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MMR red flags - food intolerance? Esp. Dairy

29 replies

treedelivery · 19/05/2009 01:45

I have read from the very very well informed - like Pag and Peachy, that auto immune issues and other conditions in children may mean the MMR is riskier for these children.

Would such a thing as dairy intolerance or other food intolerances be indicated in this? My dd1 had all the jabs - but d2 is a different kettle of fish. SHe is having her initial programme now, but I am starting to think about the MMR in a different way to how I did with DD1.

Any advice or pointers would be lush - I searched and the search engine nearly exploded!

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sleepyeyes · 19/05/2009 03:51

Hi I've been a nanny to 2 different children with server dairy allergies and one of them also had very server food allergies. Both have had the MMR both were fine. When I researched it the NHS claimed they hadn't had any cases of server reactions.
I believe the NHS claim there is no hen protein in the actual injection therefore no risk.
I could be wrong but I think it's quite common for egg products to be used in injections.

sleepyeyes · 19/05/2009 03:53

Forgot to add the child with server food allergies had hers done in Hospital and then observed for about 4-6 hours. I would ask your GP to arrange this if possible.

stuffitlllama · 19/05/2009 04:01

Tree.. I would think of it as a marker. You're right, there are some incredibly well informed mums on here who'll be able to help. Am not one of them but the MMR isn't my bag anyway . Take that as you will!

treedelivery · 19/05/2009 11:52

Thank you people!

Sleepyeyes - it isn't so mch the idea of severe reaction, more the emerging evidence that maybe the mmr can trigger learning and development regression in specific individuals.

Something I know nothing about at all, but if dd2 is going to have milk protein intolerance then I will need to start researching so I can make a more informed choice.

I decided with dc1 our family would vaccinate, but at the time it never occured to me dc's have individual needs! Another obvious parenting lesson learnt. Tick.

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pagwatch · 19/05/2009 12:38

tree
thank you for the 'well informed' but I am more in the 'been there, got the t-shirt' camp than the 'well read, well researched' group.
FWIW I think I would be more cautious with a child who showed signs of a sensitive gut than a child who has none of these issues.

If DD had shown such signs I probably would have sent a urine specimin to Paul Shattock at ARU to check for markers.

I can't honestly comment on how it would have affected decision to have MMR or singles as I am not prepared to consider either. But I guess, were I so minded, I would have swung towards singles and also spoken to Richard Halvorsen first and done through him.

Not much help but best I can do

treedelivery · 19/05/2009 12:55

You are a star in fact - thank you for replying.

So, sensitive gut. That's her. Would you mind filling me in on what ARU is?

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ilovemydogandMrObama · 19/05/2009 13:02
pagwatch · 19/05/2009 13:03

ARU = Autism Research Unit at Sunderland Uni.
Professor Shattock has a urine test which flags predisposition to DS2's type of gut issue.
You can send a urine sample and they will test for you. the test comes with oodles of gobboldygook but he and his team are really lovely to talk to and can help you with the results.

Dr Richard Halvorsen is a GP who has written a book about vaccines and possible problems . He can look at options for singles or delaying/spacing vaccines etc. His book is pretty helpful too.

treedelivery · 19/05/2009 13:15

Thank you pagwatch.
One more question - could anyone send him samples, after contact and arrangements, or is this done through the health service?

I will look into the nit an the doctor more. Am scared to read the book you mention.

ilovemydogadnMrObama - ooo sorry love I don't want to freak you out!!

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treedelivery · 19/05/2009 13:15

Thank you pagwatch.
One more question - could anyone send him samples, after contact and arrangements, or is this done through the health service?

I will look into the nit an the doctor more. Am scared to read the book you mention.

ilovemydogadnMrObama - ooo sorry love I don't want to freak you out!!

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sleepyeyes · 19/05/2009 13:32

Gosh I came to give advice and instead learned something new.
DH has Asperbergs and has soooo many food intolerance's didn't realize there was a link. Will store that for future knowledge when we finally conceive as we are aware that there is a chance of having a child on the Autism spectrum.
I think I might go and look out that book that Pag mentioned.

treedelivery · 19/05/2009 13:35

I am totally ignorant as to what the link is and how it might work, and now I have a dd1 who has had it I am scared to read up. But I have a dd2 who may have cow's milk protein intolerance, so I have to as I feel I need to be informed. Argh!

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pagwatch · 19/05/2009 13:38

tree
he is doing a substantial research project so it is not an NHS service - you can only use it through dirct contact with him.
Your GP probably won't know anything about it ( although if I remember correctly you can get results copied through to your GP for info).

The test costs ( so he doesn't spend all funding on samples) but tis NOT for profit and if cost is an issue you can have a chat about that.

