regardless (easier said than done I know).

Jacksmama - Wooooo! You perv! Grin Delighted that action is being considered and your skills are reminding your DH why it was worth hanging in there Wink

Hope everyone is doing ok :)

Cyee · 02/01/2011 20:27

Happy new year everyone. Hope all's well.

Jacksmama · 04/01/2011 17:08

Happy belated New Year everyone!

I'd like to report that I've had nearly a week of painless poos Shock:o
I broke down and saw my friend who is a naturopathic physician, and she gave me some stuff that has been astonishingly helpful. It's nearly miraculous, as far as I'm concerned. For almost the entire past year I've been dreading pooing because of this fissure (bless my GP, she thought it was haemorrhoids), the pain has been awful, and nothing has helped. She gave me a product called GI-Encap, by a company called Thorne Research (U.S. based, I think) which has slippery elm, deglycyrrhized liquorice, and mallow in it, all of which are demulcents - they coat the inside of an irritated GI tract and make everything nice and slippery so it comes out more easily. Also, she said to stay away from "normal" fibre, because, in her opinion, it's like trying to pass straw (as in, hay). So she gave me a product called Modified Citrus Pectin, by a company called Selekta, for soluble fibre. Oh.My.Gosh. What a difference. Unbelievable. I'm still taking lactulose and will continue until my fissure is healed completely, but I'm only taking 5 mL per day so weaning off it should be easy.

I'm shocked what a difference it has made to my overall mood that my bum doesn't hurt all the time!
Thank God for this thread because of course there's nowhere else I could say this :o

Going to attempt pervwatch again in the next few days and see how far we get :o

OP posts:
Cyee · 08/01/2011 16:06

Jacksmama - that is fantastic news! That stuff sounds truly amazing. I hope the relief has continued and you're still feeling good. Wishing you lots of success with your PW efforts Grin

Jacksmama · 21/01/2011 17:24

Quick update: pervwatch... Grin
I appear to be fully functional again :o

OP posts:
luceeloo · 22/01/2011 19:57

Re pervwatch: done it 4 times :) first time the pain scale was 10/10, but on the most recent go I'd give it a mere score of 3. Getting there! Hope everyones well!

Cyee · 24/01/2011 01:22

Great news you pervs! :o

DoomBar · 24/01/2011 16:40

This reply has been deleted

Message withdrawn at poster's request.

Jacksmama · 25/01/2011 00:41

:( DB

OP posts:
AnnaMolly · 25/01/2011 18:42

Great thread - thank you. Finally somewhere to discuss my embarrassing ailments, among women who have actually been there.

I have just been told I have a rectocele with marked rectal angulation, and that this will need to be sorted out. It has taken me the 3 years since having a 3rd degree tear with my DC1 to get up the gusto to have all the investigations necessary to diagnose the problem. In a way it was easier to suffer every time I went to the toilet, than to focus on parts of me that frankly, make me feel like 'damaged goods'. Anyway, I'm really nervous about having any repair done, in case of further damage, but know I cant really carry on having to 'use my hands' to go to the loo.

I just thank my lucky stars I stuck to my guns and insisted on a C-section for DC2.

Jacksmama · 25/01/2011 20:52

Good for you AM - do you have a date for your repair op yet? You'll be a much happier woman after.

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AnnaMolly · 25/01/2011 23:30

Thanks for the quick reply/inclusion in the support . Was just having a good cry, after reading back through other MNers experiences in this thread and the mentioned Guardian article (brings up the many emotions I have about the whole experience).

No date yet. Will see the consultant again next month after having an MRI to determine the extent of muscle damage. I think the prognosis of any repair will be gaged in relation to the results. I'm just scared that having a repair will create more muscle damage Confused.

I have to admit that I did not do all the pelvic floor exercises as advised by the physios, the first time round, as I assumed that my problems were being caused by being sewn up too small, and thought that doing the exercises would make my anus even smaller. I'm now realising that this probably wasn't the case.

Glad the Gi-encap is working for you. It's funny how much more weight the phrase 'pain in the bum' carries when you've experienced it on a daily basis.

Jacksmama · 26/01/2011 02:45

If it makes you feel any better, I get the impression that most of us are a bit slack in doing our PFEs until we realize how much we needed to be doing them :)

With respect to the rectocele repair doing more muscle damage - one you have the MRI results, can you ask your surgeon what type of repair he/she is planning on doing? And especially how the area will be accessed? I know it's usually done through the rectum, but I believe (not 100% certain) that it can be done through the abdomen as well. Could you express your concern about having more muscle damage to the surgeon? Really explain what your current issues are and ask how, exactly, further problems could be avoided?

