Parathyroid Surgery - advice please

[Azuresky68]

I would like to know about parathroid surgery as I have an appointment mid November to discuss this. I am pretty anxious. Went to doctors over 2 years ago as I was always so tired. I am 69 , retired with an active lifestyle.
Tiredness only recently linked to my parathyroid when they detected high levels of calcium in my blood. I have had.treatment to remove a kidney stone. Last week I had a bone scan. Any advice about the operation would be great.

I had my parathyroidectomy in February in Cardiff with Mr Patel. Feeling MUCH better. I will have a bone scan in around a year to 2 years' time but other than that, all finished with the awful business!

Husband had surgery a few years ago. Used my bupa for the aactual operation, day case general anaesthetic, all fine - worse but was he couldn’t wee after the anaesthetic so they kept him in overnight til he had a wee. I know he would say get it done, he was in and out of hospital on a drip for months before .

Ive got a Consultation next week with Mr Shad Khan next week about potentially needing this surgery.

I’ve been unwell for a year and recent blood test results are indicative of hyperparathyroidism. I really, really hope he can help me.

@Hollyhobbi good to 'find' you again! We were on another thread together (I've name changed) but it petered out & in searching I couldn't get your user name quite right to find you!

my brain fog. Nausea & general unwell feeling make concentrating on data quite difficult.

my latest blood tests were:

Serum calcium 2.52
adjysted SC 2.66
SI phosphate 1.08
SA phosphate 75
Serum Albumin 40
SPH 12
D3 83 (but I'm taking 4x 4000iu per week)
which of the calcium ones do I need to be looking at?
whuch is the magnesium?(I can't see anything obvious?)

TIA
for any thoughts/advice
xx

So pleased for you, I hope you go from strength to strength x

Good to hear he's doing well & would recommend it 🤗

would I need to go route to get an appointment with Shad Khan?

I remember the brain fog and don’t miss it a bit! Whats SPT? I would be 99% sure your magnesium wasn’t tested as you have to ask for it to be done. Apparently it only goes 57p so they have no excuse not to test it! The abbreviation is mg. 83 is very good for pre op vitamin D. Have you joined that facebook parathyroid group I mentioned?

Medically I have a lot going on, so it's difficult to know what's causing what 🙇🏻‍♀️.

im 57, T2 diabetic, had a stroke in January 2025 ((well 2 together actually)

have been 'watch & wait' with Macolopathy (would prefer not to have the eye injection if it goes by itself!!) in May sat check up for that I suddenly had prolific retinopathy (no issue previously) which I'm having eye laser for.

I wasn't on any meds before the stroke, my diabetes was (successfully) diet & exercuse controlled. I'm now on blood pressure meds, statins. Metformin & blood thinner.

I also have GTPS (hip problem) & seeing someone re lower back pain next week.

if I were a horse....

thank you 🌷

sorry brain fog...

what is SPT?

I just looked again, can't see mg. What would it be under in my results?

I started taking magnesium last year but had to stop as it gave me vertigo.

I haven't joined the Facebook group as I don't have a Facebook account. I'd. We'd to set up a new email & it all feels a bit overwhelming. Post Stroje/Brain Fog it's horrible.

if you could link to it I can probably read it.

thanks again
Katie

I emailed Mr Khan’s secretary directly yesterday to ask for a private consultation to discuss all my symptoms and blood results etc.

She emailed me back 3 hours later and offered me an appointment for this Saturday! (His initial Consultations are via WhatsApp).

I couldn’t do the Saturday but I have got an appointment slot booked for next Wednesday.

Oh that's great! NHS or private?

woukd you mind giving me the email address.

@Wontbackdown

would you mind telling me how much it cost to go private with SK?

The Initial consultation is £150.

You then have the option of joining his NHS waiting list for treatment or paying private (and obviously getting the treatment MUCH quicker!).

I can’t afford to have the treatment done privately but I’m paying privately for the consultation so I can at least get on the waiting list rather than be referred by my GP and wait another 4+ months to even speak to him.

I will PM you.

Hi there. Just an update. I am waiting for my op and although dreading it, I feel confident that i am in safe hands with my consultant based in Leeds. Good to get the updates. Wishing everyone all the very best xx

Thank you.

Endo is booking me kidney & bone scans. Ordered blood tests & I have to do a 24 hour urine collection.

so I guess I'll need to do all that first.

he's told me to drink a lot more water too. 2-3 litres a day.

I hope you get a date soon, the waiting is horrible.

Blood tests are all I’ve had done but he is still happy to have the initial consultation.

He has said that I can then just forward on to him the results I get from any bone scans and urine collection tests as and when I have them done.

That’s a lot of water! I know I probably don’t drink enough but I’m already waking up 2+ times overnight for a wee, I’d never be off the loo if I was drinking that much 🤣

Well, the 24 hour urine collection container is 5 litres!! 🤣 he did say I don't need to worry about how much is there, just that it's every drop for 24 hours!

im going to have to ring the hospital tomorrow as I can't get the online booking to work for my blood tests. 🙄

I'll try to drink more water as early in the day as possible! I don't sleep much/well so I really don't need anything else disturbing my sleep 🤣🤣

Don’t restrict your fluid intake as this can be dangerous with phpt. Also insomnia is another symptom of this disease! Endos will try to blame perimenopause and menopause for your symptoms but they are not the cause! Also insomnia the Facebook group a male member was told his symptoms were the male menopause but of course they all vanished after he had successful surgery!

No, I'm not planning on 'restricting' my fluid intake, just actively increasing it more so in the mornings.

yes I have insomnia, but have always had it. It's not new.

i had an amazing period last year of being 'normal'. Going to bed, going to sleep, staying asleep. Tried to recreate exact situation but made no difference! Same meds etc. people that sleep well don't know his lucky they are.

I have what I think it acid reflux/ indigestion?! I was prescribed landoprazole but it made me feel really unwell & didn't work very well. I now take actively once at night once in the morning. Which helps a lot, but doesn't get rid of it completely. Any thoughts??

bloids booked Fri 3rd July. It's mad having to wait 2 weeks just for bloods!

Most of us on the website (over 5000 people) have digestive problems. This is another symptom of phpt. It slows down the digestive system.

Thank you.

he asked about constipation (not an issue) but not this (not sure, but I think it's acid reflux). It's a bIt better when I take the actively, but still there & can be quite intense in the morning before I take the next Actimel)

Silent reflux and acid reflux because the high calcium and pth slow down the digestive system. Pthp is very dangerous if left untreated as it affects every cell in the body.