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Neurologist appt next week...TERRIFIED...please give me some virtual support

79 replies

claricebean · 12/05/2009 13:51

Hi, I have 8 more days to wait until I see a neurologist. To say I am terrified is putting it extremely mildly. I noticed a weakness in the fine motor skills of my left hand a couple of years ago. But it only happened during certain tasks which I rarely perform (like tying knots in thread to hang the Christmas decorations up). In the last month, I have suddenly noticed a real inability to perform other fine motor tasks like doing up tiny buttons. My GP has referred me to neurology. Of course, I thought the worst and couldn't leave the google search button alone. I know, I know. But anyway, I have discovered that loss of motor neurons if never really a minor thing. I have self diagnosed a form of motor neuron disease. I know you are going to tell me that it's probably nothing, but the thing is, I know now that it can't be nothing. I am finding getting through the day almost impossible. DH and close friends are being incredibly supportive. I just want to see my DC grow up.

OP posts:
pindy · 11/06/2009 08:19

Fantastic news - now relax and enjoy the summer

claricebean · 11/06/2009 12:05

Thank you all. I am really going to enjoy my summer now.

A slight update. All the above happened via the private system. And today I had my first appointment with the NHS (equivalent) neurologist. Of course I went there in a much more positive mind frame than I would have done had I had to wait until now to see a doctor. Anyway, I gave him my history and all the tests that have been performed so far. He agreed that they rule out anything awful, but he is going to do some further tests to try and find out what is actually wrong. I am delighted. Yesterday was such a huge relief that I didn't really care what the actual problem is. But it would be nice to find out as I don't imagine it will go away on its own, and it may get worse.

We travel back to the UK for July and August, so I am sure that the test (another EMG but this time with needles, yikes, rather than electrodes which apparently gives greater precision) will be after we get back. Thank goodness I went privately in the meantime, otherwise I would face starting all the MRI stuff now and it would definitely not have all been done before the summer.

So now I can enjoy my summer, relax, and know that when we get back in September they will try to find what is causing the problem.

Thanks again for all your support, stories, good wishes and long life predictions!

OP posts:
jmontan27 · 11/06/2009 12:10

Just read the update - SO pleased for you! Hope you have a lovely, worry-free summer!

l4k · 06/11/2011 18:57

claricebean- did you ever fine out what was causing your problem?
hope you are well.

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