Hello again
I'm sorry, I keep losing the thread. The brain fog is hideous and clearly my use of technology just as bad.🙇🏻♀️🙇🏻♀️
How is everyone doing???
My update, which I would appreciate any advice on Is that I have had the 4D CT scan &
Semil (?) but they were both inconclusive and now they have suggested exploratory Surgery.
I have been using AI to help me draft emails to the consultant. They suggested another scan (choline PET) at a London teaching hospital and the medication someone mentioned above in the meantime.
Due to my Stroke and the medication I am on Ai has written me an email template pushing for this further scan.
I think AI has focussed on London because the previous AI told me to ask for a referral to a London teaching AI has been very helpful to me but also tends to just go down one route to something unnecessarily.
The person they recommended at UCL age is Tarek Abdul Aziz They say he is explicitly recognised by patient network for managing complex parathyroid cases and is an active medical advisor parathyroid Charities.
At imperial College Hammersmith Hospital They have Recommended Mr FAUSTO PALAZZO or Miss Amiee DiMarco
They say Hammersmith Hospital House is one of the highest volume endocrine Surgery units in Europe high volume centres are proven to have the success rates when tracking down hidden gland.
The third one they have Recommended is Mr. Shad Khan (which some of you have mentioned). They say he is widely noted as the highest volume endocrine surgeon in the UK according to BAETS data he has extensive experience navigating cases where standard scans have failed to locate the problem issue.
Frankly, I'd have it done on the moon if that was my best location. So I'm open to any other locations. Does anyone have any thoughts on my three options??
They have given me an email template to ensure my Stroke (it makes general anaesthetic even more risky and the longer I'm under the riskier it is )and medication is highlighted in the referral. Another thing is that I have a keloid response to scars, so minimising cutting would be preferable.
With the hideous brain fog, I am getting very confused. So any straightforward non-complicated advice anyone can give me would be really appreciated.
I haven't joined the Facebook groups for two reasons one being. I need to set up a new email as I can't have it linked to my ordinary facebook for family reasons and that seems beyond me just now and secondly I can't process a lot of information so so many people with different opinions might be more confusing for me
I have so much going on at the moment, both healthwise and not healthwise that it's all just becoming overwhelming.
Sorry for any mistakes I'm using a voice to message which isn't always brilliant. I do try to pick up the mistakes before posting, but I'm finding it difficult to correct them at the moment🙇🏻♀️🙇🏻♀️
I live next to a vets, the temptation to ask him if he would do the kind thing gets overwhelming!!!