I never took anyone along with me on any of my appointments, but that's because I work in the health care field and "speak the language" so had no trouble getting my questions answered or knowing what to ask. But I know that sometimes it helps to take someone along who can ask questions for you, if you get flustered or overwhelmed. Or (since this is such a sensitive topic and you might not have anyone to confide in) maybe you could write your questions down and get them answered one by one?

I think it's crucial to be completely clear on what is going to happen to you and not be left with any questions or uncertainties. And not allowing a snotty medical type to brush off your questions.

Anyway - welcome to the thread. I always say this :), it should become my trade mark: sorry you had to find us but we're glad you did.

OP posts:
elvisgirl · 26/01/2011 04:46

I've been reading some of the thread as I suspect I may have a rectocele. I haven't read all as it is rather long! but I was wondering if anyone has heard about the viewpoint that traditional PFEs are not possibly not entirely beneficial - I just came across this article in the last day or two & have been discussing it with women from a natural parenting group as it's quite interesting. I'd love to ask a pelvic floor specialist for their opinion as to whether it's just a faddish lone voice or whether there could be anything in it. Here are the recommended exercises & postures. I don't think there is any harm in adding them to traditional PFEs so I might try them. Sorry if this is old hat info around here!

Jacksmama · 26/01/2011 05:25

Huh... thank you Elvisgirl, I hadn't seen this before! Will re-read tomorrow, must get to bed (it's 9:30 pm in my time zone). I hope you don't have a rectocele... do let us know, ok?

OP posts:
AnnaMolly · 27/01/2011 18:33

Thanks for the advice/welcome. Will post again when I know more.

Laursapoops · 27/01/2011 22:32

Hello ladies, can I join your thread?

I had my little boy in July, and suffered a 3b tear. Had thought everything was healing nicely but after tests my consultant has said my muscles are very weak, and basically if I had any tummy issues it's unlikely I'd be able to hold it in. Has anyone gone private? I have private medical thru work but have not used it, as I've so far felt very comfortable with the NHS consultant, however not sure if private care would be likely to mean better care, or just quicker?

Also, when having sex (sorry if tmi) I feel that my DP can't, um, get all the way in, has anyone had this? Dunno if it's just me freaking out and seizing up, my legs do clamp together too Grin

ninaandbean · 28/01/2011 21:53

hello... I hope I can join this thread... I don't really know what's going on 'down below' but I've been ignoring it for a few months and now I've had enough. I know I need to see the doctor but I'm so embarrassed. And a bit scared. I don't want my bum examined which i know is stupid, but it just feels so personal... anyway. Here's the lowdown. I guess if anyone can give me any idea what to expect from talking to the doctor it would really help, at least in terms of preparing myself to ask him.

I had a forceps delivery (emergency) and tore on my left side, was cut (episiotomy) on my right side. It was all a bit of a mess down there and I could hardly walk for a fortnight! Partly SPD but a lot of the pain was the stitches. Since then, my scars have healed up, the midwives who examined me said it was all fine and doing great, but to me the scars feel beaded (??) and itchy and painful still (DS is 6 months now). And worse than that, it's agony every time I poo. For ages I could only go once or twice a week - the stools were huge and hard and I put the bleeding down to that. So I (over the last few months) have taken stool softeners (no effect), inserted pile suppositories and used anusol cream (soothing but doesn't change the ripping feeling when I poo, so I am almost certain this isn't piles - esp as not itchy/painful other than pain when I poo), took laxitives (horrendous stomach aches) and eventually tried a combination of both laxitives, softeners and creams... which helped in that the pain and bleeding eased off when I pooed, but then I got diorrhea and (I nearly died) actually pooed my own pants because I couldn't hold it in to get to the loo in time. So I stopped self-medicating obviously, because painful pooing is less awful than public pooing (!!).

But now the pain is back, and worse than ever. I literally have to hold down on a stress ball and breathe like giving birth when I pass stool... it's like a whole host of cuts open up every time, inside and around the hole. As for perv action - only twice since I gave birth. The first time, we stopped because the scars inside my front passage hurt and DH said they were like a tight, hard seam - it was really hard to get him in (god this feels like total TMI). That was 14 weeks postnatal, so I wasn't too worried) The second time was two months later at christmas (lucky boy hey), the scars hurt less but it was near impossible again to get him in and I was really struggling to relax.