Have a look at the Sunderland Uni website and phone
It can take a while to get through but they are lovely.

Don't be worried about the Halvorsen book. And please PLEASE remember that DS2 had very unusual sequence of events and his reaction to his jab was rare

treedelivery · 19/05/2009 13:42

I will pagwatch - I will look up the man you speak of, and I will heed your advice about not spirraling into panic stations [seem to live there since dd2 was born]

Thank you for using your experience to help me out. I appreciate it and respect the advice you have given. Cheers!

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treedelivery · 19/05/2009 14:31

Have emailed the ARU for their opinion on the case I have in dd2. Will update when have news.

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treedelivery · 01/06/2009 14:31

I emailed The ARU as advised, and had a great reply from the research fellow there.

He basically said that in light of her young age and milk only diet, and bacause there is no family history of autism, urine testing would not be the way to go at the moment.

I have to say though, that given my uncles disability, which is thought to include autistic spectrum, and should she go on to be milk intolerant following weaning - I will contact them again nearer MMR time.

What he did say was that as they gather the background profiles of the autistic children they test - there are several shared profile similarities. I did kind of ask and drop big hints as to what they were, but got no reply

I guess they just cannot release that stuff without it being absolutely proved to be an absolute statement of fact.

Listen - Thanks people. Thanks for CAT-ing me Peachy, although I never actually got back to you properly. Very rude of me, life is bonkers. Though better now I am dairy free, bubba sleeps for more than 20 mins during the day.

Hurrah!

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treedelivery · 02/06/2009 23:54

Blow me over -

Paul SHattock has replied to my email and said to give him a ring to get more advice about dd. Now that to me seems like a blooming marvellous man.

How nice is that?

Will ring tomorrow - now seems a bit rude

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simpson · 03/06/2009 00:05

tree - my DD (16mths)Is severely intolerant to lactose, soya & oats had her MMR after much umming and ahhing from me re research etc) and she was fine

Is your DD lactose intolerant?

As I believe some MMRs may have lactose in them...so do ask beforehand ie ring surgery a wk or so before.

Its worth checking that out.

DD just been prescribed calcium supplement in with yes you guessed it lactose

treedelivery · 03/06/2009 00:20

Hi simpson

Good tip I will check!

She is young, so I have time to worry and plauge ask you all lots of questions to be well prepared.

We still have no actual final 'yes' on the intolerance question - though I am treating her as such and am dairy free. I think when she weans I'll be able to trial lactose and see if it's that or the milk protein.

Am too your dd is ok. When you have time and if you are willing I'd love to hear how you made your decision, what pro's and con's you considered.

Have myself stopped taking my calcium and multivitamin incase of lactose/milk. So will shrivel and melt from lack of nutrients. All in good milky cause though!

There must be vegan supplements........

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AbricotsSecs · 03/06/2009 00:51

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treedelivery · 03/06/2009 16:55

HoochieMooMa - Very pleased dd is improving. So she has intolerances to all those things? Did you find out through skin prick testing?

So I spoke with the man himself - what an interesting 'normal' guy. Seems so down to earth. So his thinking was that were Hatts to be intolerant for sure [it's hard at 4.5 months to know anything] then about 10% concerned about MMR, given the lack of other genetic factors.

So I'll wait and see. If she is, and it's as sensitive an intolerance as it threatens, then we may well look at single vaccines.

What a lovely guy though - it is generous of him to speak on the phone in such a way.

I will for sure keep her on minimal dairy and gluten till she is a year at least.

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treedelivery · 03/06/2009 17:45

So yeah - futher to that - as in 10% right to have a concern. Not that the MMR would be 10% concerning, iyswim?

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saintlydamemrsturnip · 03/06/2009 18:32

We kept ds2 gluten free until he was 2 and ds3 gluten free until he was about 4. Both boys have limited gluten because ds1 is gluten free.

We did switch ds3 to goats milk when he was 16 months after a chat with Shattock. His development was a little odd and we were concerned. I didn't want to put him on soya. He suggested goats or guernsey cows as both a different type of casein to fresian cows and goats is easier to digest. We switched and there was a big difference very quickly. DS3 is 4 now and developing completely typically.

pagwatch · 03/06/2009 18:59

He is nice isn't he tree

As it turns out DS1 and DS2 had the urine profile but only DS2 was 'triggered' IYSWIM.
I think DS1 is a little burdened by the notion that he dodged a bullt that hit his brother IYSWIM. We are of course challenging that with him all all the time - not least because if DS2 lucked out with the ASD hit he certainly lucked in with his lovely big brother .

i am glad you are getting some helpful advice

AbricotsSecs · 03/06/2009 19:38

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