So I guess I dont know what to tell the doctor, and what not to tell the doctor... will he look up my bum? I want the pain to stop and just to be able to poo without the FEAR I get and the horrible bleeding.

Gah. Noone tells you to expect your undercarriage to be totally broken for so long :( my 'wait and see' mentality is wearing off... surely after six months it should be getting better, not worse?

advice and help would be very welcome :(

DoomBar · 31/01/2011 11:09

This reply has been deleted

Message withdrawn at poster's request.

ninaandbean · 31/01/2011 22:14

thanks for replying DB... was feeling a bit nervous about having posted! But I am going to speak to my GP. I will actually make an appointment tomorrow, it can't continue like this, poor DH actually joked that if we managed an immaculate conception for number 2 that would actually seal the coffin on our sex life. He's being very nice about it (that wasn't a mean comment, it was said in a funny way) but it made me think. I don't want a life with no sex forever more! But I need to not be in pain too... gah. I'll report back. Thanks for the support

crje · 01/02/2011 21:44

Can I join too,
have 4 kids,no tears or stitches on any just lots of stretching,which hasen't gone back.
seems all the damage was done on left side of my vag.
the main problem is my labia on this side is stretched quite long and gets very sore during/after sex.
Dh if he is not careful pushes it up inside and it gets sooo sore.

Is it cosmetic or medical do ye think,
it looks so odd im slow to show doc if nothing can be done

Jacksmama · 04/02/2011 17:35

Just some quick thought - ninaandbean, it sounds to me like you have an anal fissure. That's what I have. Pile suppositories and Anusol etc didn't help one bit for nearly two years. I just recently had it properly diagnosed during a scope for my insides. I actually had to ask the doc to check, and he was shocked that that's what it was. Everyone thought it was haemorrhoids! Anway - here's what I've been using, and it's helped enormously. However, I really have to keep after it - one hard stool and I'm back to square one:

Lactulose, 5 - 10 mL per day.
GI -Encap (a supplement made by Thorne Research) - one with every meal.
Modified Citrus Pectin for fibre (made by Selekta) - four caps, once a day.

That keeps stool nice and soft so it just sort of slips out, rather than forcing past the injured sphincter. (A fissure is basically a tear in the anal ring. The worst is that it has no time ever to heal since most of us have a poo at least once a day.)

The reason I was prescribed Modified Citrus Pectin is that my friend who is a naturopath said that using traditional fibre just bulks up the stool which is NOT what you want - you don't want the anal sphincter to have to stretch too much until it's healed. Stool needs to become the consistency, roughly, of toothpaste until the fissure has healed.

The other thing I've found extremely helpful is changing my position while pooing. My fissure is posterior (on the tail bone side of my bum, rather than the vagina side). So if I'm on the toilet, I bend forward and put my hands on the floor in front of me. That seems to take the pressure right off the posterior part of the anal ring and it doesn't hurt to poo. I don't know what would help if your fissure is on the front side, though.

Apologies for the extremely graphic nature of this post - I've started to call all this unwillingly acquired knowledge "my degree in poopology". But there's no point in being delicate about this, any useful info simply needs to be spelled out.

crje, I had the same as you re the labia. It was my right one that was cut for the epesiotomy, and it developed a huge haematoma. When it healed, it left my labia looking like an elephant ear, with a cut toward the back. It used to roll up all the time and was extremely uncomfortable. Plus, the cut through the labia was never repaired Hmm. So this past November I had it fixed. I went private for it, as I was told that, even though the situation was causing my physical pain, it was, sadly, considered cosmetic, and I'd have to wait roughly 18 months to get it done under our version of the NHS (I'm in Canada). So I said, bollocks to that, and went private. Best money I've ever spent on myself, although I have to say the recovery was tougher than I thought.

OP posts:
Jacksmama · 04/02/2011 17:37

Best blog and helpful info on anal fissures, ever!

OP posts:
ninaandbean · 05/02/2011 18:31

thank you Jacksmama! super helpful :) crazy I know, but i've still been putting off making the doctors appointment. I need to sort myself out! No idea how I can be so embarrassed about it, when I've actually given birth. Its good to know it can be fixed and I did pluck up the courage to ask some RL friends, BOTH had a fissure post birth so I guess it must be far more common than I realised.